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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 70 People

    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    deleted deleted 26-30 May 8

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 2 Responses Sep 8, 2013

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Related Experiences

    I haven't been eating much. Started getting really dizzy today. trying to eat and hoping this ED doesn't have me feeling guilty and huge afterwards . i'm just exhausted in fighting...
    brknsilence79 brknsilence79 31-35, F 1 hr ago

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    I have a true love. And I just spent a few months winning him back. We have a long history, but I'm really still quite surprised that I got him back this time. Last night, I...
    prettyprude prettyprude 31-35, F 1 hr ago

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    I have had it so long that I have given up trying to find a way to make it better.
    dixie27 dixie27 51-55, F 1 hr ago

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    When it comes to meeting new people. I am extremely cautious and have a set of rules for myself that I usually stick to. Through experience I have learned that if I don't I could...
    snowberry75 snowberry75 36-40, F 4 Responses 1 hr ago

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    It burns. She doesn't know that she is my everything. My only friend, my only interest, my only confidant, my only everything. She's sees me as a mentor, nothing more. And damn...
    BlackSunCrimsonFyre BlackSunCrimsonFyre 13-15, F 1 Response 1 hr ago

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    As some of you who have been following me probably guessed, I've been a little down in the dumps recently. It's a long story but the long and short of it is that I've never felt...
    AthenaJones AthenaJones 36-40, F 5 Responses 2 hrs ago

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    How am I supposed to know if we have anything in common if you have no stories or experiences? My experience on Ep has taught me that blank profiles usually mean one thing: pervs...
    TheGirlFromJupiter TheGirlFromJupiter 18-21, F 2 hrs ago

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    I am a recovering opiate addict. I spent a few years painting a normal picture that covered the embarrassing truth printed on the wall behind it. While I was running the street...
    BrokenGabriel BrokenGabriel 26-30, M 2 Responses 2 hrs ago

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    Well,i have a lot of them.This one is so stupid,and i seriously don't know why,i do this.My car is always out of gas,lol.I have gotten stranded!I just don't learn.I'm on empty for...
    1prettygirl 1prettygirl 36-40, F 5 Responses 2 hrs ago

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    This is a fantasy that if I could go back in time to make happen- I would. At eighteen, I would be given to a very wealthy and older man. He would adore me and my beautiful body...
    Lisabackstage Lisabackstage 31-35, F 2 Responses 2 hrs ago

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    yes..just so many times that now i cant even remember all of them..i sometimes think whether its them or me...i think something is seriously wrong with me...I trust too much...on...
    sb3007 sb3007 22-25, F 1 Response 2 hrs ago

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    Also--is anyone here aware they may have sleep apnea? Which is a blockage of the airways that makes you wake up and take a breath while you're in deep sleep? I was having it for...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 1 Response 2 hrs ago

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    I would like to share with everyone this healer who has helped me and my family and my friends, who has also helped people become completely cured of insomnia as well as other...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 2 hrs ago

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    My mum still gives me corner time now! Normally, I have to take off all my clothes, and bend over her lap so she can spank me, then I have to stand in the corner with my red bottom...
    ShadowWater ShadowWater 13-15, F 1 Response 3 hrs ago

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    A great TED talk video on conquering your fears so you can have the experiences you want to have by an astronaut who went blind in space: http://www.ted.com/talks...
    LoveIsWithinYou LoveIsWithinYou 26-30, M 3 hrs ago

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    Ending a friendship is never an easy thing. I always use to look for closure at the end of any sort of relationship. I realized this year people will always deny you closure as a...
    vault101 vault101 26-30, F 4 hrs ago

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    There's this girl i've known for a year and yes she's like one of my biggest friends like I would call her a sister but I have a crush on her. It all started last year cause I...
    Decaydence Decaydence 70+, T 4 hrs ago

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    I have moved around so much in my life I really do not have a place I can call home. Thus I have also learned to never attach to anything. I have lived in my current house for 2...
    FeetAreFantastic FeetAreFantastic 31-35, M 3 Responses 4 hrs ago

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    I have thought about this for a while and I'm not one to play around with a woman's heart. However, I live in the UK, around 100 miles from the Capitol and I haven't really found...
    ScarletNero ScarletNero 18-21, F 1 Response 5 hrs ago

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    well after my 21st birthday I stopped counting, now I have anniversaries of my 21st birthday this year I will celebrate my 34th anniversary of my 21st birthday
    desiredusernamehere desiredusernamehere 51-55, M 7 hrs ago

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    It's Saturday morning and I haven't had a good chat with someone for a bit. I'm always interested in something you have to say. I might be making coffee in a bit, wife is still...
    abbyroad56 abbyroad56 56-60, M 7 hrs ago

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    My female urologist last year gave me a physical exam checked over my penis and testicles and did a ultrasound of my bladder.Then she checked physically my prostate which she told...
    justmyskin justmyskin 56-60, M 7 hrs ago

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    My earliest memories of her were the times that I waited in the lounge at the college I went to. I recalled that she and the others she hung out with would enjoy themselves playing...
    Cellfishdude Cellfishdude 18-21, M 7 hrs ago

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    http://bustybabesofep.tumblr.com/ I have lots more too. lets talk,
    ILuvBustyTeens ILuvBustyTeens 41-45, M 8 hrs ago

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    Hey guys, BoobZilla back for another update. As of 8-1-15 I am an S Cup. My total weight is 135lbs. (23lbs. Per Breast). People have been asking the following Qs so I'm answering...
    BoobZilla BoobZilla 13-15, F 3 Responses 9 hrs ago

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    My Maternal family members have always mentioned this story, which is based on a true real life twist that may add up as the story progresses. Hold onto your love, this may explain...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 9 hrs ago

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    It was 4 years back when i wanted to conquer the world. I started drawing as a kid and at 12 discovered my artistic abilities when i would create something and be appreciated for...
    Bllahblah Bllahblah 22-25, M 1 Response 10 hrs ago

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    Holy ******* relapse....downed 3 energy drinks within an hour.... Felt great for a while but now my chest and stomach are in so much ******* pain!!! Ugh I would usually have...
    jackjack600 jackjack600 18-21, F 10 hrs ago