I Have Beckwith-wiedemann Syndrome

A Beckwith-Wiedemann Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Beckwith-Wiedemann Syndrome. You're not alone. 5 People

    Little Ava<3

    My baby girl was born on March,21th 2012 and we immediately knew something was wrong, her umbilical cord was a little large (about the size of a large half dollar coin" they rushed my beautiful baby away from me in a panic not knowing what was wrong with her. About an hour later...
    kendraavajenkins kendraavajenkins
    18-21, F
    Jun 29, 2012


    my four year old daughter has bws beckwith weiddemann syndrome.. please share your experiences if any thanks..steph xx
    stephf88 stephf88
    Apr 16, 2010
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