I Have Blue Rubber Bleb Nevus Syndrome

Blue Rubber Bleb Nevus Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Blue Rubber Bleb Nevus Syndrome. You're not alone. 17 People

    Hi my name is Georgia Raniolo.

    I am a 2nd year student at Barts and the London school of medicine and dentistry. My mother was diagnosed with Blue Rubber Bleb Nevus Syndrome when she was pregnant with me at 30 years old. I would like to bring more awareness about this little known syndrome. The first step...
    GeeRaniolo GeeRaniolo
    18-21, F
    1 Response Nov 6, 2015

    I recently found out what my little blue

    buttons of pain are called...I am fortunate that mine are small and placed where they are not too much of a hindrance, but my brother is plagued with a few very large ones. One he had surgically removed on his arm. There are now 5 generations in our tree that have it. Good to...
    Sasami13 Sasami13
    26-30, F
    1 Response Oct 9, 2015

    Living With Brbns

    I am a 40 year old woman from Australia who was diagnosed with blue rubber bleb Nevus syndrome from around 7 years of age. I have mainly had blebs on my trunk and until about 10 years ago they were only on the right side of my body. I didn't have blebs on my skin at birth, but as...
    Odie72 Odie72
    41-45, F
    1 Response Feb 7, 2013

    Michaels Brbns

    at birth i noticed my son had a blue spot on his thigh. within months he had developed numberous blebs all over his body. now at nine months he as over a hundred from his toes to his head, including inside his mouth. i have refused to have him telescoped inside as they are not...
    kjingoe kjingoe
    2 Responses Aug 25, 2012

    Jonovan Angel And His Blue Rubber Bleb Nevus Syndrome...

    My son is a happy 3 and a half year old little boy with a mild case of Blue Rubber Bleb. He was diagnosed at around a year and a half by the specials at the University of Miami hospital. He is seeing a gastroenterologist and a dermatologist and I am currently seeking more...
    AngelsMommy121 AngelsMommy121
    22-25, F
    Sep 14, 2012

    hello i am 13 and i was born with blue rubber

    bleb syndrome. i have hundreds of the things ad i get regular sclerotherapy. i am about to start 4 weeks of blood thinner to get my d-dimer back down. i really want a pen pal with the same thing hope i can meet some people. also my mum has it to.
    katella5211 katella5211
    13-15, F
    Feb 20
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