Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Barre Lieou Syndrome

A Barre Lieou Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Barre Lieou Syndrome. You're not alone. 15 People

    I see no one else here.

    what happens to you?
    91hawk 91hawk 56-60, F Feb 3, 2014

    Your Response

    Cancel

    Barre-Lieou and Me

      Barré-Lieou and Me   While the title may sound like a pop culture movie title, it seemed appropriate when trying to describe the journey I have been on for the past couple of years, and still travel.   In this document I will go into detail of how...
    rmcfarland rmcfarland 36-40 34 Responses Sep 24, 2008

    Your Response

    Cancel

    Not Sure...

    I have a long history of spinal problems, ultimately having an emergency operation in 1996 which saved the feeling in one leg. In 2000 I began having problems with my neck, which, over time, have worsened. But it's the other symptoms I have, which make me wonder if it is indeed...
    JayneP JayneP 51-55, F Jun 1, 2012

    Your Response

    Cancel

    Don't Wait

    I came down with pneumonia & a super-virus in Dec 2006... ran a fever of 106 for 12 days...suffered some permanent brain damage much like that of a stroke leaving me with weakness, vertigo, reduced cognitive function as well as damage to my vestibular nerves.  I fell...
    BLsufferer BLsufferer 46-50 4 Responses Jun 21, 2009

    Your Response

    Cancel

    Pues aquí estoy, me acaban de diagnosticar

    esto, y fue como una gran patada... llevo ya mucho tiempo con cosas: depresión, crónica, cansancio,fatiga, herpes zozter, problemas en los ojos, dolores de cabeza, ansiedad,visión borrosa, El año pasado tuve un accidente que desencadeno manos dormidas y un importante...
    AleCogh AleCogh 56-60, F Mar 10, 2015

    Your Response

    Cancel

    I Think I Have Barre-Lieou Syndrome

    In 2011 I was a fulltime college student. I bartended all week, and worked at a hair salon as a receptionist on the weekends. The summer of 2011 I woke up on July 3rd and was in so much head pain that I couldn't' get out of bed. I have been bed ridden for almost 3years. I have...
    jenelleh88 jenelleh88 26-30, F Sep 18, 2013

    Your Response

    Cancel

    Related Experiences

    National Native American Heritage Month Is November. Now I wounder why is it that we were here FIRST, yet a month to get others to understand out heritage is ignored. All February...
    ImAGreywlf ImAGreywlf 56-60, M 36 mins ago

    Your Response

    Cancel
    I get this feeling as if i have a hand/claw/grip etc on my side and one on my left shoulder. Not causing any harm. It's just pulling me back. So i physically move forward with it...
    Lockholder Lockholder 22-25, M 1 hr ago

    Your Response

    Cancel
    so last night i had a dream i remember it clear as day and think about it very often. But i don't understand much of it. i've had it once before. here it goes. i was in a room a...
    Lockholder Lockholder 22-25, M 1 hr ago

    Your Response

    Cancel
    I have gender identity disorder. I constantly struggle with the fact that my body isn't male. Perhaps it is a mental disorder to feel that way, especially so intensely, given the...
    Fluffystuff Fluffystuff 18-21 1 Response 3 hrs ago

    Your Response

    Cancel
    My EP Family. I'll just write down the names I know. The others know who they are. MindStruggle- my mirror mind. We have so much in common. When It comes to deep thinking of...
    LeahLovee LeahLovee 70+, F 1 Response 3 hrs ago

    Your Response

    Cancel
    I put pressure on myself to fall in love. I can't. Don't get me wrong, I have fallen in love before. Just once. I was in love with him for 2 years but nothing happened between us...
    ScissorhandsFingeredMe ScissorhandsFingeredMe 16-17, F 3 hrs ago

    Your Response

    Cancel
    I really can't say that I have been wronged anytime recently. I simply always have a strange feeling if I share too much. I must learn to set and keep my own boundaries for my own...
    bluuzman bluuzman 56-60, M 1 Response 4 hrs ago

    Your Response

    Cancel
    so. I don't know if I would classify this as paranormal but strange enough. I should start by saying I do have an iPhone and was charging it. I was just laying in bed with it...
    LiloRen LiloRen 22-25, F 1 Response 4 hrs ago

    Your Response

    Cancel
    Losing My Virginity To An Air Force *******. I have started and deleted this story seven times now, I don't know why it's so hard for me to clearly express my emotions about this...
    PandaaMee PandaaMee 22-25, F 2 Responses 7 hrs ago

    Your Response

    Cancel
    I have a secret to share with u. I like isolation a lot cause I was used to bein alone ever since I was a little girl. When I was adopted my mom was ALMOST NEVER home so it was me...
    CreepypastaFan2016 CreepypastaFan2016 16-17, F 8 hrs ago

    Your Response

    Cancel
    i am looking for a girl i can call my own someone i can give my all too but i just haven't found the one. I'm 18 college freshman/ part time model I'm not bad looking i haven't...
    LEX1888 LEX1888 18-21, F 9 hrs ago

    Your Response

    Cancel
    Other people would have absolutely no problem with casual encounters with someone they know. But not me. For example, this morning, I bumped into a colleague at the grocery. I...
    mareliberum mareliberum 26-30 2 Responses 11 hrs ago

    Your Response

    Cancel
    I didn't even know this was a thing up until like a few mins ago but reading everyones posts about it, I'm absolutely sure I have it to. the people I want most in my life, for...
    dathglas dathglas 13-15, M 1 Response 12 hrs ago

    Your Response

    Cancel
    My name is Tiffani and I am looking for another person with KSS for my brother, Keith. He is 42 now and was diagnosed at 24. He started showing signs in his late teens, first by...
    Tiffanimorgan Tiffanimorgan 18-21, F 2 days ago

    Your Response

    Cancel
    I'm 33yrs old, I was born with bi-lateral sprengels. Born to a family which didn't have much $, and having a deformity that's rare I went undiagnosed until a year ago. As a child...
    TrisCat TrisCat 31-35, F 1 Response 3 days ago

    Your Response

    Cancel
    I came across this site reading everyone's stories feeling amazed about how I am not alone. I feel a little disappointed because everyone's stories are mostly or similarly the same...
    whyme96 whyme96 18-21, F 1 Response 4 days ago

    Your Response

    Cancel
    Forgot to post this dream I had the other night. It really wasn't that exciting, what made it weird was the vividness of it and how real it felt. The first part of the dream I was...
    Hush92 Hush92 18-21, F 1 Response 5 days ago

    Your Response

    Cancel
    This is in regards to a friend of mine who suffers from carpel tunnel. In addition to this...it also seems like the muscle, tendon, etc. in his arm is calcifying making it feel...
    jlg813 jlg813 26-30, F 1 Response 5 days ago

    Your Response

    Cancel
    Today, I was diagnosed with Duane Syndrome. After 17 long years of wandering what's wrong with me, and why my eyes are so different from other peoples', I finally have closure. I...
    katiebug7 katiebug7 16-17, F 5 days ago

    Your Response

    Cancel
    Good evening! I have been diagnosed with Marfan Syndrome when I was three months old by an ophthalmologist in a hospital in Poland. I am now 6'2", after two cardiac surgeries and...
    sakrona sakrona 18-21, F 4 Responses 5 days ago

    Your Response

    Cancel
    Just found out my 11 year old son has Asperger's syndrome. I have suspected for a while, and the reason it went undiagnosed for so long is because he is so academically gifted. In...
    SoShellyBye SoShellyBye 41-45, F 2 Responses 6 days ago

    Your Response

    Cancel
    I don't know for sure, but I know it's not normal. How can you be so tired from nothing? And this condition is what makes me depressed. Like I can be perfectly normal and then...
    fcksociety fcksociety 22-25, F 6 days ago

    Your Response

    Cancel
    It's hard to really do anything.. When your a minor and have no family support... What's the point
    Norial Norial 13-15, F 1 Response 6 days ago

    Your Response

    Cancel
    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
    blitzkrieg7 blitzkrieg7 22-25, F 4 Responses 6 days ago

    Your Response

    Cancel
    The current dictator in the Whitehouse is now proposing to a slap a ten dollar oil tax on each barrel of oil, imported and exported. There is no end to the madness of this...
    Johnny050 Johnny050 46-50, M 1 Response a week ago

    Your Response

    Cancel
    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T Feb 5

    Your Response

    Cancel
    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
    topcap2017 topcap2017 41-45, M 1 Response Feb 5

    Your Response

    Cancel
    So I have a question. For me, when I am about to faint, I become really incoherent. I forget what I am talking about, I say off the wall things, and I can barely walk straight. It...
    imstrongerthanyouthink imstrongerthanyouthink 18-21, F 1 Response Feb 4

    Your Response

    Cancel
    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 70+, F 4 Responses Feb 4

    Your Response

    Cancel
    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
    ProjectExperienceNameUser ProjectExperienceNameUser 26-30, M Feb 4

    Your Response

    Cancel
    I don't understand why they are subjecting me to this? They first suggested Turner Syndrome to me 2 years ago and referred me for yet more bloodwork on my hormones - the laugh of...
    LoneSouls LoneSouls 31-35, F Feb 4

    Your Response

    Cancel
    i have several mental illnesses. i have been hospitalized many times and in rehabs. i take medication every day. i hate stigma and discrimination. it is wrong. i have...
    coffeeonice coffeeonice 31-35, F 1 Response Feb 3

    Your Response

    Cancel
    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
    endlessl0ve endlessl0ve 26-30, F 2 Responses Feb 3

    Your Response

    Cancel
    Any way to stop feeling fatigued? Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT 22-25, F 2 Responses Feb 2

    Your Response

    Cancel
    i'm 40 years old and have polands syndrome.i was always told that i just had a birth defect and that was it but finally a doctor diagnosed me.i was fine when i was younger but for...
    Brewdogg Brewdogg 36-40, M 1 Response Feb 1