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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 66 People

    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 1 Response Sep 8, 2013

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    Related Experiences

    I was just diagnosed with AIH and i already think there has to be another way. These medications are terrible. I have two children and am 22 years young. I feel so upset about...
    mnkshow mnkshow 22-25, F 4 days ago

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    When I had braces I got a disease in my gum and my gum had reduced a little bit. I've had a gum graft done 4 times now. It still hasn't worked 100% but it's better then it was...
    epsarah94 epsarah94 18-21, F Apr 27

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    Diagnosed with with Genital Herpes in September. Slept with only two girls this year, went to the hospital regarding something last week, and was diagnosed with genital warts...
    Bodhichitta Bodhichitta 26-30, M 13 hrs ago

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    I have Sjogren's with Lupus overlap and heading toward minted connective tissue. Autoimmune is a *****
    aliceblu24 aliceblu24 46-50, F Apr 22

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    Got diagnosed in 2005.. Had my thyroid removed in 06. There's really no cure since it's an autoimmune disorder.. You can kill the thyroid or take it out. I opted to take it out...
    kmutloats kmutloats 36-40, F 1 Response 1 day ago

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    I've always been willing to return the favor like I don't have any problem with girls sit sleep with other guys and what not you know tell you the truth most people that have sex...
    RIDER6X9 RIDER6X9 26-30, M Apr 7

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    Research on Movement Disorders! If you live in the San Francisco Bay area or Boston area, we are looking for people to participate in a research study on the topic of living with...
    tovalynn tovalynn 26-30, F Apr 15

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    Research on Movement Disorders! If you live in the San Francisco Bay area or Boston area, we are looking for people to participate in a research study on the topic of living with...
    tovalynn tovalynn 26-30, F Apr 15

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    A broken heart isn't always due to a break up, as so many people think.. My heart breaks whenever I hear or see about innocent children who die in wars. My heart breaks whenever I...
    Rourou19 Rourou19 18-21, F 1 Response Apr 15

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    Research on Movement Disorders! If you live in the San Francisco Bay area or Boston area, we are looking for people to participate in a research study on the topic of living with...
    tovalynn tovalynn 26-30, F 1 Response Apr 15

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    I can not love and feel guilt. It's hard to say but I never loved my family or my friends.....it's like my heart is frozen through all the hard times I countered. I have...
    Anoniem01 Anoniem01 22-25, F 5 days ago

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    I think I have maladaptive daydream Disorder, i have read a bit about it and i feel like thats what i am going throw. i dint really get it at an really young age. i think I got it...
    crystal3799 crystal3799 13-15, F 11 hrs ago

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    I spoke to her for the first time in a year and a half on the weekend. it was only for 20 minutes. It was a milestone Birthday and I wasn't going to let go by without...
    jackflash3300 jackflash3300 31-35, M 2 Responses 11 hrs ago

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    My thoughts on genetic engineering. In a former life I was a dairy farmer. We artificially inseminated our dairy herd with frozen *****. This had several advantages, mature...
    vroom555 vroom555 56-60, M 2 Responses 9 hrs ago

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    My name is James and I've been an emetophobe for as long as I can remember. I'm better now than I have been in past years, but emetophobia and related panic attacks remain very...
    Rigoletto87 Rigoletto87 26-30, M 1 Response 9 hrs ago

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    Could have posted this under "I am going to say something controversial" but I don't want to attract crazies :) As a once bisexual now straight Protestant Christian, I don't see...
    GhostBride GhostBride 18-21, F 1 Response 7 hrs ago

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    This happened on May 20, 2012 I was in high school. His name is Jason..I have this crush on my friend who is straight and he had been giving me hints and stuff but he knew that I...
    StayingStrong21 StayingStrong21 22-25, M 1 Response 12 hrs ago

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    Today is the day. I find out if I have to have a procedure to see if have blockage to my heart.
    TCL009 TCL009 41-45, F 3 Responses 11 hrs ago

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    Last year really in the year I went to the hospital for chest pain. I was there for half a day. They couldn't find anything so towards night they tried one last thing. They gave me...
    EK94 EK94 18-21, M 8 hrs ago

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    For some reason, this morning I woke up with the spirit of forgiveness. God laid it on my heart to contact those who have hurt me & to just forgive them. He also put it on my heart...
    shesdifferent516 shesdifferent516 18-21, F 7 hrs ago

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    What I find interesting is people that think they know it all. The nature of man is to be disobedient every since the beginning. Some people are confused because in their heart...
    Babeondwy Babeondwy 41-45, F 7 hrs ago

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    I have a sister, 4 yrs. younger than I. She turned 38 back in September. She has 3 sons. The first two sons are being raised by their fathers. The third son, whom is 1 1/2 yrs. old...
    kristie2013 kristie2013 41-45, F 6 hrs ago

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    Do you think your life would change that much if you didn't have herpes? I think my answer is no. I forget that I have it now and it's been 2 months. I was thinking about it, and...
    Redvelvet58 Redvelvet58 26-30, F 6 hrs ago

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    I have no idea how people suffer these on a regular basis and live, i suffer anxiety and depression, and i am used to having the miniature normal anxiety attacks, just the heart...
    Zexias96 Zexias96 18-21, M 2 Responses 4 hrs ago

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    Looking back on my last relationship honestly i cant really believe what happend to me.ever since i was a kid i have watched cases of people who have gone through that but i cant...
    IsmaelAlejandro IsmaelAlejandro 16-17, M 3 hrs ago

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    I'm not really dependent on people but you could say that I have close ties with them. The thought has always been on my mind since I was very young, probably around 14 or 15. My...
    Niran3 Niran3 22-25, M 1 Response 3 hrs ago

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    so a couple days ago I realised I have a huge ******* crush on my English teacher.. I have no idea what to do. This transpired when my friend asked if I like any one at a...
    megiguess megiguess 13-15, F 3 hrs ago

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    I've seen a lot more then I would like. I've seen people I cared for die in front of me and have been shot/shot at multiple times. I even have a hard time trusting my fianc...
    SomethingThatWorks SomethingThatWorks 18-21, F 2 Responses 1 hr ago

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    I have no "coloured blood" in me, at all. My ancestry is Scottish, Welsh, British, German, Norwegian... You get the picture. My skin is fair and my eyes are mostly blue. That being...
    dontyouunderstand dontyouunderstand 18-21 3 Responses 16 hrs ago