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I Have Brachioskeletogenital Syndrome

A Brachioskeletogenital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brachioskeletogenital Syndrome. You're not alone.

    I'm 13 and have known that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are...
    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    Can you have Stockholm syndrome if you want to get away from the abuser?
    lrl75 lrl75 36-40, F 1 Response 2 days ago

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    I have Crest Syndrome, i'm only 20 years old, I've known about it for about 2 years now. I'm currently 14 weeks and 5 days pregnant. Just curious to know how everyone deals with...
    taylaelise taylaelise 18-21, F May 7

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    (I actually don't "have" it anymore, as I'd be well-over dead.) I had serotonin syndrome from 2011-2013. I confused it with mania, and I had never had a seizure before, so I didn...
    grindhound grindhound 22-25, T May 12

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    It's been quite a ride with Poland's Syndrome. When I was born, the doctors didn't notice my pectoral muscle missing. After about 8 days, my left hand was paralyzed and my mom took...
    Sidhant101 Sidhant101 13-15 15 hrs ago

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    Hi everyone, my name is Lindee and I am now 24-years-old going on my 6th year of having POTS syndrome. Aside from the dizzy spells, fatigue, anxiety, brain fog, confusion and...
    shultm1 shultm1 22-25, F May 15

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    There's two types of people with aspergers . The ones who can't hold a conversation to save their life AND the ones who talk about anything and everything they know nonstop till...
    deleted deleted 26-30 8 Responses May 9

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    One of my reasons for being here is 2 meet peeps like me. Luckily for me, only my breast at my right hand side is affected, it hasn't grown at all, staying in boarding school and...
    4everoptie 4everoptie 16-17, F 2 Responses May 9

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    I crave baking soda ... It don't know why.. I do have low iron.. I've had several transfusions but I just can't stop.. I eat baking soda all day if I could.. N I also crave ice I...
    tee08 tee08 31-35 May 11

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    Hello mother of a lil guy that was diagnosed with klinefelter :( the more I read the more I worry about him. I have had diffrent doctors tell that they are not to sure what this is...
    debnmar debnmar 36-40, F May 18

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    My 1month old lil boy was diagnosed with klinefelter. .the more I read on this the more am worried ,I keep wondering how this will affect him :( I keep praying that its not as bad...
    debnmar debnmar 36-40, F 3 Responses May 18

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    My sister and I both have been diagnosed with MELAS. I am 22 and my sister is 26. She was diagnosed first with the genetic disease when she was about 20. We both live in Toronto...
    hedyc hedyc 22-25, F May 21

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    I'm wanting friends like me someone who understands and also thinks and sees things in away others don't. I want someone who hears i have AS and won't go off about how they are so...
    DriftingLeaf DriftingLeaf 18-21 2 Responses May 24

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    I am having the most difficult problem with trying to POOP! I am not constipated, meaning stool is there and is not hard, I am just having problems getting it OUT. I have tried...
    FinbonesGirl FinbonesGirl 36-40, F 1 day ago

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    I have just gotten my pots diagnosis. it's hard realizing this is not going away any time soon. they think I have had it since I was little but as I have gotten older it's gotten...
    kristykaz121 kristykaz121 18-21, F 3 days ago

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    This is something I hate to admit.. After being kidnapped, used, and abused, it still makes me cringe when people say "he'll get what he deserves" and much worse.. I hated him for...
    LilVixen17 LilVixen17 16-17, F 1 Response May 9

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    How expensive is the Mayo Clinic Pain Rehab Program??
    december789 december789 16-17, F May 18

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    my name is cyerra and im only 16 i started eatting baking soda when i was 14 and i love it so much but my mom found out and stop buying it and my bidy was craving so bad for it so...
    Cyerra16 Cyerra16 16-17, F May 20

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    I've been getting dizzy for ten years now... just found out it was pots a few months ago.. and now I'm pregnant and I feel like its getting worse
    steph1994 steph1994 18-21, F 1 Response 3 days ago

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    June 3 2015. Things have changed for the better since I was in here writing before The chronic fatigue syndrome isn't any better but I'm working some every week. I feel better...
    MsBlueDreamer MsBlueDreamer 46-50, F 1 Response 5 hrs ago

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    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 1 Response May 25

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    I am a 16 year old girl and I'm still in high school, that's tough as it is but I do live with polands syndrome and its makes life harder especially in this day and age. When...
    MelissaM98 MelissaM98 16-17, F a week ago

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    Can anyone help me with sapho syndrome. .....
    agha1234 agha1234 31-35, M 1 Response 5 days ago

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M May 23

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    There are 2 wonderful doctors who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors...
    bgrady15 bgrady15 51-55, F 4 days ago

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    That is one thing I really don't like about the A.D.D. I have. It makes typing Stories here on E.P. more time-consuming than it really needs to be. I mean, I may start out every...
    Jugemu Jugemu 31-35, M 2 Responses May 7

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    I once received a message board reply that went like this: "I think it would be than fair if I get banned over this comment and I would happily accept it.But I believe I've read...
    themagicsback themagicsback 22-25, F 2 Responses May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    I think I have reached my breaking point. I have tried everything to save my marriage and it never gets any better. I need to get out, but I'm terrified. He's told me that he will...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses May 6

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 7 Responses May 11

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    If you have a username like kingdong and hugec0ck or whatever, you're clearly suffering from LDS- little d!ck syndrome
    dirtydarkness dirtydarkness 26-30, F 9 Responses May 12

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    I am beginning to not worry as much about it. I guess you could say I choice not to treat it. I have borderline personality disorder. It ******* sucks because well, I just feel...
    ashless ashless 22-25, F 5 Responses May 13

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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I don't remember much from last night....I know I was hanging out with a kid and his adult older sister who was really irresponsible. I remember going to the store with them and...
    PinkMellow PinkMellow 18-21, F 1 Response May 14

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    Hello, I am being picked on because I'm different from everyone else. I am a 15 year old girl with no air, a skin disease, nether ton syndrome, I can't read, I have learning...
    Lizandavan Lizandavan 13-15, F 2 Responses May 17

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses May 19

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    Here are 7 Black Currant Benefits for Absolutely Perfect Vision (http://luv2sex.theblogpress.com/?p=4281) Black currants contain gamma linolenic acid (GLA), which is associated...
    how2stayyoung how2stayyoung 51-55, M May 25

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