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I Have Benign Intracranial Hypertension

Benign Intracranial Hypertension anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Benign Intracranial Hypertension. You're not alone. 19 People

    I Was Diagnosed With Bih In June 2012

    I have never felt such a whirl wind of emotions as what I have this year in terms of my health and then receiving the diagnosis of BIH after a lumbar puncture which highlighted I had extremely high opening pressures. I was diagnosed after multiple emergency department admissions...
    KEBARTON KEBARTON 31-35 Nov 15, 2012

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    You Can Live With It But It Would Be Nice Not to Have To.

    I was diagnosed when i was 23 so 7 years ago now. I had been experiencing severe headaches for about 6 yrs prior to my diagnosis.It is hard to know what to expect when the doctors cant really tell you, i have had numerous lumbar punctures and am on and off diamox. It looks like...
    babyangel247 babyangel247 26-30, F Sep 17, 2009

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    Suprising Blow...getto

    Recently after experiencing some funny interruptions with my vision over the last year, i went to the optomitrist to check it out - was refered to a specialist to say that i've got swelling of my optic nerves!  finally  get to the hospital about it and find that i have...
    jezzka jezzka 26-30 1 Response Jan 4, 2009

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    Can Someone Answer This Question

    I was diagnosed with BIH about 7 years ago.  Diamox for 18 month did the trick.  My first presentation was pain behind the eye and when I went to the eye doctor he said I needed an MRI due to swollen optic nerves.  I had headaches, pressure headaches but the...
    daddysgirl1971 daddysgirl1971 36-40, F 1 Response Jan 25, 2010

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    I Have Benign Intracranial Hypertension Too

    hi there my name is sharon and i was dianosed with this disease on 28th october 2009 benign intracranial hypertension would like some friends to help me out my pressure was 42 i am out of hospital now and would like to talk to people thank you
    harperbettles harperbettles 31-35, F 1 Response Nov 5, 2009

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