I Have Arnold-chiari Malformation, Type 2

A Arnold-Chiari Malformation, Type 2 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Arnold-Chiari Malformation, Type 2. You're not alone. 11 People

    Infant With Chiari Ii

    When my son was 18months, he had a vey bad seizure and we discovered he had a Chiari type II. As you can imagine, we were incredible suprised and frightend. We had the decompression surgery and he is now 4 years old. He seems to be doing good but I can't help but always...
    campgabsa campgabsa
    36-40
    Jun 28, 2011

    I have spina bifida and Arnold chiari type 2.

    I'm having extreme pain associated with chiari and mini siezures. I'm wondering if I should have the decompression surgery. Opinions and thoughts welcome(:
    savannah764253 savannah764253
    18-21, F
    1 Response Jun 20, 2014

    Scared

    My name is Patricia Laurin. I am a 51-year-old female who has just (last night) been told I have Arnold Chiari Malformation Type 2. I was born with Spina Bifida and Hydrocephalus. I was told about the Hydrocephalus about 8 years ago. Where I was born, the only thing doctors...
    Wheels57 Wheels57
    51-55
    2 Responses Jan 28, 2009

    Not Quite...

    Hello others, Alright, I don't quite have full-blown Chiari's Malformation, but my cerebellum did develop too far down when I was growing as a child. Usually in order to be affected by Chiari's (as I was told by a doctor) your cerebellum has to be 2 cm too far down, and mine...
    thesilenceofentropy thesilenceofentropy
    18-21, F
    Feb 20, 2010

    Starting A Non-profit For Chiari Malformations!

    I am asking for your story. Perhaps a photo of you as well. You can read below about me, and about why i’ve decided to start this non-profit org. But for the website, i want people to see you- to understand you. I want to raise awareness of this condition and help people see...
    ArtsiMom ArtsiMom
    22-25, F
    1 Response Nov 11, 2011

    I Will Never From This Surgery

    hi my name is allison i had surgery two month ago chiari malformtion type2 and type4 nothing is healing i was like was when the doctor started the surgery i lost my as file clerk,it is hard to go through to go through this i use to run and do normal stuff i loved my job even...
    aliipoo58 aliipoo58
    46-50
    1 Response Aug 16, 2009
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