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I Have Barre Lieou Syndrome

A Barre Lieou Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Barre Lieou Syndrome. You're not alone. 14 People

    I Think I Have Barre-Lieou Syndrome

    In 2011 I was a fulltime college student. I bartended all week, and worked at a hair salon as a receptionist on the weekends. The summer of 2011 I woke up on July 3rd and was in so much head pain that I couldn't' get out of bed. I have been bed ridden for almost 3years. I have...
    jenelleh88 jenelleh88 26-30, F Sep 18, 2013

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    I see no one else here.

    what happens to you?
    91hawk 91hawk 56-60, F Feb 3, 2014

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    Barre-Lieou and Me

      Barré-Lieou and Me   While the title may sound like a pop culture movie title, it seemed appropriate when trying to describe the journey I have been on for the past couple of years, and still travel.   In this document I will go into detail of how...
    rmcfarland rmcfarland 36-40 34 Responses Sep 24, 2008

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    Don't Wait

    I came down with pneumonia & a super-virus in Dec 2006... ran a fever of 106 for 12 days...suffered some permanent brain damage much like that of a stroke leaving me with weakness, vertigo, reduced cognitive function as well as damage to my vestibular nerves.  I fell...
    BLsufferer BLsufferer 46-50 4 Responses Jun 21, 2009

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    Not Sure...

    I have a long history of spinal problems, ultimately having an emergency operation in 1996 which saved the feeling in one leg. In 2000 I began having problems with my neck, which, over time, have worsened. But it's the other symptoms I have, which make me wonder if it is indeed...
    JayneP JayneP 51-55, F Jun 1, 2012

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    Related Experiences

    Hello: My daughter has Parkes Weber Syndrome. I'm wondering if anyone in this group is from Ontario?
    Momofgirl Momofgirl 41-45, F Feb 5

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    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

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    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

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    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

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    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

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    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses Feb 21

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    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response a week ago

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses a week ago

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    I don't know if because of the other medications I HAVE to take or what but I use Restasis every day twice a day like the frickin commercial says. I also take Fish Oil and...
    steverick steverick 56-60, M 1 Response 1 day ago

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    It's so tough to get exercise. I want to exercise so much...but I can't because it hurts and my joints pop every time i do:(
    Enpfor12 Enpfor12 18-21, F Feb 10

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    i am aspie and i am proud of it. it makes me who i am and ucan all say like it makes some things i know i was diagnosed last year with this and high functioning augism and this is...
    prodemonz prodemonz 13-15, M 3 Responses Feb 24

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    Indeedly--makes effective communication a ***** I gotta say. And then there's the difficulty to quickly adapt, and sometimes people say stuff in a way that you just don't get and...
    Cryx Cryx 16-17, F 1 Response 4 days ago

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    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9

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    I am 26 and have been struggling with pica for 20 years. When I was a kid (6 years old) I started to eat the stuffing out of couches. It started off as a little here and there but...
    keepitlikeasecret keepitlikeasecret 26-30, F 10 hrs ago

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    I would... although l have many acquaintances and enjoy chatting with them, like others l have a few close friends, whom l can discuss anything with, no holds barred...you know who...
    MistyMoon1 MistyMoon1 41-45, F 1 Response 10 hrs ago

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    Does that make me a bully? I am not tolerant of people who whine and refuse to own the consequences of their own decisions. I am patient. So I don't typically call anyone out...
    Some1umayNo Some1umayNo 46-50, M 7 hrs ago

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    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 1 Response 4 days ago

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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
    alexxblanch alexxblanch 18-21, F 20 hrs ago

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    Quite a few, actually. Let's see: Velo Cardio Facial Syndrome Asperger's syndrome Depression Obsessive Compulsive Disorder That's me.
    ftmFreddy ftmFreddy 18-21, T 5 Responses Feb 9

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    The ever present question, are we being manipulated? If you say, well yeah, duh. Then you ask yourself the next question, who is manipulating us? Welcome to the mind of all tin...
    everydayisagoodone everydayisagoodone 31-35 2 Responses Feb 13

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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 2 Responses 6 days ago

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    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M 4 days ago

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    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M 3 days ago

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
    Atale Atale 18-21, F 1 day ago

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    When I was at infant school, we had a fancy dress competition and my mum made me an octopus costume which was effectively like a huge painted toilet roll tube with foam legs...
    GlassBrainedDog GlassBrainedDog 36-40 4 Responses Feb 14

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    Does anybody living in the uk have pots?
    emilysorrell emilysorrell 16-17, F Feb 7

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    Hello. I have been experiencing symptoms for 6 months now and I was very recently diagnosed with Rumination Syndrome. I am on 20mg of Amnitriptolyn to help cure but there hasn't...
    minmouse614 minmouse614 26-30, F 1 Response Feb 9

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    I've missed 17 days this semester already and am very behind in school. Does anyone else have a really hard time keeping up? My mom says I can start homeschooling but not until I...
    TavynKeylee TavynKeylee 13-15 2 Responses Feb 10

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    I have suffered with pica since I was a child. I eat drywall and I need to stop! now! I've tried everything, I take supplements, I try to find something less toxic to meet my needs...
    lilacgarden2015 lilacgarden2015 22-25, F 1 Response Feb 12

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    I got into a relationship with a man I thought was my soulmate, it happened online and he lived in a different state. He flew over twice and I flew to see him once. For 6 months...
    CosmicPrincess CosmicPrincess 26-30, F 1 Response Feb 14

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    After 5 years of battling with POTS I have finally managed to stay healthy long enough that my doctor approved me for a volunteering program in South Africa! After years of wishing...
    haileybb haileybb 18-21, F 1 Response Feb 14

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    HAVE ANYBODY EVERY STOPPED THIS COMPLETELY? ????
    toiletpapereatter toiletpapereatter 31-35, F Feb 19

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    I am 31 and my husband is 31 as well?we are a gay couple? for the last 7 years My husband has been aware of his Aspergers Diagnosis and I, Have done a very extensive amount of...
    KnightOfTheMadHatter KnightOfTheMadHatter 31-35, M Feb 22

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    Hello. I am a 23 year old male, and this is my story that I want people to know. It all began back in my old home. My parents were great and wonderful parents to the eyes of the...
    familymaynotbeforever91 familymaynotbeforever91 22-25, M 3 Responses a week ago

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    im self diagnosed i truly feel that i have it
    TomboyBeth TomboyBeth 13-15, F 1 Response 3 days ago

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