A Blue Rubber Bleb Nevus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Blue Rubber Bleb Nevus. You're not alone.
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These snippets show some of the most common themes mentioned in this experience's stories:
- " hemoglobin really went down, he has blue nevi his arms, head, hands, palms, leg and a big one on his right foot, it bleeds whenever it hits, till now we still don't know what to expect, where to get help, here in our country, the specialization is not yet available, since its a rare, and most of the doctors never encountered this, they're trying to help to get assistance from outside as they say..."
- " blebs on my arm about four inches in length, and a couple inches in width approx , it has grown and grown threw my life as you know it does, the thing is i have trained for a couple of years in the gym weight lifting, and when i train and my muscles get pumped the blebs on my arm stick out more than normal and swell up and raise, but seem to go down back to there normal size an hour or two after..."
- "I found a GI doctor who confirmed that I do have the vascular anomolies on my GI track but he did not know what to do besides monitor..."
38% of people who have this experience are in their twenties, 38% are in their thirties, and 13% are in their fifties. 57% of people who have this experience are men.
Other experience groups that have been combined into this group include: None yet.
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