I Have Autoimmune Progesterone Dermatitis

A Autoimmune Progesterone Dermatitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Autoimmune Progesterone Dermatitis. You're not alone. 206 People

    Just Diagnosed With Apd

    I was just diagnosed with APD 10 days ago. I stared breaking out in hives on Easter Sunday this year and had been searching for a reason why. I went thru my regular internist, a dermatoligist and finally an allergist/immunologist before finding the answer. After 4 months of...
    bobcat43 bobcat43
    26-30, F
    9 Responses Oct 14, 2009

    Autoimmune Driving Me Crazy

    In November 2011, developed a rash on my shoulders. Being almost 50, and some research, I discovered that when women approach menopause your skin changes and rashes can develop. I decided to start taking Omega 3-6-9. Over the course of the next two months, my rash was out of...
    APDcrazy APDcrazy
    51-55
    4 Responses Mar 7, 2013

    Hello All, After suffering through recurrent

    and cyclical hives, rashes, , blisters, ER visits, mood swings, dysmenorrhea and anemia for 5 years, I was finally diagnosed with APD a few months ago. I recently underwent de-sensitization to P and am hoping this improves the quality of my life. My journey has been rather...
    apd7777 apd7777
    31-35, F
    Apr 5, 2015

    Hey, is someone here

    who knows a dr in germany? I'm so tired of searching for three years . . . .;( I want my life back . . . love, eva
    unicorn163 unicorn163
    26-30, F
    Sep 9, 2015

    This Is Hell

    Has anyone had full hysterectomy and oophorectomy. Did it solve the problem. I've been suffering for so long and doctors want to experiment with me. My original gynecologist suggested hysterectomy. Would love feedback I back on bc pills now with adverse effects. Next will be...
    Racheltank Racheltank
    46-50, F
    5 Responses Apr 21, 2013

    Oopharectomy Is My Goal

    Hi everyone,I have had Autoimmune Progesterone Histamine response for at least 2 years.  I am not just outwardly inflamed, I have inflammation internally too.  I'm just a mess from this.  The hives come with a lot fatigue, Nearly any activity I do triggers hives.  I get them...
    knitter4years knitter4years
    46-50
    19 Responses Oct 19, 2011

    Hi! I am 22. I haven't been to a doctor about

    everything yet, but I would like to know if anyone has experienced what I am going through. First of all, all my life, I have always had allergies. I have allergies to a lot of produce, animals, and indoor/outdoor allergens. I haven't seen an allergist since preschool. Anyway...
    paula8910 paula8910
    22-25, F
    Dec 2, 2014

    Almost a year ago I had my first experience

    with APD. One afternoon my lips started to feel numb as if I had been given a shot of Novocain. Within 15 minutes my lips were swollen so hugely that I could barely talk correctly. I took Benadryl and did not see any results until two days later. I thought this was weird and...
    jmargolis jmargolis
    26-30, F
    1 Response Apr 29, 2014

    This Group Is The Start Of Figuring This Out!

    Thank goodness for the internet! I've been trying to figure out what in the world is going on with me, and I think APD is it. Ive had two major outbreaks of hives- all over my body, nearly every inch. Ended up in the emergency room for a bit for some shots and sent on my way with...
    kelli320 kelli320
    41-45
    15 Responses Aug 26, 2011

    I Was Finally Diagnosed With Autoimmune Progesterone Dermatitis

    I am 36 years old and all of the sudden back in June I broke out with chronic uticartia. After food journaling, numerous steroid shots, and doctors telling me I am just stressed out and could possibly start yoga or guided imagery. I started to get upset because this would be...
    barbbieker barbbieker
    36-40
    Apr 30, 2012

    I suspect that I might have APD.

    I have been dealing with rashes and allergies for years that have been misdiagnosed. I've even been told that I have to be tested for ALL food allergy possibilities before they will test for progesterone allergy. :( And my health insurance isn't that great to begin with...
    HelpMeInSC HelpMeInSC
    31-35, F
    2 Responses Mar 26, 2014

    Developed APD In Pregnancy

    While 8 months pregnant with my first child (at 28 years old), I suddenly developed a horribly itchy rash along my stomach, underwear seams, and rear. It was awful. When I was able to get into my OBs practice the next day, she diagnosed me with PUPPPS and said it would resolve...
    PinkSpots PinkSpots
    36-40
    1 Response Feb 24, 2013

    Chronic Urticaria

    My little girl is suffering from chronic urticaria and the doctors have no clue why. This has been going on almost two years and she takes a ton of medication to keep it under control. Along with the gives she has joint swelling when the rash is present. I'm so lost and confused...
    sharon1029 sharon1029
    26-30
    4 Responses Nov 16, 2010

    I'm 22 years old, I have APD - this is a very

    long post, I would be so grateful for any feedback and shared stories! I've lived with a host of allergies and 'manageable' problems my entire life. I've had eczema since I was a baby, but never like this. I am certain that I have APD as it is the only way that explains how...
    finohna finohna
    22-25, F
    2 Responses Jun 9, 2014

    Hi there. I think I have this disease.

    I am 16 years old. I know you all are like 30s-40s but I am unusual apparently lol. I have had these symptoms since I was 11. I get hives or giant welts (and have gone into anaphylaxis) 5-7 days before my period. I have seen allergists, immunologists, gynecologists, a Russian...
    cailynrenee cailynrenee
    18-21, F
    1 Response Jan 13, 2015

    Finally, a Diagnosis!

    After 4 years of trying to figure out what was going on with me, a GYN doctor has finally pin pointed it and set me up for the testing. I am being told that I also have APD. The scarey part, I am only 27 and I am being told the best way to deal with it is to go...
    tator81 tator81
    26-30, F
    11 Responses Jul 24, 2009

    I Found An Answer! "Autoimmune Progesterone Dermatitis."

    After I started taking the birth control pill last year, I began to break out in hives and my eczema was the worst I have seen it, it covered my hands and arms. I realized that it began after a month of the pill being in my system so I stopped taking it however my skin issues...
    VanessaMarie76 VanessaMarie76
    36-40, F
    1 Response Oct 9, 2013

    Finally Diagnosed With APD, Need Good Treatment

    This is my history: I've never had a "regular" cycle. I either had super-heavy or super-light cycles, they could come every 2 weeks or every 2 months and last for 3 days or 3 weeks. I never knew. I went on the pill when I was 18 and stayed on for 11 years. When I tried to get...
    allergic1 allergic1
    36-40
    3 Responses Apr 2, 2013

    Possible Autoimmune Progesterone Dermatitis; Need Help Getting Tested/ Diagnosed

    Hi, I am hoping some of you who have been formally diagnosed can help me. I saw my allergist today and told him I believe I might have APD and would like to be tested. He told me he had never heard of it, and asked me what kind of test I was asking him to do. I told him that I...
    snaffle snaffle
    36-40
    5 Responses Nov 22, 2011

    Please help! I have known I have an allergy to

    progesterone for a few years now. I figured it out on my own. I never knew there was a name for it. It all started when I was 19 and got a depo-provera shot. My mouth broke out in ulcers, I gained 20 lbs., had crazy mood swings and had my period for 8 months straight...from...
    laurie210 laurie210
    31-35, F
    1 Response Feb 28, 2014

    Help! Question Related To Pregnancy And Apd

    My story is similiar to the rest of you ladies as far as the symptoms I have.. I have a 13 year old and began taking the depo shot after her for over 2 years and immediately became pregnant once stopping it! My first cycle after giving birth to my second child was the beginning...
    Jkeathley79 Jkeathley79
    31-35, F
    7 Responses May 1, 2012

    Don't Give Up On Diagnoses

    I wanted everyone to see this comment I made to Jojo31.     Hi Jojo31. I totally understand what you are going through and you're not alone in this. Yes, it's true that this is a rare disease, and it may be hard to find a doctor who has treated someone with the...
    cure44 cure44
    26-30, F
    8 Responses Sep 3, 2008

    I Have Autoimmune Progesterone Dermatitis

    I have autoimmune progesterone dermatitis.  I diagnosed it myself by reading about the stories of others and the symptoms.  I went to several doctors that did not know what I had. The symptoms continued for about a year before I decided what I had.  I found that my...
    meadow7 meadow7
    46-50
    10 Responses Dec 19, 2010

    APD With An Allergy To My Estrogen Too!!!!

    Hello I am a 37 yr old with 2 children, ages 5 & 7. About 18 months ago I noticed a rash that developed on my left breast, that was circular in appearance and would itch so bad that I would scratch until it bled! It started with one lesion about the size of a quarter and it...
    Deedee1225 Deedee1225
    36-40, F
    6 Responses Aug 19, 2013

    I am so happy to have come across this page!

    Until now I have never spoken to another person who was suffering like me. I am so grateful for this group! I have been suffering for years, trying to get a diagnosis. Finally this year I found out what was wrong with me. I had the swollen lips, blisters and rashes on my arms...
    Redloraine Redloraine
    41-45, F
    May 20, 2014

    As a teen, I had ridiculously heavy menstrual

    cycles, so, at the suggestion of my doctor, I began taking birth control pills, and continued taking them until I was 25 and married. While on the pill, I found out that my husband and I were expecting our first child, so I quickly quit taking the pill and have never been back...
    roswartz roswartz
    31-35, F
    Jun 20, 2015

    I Think I May Have Autoimmune Progesterone Dermatitis

    hi there, how are you? awesome to have found this site. since the birth of my first child almost 9 years ago I break out in hives prior to my period and with her and my other 3 children I would get them so bad about 3-4 postpardum. I would be covered in hives. Now I just get them...
    ecorrado ecorrado
    36-40, F
    4 Responses Sep 3, 2009

    I Stopped Taking The Pill And 2 Months Later I Have APD?!

    I'm 24, I've had 3 rash outbreaks. From the sounds of it, they seem like the typical experience, rash, itchy skin, starts in the neck and effects the whole body pretty rapidly. It wasn't until this month that I put together that I thought it had to do with my menstrual cycle...
    julieaseltine julieaseltine
    26-30
    1 Response Feb 25, 2013
    droy0427 droy0427
    41-45, F
    Feb 18, 2014

    Just Diagnosed With Apd

    Just found this site & hoping there are some doctors that are treating this disease. My current doctor suggests I get an oopherectomy. I am only 39 and would like other options of treatment before having such a big surgery.
    mommiepug mommiepug
    36-40
    3 Responses Sep 3, 2012

    Seeking Help

      I have been suffering with, what sounds like, Autoimmune Progesterone Dermatitis for nearly 2 years now. It started during my second pregnancy. I wanted to see if anyone could suggest a good doctor, who may know about this problem, in Portland, Oregon. I have been to so...
    dinams dinams
    41-45
    3 Responses Sep 22, 2013

    Years Of Infertility, And Apd Being Dismissed As Eczema

    Hi there, I have been suffering from APD for the last 8 years.  My initial episode was sadly triggered by a miscarriage 8 years ago.  After trying unsuccessfully to get pregnant again after the miscarriage, investigations showed that scar tissue from the miscarriage had formed...
    Missy1975 Missy1975
    36-40
    2 Responses Jun 19, 2012

    Apd And Oophorectomy

    I have been fighting APD for the last 7 years. I finally got diagnosed last summer. My family physician has put me on Yaz and I take it continuously without taking the placebo pills for 4 months and then take placebos to have a period every four months. My symptoms are hives...
    smcadoo smcadoo
    31-35
    11 Responses Jul 1, 2011

    Progesterone Allergy

    Hi, I had a miscarriage in February 2012 and ever since then, I started developing an itchy rash on my arm every time my period is about to come. Of course the rash begins to fade away as soon as the period arrives...only to haunt me again next month in classic APD fashion...
    ISTILLBEL1EVE ISTILLBEL1EVE
    31-35
    4 Responses Nov 7, 2012

    Need Lots Of Direction!

    I have just read about this and am wondering if my situation is similar and would welcome all the advice in the world!  I am 37 have five children (2 are twins) and I have been pregnant 6 times (1 miscarriage and 1 preterm stillbirth) I have taken the pill when I was not...
    justneedclarity justneedclarity
    36-40
    1 Response Jun 9, 2011

    Have Had It Since 2000, Just Diagnosied Myself Saturday After Watching A Television Show

    Hi, I have had this since 2000. After many years of infertitily treatments where I received shots of pregestorone. I started a new treatment, the day after my first injection my face swelled up. I called the infertility specialist and told him that I must be allergic to the...
    samstep samstep
    56-60, F
    2 Responses Oct 17, 2013

    22 Years Of Misery

    I have been dealing with itchy rashes for the last 22 years. I'm 42 and my rashes have been out of control the last four months. I have been to numerous doctors over the years and have been treated for just about everything with the rash just returning. I could control it with...
    adorabledos adorabledos
    41-45, F
    Sep 29, 2013

    Thinking I Have This

    Looking to find a doctor that can test for this. The allergist is calling me back, they stated none of my insignificant food allergies etc should have created the reactions I am having. Haven't called the dermatologist yet but that would be my next option I guess if the...
    4Bailey 4Bailey
    46-50, F
    6 Responses Jul 20, 2010

    Doctor Wont Run Tests

    hello im 25, I have a 2 year old son and have had eczema since i was four. four years ago i started learning aboutt alternative health and stopped using all steroid creams. When i became pregnant my eczema started appearing between my eyes and has gradually got worse and worse it...
    Rowan2311 Rowan2311
    26-30, F
    2 Responses Sep 2, 2013

    My Battle With Apd

    Hi I was recently diagnosed with autoimmune progesterone dermatitis. I'm 22 years old and it all started two summers ago. I started waking up in the middle of the night with discomfort. I could not sleep at all and my face was tingly. I looked in the mirror and noticed my lips...
    paprikapepper paprikapepper
    22-25, F
    6 Responses Nov 1, 2011

    Please Help!

    I believe that I also have APD. I have been dealing with awful rashes all over my body that started after my 2nd pregnancy. Actually, started on my hands during the last trimester of pregnancy and progressed to legs and arms and every where else about one month or so postpartum...
    Annamar Annamar
    46-50, F
    3 Responses Oct 11, 2013

    I Have Apd

    I actually posted part of this as a comment:   It took me over a year to get a diagnosis of APD, and I feel lucky that it took so little time.  I was diagnosed with eczema, contact dermatitis/allergy, and anxiety before I found a doctor who diagnosed me with...
    iamwoman iamwoman
    36-40
    6 Responses May 17, 2008

    After 2 Kids, I Developed APD.. I Finally Know Whats Wrong With Me, Now, Is There A Solution?

    I am turning 30 in a few months, I have a 10 year old son and an 8 year old daughter. It was after I gave birth to my daughter that I developed this itchy, nasty rash all over my face, neck and arms. I noticed I would get it since the day I started ovulation untill day after my...
    anabanana83 anabanana83
    31-35, F
    Mar 23, 2013

    Allergic To My Hormones.

    for 4 years now I have been getting sick around my ovulation up to my period. Sometimes a couple days and sometimes for the whole 2 weeks. I have recently finally gotten my fam doc to put me on something for pain. My gyn tried progesterone and birth control. I totally had a...
    shayash shayash
    31-35
    7 Responses Mar 11, 2012

    I Survived Apd

    I am 41 years old.  I have 3 daughters.  I was on birth control for 15 years 'til 30.  I started having kids at 33.  I had 3 girls within 4 years.  I took synthetic progesterone during first months of final pregnancy due to low progesterone readings...
    IsurvivedAPD IsurvivedAPD
    41-45, F
    7 Responses Mar 16, 2010

    Hi everyone! Any feedback on this would be

    great! My story is long so I apologize in advance!!! My husband and I are newly married however we have been together for 10 years now. We have been trying to conceive for 7 of those years with no luck. We decided to take it to the next level finally since we realize we are...
    maimee2005 maimee2005
    41-45, F
    2 Responses Aug 12, 2014
    kiwideelady kiwideelady
    36-40, F
    1 Response Apr 29, 2014

    I'm 40 years old, and I have suffered with what

    I believe to be APD for over 20 years now. Not every single month, but almost every month, and some months more severe than others, I get a radiation burn like rash on my chin and around my mouth and on my forehead. It starts when I begin ovulation and lasts until a few days...
    DollyLynn DollyLynn
    41-45, F
    1 Response Aug 25, 2014

    Shocked

    I am 22 years old, and not officially diagnosed with APD, and I hadn't even heard of this until last Saturday, but I don't think there is any way that I don't have APD. The details of some symptoms described match what I have dealt with for years to a perfect T. Since I was 16...
    uncertain22 uncertain22
    22-25, F
    Jul 9, 2012

    Dealing with APD It had been 3 years of my

    suffering and 9 Doctors and still didn't have any answers for what is wrong with me. I would have itching & inflammations all over my body .. my arms .. legs .. my face .. my ear .. and it would bleed sometimes . Only the one suffering knows how it feels to sleep each night...
    SJ1604 SJ1604
    22-25
    2 Responses Mar 30, 2014

    I'm wondering if anyone with APD has gets a

    rash in their vaginal area and buttocks? I haven't been diagnosed yet, but I've been dealing with a vaginal rash and swelling during ovulation up until I start my period. Then all the symptoms go away. This has been going on for the last 2 1/2 years and I'm finally onto...
    Donnafrancis777 Donnafrancis777
    31-35, F
    1 Response Oct 9, 2015

    I am going to the doctor in 4 days to get

    confirmation on this diagnosis. I've been having outbreaks for about 2 years now, but only tied them to my menstrual cycle about 6 months ago. Besides the horrific rash, I also have to deal with extremely itchy hands in the late evening. They look perfectly normal, but the...
    Chovey85 Chovey85
    46-50, F
    2 Responses Feb 3, 2014

    Apd

    I am looking for a dr. that treats autoimmune progesterone dermatitis in the myrtle beach area I am in desparate need for any info from anyone .
    mhilditch mhilditch
    41-45
    4 Responses Jun 26, 2008
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