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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 57 People

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    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 66-70 Apr 20, 2013

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 41-45, F 1 Response Sep 8, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    Related Experiences

    It all started when I got really bad pains in my joints every day it was a new pain somewhere else. To be honest everyone thought I was crazy I knew something was wrong. So a few...
    HannahdawnK HannahdawnK 18-21, F 2 Responses Jul 24

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    Hi everyone! Any feedback on this would be great! My story is long so I apologize in advance!!! My husband and I are newly married however we have been together for 10 years now...
    maimee2005 maimee2005 36-40, F Aug 12

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 Jul 21

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    Anybody else agree with this? 😔 Hi. My name is Hashimoto’s. I’m an invisible autoimmune disease that attacks your thyroid gland causing you to become hypothyroid.
I am now...
    sarahglass sarahglass 18-21, F 5 Responses Jul 22

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    Comprehensive fitness programming represents a coordinated continuum of healthcare management for the prevention of chronic disease and injury, which sets it apart from routine...
    aries3296 aries3296 46-50, F Jul 25

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    My family has a history of diseases, especially cancer. These diseases were what left my mother and her siblings orphans at young ages. I knew that one of my grandparents was...
    JumpingTomatoes JumpingTomatoes 16-17 Jul 30

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    At 12 I started to notice a mood and personality change and have chalked up my sadness, mood swings, lack of interest, and inconsistent insomnia to near comatose states to being a...
    Bobbyckat Bobbyckat 18-21, F 1 Response 5 days ago

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    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 2 Responses Aug 6

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    Well this is a really crappy problem on so many levels! No one knows what it is so I have to explain it over and over again...Also, it's extremely painful and motion and even...
    euphoricvoyage euphoricvoyage 26-30, F a week ago

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response Jul 24

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    I work in a VA hospital which makes the possibility of seeing death a daily fact of life. Before that I was a medic in a combat zone, again a daily chance of witnessing death...
    hawkeye67 hawkeye67 46-50, M 1 Response Jul 27

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    So this is going to be a TMI post. So if you care read on but be warned I'm about to share an issue I've had for about a year and four months now. I used to work at a Transport...
    Mcgregor117 Mcgregor117 18-21, M 1 Response Aug 10

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    I think diseases are population control tactics. I think presidents serve as mascots to our country, but like mascots...they don't really do anything but wave and try to make you...
    Thediary Thediary 26-30, M 2 Responses Aug 10

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    I have pretty bad acne on my face, now been spreading to my neck and chest. It's awful because I'm staring into early adulthood and I'd like to grow out of it soon, but I think...
    NoraDysphoria NoraDysphoria 18-21, F 2 Responses Aug 12

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    All people have a singular route to the analysis, but The main components to an exact prognosis are imaging scans and biopsies. Physicians use many exams to diagnose mesothelioma.A...
    Joshua950z5kh8 Joshua950z5kh8 31-35, M 1 Response 6 days ago

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    Chemotherapy is a regular treatment to kill malignant cells, shrink tumors, stop recurrence and minimize signs or symptoms.Despite the fact that asbestos use declined significantly...
    Anthony616q1zv3 Anthony616q1zv3 31-35, M 1 Response 5 days ago

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    It's exactly 2 am here. I have school, doctor and have afternoon classes today. This week I have two important tests which I must not fail. Tomorrow and after tomorrow I'll have...
    brzdreamer brzdreamer 16-17, F Jul 21

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    I had a brother, who was my father, who was my uncle. He was murdered. Slaughtered even, his corpse looted & desecrated to this day. I'm sure you've heard of him. How can the...
    zinnyy zinnyy 22-25, M Jul 21

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    Hello. I was diagnosed with A.D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I...
    jenyeaz jenyeaz 22-25, F Jul 21

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    All my life i never thought that i could end up with no true friends like i do today.. I used to have a great childhood and lots of friends. but no true friends , not even one. I...
    thesimpletruth77 thesimpletruth77 36-40, F Jul 21

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    Is this normal? Does anyone else have this?
    Shizuka000 Shizuka000 13-15, F 3 Responses Jul 21

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    I had been married for four months before I found out that my husband, whom I have been in a committed relationship for 9 years including a year-long engagement, cheated on me. It...
    krk314 krk314 31-35, F 5 Responses Jul 21

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    Last night I dreamt of an alien invasion. Lots of bright yellow spherical UFOs. My feelings in the dream were very intense. I have had dreams before where I woke up next to my now...
    tlee5001 tlee5001 22-25, F 2 Responses Jul 21

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    We were so in love, but we agreed the timing wasn't right and the distance would be difficult. We still stay in touch. He said he's dating someone now, but he also gave me reason...
    SacredEarth SacredEarth 18-21, F 3 Responses Jul 21

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    Really embarrassing experience! I was in Singapore on holiday with another family. They have two children: a boy (Howard) who is my age, and a girl (Roxanne) who is two years older...
    Matt2704 Matt2704 18-21, M 6 Responses Jul 21

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    Here are some of my Pet Peeves; Writing FIRST in a Comments Section. People Not Turning The Volume Off Their Keyboard While Texting. Wobbly Tables. Drivers who don't use a turn...
    KellysMyName KellysMyName 18-21, F 1 Response Jul 21

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    My boyfriend's half brother is 24. I'm 15. I have a crush on him. Like, a major crush. Ugh. I wish he would notice me when my boyfriend doesn't.
    stillYDGN stillYDGN 13-15, F 1 Response Jul 21

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    I was born with two spirit animals who are always by my side, from what I know its not normal for someone to have two spirit animals. I am able to find other people's spirit...
    ziroks ziroks 22-25, M 3 Responses Jul 21

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    What if everywhere was like... Canada. What if hurler finished the job. Can you imagine how many things would not have happened??? 9/11. Afghanistan, operation enduring Freedom...
    JaysGrief JaysGrief 16-17, M Jul 21

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    Do you ever wonder what it would be like to be able to go back in time and change how you reacted to something or someone? I sometimes do and tend to relive the moments and the...
    LivefortheWeekend LivefortheWeekend 46-50, M 2 Responses Jul 21

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    Sometimes I just wanna forget all and be again the hard rock careless for emotions but only fun.Please myself and make my will,be in control,have the power.I suposse I should be...
    4biandu 4biandu 26-30, F Jul 21

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    I'm am not typing this again so you'll have to read all my photos
    tlee5001 tlee5001 22-25, F Jul 21

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    When I was little (maybe 7) I use to have this reacquiring dream that I was running from zombies in a an lds church. (I was raised lds) I have done research on the meaning and it...
    tlee5001 tlee5001 22-25, F 1 Response Jul 21

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    I notice that when someone is online they rarely ask directly or as its known beat around the bush to get around to a question they actually want to ask.. why is this ? Perhaps...
    GinIyoku GinIyoku 26-30 Jul 21

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