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I Have Barre Lieou Syndrome

A Barre Lieou Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Barre Lieou Syndrome. You're not alone. 13 People

    I see no one else here.

    what happens to you?
    91hawk 91hawk 56-60, F Feb 3

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    Barre-Lieou and Me

      Barré-Lieou and Me   While the title may sound like a pop culture movie title, it seemed appropriate when trying to describe the journey I have been on for the past couple of years, and still travel.   In this document I will go into detail of how...
    rmcfarland rmcfarland 36-40 33 Responses Sep 24, 2008

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    Not Sure...

    I have a long history of spinal problems, ultimately having an emergency operation in 1996 which saved the feeling in one leg. In 2000 I began having problems with my neck, which, over time, have worsened. But it's the other symptoms I have, which make me wonder if it is indeed...
    JayneP JayneP 51-55, F Jun 1, 2012

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    Don't Wait

    I came down with pneumonia & a super-virus in Dec 2006... ran a fever of 106 for 12 days...suffered some permanent brain damage much like that of a stroke leaving me with weakness, vertigo, reduced cognitive function as well as damage to my vestibular nerves.  I fell...
    BLsufferer BLsufferer 46-50 4 Responses Jun 21, 2009

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    I Think I Have Barre-Lieou Syndrome

    In 2011 I was a fulltime college student. I bartended all week, and worked at a hair salon as a receptionist on the weekends. The summer of 2011 I woke up on July 3rd and was in so much head pain that I couldn't' get out of bed. I have been bed ridden for almost 3years. I have...
    jenelleh88 jenelleh88 26-30, F Sep 18, 2013

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    Related Experiences

    I'm so glad I found this. Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and...
    jsxburt jsxburt 46-50, F a week ago

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    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

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    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response Dec 13

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    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses Nov 27

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    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
    Ditum Ditum 18-21, M Nov 28

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    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

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    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

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    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
    lyricalongings lyricalongings 31-35, F 1 Response Dec 7

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    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

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    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

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    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

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    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
    SecretGaygent SecretGaygent 22-25, F 5 Responses Dec 14

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    I have had CFS for about 12 years and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...
    TealGirl TealGirl 31-35, F 1 Response 1 day ago

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    My daughter has BCS. She's 6yrs old now. She was diagnosed when she was 18 months old. Her body was shunting itself when I was pregnant with her. She's currently on Coumadin. She...
    annagracesmom annagracesmom 41-45, F Nov 30

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    Has anyone else read the Michael Vey series of books. Kind of Awesome that TS has a champion. :)
    jeepers92 jeepers92 41-45, M Dec 10

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    I could write a whole blog about what the side effects are of me, but the main thing is i find myself to be insecure at times because i find it sometimes difficult communicating...
    agdnn agdnn 26-30, M 2 Responses 4 days ago

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    The last time I was in hospital I remember a man being seen by a physician, the man was covered in blood. He had an entire roll of loo paper resting under his nose that was blood...
    heyitsabike heyitsabike 31-35, F 1 Response 5 days ago

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    I was diagnosed with POTS when I was around ten. I have been on fludrocortisone (florinef) and atenelol ever since. My husband and I are wanting to get pregnant, and my...
    kdav12 kdav12 22-25, F 1 Response 5 hrs ago

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    I got diagnosed when I was 3 and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under...
    macyl macyl 18-21, F Nov 30

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    I have Hypermobility Ehlers Danlos Syndrome (EDS). I also have Postural Orthostatic Tachycardia Syndrome/dysautonomia (POTS). Ehlers Danlos syndrome is a connective tissue...
    jahoz jahoz 41-45 Dec 14

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    When I was 26 year old I found out I got Klinefelter Syndrome Infertility – the condition may be diagnosed when fertility problems Reduced testicle size – in all males with...
    topball2015 topball2015 41-45, M 3 days ago

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    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 3 Responses Dec 18

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    I was diagnosed with Duane Syndrome in my right eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital...
    baaraah baaraah 18-21, F Dec 5

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    I found out I had Duane Syndrome in both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used...
    Ashleyc97 Ashleyc97 16-17, M Dec 12

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    Hi there. Since I was born I have been diagnosed with marfan syndrome. Little did I know, being an infant, I was on the verge of having many issues in life. They may not have been...
    ChrisSFTY ChrisSFTY 18-21, M Dec 15

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    i think Asperger Syndrome is very similar to Obssesive Compulsive Personality Disorder...
    Hanahbee Hanahbee 31-35, F 2 Responses Dec 16

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    Yea, just as it says, I have Aspergers Syndrome. It's tough at times. Yea, I have a great understanding of logic but the fact I don't understand emotions. Nor do I understand and...
    Tnert357 Tnert357 13-15, M 3 Responses 6 days ago

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    Hello my name is johnny.......i was born with goldenhar syndrome.......i was born in mexico city where doctors their said that theirs nothing they can do.....so my lovely mother...
    johnnycash4814 johnnycash4814 26-30, M 1 Response 5 days ago

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    Was rollerblading. Barrelled into a fence taking a turn too fast when I was 7
    kaixin97 kaixin97 16-17, F Dec 2

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    "I have the deepest affection for intellectual conversations. The ability to just sit and talk. About love, about life, about anything. To sit under the moon with all the time...
    build14her build14her 56-60, M 1 Response Dec 4

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    The one thing that sets old people apart is that you have lived a long time. A lot of things happen to you over the years. In the 1980s I had a bleeding ulcer. I didn't know what...
    lasergraph lasergraph 61-65, M 4 Responses Dec 16

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    Last night, I dreamt I was Edward Kenway, from Assassin's Creed (I am an eighteen-year-old girl), and I was hiding inside a haystack in a camp occupied by troops who hated me. How...
    GraceWillow GraceWillow 18-21, F 4 Responses 3 days ago

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    It took the doctors almost 3 years to diagnose me. At first, they thought it was anxiety or depression. I was thrown around from hospital to hospital for about 2 1/2 years until a...
    Kristoe103095 Kristoe103095 18-21, F Nov 29

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    From the time that I was 7 years old, I have been medicated. I have been on 30+ drugs my entire life. First was Ritalin, that made me a walking zombie. From then on anti...
    sicknfaith83 sicknfaith83 31-35, F Dec 2

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    I was diagnosed with F84.5 ...... Asperger's Syndrome is an interesting foot note on the diagnostic scale of what is know 'autism spectrum disorder' a lot of harm was done when...
    Homejames Homejames 51-55, M 1 Response Dec 8

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    So I have this nice blue budgie that has recently been widowed (his green husband died). I believe the cause of death was curmudgeonly budgie syndrome. Truth is he was always a...
    Tannasheart Tannasheart 46-50, F Dec 9

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    Six years ago I broke my left foot. Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to...
    barefootshirtless barefootshirtless 41-45, M Dec 9

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    Hi my name is Christina, I just found out I have pica. I have been licking cigarette ashes off of my finger. It started about 5 months ago while I was living with my ex. I was very...
    4cutiepies 4cutiepies 36-40, F Dec 11

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    Hi, I'm 43 and I think I have pica because I'm really addicted to eating ice and smelling washing powder. It's only one brand of washing powder I crave for(I'm not worried about...
    smurft smurft 41-45, F Dec 16

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    At 14 he is presenting with some ridged exhausting repetitive, perseverant, behaviours. This is the first time I have felt pretty out of my depth managing his pathology. I am...
    Tannasheart Tannasheart 46-50, F Dec 17

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    I wanted to share this. Envita Publishes Important Chronic Lyme Disease Treatment Study SCOTTSDALE, AZ--(Marketwired - December 16, 2014) - A revealing new study on chronic Lyme...
    mynameisjeff28 mynameisjeff28 26-30, M Dec 18