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I Have Autoimmune Diseases

Autoimmune Diseases anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Diseases. You're not alone. 48 People

    How The Heck Did This Happen?

    I have recently been diagnosed with inflammatory arthritis, SLE, Sjogren's Syndrome, and Raynaud's Disease. So far the only relief has been from steroids (gotta love that Prednisone). Because nothing else has worked, I have been advised that Methotrexate is the next step. I am...
    alisaf alisaf 66-70 Apr 20, 2013

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    Friends And Family Don't Understand

    I was recently diagnosed with an auto-immune disease that evidently doesn't have a name.  I was told that my immune system has turned on my DNA...how does that not have a name?  I feel like this lack of a specific name is contributing to the fact that my friends and...
    cheaperthanashrink cheaperthanashrink 46-50, F 2 Responses Jan 31, 2010

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    My Daughter Has Autoimmune Disease

    My 10 year old was diaigmosed a year ago with autoimmuine hepatis. She in on Prednisone and AZA, we have been through a few flare ups and has has to go back up on the Prd. I keep reading about nutrtion and the liver but her doctors have told us she has no diet retrictions. This...
    kelly2012 kelly2012 41-45 3 Responses Dec 15, 2011

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    My Autoimmune Problem Seem To Be Food Related??

    Hello to fellow survivors. HELP!!! This has definitely been an interesting year. In September of last year - I had a bad virus and for months afterward I felt fatigued with joint pain going up and down my right side only - really painful joints taking turns if you will, I all...
    jt68 jt68 41-45, F 1 Response Sep 8, 2013

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    Change of Meds

    I saw my doctor this week and he swithced my steroid because he thought my body was not absorbing the medication. It had been a month and he had expected me to gain weight. I had lost weight. I am afraid and confused by all this new stuff. My eyes are inflammed again...
    Abriee Abriee 36-40, F May 14, 2009

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    This Is Frustrating

    They say the disease I have is not likely to kill me. It is not killing me physically but it is tearing me apart emotionally and mentally. The newness of it all is wearing on me. The imflamation of the eys and consant eye drops. The pain and confusion of not knowing enough...
    Abriee Abriee 36-40, F 2 Responses May 8, 2009

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    VHK Diagnosed January 2007

    I was diagnosed with VHK in 2007. I have been on prednisone (varying mg's) and lotemax, cosopt & alphagan drops. I was able to finally get off prednisone about six month ago for the first time. Good news. I have been taking my drops regularly and was doing really great until...
    gigimax gigimax 41-45, F Oct 26, 2013

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    Sick

    I am learning more and more about this syndrome. Information helps. I am feeling a bit ill today. It is difficult to breath. I took pain meds and they have helped some. I am a bit nervous because I am on all these steriods and my immune system is weak. I feel like I am...
    Abriee Abriee 36-40, F 1 Response May 30, 2009

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    Don't know if it just happens to me .

    . But because I look ok everyone thinks nothing is wrong with me.. Autoimmune diseases you can't see them ... And having to explain to people gives me a headache.
    Louisek81 Louisek81 31-35, F Apr 1

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    Auto-screwed.

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 1, 2013

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    Auto-screwed

    This past year I was diagnosed with an Auto Immune disease called Grave's disease. Essentially it is Auto Immune induced Hyperthyroidism. They want to cut out my thyroid, which would make me Hypo, and is much safer, I will not let them. My hang up is that my thyroid is not the...
    Dollbaby02 Dollbaby02 26-30 2 Responses Aug 9, 2013

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    Desperate For Answers!!!!!

    Well where to start.......I guess the beginning of my symptoms started in 2006, August to be exact. I was studying for nursing school and while up late one night I began twitching in my back. Scared me because it wouldn't go away, I closed my books and went to bed. The next...
    Desperateforanswers Desperateforanswers 41-45 2 Responses Feb 13, 2013

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    5 Things I Want Everyone In My Life To Know About Auto-Immune Diseases.

    5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderBy Caitlin Meissner — 5 Things I Want Everyone In My Life to Know About My Autoimmune DisorderListed in this article are all the things I have ever wanted to tell people about my autoimmune disorders, but...
    Dollbaby03 Dollbaby03 26-30, F 2 Responses Oct 2, 2013

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    Related Experiences

    I guess I am lucky and it could be worse. Technically, I am awaiting the official report back from the biopsy but my last round of blood work was positive for autoimmune. My liver...
    Dawn0421 Dawn0421 31-35, F 2 Responses Mar 31

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    It was strange; I hadn't felt sick. No nausea, no pain. I simply became jaundiced. When this happened, my mom rushed me to the hospital, SHARP Grossmont hospital. I wasn't...
    CuriouslyCoolCat CuriouslyCoolCat 22-25, M 1 Response Apr 12

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    I was hoping to hear some positive feedback from those of you being treated with Imuran (azathioprine) I have been on prednisone for year which had kept my LFTs within range until...
    CShirk CShirk 41-45 2 Responses Apr 3

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    I suspect that I might have APD. I have been dealing with rashes and allergies for years that have been misdiagnosed. I've even been told that I have to be tested for ALL food...
    HelpMeInSC HelpMeInSC 31-35, F 2 Responses Mar 26

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    Devastated Dad: my 16 year old daughter has just been diagnosed with AIH. I am completely shattered on the inside while trying to appear strong for her on the outside. Are there...
    Mylittlegirl22 Mylittlegirl22 41-45, M 3 Responses Apr 5

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    I slept in the hotel. The night produced an air raid of sound and light. I slept for only a few hours. Hardly a surprise to anyone familiar with me. I dreamt of a giant snake...
    faintking faintking 26-30, M Mar 28

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    How do you get over it? I knew going into my marriage and my attempts to have children that there was a good chance I wouldn't be able to conceive. The doctor told me when I was...
    Dawn0421 Dawn0421 31-35, F 9 hrs ago

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    To the patients who have Lupus or other diseases, what diseases do you have? How long have you had it? Do you feel this diseases is going kill you? Got any "I almost died...
    heartbroken69 heartbroken69 36-40, F 1 Response Apr 2

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    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 6 days ago

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    After over 20 years and 3 doctors later, they finally figured out which autoimmune disease I have. I'm lucky that I am in remission right now but it has affected my kidneys. I have...
    Booksaremypassion Booksaremypassion 41-45, F 3 Responses 5 days ago

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    Adrenal Fatigue, Hypothyroidism, Heavy metal toxins, elevated melatonin, low vitamin D, food intolerances Its best to start from the beginning, so here goes….I have been a...
    AnxietySoldier AnxietySoldier 36-40, M 1 Response Mar 24

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    I don't think people take anxiety seriously. It is a serious disease and i think it is a major symptom of depression and other psychological diseases. Experiencing a panic attack...
    Offing Offing 18-21, F 8 Responses Mar 30

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    [X] the dark [X] staying single forever [ ] being a parent [X] being in front of others [ ] open spaces [X] closed spaces [ ] heights [ ] dogs [ ] birds [ ] fish [X] spiders...
    Ally95xx Ally95xx 18-21, F Apr 5

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    I was accepted into the NIH undiagnosed diseases program in January of 2014. I have PLS also. I keep thinking somehow I can turn this around. Beat the odds so to speak. My new...
    christinasperos christinasperos 61-65, F Mar 24

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    I wish I could cure all problems associated with the aged, help the youth who are reaching out and not seen or heard, or that certain person who is dying. Having worked in the...
    prettyface1 prettyface1 56-60, F 1 Response Mar 24

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    The wonderful thing (in a bizarre way) is I have my gut instinct to thank for this blessing. My idiot ex, when I first met him was very pushy for sex. I said no. And he pushed...
    CaptainCalculus CaptainCalculus 26-30, F 4 Responses Apr 3

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    Am I the only one that thinks there is a cure for herpes and that they just aren't giving it to us? They want us to spend out money of the medicine that really doesn't even work in...
    93rp 93rp 18-21, F 5 Responses Apr 7

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    I was diagnosed with Graves Disease in 2007. My thyroid tests, T3 and T4 were only mildly high but my TSH was less than 0.01. My symptoms were rapid heart rate and dry and...
    purpleizzybee purpleizzybee 61-65 Apr 11

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    I just found out today after doing a blood test that i do have both cholesterol and Anemia as well with my diabetes as well. I am just take it easy as i am used to anything like...
    Egyptianguy34 Egyptianguy34 31-35, M Apr 12

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    this is my story on how i managed to beat Lupus and the HOrrIBLE JOINT pain-- WOW!!!! Congratulations Crystal :) I'm so happy to receive your email and learn how much better you...
    heavenlygardens heavenlygardens 51-55, F 8 hrs ago

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    Russell. If there is one man who has literally become my worst nightmare, it's Russell *beeping* Brand. In real life i'm sure he's nice, but i'll NEVER forgive him for the...
    Monstermaster13 Monstermaster13 22-25, M 6 hrs ago

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    I was young at the time, age 17. I decided to meet up with this guy who I thought was my boyfriend and the sweetest ever. Turns out I found out he was drunk and wanted to have sex...
    chebrianna chebrianna 18-21, F 3 hrs ago

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    Well sentencing is Friday. They took him back into custody last Wednesday. I'm scared to death! He has done a few jail runs, but now he is facing 18-22 months. I know that's...
    DeniseMarie72 DeniseMarie72 41-45, F 2 Responses 6 hrs ago

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    I think that a genuine smile is the ultimate accessory. That our hearts speak to each other when we are silent. That nothing beats coffee in the morning. That God just wants us to...
    esmeraldream esmeraldream 26-30, F 3 Responses 5 hrs ago

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    There name is Sprocket and Cog. They are so cute! They fill there cheeks full of food, and they have the biggest cheeks! When they get hungry they just pull out a seed and eat it...
    veeshybi veeshybi 18-21, F 1 hr ago

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    I have online friends whom I value a lot.I have not met any of them but I enjoy talking to them online.I do not want to lose my friends.Some have left suddenly.I wish them well...
    mona87 mona87 46-50, F 1 hr ago

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    Last week, I was diagnosed with achalasia, although in retrospect, I have experienced symptoms leading up to this diagnosis for years. I wanted to share my story and hope that my...
    debbiecoiro debbiecoiro 46-50, F 36 mins ago

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    Just looking back at my life and I really don't remember having any friends. Sure i had people I knew and I get along with, but when it came to actually having memories of them, I...
    Inasda Inasda 18-21, M 2 Responses 6 hrs ago

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    After turning 14 years old ( where I have stopped on the previous part) , a lot of things has changed in me and in my life. I always believe that every human has his own circle...
    Bash94 Bash94 18-21, M 2 hrs ago

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    Someone should make a low-budget film called Robotic Zombie Werewolves from Outer Space. Premise: A spaceship shaped similar to an Imperial Fighter crashlands in a city. News...
    Devilscar Devilscar 18-21, M 2 Responses 1 hr ago

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    I am so ashamed. I have had this since a childhood, and I'm 37 now. It was just about 2 yrs ago that I even knew a name for this. I told once person one time one of the things I...
    rmsh rmsh 36-40 1 hr ago

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    Me and my sons father have been together for 4 years we have a child. The relationship has been volatile the whole time he's been disrespectful, talking to other women , getting...
    GodHealsAll GodHealsAll 22-25, F 41 mins ago

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    I just checked my last story I posted and its almost been a year sense I have been on this site! Maybe its a sign I shouldn't work two jobs?
    starlight721 starlight721 18-21 8 hrs ago

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    I have had FMS since I was 8 years old. It gets worse with the years. I've had to give up my dream of having children, a career, a full life. I don't think I can live the rest of...
    softbunny6 softbunny6 26-30, F 4 Responses 8 hrs ago

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    She and the neighbor's dog dug a hole under the fence so that each has access to both yards. That's how they got hold of and are constantly fighting over Peanut Bear. That's a...
    TheBadgeringWitness TheBadgeringWitness 70+ 1 Response 7 hrs ago

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    My dad picked my first name and my mother my middle. My dad said he wanted his princess to have a unique name, because she'd be a unique young lady. What people don't know is that...
    BrohovahsWitness BrohovahsWitness 18-21, F 6 hrs ago

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    It's My Fault - I couldn't help it, I became a control freak and I tried controlling my friend's character and tried making them do what I wanted. It's just well, i'm a...
    Monstermaster13 Monstermaster13 22-25, M 1 Response 6 hrs ago

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    I think I have "cured" my brother with his heartache! I feel so proud and happy for myself and him :)))
    CatLikeCub CatLikeCub 13-15, F 6 hrs ago

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    Well, you may say it is not a big deal and it is ok but I really do not like when people say; it is ok you are young, move on I wish I am that young! or you are too young to feel...
    lonelytone lonelytone 31-35, F 1 Response 5 hrs ago

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