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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 69 People

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    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 70+ Apr 20, 2013

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 46-50, F 1 Response Sep 8, 2013

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    My Husband Is "The Burly Man"

    On June 17th 2009, My husband had his first of many emergency room hospital visits. Eight months later on February 12, 2010 he was diagnosed with Polymyosits and on August 25, 2010 he was also diagnosed with Lupus. Both are incurable auto-immune diseases. During this time he...
    loribee loribee 46-50 Apr 2, 2012

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    I'm feeling so defeated.

    I've been battling some health issues (presenting as autoimmune disorder) since last August and been through half a dozen doctors now with almost as many diagnoses and just as many telling me it's in my head. Finally got a referral to Mayo Clinic a few weeks ago and just got a...
    Silc Silc 26-30, F May 8

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F 1 Response Apr 1, 2014

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    Related Experiences

    I was just diagnosed with AIH and i already think there has to be another way. These medications are terrible. I have two children and am 22 years young. I feel so upset about...
    mnkshow mnkshow 22-25, F 1 Response May 1

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    I have been just diagonised with AIH. Still looking for some literature on this disease and worst and best case scenarios. A bit worried about the unpredictability associated with...
    sonun sonun 36-40, F May 15

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    Hi everyone if you don't mind me asking I would really like to know your weight and how much azathioprine you are on. I want to be on as small of a does as possible and would...
    wonderriver wonderriver 18-21, F 2 days ago

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    When I had braces I got a disease in my gum and my gum had reduced a little bit. I've had a gum graft done 4 times now. It still hasn't worked 100% but it's better then it was...
    epsarah94 epsarah94 18-21, F Apr 27

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    Got diagnosed in 2005.. Had my thyroid removed in 06. There's really no cure since it's an autoimmune disorder.. You can kill the thyroid or take it out. I opted to take it out...
    deleted deleted 26-30 1 Response May 4

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    I can not love and feel guilt. It's hard to say but I never loved my family or my friends.....it's like my heart is frozen through all the hard times I countered. I have...
    Anoniem01 Anoniem01 22-25, F May 1

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    Diagnosed with with Genital Herpes in September. Slept with only two girls this year, went to the hospital regarding something last week, and was diagnosed with genital warts...
    Bodhichitta Bodhichitta 26-30, M 3 Responses May 6

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    What keeps me strong when the going gets tough is that i know that one day in Heaven, if I ever make it there that is, where there are no illnesses or diseases, I will get to meet...
    muffin93 muffin93 18-21, F 2 Responses May 9

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 1 Response May 10

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    I made a deal to have someone grow safe food for me personally (as well as for himself) cheaply. It was urgent and important to do so as American produce in general is about to...
    wombat456 wombat456 41-45, M 2 Responses a week ago

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    Well, it's been more over a period of 7 years... before I proceed do not judge... I have a set belief about marijuana use, and medical marijuana after some very dear friends, and...
    kerri33 kerri33 31-35, F 1 Response 5 days ago

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    Grommit has what she needs more or less and is happy. A couple sliding last night. They catch me so I catch them. Haul them up the slope. This morning further chats and then a...
    grommit3 grommit3 36-40, F 1 Response 10 hrs ago

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    Ok, y'all ready for another rant? Here we go in 3...2...1...NOW! I have a classmate named Sylvia. She is SO. FŬCKING. ANNOYING (there's gonna be a lot of letters with weird...
    BlueMetalChick BlueMetalChick 18-21, F 7 Responses 14 hrs ago

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    I'm shy and don't have much friends to socialize with. I don't go out much. I don't get invited to lunch, coffee or parties. I never travel. Been in the same city for more then 10...
    kekehuang kekehuang 36-40, F 1 Response 10 hrs ago

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    Anxiety runs my life. I have what I like to call situational anxiety not sure if that's a thing...but any event/party/gathering/errand I have to do causes me anxiety to an extent...
    Slackergirl Slackergirl 31-35, F 1 Response 3 hrs ago

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    My name Douglas dashy from England, Oxford,UK ...HIV has been ongoing in my family for long..I lost both parents to HIV and it is so much pain have not been able to get over.As we...
    Kenned Kenned 18-21, M 11 hrs ago

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    I have Demons everywhere inside of me and I like that I am working on summoning more demons inside of me. I even have Satan inside of me my body is filled with darkness I have a...
    PrinceofEvil666 PrinceofEvil666 26-30, M 7 hrs ago

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    I knew this life was going to be short every life is shorter than we think. I realize that I don't have everything figured out yet I am still trying. I have come to realize that...
    kayegela kayegela 31-35, F 6 hrs ago

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    Well.... I'm Chinese (but I was born in and still live in Indonesia lol) and I've always wanted to have a western boyfriend.... My friend told me that western people tend to be...
    salmon140301 salmon140301 13-15, F 5 hrs ago

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    I've never even been diagnosed with anxiety before, but I KNOW I have it. My parents refuse to take me to a psychiatrist, I've seriously begged them to take me, and I can't go by...
    kaylynx kaylynx 16-17, F 3 Responses 1 hr ago

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    I was diagnosed with PCOS around a year ago and have struggled with my weight all my life. I'm currently 98kgs (216lbs). I've been on Weight Watchers for the last 9 weeks and have...
    ylime93 ylime93 18-21, F 1 Response 13 hrs ago

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    there have been paranormal activities in my house which every one has witnesses. one person might be overly superstitious and feel spirits around them but when each and every...
    marianova marianova 13-15, F 1 Response 13 hrs ago

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    I have 2. They're both 12 or so years older than me. One I haven't seen in 7 years and the other is in the army but I haven't seen him in 2 years. I miss them and I'm hoping that...
    Lackoflogic Lackoflogic 13-15, F 8 hrs ago

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    To start from the beginning, I'm 17 years old who moved to the U.S last year with my brother and no family, no relatives. I stopped talking to every person I knew before I moved to...
    iabem97 iabem97 16-17, M 1 Response 6 hrs ago

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    i honestly am gonna stop thinking about my needs and wants in this life anymore. im done with it because when we have high expectations of ourselves and when we dont meet them or...
    heavenlytouch heavenlytouch 22-25, F 5 hrs ago

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    I'm still kinda new to this app. And my story's sort of long so I'll try to make it as precise as possible when I was 14 I met a guy on my summer vacation in chicago, he is my...
    mysteryhistory08 mysteryhistory08 18-21, F 1 Response 3 hrs ago

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    Well my husband has been in jail for about a month and 3 days.... But its been so hard on me. We do not have any kids cuz I can't have any. But all I do is cry when he calls he is...
    TerryChris TerryChris 36-40, F 1 hr ago

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F 1 hr ago

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