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I Have Benign Intracranial Hypertension

Benign Intracranial Hypertension anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Benign Intracranial Hypertension. You're not alone. 19 People

    Suprising Blow...getto

    Recently after experiencing some funny interruptions with my vision over the last year, i went to the optomitrist to check it out - was refered to a specialist to say that i've got swelling of my optic nerves!  finally  get to the hospital about it and find that i have...
    jezzka jezzka 26-30 1 Response Jan 4, 2009

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    I Was Diagnosed With Bih In June 2012

    I have never felt such a whirl wind of emotions as what I have this year in terms of my health and then receiving the diagnosis of BIH after a lumbar puncture which highlighted I had extremely high opening pressures. I was diagnosed after multiple emergency department admissions...
    KEBARTON KEBARTON 31-35 Nov 15, 2012

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    Can Someone Answer This Question

    I was diagnosed with BIH about 7 years ago.  Diamox for 18 month did the trick.  My first presentation was pain behind the eye and when I went to the eye doctor he said I needed an MRI due to swollen optic nerves.  I had headaches, pressure headaches but the...
    daddysgirl1971 daddysgirl1971 36-40, F 1 Response Jan 25, 2010

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    You Can Live With It But It Would Be Nice Not to Have To.

    I was diagnosed when i was 23 so 7 years ago now. I had been experiencing severe headaches for about 6 yrs prior to my diagnosis.It is hard to know what to expect when the doctors cant really tell you, i have had numerous lumbar punctures and am on and off diamox. It looks like...
    babyangel247 babyangel247 26-30, F Sep 17, 2009

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    I Have Benign Intracranial Hypertension Too

    hi there my name is sharon and i was dianosed with this disease on 28th october 2009 benign intracranial hypertension would like some friends to help me out my pressure was 42 i am out of hospital now and would like to talk to people thank you
    harperbettles harperbettles 31-35, F 1 Response Nov 5, 2009

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    Related Experiences

    I was officially diagnosed with IIH yesterday. 10 days ago I went to bed with a really bad headache and woke up at about 2 in the morning with severe vomiting. I was then taken to...
    Hannarr Hannarr 18-21, F Jan 12

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    Hi everyone, it's nice to be able to vent and talk about this ongoing struggle that I gave everyday with PCOS. I was diagnosed when I was 15 years old, I am now 20. During the past...
    vnicole vnicole 18-21, F 1 Response Jan 6

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    Extremely worried about BP I like to start off by saying I've been dealing with health anxiety and OCD since I was a teenager. I am 32 now. I've been with my doctor for over 6...
    highbpguy highbpguy 31-35, M 1 Response 5 days ago

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    I used to be someone who contributed to society, someone who used to matter. I made a difference in peoples lives, I saved lives, I changed lives. I was a nursing supervisor, well...
    xxLionessxx xxLionessxx 36-40, F 3 Responses Jan 6

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    i have 2 stepsisters ages 21 and 19, i have a older full brother(17). then, i have 2 half siblings from my moms ex boyfriend, ages 13 and 7. i have a half sister from my dad and...
    andylovesyou23 andylovesyou23 13-15, M 13 hrs ago

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    I am 16 years old and I have poland syndrome. I was diagnosed when I was old enough to sit up by myself, I have coped with this for a long time, I was promised my reconstructive...
    Blondiee137 Blondiee137 16-17, F 11 hrs ago

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    I love my family but sometimes I think they would be better off without me. It's like I'm there crutch or something. My mom sees me as her therapist. She tells me everything. I...
    TiffanyRaven TiffanyRaven 18-21, F 1 Response 10 hrs ago

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    Time and time again, I have been hurt by ppl I believed in and thought were my friends. I have been hurt by someone who was stupid. I have been hurt by someone who is intelligent...
    Cricket75 Cricket75 36-40, F 6 hrs ago

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    I am writing this post because it seems many have been hurt in churches. The thing that I see is the ones that are getting hurt are true genuine believers. The reason: You do...
    RealGuy32 RealGuy32 36-40, M 4 hrs ago

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    We have just seperated since weeks ago. I am still missing you, alot. I told you not to worry that I have moved on. Honestly, I think I am not. I have all the image of us together...
    SunnyGuy1106 SunnyGuy1106 22-25, M 4 hrs ago

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    I have only had one shot on the depo shot 6 weeks after having a baby in December on the 9th 2014 and was supposed to start my period in January 2015 sometime but have missed it...
    brandy91313 brandy91313 18-21, F 2 hrs ago

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    My whole life I knew I was different but could never put my finger on it. It just always seems like everyone else has it so much easier, and I don't mean with materialistic things...
    lilikeamonument lilikeamonument 26-30, F 2 hrs ago

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    II absolutely hate cornertime. Sometimes it feels even worse than the spanking itself. Unfortunately, my parents love this punishment.My parents say it is an ideal tool to calm me...
    taylorcollison taylorcollison 18-21, F 4 Responses 1 hr ago

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    iLove Too It seems I'm in sync with my iPhone, when I link to sync the updates, we are symbiotically in the same biome, and there's more, just wait… I take photos to try and...
    AaronLA AaronLA 31-35, M 15 hrs ago

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    -Understand where people are coming from -Learn from your mistakes -Don't beat yourself up all the time or be too hard on yourself -Be yourself -Don't live in the past -don't...
    torr62 torr62 13-15, F 1 Response 14 hrs ago

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    Ok I am looking for people online right now who have PTSD. I have never spoke to my doctor about this but I just now jumped up out of sleep scared out of my mind and my heart is...
    sailorwinters sailorwinters 41-45, F 4 Responses 14 hrs ago

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    I'm almost 33 and have never had a "real" girlfriend. I say "real" because I had a girlfriend in high school, but you're so young and it's such a learning experience can that be...
    dirtydan3 dirtydan3 26-30 14 hrs ago

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    My 12 year old daughter has Adhd (without the Hyperactivity) Add. She is now going through those pre teen years and soon to be a teenager. I believe I had Adhd as a child but...
    Josh1971uk Josh1971uk 41-45, M 10 hrs ago

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    He is so strange. I call him the strange little man and strange he is. I think he actually likes me. He is a yankee and a trouble maker and he's always grounded but I can see his...
    bmsartwell bmsartwell 16-17, F 8 hrs ago

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    Did you know, that women are generally a lot more anxious on dating websites than men are? Studies have shown that the number one fear women have while on dating websites, is that...
    BananaSmoothiee BananaSmoothiee 18-21, F 8 hrs ago

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    It's just one thing after another this year. Issue after issue. Currently I have a harmless condition called black hairy tongue. Apparently it can affect anyone and it's most...
    vault101 vault101 26-30, F 1 Response 7 hrs ago

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    I wish I would have been diagnosed as a child. It was suggested to me but I didn't want to listen or believe it. I had such a struggle concentrating and caring about anything. I...
    455cargirl 455cargirl 36-40, F 4 Responses 7 hrs ago

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    If you are experiencing unexplained activity, I have knowledge that will help clarify things for you. I will try to help you with what I know. I'm not a paranormal investigator...
    shaandar shaandar 31-35, F 1 Response 6 hrs ago

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    You do not have to waste your time, bending over backwards to make people happy when they don’t, and wouldn't, do the same thing for you. I have wasted enough of my time going...
    BananaSmoothiee BananaSmoothiee 18-21, F 1 Response 5 hrs ago

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    So I've been thinking a lot probably more then I should about how to be less of a negative person. I think that I've learned enough in my life to know how to make myself happy. I...
    Kinn23 Kinn23 18-21, F 5 hrs ago

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    Midnight my buddy she was a stray that just showed up one day and wonted leave told she was very talkive and vey quick with those claws she was laying under atree when a PIT BULL...
    anyourviking anyourviking 51-55, M 1 Response 4 hrs ago

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    Stream of Consciousness #2: I don't like online relationships. I rather meet someone in person. I think the rising popularity of online dating sites hints toward to how our...
    rumblingheart rumblingheart 18-21, F 2 Responses 2 hrs ago

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    I suffer with depression and inferiority complex. I feel suicidal and worthless. I struggle with feeling on top.of my life. I have a great husband and family. how do I cope...
    chocmanjames chocmanjames 46-50, M 1 hr ago

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    Hi everyone, I am new to this site. Well, I wasn't before, but this is a new account because I deleted my old one. So I guess I want to share my story. Sort of to connect with...
    brokengirlx brokengirlx 18-21, M 1 hr ago

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    I've had my account for a while but my friends sadly just wanted to be drama kings and queens so I dropped them all. Looking for friends to reunite me with IMVU and have fun!! I...
    Amami Amami 22-25, F 1 hr ago

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    bnaesf(Sean) is a cool guy that is fun to talk to. He'll keep you up all night because he must have the last word...and so do I. He is very interesting and is from Connecticut. He...
    roseangel5747 roseangel5747 26-30, F 1 Response 15 hrs ago

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    But still hang with my ex (who I was friends with LONG before we dated) ...and I miss him. Hanging with him brings back so many memories and it doesn't help that I'm close to his...
    CBlaze22 CBlaze22 18-21 2 Responses 14 hrs ago

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    I remember as i was a small baby my brothers whom at that time was studied in high school has reposing on the ground during his homework and played whit his feet as his knee was...
    godfathersun godfathersun 41-45, M 14 hrs ago

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    Worst pain tonight. Came out of nowhere. Starts in my face at my cheeks and wraps around to the back of my head. Anyone else have this problem? Sinus aches too?
    katariffik katariffik 31-35, F 13 hrs ago

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    my eldest sister disappeared out of my life when I was 8, she ran away after I found a boy in her room.she moved back home on and off for years, she tried chocking me to death when...
    xchloeannex xchloeannex 16-17, F 13 hrs ago

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    I can finally say that I am fully natural. Right now its kinda weird waking up in the morning and seeing a big puff ball on my head. i am not sure what hare type i have when wet it...
    ZariaRashay ZariaRashay 18-21, F 1 Response 13 hrs ago

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    Like tonight, I have so much on my mind no way can I go to sleep. Then to make matters worse loneliness rears it's ugly head, starts gnawing at my insides,,, just had to vent
    bikeriam bikeriam 51-55, M 11 hrs ago

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    It hurts when you love someone with all you have and in return, all you get is lies, ready to break you..
    kristll kristll 18-21, F 1 Response 11 hrs ago

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    It's my matric dance in a few months and I still don't have a partner. In scared nobody will ask me and I CANT GO ALONE
    peffer peffer 16-17, F 1 Response 9 hrs ago

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    ive never been diagnosed but i think i have PTSD. i think my child birth brought it out. i had a long scary horribly painful delivery and almost had a c section cause we were...
    brebauer brebauer 18-21, F 8 hrs ago

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    I have lost enough to fit into my prom dress :D I guess not eating for days actually helps :) Plus now I actually look hot again :D
    DeterminedToMakeLifeWorthIt DeterminedToMakeLifeWorthIt 16-17, F 8 hrs ago