I Have Arnold-chiari Malformation, Type 1

A Arnold-Chiari Malformation, Type 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Arnold-Chiari Malformation, Type 1. You're not alone. 37 People

    My Story, My Chiari.

    I never thought I would be someone who deals with this. I found out when I was 13 that I had Arnold Chiari. I had fallen down the stairs, and they never did a scan of my head to see if anything was wrong. I passed out, couldn't breath. It was horrible. I would turn my head one...
    bettybaby318 bettybaby318
    Feb 2, 2012

    Recent Mri Confirmed Chiari 1 Malformation

    Last year in 2009 I was having alot of muscle aches and weakness, along with headaches and chronic fatigue. I had always been a migraine suffererer, and had just gone off a strong antidepressant and back to other antidepressant since I ran out. I figured out that my pain and...
    hwidman hwidman
    31-35, F
    May 4, 2010

    Diagnosed With Chiari and Syringomelia

    I have arnold chiari malformation with syringomeyelia, i was diagnosed with this about two months ago when my whole left side was in severe pain and i lost my voice i went to the doctor she thought it was lyme turned out it wasn`t sent me to a ent doc and he told me my left vocal...
    pam44 pam44
    1 Response Oct 2, 2009

    Chiari Malformation

    I just recently found out I have chiari malformation about 2 months ago. I was having symptoms like migraine headaches, loss of balance, dizziness and tingling on the bottom of my feet. Ever since I found out I have this I have been noticing more symptoms coming along. Like hand...
    elsanter elsanter
    26-30, F
    Mar 24, 2011

    Newly Diagnosed

    I've had migraines my whole life. My mom started seeking answers to my pain at age 3 when I cried out that my "hair hurt".  She always knew that something wasn't right. There had to be something beyond migraines. The medicine never worked for me. I was always in pain. In High...
    RandallH RandallH
    31-35, F
    1 Response Nov 30, 2011

    Chiari Malformation Type 1 In Children

    My daughter is 7; and has just been diagnosed with this.  We found out from an MRI; and the doctors are trying to figure out what to do next.  We had the MRI for something unrelated to anything to do with Chiari Malformation; it was done because my daughter is 7 in age...
    walkerbmkk walkerbmkk
    31-35, F
    1 Response Oct 17, 2009

    Just Diagnosed

    I have just been diagnosed with arnold chaiari malformation type 1. It was a complete shock because they werent actually expecting to see anything on my MRI and was unrelated to why I had it in the first place. Im a bit confused and don't know a lot about it even though I've...
    chloena1 chloena1
    18-21, F
    9 Responses Jul 31, 2009

    Is it possible for Chiari Malformation type 1

    to get worse after three years of being told that it was getting better. I hit the back of my head on a board I didn't see when I was feeding my chickens. The hit was painful and left me dizzy and made the place where my chiari is feel weird. But that was almost two months ago...
    odessa94 odessa94
    22-25, T
    May 27, 2015

    Confused :(

    Hey every1 im Mel and ive just been diagnosed with Arnold Chiari Malformation type 1, and i dont av a clue wat im doing. I got married 6 weeks ago and since the age of 11 i av been experienceing terrible headaches which people kept telling me wer only migranes, and considering i...
    MelissaO MelissaO
    26-30, F
    Oct 25, 2009

    How Long Will It Take to Recover and Will It Help

    Ive just been dianosed with chiari malfornation type 1 i saw a neorosurgon at the university of penn and he wants me to get the surgery im scared ithe more i find out about the disease the more i dont know what to do im36 years old i have 2 teenage boys and a wonderful wife that...
    2 Responses Aug 13, 2009

    Chiari Or Crazy?

    Last August 2012 I had an "attack". I suddenly became very dizzy, nauseous, walked into walls, and then boom! I fell. My muscles spasmed and became very stiff, I couldn't stand up and my mouth turned down in a very odd frown. My husband rushed me to the ER where after MRI, EEG...
    neelabee neelabee
    36-40, F
    4 Responses Mar 24, 2013

    Living With Chiari

      all my life i have been suffering with chiari and all the doctors thought it was in my head and it actually was.only three years ago was it picked up by a doctor, i am thirty nine years old.i have had decopression surgery about two years ago.not a nice operation,it took...
    family5 family5
    1 Response Aug 24, 2009
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