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I Have Brachioskeletogenital Syndrome

A Brachioskeletogenital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brachioskeletogenital Syndrome. You're not alone.

    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 1 Response Sep 1

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 1 Response Sep 2

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    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M 1 Response Sep 11

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    Does anyone spike a fever when they have episodes?
    december789 december789 16-17, F 1 Response Sep 5

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    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F 1 Response Sep 9

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    For many years I have "craved" really-hot radishes. I buy up to 6 bunches per week, and somewhat panic when I run out before shopping day. I only stopped for a short time...
    Omma41 Omma41 70+, F Sep 10

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    I HATE being so logical, but logically it's necessary and appropriate for people to think logically. See my problem? I don't love. Relationships make zero sense to me, I don't have...
    pianochick5254 pianochick5254 18-21, F Sep 15

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    I might have to be homeschooled. My quality of life is gone as of now.
    december789 december789 16-17, F 1 Response Sep 22

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    Wow!!! For as long as I can remember I have had cravings for weird non-eatable objects. I remember exactly when it started, I was about three my Mom and Dad had this ugly, green...
    RedVinekiss RedVinekiss 31-35, F 1 Response Sep 3

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    I am not sure if I am diagnosed or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he...
    zerudahima zerudahima 22-25, F 2 Responses Sep 4

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    My dad was recently diagnosed with MELAS. He is 48 years old. He has been in and out of the hospital due to seizures and what we thought were strokes. He suffers from hearing loss...
    ering08 ering08 22-25, F 1 Response Sep 1

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    I want to make a POTS group that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F Sep 10

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    Just got compression stockings. Not feeling this at all, they're super tight
    december789 december789 16-17, F 2 Responses Sep 12

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    I've had it since I was 12. It's keeping me from performing everyday duties. Please pray for me.
    gratefulme gratefulme 22-25, F 1 Response Sep 16

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    Horrible day. Getting put on the 504 plan for school. These are the days when I wanna give up because I'll never be normal
    december789 december789 16-17, F 2 Responses Sep 18

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    Going in an ambulance from the community hospital to children's. Forget POTS ;(
    december789 december789 16-17, F 2 Responses Sep 23

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    Has anyone went throught the Mayo Clibic POTS rehab center???
    december789 december789 16-17, F a week ago

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    My first hint that something wasn't right was walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made...
    NixEgirl NixEgirl 56-60 1 Response Sep 7

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 4 Responses Sep 14

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    My twin brother has Down syndrome, along with many other problems, he can't talk clear, only we can understand what he's saying, I've heard people call him ugly, fat.. Short...
    Bflyboo14 Bflyboo14 13-15, F 2 Responses 6 days ago

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

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    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response Sep 17

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    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 1 Response Sep 20

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    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F Sep 21

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    Possible POTS?- This post is super long-sorry! (POTS towards end) Hi, I'm an 18yr old female from Australia hoping to get some help about my mystery illness! In January I...
    lilbg6 lilbg6 18-21, F 1 Response 6 days ago

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    When I was 12 years old I started having extreme headaches. My mom took me to the neurologist and they said I would grow out of them and didn't take my pain seriously. Later, it...
    WynonnaMarye WynonnaMarye 18-21, F 5 days ago

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    12 months ago I got very serious pancreatitis caused by a vary rare hereditary condition that I have since found out I have called familial chylomicronemia syndrome or (FCS). (FCS...
    frog2000 frog2000 26-30, F 3 days ago

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    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

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    After being diagnosed and being put on a bunch of new medications, I gained 30 lbs in a matter of months. I was even eating healthier and trying to work out as much as I could...
    Samm86 Samm86 18-21, F 1 Response Sep 5

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    DSPS probably began for me in my teenage years. I didn't know what it was and had no name for it. Like many other people's experience with DSPS, it was assumed that I was lazy or...
    softgreenhourglass softgreenhourglass 36-40, M 1 Response Sep 9

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    I wish I could talk to my Aspie husband about the issues I have with our relationship, but as soon as I say anything, he gets so defensive and turns it back on me or becomes...
    TiffanyPerkins TiffanyPerkins 36-40, F 6 Responses Sep 9

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    In my early teens around 2000, I created a Myspace account. This man named Chuck added me. Of course I was fine with it because he was into anime and manga and being a young teen I...
    dreaminginjune dreaminginjune 22-25, F Sep 9

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    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F Sep 9

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    Born with rate condition called kfs klippel feil syndrome they only operate I've been told on few people with condition if bad enough I had an operation on my spine was told they...
    aromantic2012 aromantic2012 31-35 1 Response Sep 11

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    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response Sep 11

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    I had a beautiful baby girl 8 weeks ago, my third via csection and also had a tubal ligation. I was feeling really good until about a week ago when I went to doctor and started...
    joce32 joce32 31-35, F 1 Response Sep 12

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    I love looking younger .. I'll be 43 in oct and it's helps with old man syndrome lol
    Justted Justted 41-45, M Sep 18

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    Today I was at work while there was a meeting of my boss and the boss of the whole organization I work for. It`s a non-profit organization helping people with autism and Asperger...
    Mellangela Mellangela 26-30, F Sep 18

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    Currently, my husband is struggling with CVS (Cyclic Vomiting Syndrome). This is probably one of the most frustrating things for someone you love to have. He will be fine for a few...
    kristinap123 kristinap123 22-25, F 1 Response Sep 20

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    People judge me a lot when they find out that I have Asperger's.
    AveryWeinstein AveryWeinstein 16-17, F Sep 21

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    I think I have Zollinger because it now takes me a LOT of Rabeprazole to suppress GERD symptoms
    RegHandford RegHandford 66-70, M 1 Response Sep 22

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    I am married for 4.5 years, i met my husband in the other side of the world... i moved whit my two kids to him (this is my second marriage)... when we started living together i...
    TikaBuendia TikaBuendia 36-40, F 1 Response a week ago

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    Three times, to be exact. I am not the most valuable employee here but I do what I am asked to do until the job is completed. I don't take kindly to someone with 'little man...
    iamokaynow iamokaynow 31-35, M 5 days ago

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    September 2014: I am 29 years old and to celebrate my birthday I went to spa with my girlfriend. Everything was smooth until the next morning. I woke up Sunday with a splitting...
    santrim santrim 26-30, F 1 Response 5 days ago