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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 58 People

    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 66-70 Apr 20, 2013

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 41-45, F 1 Response Sep 8, 2013

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    Related Experiences

    I was recently married and working at a full time job at a medical clinic. We were having our yearly wellness exam for our insurance. Not even 2 days later, I received my results...
    Ilovetosing626 Ilovetosing626 26-30, F Aug 22

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    With Sept being thyroid awareness month, I wanted to share my experience w/ thyroid disease. Within a yr of separating from the Air Force in 2005, I started experiencing strange...
    afdragon afdragon 36-40, F a week ago

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    I'm 40 years old, and I have suffered with what I believe to be APD for over 20 years now. Not every single month, but almost every month, and some months more severe than others...
    DollyLynn DollyLynn 36-40, F 1 Response Aug 25

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    At 12 I started to notice a mood and personality change and have chalked up my sadness, mood swings, lack of interest, and inconsistent insomnia to near comatose states to being a...
    Bobbyckat Bobbyckat 18-21, F 1 Response Aug 15

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    I broke it June 15, 2011. Because my blood pressure was bad to begin with due to an autoimmune disorder I have, they didn't diagnose it the night I broke it; in fact, it took them...
    traurigerpanda traurigerpanda 26-30, M 1 Response Sep 1

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    Have any of you seen, or broken out in a rash that looks anything like this? This rash was on my right leg, on the side of the knee. Not pictured is another rash (same leg) that...
    catsmeow59 catsmeow59 51-55, F Aug 23

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    I'm thinking of setting up an online forum for ppl in Australia with a neurological condition called Chorea (sounds like Korea). An uncontrollable dance-like movement that the body...
    heyitsabike heyitsabike 31-35, F Aug 31

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    Money or No Money Having been sitting down for over 2 hours, I decided to hide myself in the conference room. For once, it was all silence. The only sound I could hear was the...
    cedicoin cedicoin 26-30, M 1 Response Aug 28

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    I'm tired of struggling with this condition and everything it entails. I was dismissed from my doctor's office because I "dared" to have a thyroid ultrasound somewhere else and...
    deleted deleted 26-30 1 Response Aug 29

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

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    I can't say for sure that I have MS, I just hate that there is no one test to know for sure if you have it or don't its like a sum of all the tests that gives the answer. What do...
    Beatles22 Beatles22 26-30, F 1 Response a week ago

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    I have a type of leukemia, Acute Lymphoblastic. Pretty much cancer in bone marrow. I'm a high risk. It gets you thinking about stuff. I had to quit my job and can't go to high...
    Btimez3 Btimez3 13-15, M 1 Response 4 days ago

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    The statistics are alarmingly frightful, how many ppl out there actually do have stds that are permanent and Incurable, if it weren't for diseases, I would be much more liberal...
    Lthayer2011 Lthayer2011 18-21, F 2 Responses 2 days ago

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    Well, I do have family -- up until 1993 I had 7 siblings. When they all were told my dad was dying and to come see him. I was not told until after he died that he was sick. All of...
    iamtheworst iamtheworst 56-60, F 21 hrs ago

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    BANDED ANT-EATERThe numbat (Myrmecobius fasciatus) is the faunal symbol of my home state of Western Australia and, sadly, there are only about a thousand of them left in the wild...
    amberdextrous amberdextrous 51-55, M 14 hrs ago

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    PART 2 Last September right before my birthday, she confessed her attraction to me. Is it because she feels bad for me because I don't attract guys, as well as the fact I can't...
    RainbowPastel RainbowPastel 16-17, F 2 Responses 11 hrs ago

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    Throughout my life I have had many dreams from my own perspective (seeing through my own eyes) of mediocre moments that have come true exactly as they appeared in these dreams...
    mcordima mcordima 36-40, M 11 hrs ago

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    By supplying our elite products and services into the residents of Perth, we can assistance our community. Our perform generates powerful, tough, and exquisite houses that have the...
    Noelict Noelict 31-35, M 1 Response 10 hrs ago

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    Hi guys, I am about to be 20 in a few weeks and I am still living with my parents. I work and go to college Monday to Thursday but they make my life more difficult each passing day...
    mayy95 mayy95 18-21, F 10 hrs ago

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    For about 4 years now I have suffered with depression, and each year it has gotten worse. Starting out with avoiding people amd feeling sad more than normal, to feeling even sadder...
    Halcandra Halcandra 22-25, F 2 Responses 9 hrs ago

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    I hate that I have SA. It controls my whole life. I never want to leave my room. I was forced to go to school yet I hid in the back of classrooms basically shaking. I could never...
    Lovemydogs612 Lovemydogs612 18-21, F 2 Responses 7 hrs ago

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    My mother had misophonia. I didn't even know what this was until I was an adult and someone else pointed out the definition of the condition to me. We were raised knowing that mom...
    autumnluv143 autumnluv143 31-35, F 1 Response 5 hrs ago

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    I'm recovering from anorexia. I have a heart condition. I have a stomach condition. I have several neurological disorders. I have scoliosis. I'm recovering from bulimia. I have...
    wh0isit wh0isit 16-17, F 1 Response 5 hrs ago

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    When i was in fifth grade my mother was diagnosed with clinical depression and my family changed forever.In my 4th grade year she started taking 6 week leaves from work.I had no...
    ordinaryemma ordinaryemma 22-25, F 4 hrs ago

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    (Beware, I may get a little graphic.) I have emetophobia. I guess I should start the story from the beginning. I'm not really sure when it started, but I think it stemmed from...
    bridget1234567 bridget1234567 13-15, F 1 Response 2 hrs ago

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    How do I know when best to speak? How do I know when to say what I am feeling or thinking? I have been holding off for a few days now, giving him breathing room. I have just...
    WingsofTime WingsofTime 22-25, F 2 hrs ago

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    Making Friends at Payless... Don't be afraid guys..."TRY THEM ON" Those are the three magical words my favorite sales associate, Maribel told me in 2010, and they still ring true...
    esthr009 esthr009 46-50, M 3 Responses 2 hrs ago

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    It's been almost two years since I learned I had this. It is great knowing that I'm not alone, and that I'm not a terrible person... But now what? I'm unemployed, I don't have the...
    WantingToHope WantingToHope 18-21 2 hrs ago

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    I never thought I would be the person to become addicted to such a thing, but I am very into tattoos!! I have a few and crave more all the time; I feel that tattoos are an example...
    notshortfunsized notshortfunsized 31-35, F 2 Responses 20 hrs ago

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    I know it doesn't seem like a big deal. Everyones parents are divorced nowadays right? I live with my mom, and about a thirty second walking distance from the rest of my maternal...
    looloo55 looloo55 13-15, F 2 Responses 19 hrs ago

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    Why don't pizzas have any square toppings? I'm not ocd but pizza slices are triangle, the pizza is round and the box is square. They've got triangle pineapple and round pepperoni...
    baconrind baconrind 26-30, M 3 Responses 17 hrs ago

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    I might suffer all of this but since you all are strangers I don't see reason why I should go into detail about the depth of it all. I think that what I'm sharing with you about...
    Sourminds Sourminds 18-21, F 1 Response 16 hrs ago

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    I have to keep telling myself this. I can do this. I can graduate college with an offer letter. I can get at least 65 for my english. I am not going to disappoint my old man. I can...
    minyue minyue 18-21, F 1 Response 15 hrs ago

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    of any Kind. mostly during the night, when i wake up as usual. i am scared of everything, everything that could or will happen, every Problem i have. and in rare cases, when i have...
    Crown63 Crown63 51-55, M 1 Response 14 hrs ago

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