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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 73 People

    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 2 Responses Sep 8, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    deleted deleted 26-30 May 8

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    Related Experiences

    i am tired. i cant help it ! i just cant ! i have tried to loose it but i just cant keep up with the process i feel like breaking down into peices i sometime hate it when i see...
    mniaaw mniaaw 70+, F 15 mins ago

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    Can you have herpes and live a happy life ??
    prettiieve prettiieve 22-25, F 1 Response 44 mins ago

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    It's been a strange few nights. I am not prone to nightmares. I've had them a few times in my life but only a few and at the age of 46, to have only had a few in a lifetime isn't...
    FriendlyBryan FriendlyBryan 46-50, M 51 mins ago

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    Earlier this year I have either done something really cool or something really stupid. One week day during summer holidays this year my mother (early 60’s, me mid 40"s) was...
    auau71 auau71 36-40, M 1 hr ago

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    Just like us, animals have the right to live and hunt, and be happy, without us making them miserable, and make them suffer. They've been good to us, so let's be good to them. When...
    Wolflover1999 Wolflover1999 16-17, M 1 hr ago

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    I just found out I have herpes and am pregnant . I do not know how to deal with it .. all I do is cry
    prettiieve prettiieve 22-25, F 1 hr ago

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    I'm tired of life. As far as I can remember, negative emotions have been the ones controlling my actions/decisions. I mentioned before that I've tried to kill myself using my gun...
    bhabhablacksheep bhabhablacksheep 22-25, F 1 Response 1 hr ago

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    Damn, I forgot how loud those sirens are. In a few minutes I'll probably be getting my next ride, and I have no ear plugs.
    reaperthejack reaperthejack 13-15, M 1 hr ago

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    First of all I really hate when people relate bromance and homosexuality. Those are two things that are not necessarily linkable. I am 22 years old and I am straight. In my...
    dranybuks dranybuks 18-21, M 1 hr ago

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    I have and am currently cheating on my husband for the affection. My husband and I still have sex semi-regularly, but I can't remember the last time he kissed me with any passion...
    MrsStrangeLust MrsStrangeLust 41-45 2 hrs ago

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    Hey everyone! So I've been dealing with IBS and collagenous colitis for years. I just started a new diet for IBS-the low FODMAP diet, and I'm really hoping it works. I haven't...
    khuntley3 khuntley3 22-25, F 2 hrs ago

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    In this case, it's actually a huge crush that I have on this girl and it's been going on for some time now 😩 I'm currently 18 and she's 17. Her names Leslie and I know her...
    Gabe1997 Gabe1997 18-21, T 2 hrs ago

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    Travelling, travelling and more travelling. Often between two varying climates. Sometimes you have to pull over & rip your top off... And chuck a on cooler t-shirt.
    BreakingBored BreakingBored 41-45, F 1 Response 2 hrs ago

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    I think. Thirty years I have been living my life believing I have an autoimmune disease called scleroderma. Along with hypothyroidism, which also has been with me for 30 years...
    lethalea lethalea 46-50, F 6 days ago

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    I have a question. Not finding much on the internet. I have been diagnosed with AIH for 1.5 years now and on Imuran for the same length of time. Recently, I have noticed spots of...
    FierceDeity FierceDeity 22-25, F 6 days ago

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    RABIES DISEASES God bless Dr. Adagba for his marvelous work in my life, I was diagnosed of RABIES DISEASES since 2010 and I was taking my medications, I wasn't satisfied i needed...
    markrobbin111 markrobbin111 41-45, M Aug 27

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    My poor baby has autoimmune disease...my brother rescued him from being beaten by a bunch of kids and I've had him for about 2 years now and just love him to bits and now he's in...
    LilyAntoinette LilyAntoinette 18-21, F 1 Response Aug 26

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    methacillian resistant staphylococcus aureus (mrsa) im not quite surr how i contracted it? either working in a hospital environment, or being a patient? this is a resistent strand...
    StreetgirlnamedDesire504 StreetgirlnamedDesire504 36-40 Aug 25

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    hi im new to all this and don't normally post online but thought it's worth a shot. i finally went to the doctor last week after symtoms since i was about 16. I've also had...
    Flenty Flenty 26-30, F Aug 19

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    Hello, My name is Dorsa. I am an intern with Rare Genomics Institute and RareShare this summer. We are helping research information on rare disease and I am looking to interview...
    dorsaa dorsaa 18-21, F Aug 18

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    Multiple autoimmune disorders. My body is attacking and killing itself. No wonder I feel suicidal sometimes.
    SoulCoffee SoulCoffee 26-30, M 1 Response Aug 14

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    I have been dealing with Hidradenitis Suppurativa for few years. It is an autoimmune disorder affecting the skin. Anyhow, I started having so much pain and was told HS damaged some...
    SoulCoffee SoulCoffee 26-30, M Aug 14

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    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

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    I can feel my eating disorder coming on again... I was on prozac until recently- which got rid of my anxiety. since getting off of it, I have been abusing stimulants, laxatives...
    PoshPoet PoshPoet 22-25, F Aug 8

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    I have broken over 20 bones including my collar bone both my femurs more than one once my ribs my knee twice both my feet more than once and fractured my back in three places
    OIGirl18 OIGirl18 18-21, F 1 Response Aug 5

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    I have had 8 surgeries since I was 6 years old
    OIGirl18 OIGirl18 18-21, F 1 Response Aug 5

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    I have very severe scoliosis a 45 degree curve and it constantly hurts and my ribs are shaped weird and my hips are out of line
    OIGirl18 OIGirl18 18-21, F 2 Responses Aug 5

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