I Have Blue Rubber Bleb Nevus


A Blue Rubber Bleb Nevus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Blue Rubber Bleb Nevus. You're not alone.

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7 Stories

Blue Rubber Bleb Nevus Syndrome

Im 35 and have brbns, have had countless tests blood transfusions and bowel surgeries, I have them in my g.i tract, liver, neck, various...

I Have Blue Rubber Bleb Nevus

im 23, I have BRBNS on my arm mainly, and a few blebs on my backside and chest, and have only recently in the last month found out what it...

I Too Have Blue Rubber Bleb Nevus

BRBNS is for life, unfortunately for those of us who suffer from the condition, it means we have a long fight on our hands.  My...

Brbns

I 23, i have BRBNS on my arm mainly, and a few blebs on my backside and chest, and have only recently in the last month found out what it is...

Here We Go Again!!!!

I was born with Blue Rubber Bleb Nevus Syndrome and it continues to make its presence known in my life.  Over the past few days I began...
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Members Sharing the Experience "I Have Blue Rubber Bleb Nevus"
14 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • " hemoglobin really went down, he has blue nevi his arms, head, hands, palms, leg and a big one on his right foot, it bleeds whenever it hits, till now we still don't know what to expect, where to get help, here in our country, the specialization is not yet available, since its a rare, and most of the doctors never encountered this, they're trying to help to get assistance from outside as they say..."
  • " blebs on my arm about four inches in length, and a couple inches in width approx , it has grown and grown threw my life as you know it does, the thing is i have trained for a couple of years in the gym weight lifting, and when i train and my muscles get pumped the blebs on my arm stick out more than normal and swell up and raise, but seem to go down back to there normal size an hour or two after..."
  • "I found a GI doctor who confirmed that I do have the vascular anomolies on my GI track but he did not know what to do besides monitor..."
And the Story Awards Go to...
Statistics:

38% of people who have this experience are in their twenties, 38% are in their thirties, and 13% are in their fifties. 57% of people who have this experience are men.

You may cite any I Have Blue Rubber Bleb Nevus statistics, provided you link back to this page
Check out this group's What Is It Like To Have Blue Rubber Bleb Nevus guide, where people with this experience share their tips and hints.
Members said this page is also related to: Do You Have Blue Rubber Bleb Nevus? , What is it like to Have Blue Rubber Bleb Nevus? ,Have Blue Rubber Bleb Nevus personal stories, Have Blue Rubber Bleb Nevus personal experiences

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