I Have Bloch-sulzberger Syndrome

Bloch-Sulzberger Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bloch-Sulzberger Syndrome. You're not alone.


    Hello my daughter, how is born in may this year(2013), has incontinentia pigmenti. And I am looking for people, how are in the same position. My Engels is not so good, because I am Dutch. But I like to write with people to share the experience around this rare syndrome. Greats...
    Femkelagas Femkelagas
    31-35, F
    Aug 7, 2013
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