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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 55 People

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    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 66-70 Apr 20, 2013

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 41-45, F 1 Response Sep 8, 2013

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    Related Experiences

    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 1 Response 4 days ago

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    It all started when I got really bad pains in my joints every day it was a new pain somewhere else. To be honest everyone thought I was crazy I knew something was wrong. So a few...
    HannahdawnK HannahdawnK 18-21, F 1 Response 1 day ago

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    Dealing with fatigue? I was diagnosed with Autoimmune Hepatitis when I was 13. Now, I am a full-time university student and I also work part-time as a cashier. I take prednisone...
    Staryglow Staryglow 18-21, F 5 days ago

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 4 days ago

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    Anybody else agree with this? 😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now...
    sarahglass sarahglass 18-21, F 1 Response 2 days ago

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    23+ years ago I was diagnosed with MS, even though I never had a positive test. No blood test, MRI, spinal tap,etc was ever positive for MS. My symptoms were never an exact match...
    bonsaigirl bonsaigirl 56-60, F Jun 29

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    Here are top 10 home remedies for Bipolar Disorder. 1. Fish Oil Fish oil rich in Omega 3 fatty acids is one of the few things that can help in the treatment of bipolar disorder...
    LovelyLilly13 LovelyLilly13 22-25, F Jul 3

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    Hello, New here....miserable and looking for advice, commiserators... anyone with similar symptoms... Any help, or relatable story would be so appreciated. I was recently...
    awildfly9 awildfly9 31-35, F 5 days ago

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    [X] the dark [ ] staying single forever [ ] being a parent [X] being in front of others [ ] open spaces [ ] closed spaces [X] heights [ ] dogs [ ] birds [ ] fish [ ] spiders...
    1imaginarylife 1imaginarylife 18-21, F Jul 15

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    Fears~ [ ] the dark [ ] staying single forever [ ] being a parent [ ] being in front of others [ ] open spaces [X] closed spaces [X] heights [ ] dogs [ ] birds [ ] fish...
    marklovescoffee marklovescoffee 46-50, M 1 Response Jul 15

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response 10 hrs ago

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    We had been discussing the possibility of separating for about 4 months. Things were becoming strained between us. We were growing distant and I kept trying so hard to bridge the...
    Navylove19 Navylove19 18-21, F 2 Responses 2 hrs ago

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    My MM has disrespected me one too many times. I have tried to be everything that he wanted but have lost myself. I've lost my spark, my enthusiasm for life and even sometimes my...
    nolasanchez30 nolasanchez30 31-35, F 1 hr ago

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    When I was about 16 years old I ran away from home, I could not take the physical abuse anymore. Unfortunately a cop found me and returned me to my abusive home, once we were away...
    nephthysbaby nephthysbaby 22-25, F 39 mins ago

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    Ghana, West Africa had held my heart since the day i stepped foot on their soil. Its so hard to put into words how much of an impact going to an African country will have on your...
    amandakleveland amandakleveland 18-21, F 3 hrs ago

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    I'm not good enough never have been and never will be I wish people understood how bad im struggling right now going out tonight to a bar with friends sucks enough since I don't...
    willieverbegoodenough willieverbegoodenough 22-25, F 1 Response 3 hrs ago

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    I'm sitting here wondering what if done to deserve this,If in a relationship I'm faithful,if needed I'm there,if I have it it's yours,I'm so nice even when I'm down, I try so hard...
    mommywithdecisions mommywithdecisions 18-21, F 2 Responses 2 hrs ago

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    Anxiety disorder has ruined so many things in my life, and sucked the joy out of things and people I used to love. I had a psychologist I used to see, but I haven't gone in...
    jonicole jonicole 18-21, F 45 mins ago

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    I really want to have this experience
    goonteam goonteam 16-17, M 3 hrs ago

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    Super unhappy with my life. I've been lacking motivation to make any good changes. It feels like every decision I've ever made was a bad one. I obviously lack the ability to make...
    BleuGirl83 BleuGirl83 26-30, F 3 hrs ago

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    I always end up attracting men with many similarities....I guess you could say they're my "type". We all have one. What is your "type"?
    Mollydolly25 Mollydolly25 26-30, F 2 hrs ago

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    i have to go to a new school in September and im worried now tht because my body looks a lot older thn i am ill get a lot of teasing or bullying from other girls. it didn't bother...
    saradancer saradancer 13-15, F 2 Responses 1 hr ago

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    I don't know whether dreams are just a mish-mash of stuff your sub-conscious dredges up when you sleep, or whether they actually mean something. There are so many books explaining...
    Seblett Seblett 13-15, F 1 hr ago

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    Would you still love me if I went crazy? If I wasn't me but just a bugged out person that's literally lost their mind, would you take care of me? **** that go through head, don't...
    Sdm2987 Sdm2987 26-30, M 1 Response Jun 25

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    Actually just got out of one last night.. Pretty proud of myself, he's been blowing up my phone & I haven't been giving him the time of day, now all I gotta do is have these...
    aaaxaaa aaaxaaa 18-21, F 23 Responses Jun 25

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    Over the past year or so my sleeping has gotten worse and worse. I don't have a nighttime job or a daytime job. I'm just a student in college and enjoy writing and music. I need to...
    EsotericEnigma08 EsotericEnigma08 18-21, F 1 Response Jun 25

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    My friend died of cancer almost 2 years ago. I told everyone that we were a lot closer than we actually were, because they would have judged me for being so upset about it. When we...
    hannahanon hannahanon 16-17, F 2 Responses Jun 25

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    Ladies and Gents Please be patient with me. No need to get upset if I don't respond right away. I'm no superhuman. I work just like everyone else. I receive like a hundred messages...
    SweetestGirl89 SweetestGirl89 22-25, F 1 Response Jun 25

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    Five months ago, my father was diagnosed with Leukemia. The doctor told him that if he hadn't come into the hospital then we would had lost him within 38 days. My father has always...
    Untamablespark Untamablespark 22-25, F 3 Responses Jun 25

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    Well I say that because I seem to be putting a lot more effort for the relationship to work and they don't seem to be doing that. The girl that I am technically with right now does...
    beachboy14u beachboy14u 18-21, T Jun 25

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    This will be the fifth night I haven't slept. For awhile I was sleeping okay... But now I only get like 3-5 hrs of sleep and if I am lucky enough to even get those hours of bliss I...
    laultman78 laultman78 13-15, F 3 Responses Jun 25

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    I have frequent dreams where I am both pursuing someone or something and being pursued at the same time. the scenery changes from being empty city streets to empty buildings to...
    CrushedCrusader CrushedCrusader 46-50, M 2 Responses Jun 25

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    Until about the last decade it wasn't common knowledge that this was possible without massive expense. With the arrival of the internet, this information became available and I've...
    Gerblitz Gerblitz 70+, M Jun 25

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    I always talk to myself because I wonder " am I always going to get rejected by anymore boys?" Because I have been rejected by 2 in 4th grade but I hope this doesn't happen to me...
    bela5562 bela5562 13-15, F 5 Responses Jun 25

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