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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 69 People

    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    deleted deleted 26-30 May 8

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 2 Responses Sep 8, 2013

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    Related Experiences

    There is this guy in my local town, and we have been talking for almost 3 months. We have gone on 3 "dates" and he treats me very well. I am lucky.
    bigguy167 bigguy167 22-25, M 46 mins ago

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    I just gotta say.....I have GR8 EP Friends.....I'm a BIT Quirky...lol and the Friends I have seem to understand.....THANKS a Whole BUNCH.....a FUN Bunch and I soo APPRECIATE each...
    RetroKitten RetroKitten 36-40, F 1 Response 1 hr ago

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    I have bipolar disorder and I would never recovered if wasn't for my kind bipolar friends. I would only listen to my psychiatrist and close off all the people who were recovering...
    equusrider equusrider 56-60, M 1 Response 1 hr ago

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    My husband and I have been together for 15 years and 14 of them we have gone through some kind of drama with his mom. We have made every effort to have a healthy relationship with...
    dangermamaof4 dangermamaof4 31-35, F 2 hrs ago

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    I've always been like this. I have always had a hard time trusting people. It's not easy for me but what worries me is that if I trust someone completely they'll betray me or hurt...
    bookaholic14 bookaholic14 13-15, F 2 hrs ago

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    its been weird for me lately. I have these moments where I feel like it just isn't worth it anymore. ive never felt that sad in my entire damn life. I felt exhausted, drained and...
    acidxgod acidxgod 18-21, F 3 hrs ago

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    So my situation is different than most. I had a healthy childhood, I did sports and watched what I ate. There is a strong history of type 2 diabetes in my family so I was always...
    Mekkaku Mekkaku 22-25, M 1 Response 3 hrs ago

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    I wish I didn't, but I constantly put up walls, and can never fully let people in you know? I have this mindset that if I am able to prevent heartbreak, depression, and everything...
    elanarenay elanarenay 18-21, F 1 Response 4 hrs ago

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    well this isn't a super serious problem to most people, but it does make me feel extremely bad about myself. my boyfriend and I have been together for about 9 months. I do believe...
    HelloLovelyPerson HelloLovelyPerson 18-21, F 4 hrs ago

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    I just found out today I have herpes and I am absolutely terrified! It's completely my own fault I went on a girls holiday had too much fun I'm only 18! But now I've tainted my...
    Siobhano Siobhano 18-21 1 Response 5 hrs ago

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    Part 1 I looked in the mirror to ensure that I was ready, combing back medium length brown hair, gazing into my own deep blue eyes as I did so. I was starting my last year of...
    lordoflols lordoflols 18-21, M 5 hrs ago

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    Multiple phobias * 17 years___These include the phobias of even speaking out words. I once had the phobia of saying out the word 'failure.' That's how afraid I was of failures. And...
    WorthWonder WorthWonder 18-21, M 6 hrs ago

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    So I'm due on Friday to get a diagnosis for what I'm sure will be borderline personally disorder. When I was younger I had a psychiatric assessment done and borderline was...
    Livingwithbpd Livingwithbpd 22-25, F 1 Response 6 hrs ago

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    Sunday Devotion A sun rises to a storm bruised western horizon. The sun and storm race to capture the sky and it is in that still moment the pup and I walked to the old silo...
    Freestanding Freestanding 51-55, F 7 hrs ago

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    I have a dream where I am filthy rich. Rich in adventure, in health, in knowledge, in laughter, in family, and in love. I have a dream where I am rich in adventure. Where I'll...
    MyEpochStory MyEpochStory 18-21, F 1 Response 8 hrs ago

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    I have a lot of problems. I often think there's a lot that is wrong with me. I always assume the worst. I keep waiting for the other shoe to drop, for things to go from bad to...
    usuallyMIA usuallyMIA 18-21, F 8 hrs ago

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    My life right now seems to have come to a standstill. I feel stuck. I feel trapped. I would give anything for it to change. Time seems to moving slower than a snail. I claw and...
    usuallyMIA usuallyMIA 18-21, F 8 hrs ago

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    I also don't have any friends at all, I spend a lot of time going places by myself, or just being inside.. all my life growing up even if a had a friend, or "Friends" it was never...
    Born2Inspire Born2Inspire 18-21, M 1 Response 8 hrs ago

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    Others have had worse things happen to them. I have a hard time realizing that the things that have happened to be me are minor compared to the things that have happened to other...
    tryingagainII tryingagainII 56-60, M 2 Responses 9 hrs ago

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    well i do actually have her but i cant have her 24/7 yet !!!!! Patience is a virtue so they say ...........................................
    chris7369 chris7369 41-45, M 9 hrs ago

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    31 years old just diagnose with pots. I wouldn't care if I had gotten it a the age of 20-30 because that age your are just figuring things out. Im at the age where I should be...
    jazmintl jazmintl 31-35, F 1 Response 9 hrs ago

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    I was recently diagnosed with systemic Mastocytosis. For years I've struggled with a horrible rash on both legs and arms and now it's spread. I have also had numerous broken...
    MickeyW49 MickeyW49 66-70, F 9 hrs ago

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    I've already posted some of my story but I have to share a particular aspect of PMDD.... Can anyone relate to PMDD episodes and feeling out of control of your behavior-meaning you...
    AMarieH84 AMarieH84 26-30 9 hrs ago

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    Sigh. It's like my brain doesn't. Let me wake up until I've had every dream I'm supposed to. Tried to wake up at 10 and collapsed. Now it's 1. Whatever. 1. So anyways the first...
    PinkMellow PinkMellow 18-21, F 10 hrs ago

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    I'm 19. I have a big family and I still live with them but my siblings don't respect me and I don't get as much as the others do from my parents. Not that I need much but I don't...
    crimsonhyena crimsonhyena 18-21, M 1 Response 12 hrs ago

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    My (half)brother is going into the army, and i have never been more happy about it. It's been his dream ever since we were little, and now he finally gets to experience it. He...
    HarleyHart HarleyHart 13-15, F 12 hrs ago

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    "I'm WEIRD...I just don't fit in!" If only you realized just how special you are. If you REALLY want to get a good picture of yourself and your true worth, just look through the...
    GraceIsMine GraceIsMine 66-70, F 2 Responses 12 hrs ago

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    Last week I tested positive for HSV1 and HSV2. My ex-boyfriend let me know he had it for 15 years. I guess it was a parting gift. He dropped the knowledge on me the night we broke...
    annab01 annab01 26-30, F 12 hrs ago

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