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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 83 People

    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 2 Responses Sep 8, 2013

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    deleted deleted 26-30 May 8, 2015

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    Related Experiences

    i dated my guy best friend and lemme say it was an awkward experience because we know each other for 3 years now and we dated for a month but we still r best friends and im happy...
    rayy17 rayy17 16-17, F 15 mins ago

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    I have an iPod touch (5th generation). Yesterday, it started to shut of by itself, then it would turn back on. It did this a few times in a row. The first time, it even signed me...
    Hannah1100 Hannah1100 13-15, F 32 mins ago

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    Sorry if this is getting posted twice, my computer is being weird. So, I have never had surgery because my pediatrician told my parents I didn't need it. My parents never told me...
    convexxing3 convexxing3 22-25, F 39 mins ago

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    to be honest..I have lost alot of myself inside, all this time spent inside myself with wonderings and what should I do's and trying to understand this ****** life I call my own I...
    Cocrispy Cocrispy 22-25, M 1 hr ago

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    This is so frustrating. I can't pick people I know out of a crowd or find them at airports. I had to train my family to wave vigorously so that I can look for the waving. I don...
    crossproduct crossproduct 41-45, F 1 hr ago

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    Thanks to a friend of mine, I now have Its Been A While by Staind on my mind.... Thank you my dearest friend!!!
    TennesseeWhiskey TennesseeWhiskey 41-45, F 2 hrs ago

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    i dont have them pierced YET but i want them so so bad. since i got my tragus pierced i have an ridiculous fear of getting anything else pierced. even making an appointment freaks...
    cushamami cushamami 18-21, F 2 hrs ago

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    I hate car trips, I have been asleep for 3 hours and I woke up needing the bathroom, my sister and my good friend are in the car with me, we are on our way to Florida for a...
    alwaysneedtopee alwaysneedtopee 13-15, F 3 Responses 2 hrs ago

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    I've been with him on and off for about a year and a half. We've got back together and have been with one another for about 6 months now. Things have taken a bit of a turn...
    HaightStreet HaightStreet 22-25, F 1 Response 3 hrs ago

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    I have always found pregnant women incredibly sexy. I really wish I could chat with one.
    Musicaldreamer212 Musicaldreamer212 18-21, M 3 hrs ago

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    Ive been impotent for ten years. Doesn't get hard like it used to with the same power. I have to jack it off limp. I can still come but my **** is semi limp and it's only like...
    Rassi84 Rassi84 31-35, M 1 Response 3 hrs ago

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    The fact he knows he can have any women he wants (if you ever met him you would understand why.) but yet he waits on a girl for 6 months now to date her and still waiting for her...
    DeterminedToMakeLifeWorthIt DeterminedToMakeLifeWorthIt 18-21, F 4 hrs ago

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    Dear J. You don't realise it but I have so much to thank you for. I have always felt at work that I have had to be strong and get on with it all. I have got used to having no...
    Jenni855 Jenni855 26-30, F 4 hrs ago

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    yes I have lost a part of me too well actually had it stolen from me without my consent at eleven years old my hoodie my foreskin thanks to my mom tricking me into going into the...
    Abbenburnner Abbenburnner 56-60, M 1 Response 4 hrs ago

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    I have a thing for girls with red hair...
    MichaelEyes2 MichaelEyes2 13-15, M 2 Responses 5 hrs ago

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    Ok so it's been ages since i've shared anything so how about some venting eh ? i gotta say that 2016 didn't start as calmly as i was hoping it would, January has been very...
    Freude91 Freude91 22-25, M 5 hrs ago

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    Currently, I'm living with my mother, my younger and older brothers. I'm the only daughter so you would've thought that I would have some leeway with somethings. Unfortunately...
    Mikraqueen Mikraqueen 18-21, F 5 hrs ago

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    I absolutely love my nose piercing. I got it when I was 18 years old and have had it ever since. I remember the initial shock when I showed it off to my friends and family, some of...
    Allisongirl Allisongirl 22-25, F 1 Response 5 hrs ago

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    I've been talking to this guy strictly as friends for like five days, and he said he has a crush on me yesterday. I don't like him in that way so I told him and I said I'm sorry...
    Princesslauryn Princesslauryn 16-17, F 6 Responses 5 hrs ago

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    As I try to rememberThings I have knownWithout messing roundWhere a sun never shoneTwin shadow feelingsCotton candy of brethMy unspoken healingI get whatever I getDays weeks...
    Actactualaredy Actactualaredy 51-55, M 1 Response 6 hrs ago

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    I can't say aquarium. I have tried like crazy lol
    OrangeCaramel OrangeCaramel 18-21, F 6 hrs ago

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    Today my mother in law popped in for a visit. This is a Sunday ritual. Where as before it was pleasant, I'm experiencing it no longer is. It's becoming a dreaded visit from her...
    Lee124 Lee124 41-45, F 12 Responses 7 hrs ago

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    There are days I hate my life. In other words hating my life is hating my parents, my father in particular. I was my family's scapegoat. Yep, I inherited that dreadful honorable...
    allinlove allinlove 26-30, F 1 Response 7 hrs ago

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    Okay, so it looks like today is going to be another of those sucky days where we don't get to say "Good morning" to each other. Time to put on my big sub collar and deal with it...
    LoneSouls LoneSouls 31-35, F 2 Responses 7 hrs ago

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    Ever feel like your an imposter? Failing at everything, everyone, especially yourself. Like my kids deserve a better mother and completely understanding why your son chose to be...
    yari531 yari531 36-40, F 7 hrs ago

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    The root of suffering is the attachment to desire. If I desire less, my attachment will decrease, and then so will my suffering. So I'm going to do that now, publicly. I'm going...
    thisisnotagame thisisnotagame 18-21, F 8 hrs ago

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    new one in the list today... wow.. u people do not have any manners.. no patience... learn to answer ppl.. daddysbitch7379
    hydguy1d hydguy1d 26-30, M 1 Response 8 hrs ago