I Have Arnold Chiari Malformation

Personal Stories, Advice, and Support 29 People

    Living With Chiari

    Hello Everybody, my name is Kacee and I am 23 years young. Two years ago I began having chronic migraines accompanied with nausea and severe neck pain. I went to see my normal doctor and she told me it was stress related and put me on a anti- depressant. I stayed on them for six...
    jdkt4e55 jdkt4e55
    Jun 20, 2013

    Little Bit About Me :)

    I'm 14 years old i have something called Arnold Chiari Malformation i found out i have it this year. was getting a check up on my back because i had/have teethed cord where your nerves are rapped around your spine. I also have Scoliosis and Syringomyelia. I know i have my friends...
    celenalady654 celenalady654
    13-15, F
    Oct 6, 2012

    My Daughter Has Chiari Malformation And We Need To Raise Awareness

    My 5 year old daughter was diagnosed 2 1/2 when she got diagnosed. She has had two decompressions and through the past few years I have came to the realization of how little is known about Chiari. Im writing this to let you all know that CONQUER CHIARI (a 501 (c)3 nonprofit) is...
    sschroeder6167 sschroeder6167
    1 Response Aug 25, 2011

    Headaches All the Time!

    Began having constant headaches only on the left side of my head, followed by deep inner ear and jaw pain. Then my neck began to hurt and my left shoulder burns like a furnace. I've always leaned to one side and laughed about it; always stumbled around and thought it was just a...
    TexasToast TexasToast
    3 Responses Aug 26, 2009

    Trying To Cope

    Ok where do i start,.. i was told that i have spina bifida when i was young, not a lot of concern was noticed so i assumed i was fine. I was around five when i was fitted for leg braces, at the same time my chest began to stick out, again nothing i can remember was said about it...
    peachfuzz68 peachfuzz68
    41-45, F
    Feb 10, 2012

    Since Surgery July 27, 2009

    I had my Chiari surgery July 27, 2009:( Since then my head, neck & back hurts really bad,  my arms & legs still go numb, ringing in my ears I feel like I'm going to choke:(  I don't sleep at night:(  When I had my surgery I was at 23cm:( I had...
    mrsallanwstill mrsallanwstill
    41-45, F
    5 Responses Jul 17, 2010

    Having surgery soon and I'm

    both scared and depressed. I don't know what I want a vacation, to disappear... I don't know life doesn't feel right anymore. I'm relieved knowing that my symptoms lead to something... I hate doctors but I love my Neurologist ( he's the best thing since sliced bread). I'm a 3rd...
    luvmi luvmi
    31-35, F
    1 Response May 1, 2014

    New To Chiari But Not To It's Symproms...

    all my life I have suffered from pounding headaches, fatigue, black outs, and short term memory problems. I was just finally diagnosed with chiari a little over a month ago. my symptoms have worsened with numbness and sometimes paralysis, however they did not find my ACM until I...
    jaiyedeanne jaiyedeanne
    2 Responses Sep 21, 2011

    Thought this was funny

    and had to share!
    Mayleehawkeye Mayleehawkeye
    22-25, F
    1 Response Apr 2, 2014

    Death Experience Because Of Uncorrected Arnold Chirai Malformation

     I have had ACM my whole life and have been affected by it the same time.I had no idea I had this genetic malformation until over a year ago.Since then I have been trying to figure out how to get this fixed because the Neurologist that diagnosed me with it in the first place...
    lilredhood27 lilredhood27
    31-35, F
    3 Responses Jul 17, 2010
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