A Bietti's Crystalline Dystrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bietti's Crystalline Dystrophy. You're not alone.
I am 33 year old asian woman and have recently been diagnosed with Bietti crystalline dystrophy. i have had a little night blindness. I was trying to find others who have the same problem and if there is any information on it. Thanks.
I,m a 50 y.o. Spanish man, I was diagnosse with BCD in 2001.
In these 9 years, I try to find some people with BCD like me,
In Spain only have 6 cases of this illnes, I spoke with them doctors
and I know two of this afected people in person, now they are my friends.
I am 42 years old Turkish female. I am an environmental engineer in an automotive factory.
First BCD diagnosis was in 10 years ago. Now
I have serious night blidness and visual field loss.
I can't read anyting at all with my right eye.
I am affraid of the same...