I Have Arthrogryposis Multiplex Congenita Distal

A Arthrogryposis Multiplex Congenita Distal anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Arthrogryposis Multiplex Congenita Distal. You're not alone. 11 People

    My Baby Had Arthrogyposis

    Hi everyone... hoping to get a little insight on this disorder. My daughter was born this April and was diagnosed with Arthrogryposis. She is now 5months old and has been in leg casts since 1week old. Her feet were severely clubbed and her legs (the only way I know how to put it...
    xheatherelainex xheatherelainex
    1 Response Sep 19, 2012

    Teen With Mild Amc

    im a 16 year old girl with amc and as you all probably know teenagers are very judgemental. i used to be bullied for it but i learnt to not let it effect me, i even laugh along with the jokes myself. It hasn't made too much of a physical effect on my life although my parents were...
    rhi3d rhi3d
    18-21, F
    1 Response Nov 3, 2013

    My Awesome Life

    Hey all, I'm 24 years old and have AMC. I have never really let it affect me and if anything, I truly believe it has given me MORE strength than I would have had otherwise, due to all the trials and failures physically at a younger age that I have had to overcome. I...
    JLN688 JLN688
    22-25, M
    2 Responses Feb 15, 2010

    Hey I'm kyah and I'm 14 years old I was

    diagnosed with distal arthrogryposis type 1 I have had some pretty rough patches I have 12 scars and 8 operations so far I just wanted to see if I can relate to anyone ?
    kyah05 kyah05
    16-17, F
    Oct 22, 2014

    Docter Here In Oregon Still Just Meds Thats It

    hi  i have amc still dont no what kinde im 44 years of age .like moste i had  cast on my legs  at birth.tell 4 years of age. then had hand surgery on both hands every yeae one a year tell 16 years of age that cut  all finger   and in betwenn i have...
    daniel1964444 daniel1964444
    41-45, M
    2 Responses May 14, 2009
More Stories