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I Have Benign Intracranial Hypertension

Benign Intracranial Hypertension anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Benign Intracranial Hypertension. You're not alone. 20 People

    Can Someone Answer This Question

    I was diagnosed with BIH about 7 years ago.  Diamox for 18 month did the trick.  My first presentation was pain behind the eye and when I went to the eye doctor he said I needed an MRI due to swollen optic nerves.  I had headaches, pressure headaches but the...
    daddysgirl1971 daddysgirl1971 36-40, F 1 Response Jan 25, 2010

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    I Have Benign Intracranial Hypertension Too

    hi there my name is sharon and i was dianosed with this disease on 28th october 2009 benign intracranial hypertension would like some friends to help me out my pressure was 42 i am out of hospital now and would like to talk to people thank you
    harperbettles harperbettles 31-35, F 1 Response Nov 5, 2009

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    You Can Live With It But It Would Be Nice Not to Have To.

    I was diagnosed when i was 23 so 7 years ago now. I had been experiencing severe headaches for about 6 yrs prior to my diagnosis.It is hard to know what to expect when the doctors cant really tell you, i have had numerous lumbar punctures and am on and off diamox. It looks like...
    babyangel247 babyangel247 26-30, F Sep 17, 2009

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    Suprising Blow...getto

    Recently after experiencing some funny interruptions with my vision over the last year, i went to the optomitrist to check it out - was refered to a specialist to say that i've got swelling of my optic nerves!  finally  get to the hospital about it and find that i have...
    jezzka jezzka 26-30 1 Response Jan 4, 2009

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    I Was Diagnosed With Bih In June 2012

    I have never felt such a whirl wind of emotions as what I have this year in terms of my health and then receiving the diagnosis of BIH after a lumbar puncture which highlighted I had extremely high opening pressures. I was diagnosed after multiple emergency department admissions...
    KEBARTON KEBARTON 31-35 Nov 15, 2012

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    Related Experiences

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    Would you relatively wake up to a beautiful dawn, or confront the dusty Business office computer for another 8 several hours... #MondayBluesExtremely advisable, could have carried...
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    Hi, I was diagnosed 4 years ago with lymphomatoid papulosis and not only do I get lesions that seem to be immediately apparant but I get ones that are systic underneath the skin...
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    as "a child", I'd get Excruciatingly PAINFUL headaches.... From the presence of Nicotine. I wasn't "as knowledgeable" Then about Second Hand Smoke as I am NOW.... so I'd 'Wonder...
    desireindisguise desireindisguise 56-60 1 hr ago

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    DraygenD DraygenD 41-45, F 2 hrs ago

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    That would have proved problematic very much indeed.. Haha you nutbag.
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    Someone snapchat with me Im a sexy 21F and also have needs hihi username is Natalie321x
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    Someone snapchat with me Im a sexy 21F and also have needs hihi username is Natalie321x
    Natalie321x Natalie321x 18-21, F 3 mins ago

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    We both have a kikster account
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    septemberlane septemberlane 36-40 1 Response Sep 2

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    I just threw in this group for people that have done so much with there life, they are burn out or bored with it. My goal is to use this experience we have to help others.
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    i think we should understand the meaning of our dad and mom before we have lost them :(
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    Please Note: After you sign up for this you are acquiring immediate members access to the personal section as a bonus. We Beforehand are already education with out this reward for...
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    if you have skype add me wu1290 lets chat there
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