I Have Atrial Myxoma, Familial

A Atrial Myxoma, Familial anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Atrial Myxoma, Familial. You're not alone. 20 People

    Left Atrial Myxoma & Cerebral Aneurysms

    I am surprised by how many people there are on here who have gone through the same ordeal as me! But it's good to know there are a few more people out there.I am from the UK, and first started to get sick back in May 2009.  I remember the exact day when I started really noticing...
    Sooz37 Sooz37
    36-40, F
    2 Responses Nov 6, 2011


    Once I turned 40 I started seeing a cardiologist to make sure my heart was fine. I had palpitations anxiety and stayed stressed out a lot. I am very fit and healthy and has a good strong heart cause I do a lot of cardio. So every year my cardiologist would examined my heart and...
    Swain4551 Swain4551
    3 Responses Sep 20, 2011

    At Age 29, One Open Heart Surgery Under My Belt... Possible Second One To Come :(

    The only thing that comforts me is knowing that I am not the only one who has gone through this. I had symptoms for over a year before they found a myxoma on my left atrium. My symptoms were very weird... It started out as random swelling and pain in my fingers and toes. As time...
    Kellisgyrl Kellisgyrl
    4 Responses Jan 1, 2012

    Myxoma Adventures!

    I am 54 years old and four weeks out from open heart surgery to remove a left atrial myxoma. It has been interesting to discover this site and to see so many others who have had a similar story. The doctors tell you it is very rare and so it is a surprise to read all these...
    teacherlindylou teacherlindylou
    56-60, F
    3 Responses Oct 26, 2013

    My Myxoma

    Hi, I had a left atria myxoma removed 3rd August 2009, slightly larger than a golf ball and flicking through from one chamber to the other. It was quite a sight. It is now over a year and I feel fine, just lucky that it was caught in time, before it did any real damage. I am 47...
    pix2 pix2
    1 Response Nov 5, 2010

    I Had Myxoma

    My operation seems so surreal now. Without the reminder of my scar, I sometimes forget it even happened. I can't tell you when it started it or how it came to be. For all I know I could have been walking around with it for years. It was only a few years ago, 3 to be exact, that...
    oceans1288 oceans1288
    46-50, F
    1 Response Jun 2, 2010

    My Open Heart Surgery

    I'm sharing my story for people to be aware of an overlooked condition, atrial myxoma.  Atrial myxoma is basically a heart tumor, mine was located on my left atrium.  From what I've researched there are really not very  many people reported having it.  My...
    hosana hosana
    63 Responses May 20, 2008

    My Left Atrial Myxoma (found 2/13/12 Scheduled For Removal 2/23/12)

    Hello,My name is Maria and I live in Glendale, California.  I want to share my experience with all of you who have shared your experiences with me.  Thank you for that.  The first thing I remember about this started in April of 2011.  I am not a stranger to panic attacks...
    theadoll theadoll
    31-35, F
    2 Responses Feb 17, 2012

    A Short History Of My Myxoma

    4 weeks ago, on Nov 29, 2010, my myxoma had been removed from my left atrium. I started to keep a log of events on my personal blog at http://www.sk-bc.ca/myxoma It is not completed yet, I work on it. Feel free to check it out. Goodddictus
    gooddictus gooddictus
    Dec 31, 2010
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