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I Have Barre Lieou Syndrome

A Barre Lieou Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Barre Lieou Syndrome. You're not alone. 15 People

    Barre-Lieou and Me

      Barré-Lieou and Me   While the title may sound like a pop culture movie title, it seemed appropriate when trying to describe the journey I have been on for the past couple of years, and still travel.   In this document I will go into detail of how...
    rmcfarland rmcfarland 36-40 34 Responses Sep 24, 2008

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    I see no one else here.

    what happens to you?
    91hawk 91hawk 56-60, F Feb 3, 2014

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    Pues aquí estoy, me acaban de diagnosticar

    esto, y fue como una gran patada... llevo ya mucho tiempo con cosas: depresión, crónica, cansancio,fatiga, herpes zozter, problemas en los ojos, dolores de cabeza, ansiedad,visión borrosa, El año pasado tuve un accidente que desencadeno manos dormidas y un importante...
    AleCogh AleCogh 51-55, F Mar 10

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    Not Sure...

    I have a long history of spinal problems, ultimately having an emergency operation in 1996 which saved the feeling in one leg. In 2000 I began having problems with my neck, which, over time, have worsened. But it's the other symptoms I have, which make me wonder if it is indeed...
    JayneP JayneP 51-55, F Jun 1, 2012

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    I Think I Have Barre-Lieou Syndrome

    In 2011 I was a fulltime college student. I bartended all week, and worked at a hair salon as a receptionist on the weekends. The summer of 2011 I woke up on July 3rd and was in so much head pain that I couldn't' get out of bed. I have been bed ridden for almost 3years. I have...
    jenelleh88 jenelleh88 26-30, F Sep 18, 2013

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    Don't Wait

    I came down with pneumonia & a super-virus in Dec 2006... ran a fever of 106 for 12 days...suffered some permanent brain damage much like that of a stroke leaving me with weakness, vertigo, reduced cognitive function as well as damage to my vestibular nerves.  I fell...
    BLsufferer BLsufferer 46-50 4 Responses Jun 21, 2009

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    Related Experiences

    Im a 22 year old woman with Marfan Syndrome, which pe is symptom of. it never bothered me as a child so i never did anything about it, but now in my 20s i have been noticing...
    lauren1738 lauren1738 18-21 3 hrs ago

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    Hey guys. I diagnosed myself with Pica Syndrome because I crave soap pretty often and I recently started eating carpet freshener powder. I feel ashamed of what I've been doing so I...
    WhyArentYouSmiling WhyArentYouSmiling 18-21, F 1 Response 22 hrs ago

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    Watching a drinker teach a boy. Me noticed big chief syndrome The drinker was biker. Good guy. But so hurt by life. Me said why bark. Him said lazy boy. Me said green...
    Converted Converted 46-50, M 1 day ago

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    My writing and my stress are one and the same bone, before men and children and life taking a huge festering **** on me i was a pretty decent writer, I wrote often and never seemed...
    Aliandras Aliandras 26-30, F 1 day ago

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    So I made an account for this website to share my story about having polycyclic ovary syndrome. I was only diagnosed two days ago but after talking to my doctor and reading...
    JudgementFreeMe JudgementFreeMe 22-25, F 2 days ago

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    I look on here and am deeply saddened by the number of people who want to kill themselves. Many at such a young age, when they have not even begun to live their lives. They get in...
    GraceIsMine GraceIsMine 66-70, F 4 Responses 5 days ago

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    Could be me. Need to schedule an appointment and get assessed.
    Western9 Western9 36-40, M 6 days ago

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    I don't mind Aspergers. It has benefited my intelligence greatly, and I have a small group of friends who understand that I may not be the most entertaining or talkative person in...
    XenonVirus XenonVirus 13-15, M 6 days ago

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses a week ago

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses a week ago

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    Ever since I could remember I've never been able to just fall asleep whenever. I sleep in soooo late, like 12:00 pm and I constantly get yelled at for it by my parents. I literally...
    saide33 saide33 13-15, F Jun 28

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F Jun 27

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F Jun 27

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    Does anyone else have obsessions? I get obsessed with men, like my trainer. It can make life hard.
    janie94 janie94 18-21, F Jun 24

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    Sent from Yahoo Mail on AndroidPoderosísima oración e invocación a La Santa Muerte para amarrar y hacer retornar en siete días a un amante, novio, o marido a tu lado. Por...
    anonimato anonimato 46-50, F Jun 24

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 Jun 23

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    I found out in January, everything makes sense now. If only I could cope in a healthier way. I need more from my boyfriend, friends. I have no family. I'm all alone in a sea of...
    europaproxima europaproxima 22-25, F 1 Response Jun 23

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    I know a person can die from a broken heart (Broken Heart Syndrome ) and I wonder if a person can die from an empty heart?
    5catjenny 5catjenny 61-65, F 2 Responses Jun 22

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    Today I had an appointment with my primary care physician. I suspect that I have POTS. For almost 10 years I have been dealing with chest pain, shortness of breath, muscle pain...
    anewsyd anewsyd 26-30, F 1 Response Jun 22

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    Me and my mum clash! She thinks I'm attention seeking, needy and self absorbed. I resent my mum, she brought me into this world against my will, and she shows me no love. I...
    busybrain busybrain 26-30, F 2 Responses Jun 22

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    Daimyan is 9 and our journey began at his birth. He would like to ask everyone for support on a new support group on facebook. Search LUNAR to find it. Thank you
    LunarDayDay LunarDayDay 36-40, M Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    This is my little 4 year old brother Sage. He is my best friend in the whole wide world. He loves to talk about numbers and the solar system. We have our nights where we go outside...
    ThatOneSomaliGirl ThatOneSomaliGirl 13-15, F 5 Responses Jun 21

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    Hi, I'm new to this. I've been eating toilet paper (obv clean) since I was around 10 years old. It started just odd sheet whilst in the bathroom, I didn't eat it consistently...
    Tiz1988 Tiz1988 26-30, F 1 Response Jun 21

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    As a teen, I had ridiculously heavy menstrual cycles, so, at the suggestion of my doctor, I began taking birth control pills, and continued taking them until I was 25 and married...
    roswartz roswartz 31-35, F Jun 20

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    I've been fine for a while, but now I've started fainting a lot again. My mum and I were going to go shopping for my dads fathers day present, but because I will need a wheelchair...
    anon1995 anon1995 18-21, F Jun 20

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    Hey everyone! Thank you so much for sharing your stories! I am doing a research project on the practice of pica during pregnancy, and would love to interview anyone who is...
    snowflakesintown snowflakesintown 18-21, F Jun 20

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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    Hi I am Penny and have CVS. I've had it now for 2 plus years and am having a hard time dealing with it. It is so difficult to deal with right now, my life is on hold. Does it...
    PHowland PHowland 51-55, F Jun 18

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    I am 44 years old I have experienced Bi polar with mixed episodes, Mania and depression Anxiety and panic PTSD and Scizophrenia. never diagnosed but clearly have dealt with...
    smalltownwitch smalltownwitch 41-45, F Jun 18

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    hi, i am kiran and i have poland syndrome pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    Sometimes having Aspergers Syndrome sucks ****. I got diagnosed when I was a little girl. My dad said i was born with it. I guess I AM born learning disabled. Anyways, I didn't...
    ArtLover24 ArtLover24 22-25, F 1 Response Jun 16

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