I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 89 People

    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf
    70+
    Apr 20, 2013

    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee
    36-40, F
    1 Response May 30, 2009

    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81
    31-35, F
    1 Response Apr 1, 2014

    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012
    41-45
    5 Responses Dec 15, 2011

    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers
    41-45
    2 Responses Feb 13, 2013

    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee
    46-50
    Apr 2, 2012

    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    deleted deleted
    26-30
    May 8, 2015

    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink
    46-50, F
    2 Responses Jan 31, 2010

    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03
    26-30, F
    2 Responses Oct 1, 2013

    I've been sick now for almost a year.

    I'm so so so tired of being sick. I think this past year has aged me ten or more. Without any kind of warning or any trigger that I know of I've gone from a healthy, active, energetic person to one who can barely get out of bed and walk across a room. A 'good day' means I've...
    thatonewoman thatonewoman
    31-35, F
    2 Responses Feb 10

    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax
    41-45, F
    Oct 26, 2013

    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee
    36-40, F
    2 Responses May 8, 2009

    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02
    26-30
    2 Responses Aug 9, 2013

    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68
    46-50, F
    2 Responses Sep 8, 2013

    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee
    36-40, F
    May 14, 2009

    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03
    26-30, F
    2 Responses Oct 2, 2013

    Related Experiences

    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    Don't you think we NEED to have a drunken party??😕To say goodbyeeeeeeeeeeeee to Eeeee Peeeeee???😅I'm up for it - but I'm sure I'll be joining any virtual party from my chair...
    BSTisapain BSTisapain
    46-50, F
    1 Response Apr 4
    why am I posting stuff for. sometime I think I leaf it out. school was great today. to bad I don't have parents. cause it's parents day at school tomorrow. it's sad for me.
    kasydragon kasydragon
    22-25, F
    1 Response Apr 4
    I'd like one but i have a lot of issues and it's like sometimes there's no girl out there who would want me because of those issues I have It's not a priority for me to be in a...
    Dtrax8181 Dtrax8181
    26-30, M
    Apr 4
    Jealousy is one hell of a thing. My cousin and I haven't spoke to each other for YEARS and we used to be the tightly knitted ones. One evening, she texted me telling me she got...
    lunamcmxcix lunamcmxcix
    16-17, F
    5 Responses Apr 4
    It has taken 37 ssri none worked I began cymbalta 6 months ago depression very low pain barely noticeable but I have a choice to use a C2 fur break through pain I have been...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    I have an imaginary lover, but is strange the fact he is a giant teddy-bear (in real, i own him). I like to sleep on him and cuddle with him, to see movies with him and to have sex...
    beatwis beatwis
    18-21, F
    Apr 4
    I'm reading all of your comments at the crack of dawn because deep down I am feeling so depressed and down because of this. I'm a second-semester freshmen and I feel really lonely...
    Helloimjoy Helloimjoy
    18-21, F
    1 Response Apr 4
    Why is so much cymbalta hate and I have had none these side effects is there anyone who like myself who finally began sleeping as I once did and feel less to no pain only use C2's...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    So, my Bulimia used to be about control....a way to stop my emotions. If I was upset or hurt I would B/P so I could somewhat stop feeling. I have started keeping track of what I...
    angelpumpkin36 angelpumpkin36
    36-40, F
    1 Response Apr 4
    New Home for the ILIASM Community Folks dealing with sexless marriages have -- for years -- sought and offered support at the Experience Project in the experience “I Live In A...
    ILIASMAllie ILIASMAllie
    46-50, F
    Apr 4
    54. I think I am generally insecure about my looks. I always think that no man will want to be seen in public with me, show me to his friends because I'm not that 10/10 Russian...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    Do you think the following blurb (from the About section on Experience Again) could possibly be written by someone who has been working on EP?? "A feeling of desolation...
    BSTisapain BSTisapain
    46-50, F
    2 Responses Apr 4
    52. Sometimes I worry about my sanity. I give my attention and focus to a man quite quickly- though, never my heart. I have only met him 2-3 times. But we talk and speak almost...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    If you have Facebook for Iphone/Ipod look someone up then go on the search again then scroll down to posts "name here" likes. You can see everything, also replace posts with photos...
    Paleandpolluted86 Paleandpolluted86
    26-30, F
    Apr 4
    Sometimes I wish Seth Rogen could knock me up so we could have a baby together and then he could play fetch with it like a dog. ...is this only a "Me" wish?? Or is this every girl...
    ERMAHGERD1 ERMAHGERD1
    26-30, F
    1 Response Apr 4
    I was on a spaceship in outer space with all of my classmates and we were sitting in a small theater area with a stage. The band MCR was playing just for us specially. I made an...
    MidnightMeraki MidnightMeraki
    16-17, F
    Apr 4
    #1. Starting today I'm gonna write one down every night till ep shuts. So let's get started. Out of all the people in the world I'll probably be one among a very few to...
    Abi936 Abi936
    22-25, M
    5 Responses Apr 4
    It happened when I had a private class with a pre-school student. He is just 5 yo. Now, I do stupid and senseless actions/ reactions sometimes and boy... how I did it bad today. So...
    ChannelingTruth ChannelingTruth
    26-30, F
    2 Responses Apr 4
    hi guys not long till EP freeze's hope u found off places to go I have. two off them I've join. one is appliestome com . can't remember the other one name. but my user name is the...
    slivereyes slivereyes
    36-40, F
    1 Response Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    https://youtu.be/i56AkejYpdE I know I shouldn't but I Love my dark side because I believe in justice so for all the people who was bullied a kid into suicide, or slaughter animals...
    Kornisone Kornisone
    26-30, F
    3 Responses Apr 4
    dear Chip, i got the tickets baby... I'm so sorry i missed her appearance the first time around. but some how, some way... i knew that she would be coming back to this tiny...
    VeritasAequitas VeritasAequitas
    31-35, F
    Apr 3
    I have a lot on my mind I don't know if I will be able to sleep tonight
    littlerayofsunshine666 littlerayofsunshine666
    13-15, F
    4 Responses Apr 3
    I had a dream the other night in which I was Michael Jackson (never mind that I am a Caucasian woman in real life). I was staying at a villa with some people and for whatever...
    AlacrityMelancholy AlacrityMelancholy
    41-45, F
    1 Response Apr 3
    Dozens have been killed in the conflict and deadly fighting over the Nagorno-Karabakh region. In fact, Armenia has long been perceived as the thorn in the side of its geographical...
    bsvetlana7654321 bsvetlana7654321
    41-45, F
    Apr 3
    Mine is an Intellectual disability. Mine used to be mild but now, it isn't much anymore. Sometimes, it is mild. I had it because i was born a pre mature baby and i had some ripped...
    deleted deleted
    26-30
    1 Response Apr 3
    I keep visualizing my life. I can't tell if it's in the future or intended to be the moment I'm currently in. It makes me question every choice I've ever made. makes me regret the...
    nielle24 nielle24
    22-25, F
    1 Response Apr 3
    Tonight is a sad night. It's one of those what should I do nights. The child is at granny's. The hubs is either in the living room or his bedroom, not sure which. I have...
    bethany444 bethany444
    46-50, F
    1 Response Apr 3
    So I got some really ****** news. I might have to be hospitalized for 2 reasons: 1. ( not to gross anyone out ) but I might have an infection inside my nose cause I woke up had...
    SuchHorribleThings SuchHorribleThings
    16-17, F
    1 Response Apr 3
    ...Yeah, I'm abnormal and am more likely to fall in love with a work of art over an actual person. This includes statues, paintings, and, as you all have guessed, fictional...
    howlsowls howlsowls
    16-17, F
    2 Responses Apr 3
    I have to pee kind of bad right now. I'm planning until holding it until Friday, though. I have a strong bladder. I already feel some pain. I'd love to be tortured. Can someone pm...
    Gabbylovesjustin Gabbylovesjustin
    22-25, F
    1 Response Apr 3
    I love having one. Sadly I don't have many contacts yet. Im straight so $_exting isn't going to happen sorry guys :) but I don't mind chatting gay bi or trans people about things...
    jarocho jarocho
    22-25, M
    Apr 3
    I had a scary dream last night and I know this isn't the first time I've had this dream as if felt familiar upon waking up. Here it is: I'm in a house with a few people, it's...
    ADCue44 ADCue44
    18-21, F
    4 Responses Apr 3
    I always wanted to have super powers as a little boy. I wanted the ability to grow bigger. I always wanted to be a giant, so I wish I could embiggerate myself to epic proportions...
    Profweird Profweird
    22-25, M
    Apr 3
    Anyone wanting to have gay anal in Aberdeen? I'm 16, no older than 35
    xxFraserxx xxFraserxx
    16-17, M
    Apr 3
    50. I'm so in touch with myself that I am out of touch myself. Everything is a routine and I no longer have any real feelings for any emotions. I feel quite numb. I am numb. Even...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 3
    I do get very deep in my fantasies and i love sharing them with people who are open to accept them and even enjoying being in that moment! I love to create stuff which i have not...
    pleasuretobehere pleasuretobehere
    26-30, M
    Apr 3
    When I was in Junior High the whole class got it one at a time, for misbehaving substitute teacher. Our science teacher was strict and didn't tolerate talking or not doing what...
    davedexp davedexp
    56-60, M
    1 Response Apr 3
    My wife and have had many threes ones with her girlfriend but I would really like to try mfm. I've got a best friend that packs a 10" beast and I want to want her enjoy it. Not...
    Shootinone1 Shootinone1
    26-30, M
    1 Response Apr 3
    Call of Duty zombies dream, love this because I get to be with my two favorite characters Nikolai and Dempsey! I ended up on the catwalk in Call of Duty zombies Der Rise. I...
    CaptainDragoness CaptainDragoness
    18-21, F
    Apr 3
More Stories