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I Have Brachioskeletogenital Syndrome

A Brachioskeletogenital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brachioskeletogenital Syndrome. You're not alone.

    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M Jun 29

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    Hi, im Hollie im 14 and I've had Duane syndrome since I was born. Because of my Duane syndrome it means I can't move my left eye at all to the left. This really annoys me because...
    HMace HMace 13-15, F 1 Response Jun 30

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    Hello! I'm Kristina, I'm 18 years old. In February this year I was diagnosed Swyer syndrome. Although I'm trying to get used to require me to help people who know I'm going through...
    kika96 kika96 18-21, F 2 Responses Jul 8

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    Calling all POTsies! Follow my POTs story to see how i have coped and have found my remedies. I am sure it is helpful! check it out. www.potsisthepits.com
    cassidybute cassidybute 18-21, F Jun 29

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    Hi When I was pregnant 5 years ago I had this urge for rubber, the smell and taste of it! All through my pregnancy I chewed on rubber bands, I then found it wasn't enough so I...
    Louloub1969 Louloub1969 41-45, F Jun 30

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    I have been diagnosed with female Aspergers
    prettybum prettybum 18-21, F 1 Response Jul 7

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    I don't know if this Aspergers or not. I don't know if I'm over reacting or I what. I have a friend I used to live with. She had to go home and plans were made for me to go back...
    Sakaratte Sakaratte 26-30, M Jul 12

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    I've always had really bad craving for sponge. I never eat it because my friend went to the hospital for exactly the same reasons, but I can stop the urge to eat it by smelling the...
    meganbxiley meganbxiley 16-17, F 1 Response Jul 14

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    I was diagnosed when I was about 9, and it apparently makes it difficult for me to socialize. While it is true that I have an extreme difficulty, if not total inability, to make...
    Varof Varof 18-21, M 2 Responses Jul 20

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    Well I had my first unplanned trip to the hospital on Saturday. Basically the heart murmur I have had for awhile finally did something bad and I ended up being wheeled into an...
    MattsShadow MattsShadow 18-21, M a week ago

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    This is a follow up for my story "what doesn't kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle...
    marinagrace marinagrace 13-15, F 1 Response a week ago

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    It started with me getting these high pitch squeals. Like a surge up my spine and unless I concentrated hard, it would come out. Usually when I was most peaceful it would suddenly...
    Skywalker1979 Skywalker1979 31-35, M 1 Response 6 days ago

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    okay, I've never told anyone about this and I'm only 15 for a few years I've had an excessive habit of eating graphite, rocks, baby power, sand and charcoal. I literally break...
    aarlert aarlert 13-15, F 1 Response Jul 7

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    LOL!! MUST READ!! Pica : is most common for 2-3 year olds but I'm 10 so I can't stop eating paper or my crazy loom bands! I've been biting my brothers arm sometimes I bit a little...
    bela5562 bela5562 13-15, F Jul 7

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    Www.potsisthepits.com I promise my blog will inspire And enlighten those with pots!
    cassidybute cassidybute 18-21, F Jul 11

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    Hello, My dad was recently diagnosed with melas. My family and I are struggling to support him and ourselves. Is there anyone out there (particularly in Australia) that wants to...
    hellokat33 hellokat33 18-21, F Jul 14

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    It's bad, real bad I think. It started two years ago when I walked home from school with my friend and we passed a construction sight with piles of dirt and rocks. There was this...
    BlackPaint0000 BlackPaint0000 16-17, F 1 Response Jul 16

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    Do males with AS find confrontation from their girlfriends extremely challenging? Do you stop talking to her for weeks even if you suspect you are wrong?
    pingpinky pingpinky 31-35, F 2 Responses 1 day ago

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    OPEN COPPER,HER NAME IS -NIGHT NIGHT- LARGE SHARON,FULL GARDEN,CARTER CO. KENTUCKY,CALL:JOHN 1-606-474-4770,PENNIES PICKED, PRAISE FOLDINGUNFOLDING,I NEED MY S'MORES MADE WELL,OR...
    JEM404 JEM404 41-45, M 1 Response 17 hrs ago

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    I have asbergers syndrome and I always feel like a outcast.I was bullied in middle school,because I had no friends.I had to get diagnosed 2 times,because teachers didn't believe...
    AuroraSunny AuroraSunny 16-17, F Jul 19

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    My Battle With Marfan's Syndrome I am a Marfan.. i.e. I have Marfan’s Syndrome. It is very rare and most of you reading this might not have even heard of it. I never knew that I...
    Eddiecrow Eddiecrow 41-45, M 1 Response Jun 29

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    For about a year I've been considering divorcing my wife of nearly 8 years. Our relationship has never been great. We are great friends, but horrible lovers/spouses. We do things...
    randomtiger45 randomtiger45 31-35, M 1 Response Jul 1

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    My daughter is a little over one year old. ( I don't like talking in months)She has Down Syndrome. I don't treat her differently from my other kids. Her needs are a little...
    Kryzta Kryzta 26-30, F 1 Response Jul 8

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    My husband has Asperger's Syndrome. I am having a difficult time with our marriage. We have been married two years. He is a good provider and has good traits, such as being...
    Solfeggio Solfeggio 36-40, F 4 Responses Jul 11

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response 4 days ago

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    My husband and I were in a motorcycle wreck in Feb. (2 days after our wedding in India). I'm interested in getting to know other people dealing with Compartment Syndrome, in hopes...
    JenniferLakhlani JenniferLakhlani 36-40, F Jul 13

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    23+ years ago I was diagnosed with MS, even though I never had a positive test. No blood test, MRI, spinal tap,etc was ever positive for MS. My symptoms were never an exact match...
    bonsaigirl bonsaigirl 56-60, F Jun 29

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    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 4 Responses Jul 3

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    In 2011 I gave birth healthy beautiful baby. She was perfect and I loved her from the first time I saw her beautiful curly mop on her head and that chubby little face. As a mother...
    SweetAlibis SweetAlibis 26-30, F Jul 8

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    I have Russell silver syndrome. It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    EvaJL EvaJL 13-15, F Jul 13

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    Over a year ago I was diagnosed with Postural Orthostatic Tachycardia Syndrome. I've battled high school with this non curable disease, but I now I graduated and it is time for me...
    heyycutie16 heyycutie16 18-21, F 3 Responses Jul 13

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    I've just found out today I have Carpal Tunnel Syndrome .. it's hard for me to participate in Color Guard ..and soon I feel like I would have to stop ..bc the pain is crucial
    lynn1497 lynn1497 16-17, F 4 days ago

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 Jul 1

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 1 Response Jul 1

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    NOT THE DRUG The syndrome Anybody on here who has it to?
    theweirdestofthemall theweirdestofthemall 13-15, F Jul 8

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    **** I get when I tell someone I have aspergers "But you’re nothing like ____!"
Sometimes I’ll tell someone I have aspergers and they’ll just happen to have a friend or...
    nikkianni nikkianni 13-15, F 4 Responses Jun 29

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    I feel like my universe is just so out of alignment.....everything i have known for so long is just not there anymore :0(
    itswonder4all itswonder4all 41-45, F 3 Responses Jun 30

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    So I do not have Lupus, but I was wondering if anyone could give me a little bit of feedback. I went to a neurologist a few years ago for muscle twitching everywhere. He...
    Anxiousgirl13 Anxiousgirl13 18-21 1 Response Jun 30

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    Hello im Amiee i'm 17 going on 18 on July 20th you may have remembered my mothers post Cheryl about my condition. I am still having the hip pain in both my hips. I had the MRI of...
    KiraAyita KiraAyita 16-17, F Jun 30

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    It has been seven weeks since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day...
    ksrooney ksrooney 56-60, F Jul 1

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    I have never heard of it but apparently its an obsessive disorder and people with borderline personality and anxiety disorder have it. I don't know how i am going to stop because i...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F Jul 1

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    I've always suffered from SSS and Misophonia since I was very young. Recently it's gotten very difficult for me. I have been getting over whelmed or over come with feelings and...
    Danicakes9 Danicakes9 13-15, F Jul 1

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    I'm the second child of the family. I have an older brother who is a year older than me & a younger sister 8 1/2 yrs. younger than me. I can't say my parents are bad but I've been...
    Cfil26 Cfil26 18-21, F 1 Response Jul 1

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    So glad to have found this. The only other POTS groups I am a part of are on Facebook and I don't really want my friends knowing how much I struggle. Feeling comfort in the...
    Zebra223 Zebra223 26-30, F 1 Response Jul 3

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    I had to have a hysterectomy maybe 3-4 years ago. I have a hard time even now, seeing women who are pregnant with children. I never had that chance. Always had fibrous tumors in my...
    mrsklemzak mrsklemzak 36-40, F 2 Responses Jul 3

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    Hey fellow POTSies! Just out of curiosity, what does everyone do as far as work/job/careers if anything? And if you are in school, what activities/sports/etc are you involved in...
    Ktglisson87 Ktglisson87 26-30, F 3 Responses Jul 3

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    I want to express my frustration without offending anyone. I get very down on myself when I read about other POTSies who are athletes or can run. I am extremely happy for them that...
    Zebra223 Zebra223 26-30, F 2 Responses Jul 3