I Have Bethlem Myopathy

A Bethlem Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bethlem Myopathy. You're not alone. 6 People

    Daddy's Little Girl

    Hello My daughter was diagnosed with Bethlem Myopathy shortly after her second birthday. My wife and I had noticed she struggled with certain movements and sought medical advice. Our GP was perplexed and we were sent to the hospital. We were shocked when told she had a form of...
    alibaba2610 alibaba2610
    1 Response Oct 18, 2012

    I am new to this site.

    misdiagnosed at 2 then again at 8 and finally diagnosed correctly with BM. MDA camp every summer but i still feel pretty alone. still struggling with the fact that no it is not fair that I was born with this and my sister was born completely normal. and the severe depression of...
    sydneyalexis97 sydneyalexis97
    18-21, F
    Jul 24, 2014

    Thought I would share my story: I'm the eldest

    of three boys (both my brothers are healthy). Being the first born my parents had no experience of what to expect of a child's physical development - plus I was quite an early walker, therefore they didn't notice anything wrong. It was when I went to nursery that the teachers...
    deleted deleted
    Oct 13, 2014
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