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I Have Brachioskeletogenital Syndrome

A Brachioskeletogenital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brachioskeletogenital Syndrome. You're not alone.

    I found out when I was 18 that I have Turner Syndrome. I have recently started really thinking about the impact on my life and really need someone to talk to
    crteach crteach 31-35, F Oct 15

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    I was diagnosed with gitelman syndrome back when I was around 16 yrs old (just turned 25). It took a really long time to actually get diagnosed. It was a very hard process. I...
    pinay89 pinay89 22-25, F Oct 16

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    WILL POWER. HAVING A POSITIVE ROLE, RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING...
    JEM404 JEM404 41-45, M a week ago

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    How to get a adult diagnosis for ASD (Asperger's Syndrome) ... Do your homework .. It's a complex subject . Talk to those who have been diagnosed . The internet is a good place to...
    HomeJamesASD HomeJamesASD 46-50, M Oct 22

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    Has anyone changed their diet aside from salt intake and hydrating with lots of liquids? Wondering if that would help as well? Also has anyone had good experiences with pindolol...
    Grace1549 Grace1549 31-35, F 1 Response Oct 2

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    Most people with Asperger's have co morbid's - mine is dyslexia - when I was being assessed for Asperger's I studied it intensely on the internet and I was great full to be able to...
    HomeJamesASD HomeJamesASD 46-50, M Oct 22

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    When imperfect is perfect. My good friend has had POTS for years now and I never knew.... That's all I ever wanted. To meet someone with POTS
    december789 december789 16-17, F 1 Response Oct 4

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    I now really feel like the world is against me.
    december789 december789 16-17, F Oct 14

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    GUYS. Licorice root tea. Buy it. Drink it. Do it now. It helps SO FRIGGIN MUCH it's ridiculous. Also, if you're a novice tea drinker like me, add lots of honey. But seriously, I...
    Smilesaremagic Smilesaremagic 16-17, F 1 Response Oct 17

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    What triggers episodes for you?
    december789 december789 16-17, F 1 Response 6 days ago

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    I'm so scared my husband will leave me to have children. He wants children, loves them, idolises them. I think kids are cute but I'm much rather enjoying seeing, learning and...
    CorruptedAngel CorruptedAngel 22-25, F Oct 4

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    I am Janice, a 77 year old female and had GBS 25 years ago. I was at UMMC then rehab for 2 months. Over the years I felt better but had some residual stuff, but about 8 months ago...
    jlcaputi jlcaputi 70+, F 1 Response Oct 3

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    October 8 2014 was my last normal day . October 9th I started to feel tingling and numbness in my hands and feet. I felt weakness in my knees and fumbled things with my hands. So...
    aimeelou22 aimeelou22 36-40 Oct 21

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    My mother was diagnosed with Guillian Barre Syndrome this past Aug. Since then she has lost all function from the neck down, including her mouth. She has been on a ventilator and...
    anthonykoryn anthonykoryn 36-40, F Oct 1

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    ...and I like it. What a crazy thing to happen right as I'm falling asleep, and sometimes it's SO LOUD! Sometimes it's my name, of all things. If anyone reads this and doesn't know...
    incorporealist incorporealist 36-40, M Oct 9

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    Asperger’s Syndrome From another planet to earth, I look around at all the people that pile on earth’s grounds. Questioning their social norms, studying their eye contact...
    kelseytoby1337 kelseytoby1337 16-17 4 Responses Oct 11

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    I am a mother of 4 children. 2 children wit my first husband and 2 with my second husband. My 16 year old daughter had been complaining of pain and swelling in her thumb for a...
    ratgirl73 ratgirl73 41-45, F 3 Responses Oct 2

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    I have Asperger's syndrome and so I'm quite socially awkward. People just never take me seriously or think I'm a freak. I'm almost 17 now and I'm really worried that I will never...
    vivi9298 vivi9298 16-17, F 7 Responses Oct 6

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    although they say I have lots of defects with language and speaking, i have been told its because of asperger's syndrome i am really good in maths physics and other subjects that...
    daniel147 daniel147 13-15, M 1 Response Oct 22

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    To be exact, this is the story. Doctors say I have symptoms of many but the closest one they could come up with is this because of me being born with no outer ears. Big neck. I...
    BigRalphie74 BigRalphie74 36-40, M 1 Response Oct 3

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    i have never heard of this disease
    mstud17 mstud17 22-25, F 1 Response Oct 4

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    It makes me so sad to write this, but I think it's over. I can't continue in a marriage that is so one-sided and hurtful. I want so badly to keep my family together, but trying to...
    Elasticgirl Elasticgirl 36-40, F 1 Response Oct 5

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    And thanks to screw up all around, I've been without my medicine for the last several days, and have no idea when my refill will arrive. So, I'm feeling really antisocial right...
    OggggO OggggO 26-30, M 2 Responses Oct 6

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    I am a Misophone with Asperger's Syndrome, Avoidant Personality Disorder, and Gender Dysphoria. These three conditions in combination make my life a living hell to live, but I try...
    MissMadHatter MissMadHatter 18-21, T Oct 7

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    Turns out physical turrets syndrome isnt a legitimate sexual harassment defense strategy...or even a thing
    AntonioV AntonioV 46-50, M 2 Responses Oct 9

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    I'm so over it! Getting constant cramps every day and sometimes it hurts so much I have to sit down and nearly cry. Tried going on the pill and it made the pain worse. I hardly...
    wannaplay122 wannaplay122 18-21, F 2 Responses Oct 9

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    I was diagnosed at 14 with PCOS and when the nurse told me, I just broke down and cried.. I semi expected to get it but I didn't want my fears to be true, my mum had it and a...
    BennetWitch BennetWitch 18-21, F 1 Response Oct 11

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    So I'm not sure if this is a side effect of Chronic Migraines but I've been experiencing some pretty debilitating dizziness for the past week. So I'd like some incite from other...
    WynonnaMarye WynonnaMarye 18-21, F Oct 18

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    Hi all, I am writing from a television casting company. We are currently casting a new medical mystery show for Discovery and looking for patients whom have been diagnosed with a...
    mysticartpictures2 mysticartpictures2 36-40, F Oct 22

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    I have RLS. I cannot just "stop moving". My legs twitch sometimes and sometimes, it just feels like I NEED to move. It's the most uncomfortable feeling I've ever had and it's...
    britteller britteller 18-21, F 1 Response Oct 23

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    I'm writing this now because I need to get it out. I'm having trouble deciding what to do. School's been out for a few months and since then I've tried a 30 day free trial period...
    ftmFreddy ftmFreddy 18-21, T 1 Response a week ago

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    Considering that when I was at school no one had heard of Asperger's it doesn't surprise me that not many people my age have been diagnosed. So their must be thousands wandering...
    HomeJamesASD HomeJamesASD 46-50, M 6 days ago

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    I have been married to a man with undiagnosed Aspergers for 10 years. For the first 5 years of our marriage he was out to sea (Navy) the majority of the time ; it's not until he...
    njleoladye njleoladye 36-40, F 3 Responses 6 days ago

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    yeah it's called being better than you. B.T.Y. syndrome
    NotBiasedBAM NotBiasedBAM 18-21, M 3 days ago

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    I havnt been diagnosed with it but I have all the symptoms im very bad in social situations to the point where I blush and cover my face not being able to look at people in the...
    SillySpill SillySpill 18-21, F 2 Responses 2 days ago

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    This is not ******* fair first off. I'm a very decent person and I have never had a physical addiction before. I am a full time worker along with being a full time college student...
    vermillion2333 vermillion2333 22-25, F 1 Response Oct 2

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    Although I was raised in the burbs, I've spent most of my adult life living in urban areas. I have always found weird humor in the irony of my living conditions. From the...
    Modiwolfshit Modiwolfshit 41-45, M 2 Responses Oct 2

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    hello need urgent help on cauda equina i have l4 l5 disc central disc protusion from last two years but recently i have a lot of tingling in my testicle area and from last two...
    karansapra karansapra 31-35, M Oct 8

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    I'm 21 years old and live with my father and his wife for a while now. (All my teen years and now ) I respect them a lot. I wish my dad was a little easier on the yelling and...
    Theworldisminenow Theworldisminenow 18-21, F 4 Responses Oct 9

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    Hi, to be honest this is the first time I've posted about this or looked for chat rooms or anything really however I have CRPS. I am 28yrs old, Almost five years ago I was in a car...
    yalenahale yalenahale 26-30, F Oct 14

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    I'm going to write out my entire life story. It's not very long, but if you're interested then do to ahead and read it. Born in a small town called Swindon, on the 8th of August...
    TheWonkyRook TheWonkyRook 16-17, M 4 Responses Oct 18

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    I was diagnosed with POTs 4 months ago however I have been sick for a very long time, I always thought the way I was feeling was all in my head. Every time I would faint everyone...
    Bigfatmanatee Bigfatmanatee 18-21, F 2 Responses Oct 19

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    I have just found this site and thought I would share my story here! I am in utter despair with my diabetes insipidus which I have had since 2000. I had head surgery to remove a...
    lorelli1973 lorelli1973 41-45, F Oct 19

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    I have just found this site and thought I would share my story here! I am in utter despair with my diabetes insipidus which I have had since 2000. I had head surgery to remove a...
    lorelli1973 lorelli1973 41-45, F Oct 19

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    I have a genetic collagen disorder, otherwise known as EDS. Not only do I have the hypermobility and classic types which cause fragile and stretchy body tissues, poor wound healing...
    KKookieMonster KKookieMonster 18-21, F Oct 21

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    Hello all I have dermatomyositis. About 12 years ago it started. Before that I was ok, except I had Raynauds from a teenager, I thought it strange but never went to a doctor with...
    gabrielsgirl gabrielsgirl 61-65, F Oct 22

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    I have IBS (Irritable Bowel Syndrome). I've always had a very sensitive digestive system, but it became really bad in 2010-2011. It was triggered because I had severe depression...
    spacepixie spacepixie 26-30, F 2 Responses Oct 24