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I Have Barre Lieou Syndrome

A Barre Lieou Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Barre Lieou Syndrome. You're not alone. 11 People

    I see no one else here. what happens to you?
    91hawk 91hawk 56-60, F Feb 3

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    I Think I Have Barre-Lieou Syndrome - In 2011 I was a fulltime college student. I bartended all week, and worked at a hair salon as a receptionist on the weekends. The summer of 2...
    jenelleh88 jenelleh88 22-25, F Sep 18, 2013

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    Not Sure... - I have a long history of spinal problems, ultimately having an emergency operation in 1996 which saved the feeling in one leg. In 2000 I began having problems with my...
    JayneP JayneP 51-55, F Jun 1, 2012

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    Don't Wait - I came down with pneumonia & a super-virus in Dec 2006... ran a fever of 106 for 12 days...suffered some permanent brain damage much like that of a stroke leaving...
    BLsufferer BLsufferer 46-50 3 Responses Jun 21, 2009

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    Barre-Lieou and Me -   Barré-Lieou and Me   While the title may sound like a pop culture movie title, it seemed appropriate when trying to describe the journey I...
    rmcfarland rmcfarland 36-40 30 Responses Sep 24, 2008

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    Related Experiences

    I have Tourette's syndrome.
    mrhollingswortg1992 mrhollingswortg1992 22-25, M a week ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 1 Response 7 hrs ago

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    I was diagnosed at the age of 17. Up until that point i spent my life with the perallasis and docters not knowing what it was. They thought i had a type od muscular distrophy and i...
    tabitha35 tabitha35 31-35, F Mar 19

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F Mar 28

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M 4 days ago

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    11 yrs ago I was a custodian at a local Christian School! I was walking from the main office to the gymn when, out of nowhere, my legs and arms began to feel as if someone was...
    terryb47 terryb47 46-50, M Mar 16

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    All the sounds I hear are extremely loud. I may have been like this my whole life, but it's getting worse now. People talking, laughing, babies crying, cars, machines, phones...
    mad95 mad95 18-21, F 1 Response Mar 16

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    I am the middle of 5 2 older brothers 2 younger sisters. My brothers were always allowed to do what ever they want. Stay up late,drive, and lots of other fun stuff. My parents took...
    Jimmy1313 Jimmy1313 22-25, M Mar 26

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    I personally don't have CFS but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels...
    IamLerato IamLerato 22-25, F 1 Response 2 days ago

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    Wow I dont know where to start.... after having being misdiagnosed on 12/27/2012 and sent home when i arrived because i was in so much pain i could not walk. Returned to the ER on...
    momndom momndom 31-35, F 3 Responses Mar 22

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    I am 32 years old, diagnosed three years ago. I have had 5 surgeries on my leg and 3 on my shoulder. I am on anti-depressants, nerve painkillers, anti-inflammatories and...
    gimpy55 gimpy55 31-35, F Mar 26

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    Another sleepless night. Got stressed today and sleep will not come. Legs hurt and are creepy crawly. Meds are doing nothing. Ughhhh...........
    chloe433 chloe433 56-60, F 2 Responses Mar 16

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    I get reconstruction surgery July 16th!!! SO excited, but not being able to play field hockey because of it is going to suck. I'm terrified of going under but I don't even care...
    marinagrace marinagrace 13-15, F 6 days ago

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    Anyone with this won't to talk ? Just diagnosed today and would love to talk to others with it
    Mum2one Mum2one 22-25, F 1 Response 1 day ago

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    Okay this very rare virus I contacted just over 26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Mar 27

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    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    Hey, I'm Ashley. I'm 18 years old and I've had vitilligo for 7 years now. It started with a small spot on my neck. I didn't think anything of it. I thought it honestly came from...
    ashhxox ashhxox 18-21, F 1 Response Mar 16

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    My names Alaina, I'm 17, and about three years ago I was diagnosed with Chiari Malformation Type 1. So freshman year of high school I started having really bad headaches, and found...
    burtala burtala 16-17, F Mar 27

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    Part III i look at my past GBS stories... although brutally honest... which i tend to reserve for justme... so grateful to report the love of a few close, dear friends... of family...
    clgsassy clgsassy 56-60, F 1 Response Mar 19

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    I was 26 years old when I got GBS. I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go...
    mommabrick5 mommabrick5 46-50, F 1 Response Apr 7

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    My hair is naturally curly with Shirley Temple ringlets and it is parted naturally to the right side. It also changes naturally with the air and weather. Sometimes it can be...
    blossomingbeauti blossomingbeauti 36-40, F 3 Responses Mar 29

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    Two last night! In the first, I was still in highschool I guess. I was on the bus ride home after a long and exhausting day and the girl sitting next to me asked if I wanted to go...
    PinkMellow PinkMellow 18-21, F 3 Responses Mar 18

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    Hello, I'm a mother of one handsome 9 month old boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2

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    Intramarine Isolation Syndrome. It is what I have, my disease. Cool. Quiet. Sometimes green, sometimes blue. Dark, or shining in the sun, but it always feels like no one ever...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F Apr 6

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    I am new to this as I noticed several posts about pots syndrome I was wondering if someone could help me? I have suffered with this since I was 14 (I am now 19) but was only...
    potsie2222 potsie2222 18-21, F 1 day ago

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    The failure of the modern day Church to align themselves with the teaching and practice of the 1st century church has created the circumstances where loss of faith really means a...
    churinga churinga 70+, M Mar 24

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    I was walking with my cat Vesta and I'd stumbled across a single fairy lily amongst acres and acres of land. The lily stood out to me like a tornado in the midst of a barren field...
    magentafoxfire magentafoxfire 18-21, F Mar 28

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    Give me your love and marry me Marry me in everyway. If I can’t take care of it you’d better because I want it everyday Marry me and give me your love I want you to love me...
    Danielswifeisrighthere Danielswifeisrighthere 18-21, F Mar 30

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    Continuing my story....well at least part of it for now....after being in the mental hospital for a while. I grew cold and heartless towards the world. I was only 15. My grandma...
    Anxietyscars3 Anxietyscars3 18-21, M 2 days ago

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    Fortunately I am self-employed and can sleep the hours I "like" to 6AM-1PM. Not that I really want to be this way, but every time I try to reset to normal time, it only lasts a...
    Pozadam Pozadam 46-50, M 1 Response Mar 19

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    I really need someone who knows what is going on to help me make sense of things. My partner of just over a year.. has spent the year breaking up with me. I am always fighting...
    maveric01 maveric01 41-45, F 1 Response Mar 20

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    I'm at a crossroads now, as I have four young children with my husband of 8 years, who has undiagnosed Autism. I have always just given my husband his way. I thought I was just...
    GMetz34 GMetz34 31-35, F Mar 20

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    Mild cp, deformed hand, poor vision and hearing, poor teeth, weak heart, something undiagnosed with my brain (sort like a stroke but not), type 2 diabetes, psoriasis, soliios, ADHD...
    dacraww dacraww 22-25, M Mar 23

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    Well my dad used to tell me off for eating. I always had a revved up metabolism which continued well into my teens. I could rival any teenage boy. But I was active- I never...
    NekroNomikon NekroNomikon 18-21, F 1 Response Mar 24

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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    I have a brother with asperger but he was never diagnosed with asperger's. He was with some neurologists through childhood but all the time was the same thing "attention deficit...
    emi92 emi92 18-21, F 1 Response Mar 25

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    Originally diagnosed with a bacterial ear infection, I actually had Shingles that lead to Bells palsy / Ramsey Hunt syndrome, with the usual symptoms. This is the first time I've...
    johnsonfamily38 johnsonfamily38 51-55, M 3 Responses Mar 26

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    Please please respond if you are relatable. My anxiety with POTS has become so extreme and i am constantly worrying about every little thing in my body and always thinking...
    cassidybute cassidybute 18-21, F Mar 26

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    I have a really bad habit of eating flour. Its a really embarrassing habit so I try to keep it to myself but knowing there's other people with the same problem gives me comfort. I...
    KimmyO4Lifeex33 KimmyO4Lifeex33 16-17, F Mar 28

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    As a child I suffered from Exploding Head Syndrome.
    needlessthings needlessthings 31-35, M Mar 28

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      My 8 year old daughter has just been diagnosed with Melas after her first episode. She encountered loss of sensation down her right side, but this has now returned. We are...
    21sienna 21sienna 41-45, M Mar 31

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    My dad was exposed to it in Vietnam. My parents were told by a doctor I was slightly affected. Result? Brittle, easily broken teeth. Was told that by the time I was 35, I would...
    daddyj2008 daddyj2008 36-40, M 1 Response Mar 31