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I Have Brachioskeletogenital Syndrome

A Brachioskeletogenital Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Brachioskeletogenital Syndrome. You're not alone.

    Hi call me Sean. I'm 21 years of age and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit...
    Life1sinteresting Life1sinteresting 18-21, M 1 Response 5 days ago

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    i first found out i have turner syndrome when i was a babe my ma discovered i was on injection to help my growth i attend hospital evey six months but they have me in a adults...
    Atale Atale 18-21, F 2 days ago

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    Hi I am a 20 year old girl in the uk. I was diagnosed with mosaic turners when I was born but I've never even thought about the condition that I have, it's never really effected me...
    MissLisac MissLisac 18-21, F 2 Responses a week ago

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    I've missed 17 days this semester already and am very behind in school. Does anyone else have a really hard time keeping up? My mom says I can start homeschooling but not until I...
    TavynKeylee TavynKeylee 13-15 3 Responses Feb 10

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    I have suffered with pica since I was a child. I eat drywall and I need to stop! now! I've tried everything, I take supplements, I try to find something less toxic to meet my needs...
    lilacgarden2015 lilacgarden2015 22-25, F 1 Response Feb 12

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    HAVE ANYBODY EVERY STOPPED THIS COMPLETELY? ????
    toiletpapereatter toiletpapereatter 31-35, F Feb 19

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    im self diagnosed i truly feel that i have it
    TomboyBeth TomboyBeth 13-15, F 1 Response 4 days ago

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    I'm looking for a little insight on Pica. I myself do not believe I have Pica but I believe my three year-old daughter does. Literally EVERYTHING she touches she tries to eat and...
    kasirae3192 kasirae3192 22-25, F 1 Response 3 days ago

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    its hard living with this condition im an eighteen year old girl living in Ireland i was a babe when my mother found out i didnt know anything about it i was in hostiple most of...
    Atale Atale 18-21, F 3 Responses 2 days ago

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    I am 26 and have been struggling with pica for 20 years. When I was a kid (6 years old) I started to eat the stuffing out of couches. It started off as a little here and there but...
    keepitlikeasecret keepitlikeasecret 26-30, F 1 day ago

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    I recently have been diagnosed with POTS. I'm fifteen years old. I have not yet started treatment but I hope to soon. Some days its really hard to get out of bed, go to school...
    kater837 kater837 13-15, F 9 hrs ago

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    Does anyone live in the uk with pots?
    emilysorrell emilysorrell 16-17, F 1 Response Feb 7

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    I shouldn't...but I do. I love my rapist. I remember it all... The cage The chains The ropes The bull whips The tears The blood The sweat The screams The sounds Your voice...
    Bigirl9889 Bigirl9889 16-17, F Feb 15

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    So I've always found myself a bit odd. Now I understand some of that.
    CDragontamer CDragontamer 31-35, T Feb 17

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    I use to eat couch cushions and that started around 5years old, i dnt knw why but that lasted for 16 years, ,but now I've stopped and got a new best friend ,Toilet paper for two...
    toiletpapereatter toiletpapereatter 31-35, F Feb 19

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    Yeah, I pretty much believe that everything I do has been created in my mind and my own conscious awareness. The people I come in contact with aren't truly there unless I hear from...
    AscherLukasValentine AscherLukasValentine 16-17 Feb 25

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    THE MORE THEY TELL ME THEY CAN'T HELP ME OR COMPLETELY IGNORE ME OR MY ISSUES, THE MORE I LOOSE FAITH IN HUMANITY AND MY FELLOW MAN. "DISCRIMINATION", IS A LIFE LESSON FOR A PERSON...
    JEM404 JEM404 41-45, M 1 Response 4 days ago

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    anyone with turner sydrome chat me please
    Atale Atale 18-21, F 2 days ago

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    Don't give up; there is hope. I'm 19 and when I was 16, I got my first symptoms of rumination syndrome. Like a lot of others, I thought it was a 24 hour sick bug but it just...
    alexxblanch alexxblanch 18-21, F 1 day ago

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    Quite a few, actually. Let's see: Velo Cardio Facial Syndrome Asperger's syndrome Depression Obsessive Compulsive Disorder That's me.
    ftmFreddy ftmFreddy 18-21, T 5 Responses Feb 9

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    One year ago is when I started getting sick. It's started out as maybe an hour in the morning I would feel extremely nauseous and most of the time I would get sick and then go on...
    kateyrose98 kateyrose98 16-17, F Feb 9

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    The ever present question, are we being manipulated? If you say, well yeah, duh. Then you ask yourself the next question, who is manipulating us? Welcome to the mind of all tin...
    everydayisagoodone everydayisagoodone 31-35 2 Responses Feb 13

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    just wondering about others experiences with POTS syndrome. I have lost all strength in my legs and im in a nursing home. Therapist says ill be in a wheelchair for a month. was in...
    Jzimo Jzimo 22-25, M 5 days ago

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    Pretty much self explanatory. Additional info for the clueless: http://www.urbandictionary.com/define.php?term=White+Knight+Syndrome
    aberrations aberrations 22-25, M 4 days ago

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    Hey I have Jarcho-levin Syndrome and have a trache and mickey I had this disease all my life I wasn't supposed to live the dr's gave me 24 hrs to live anyways ........I have...
    Zannyband16 Zannyband16 16-17, F 13 hrs ago

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    Does anybody living in the uk have pots?
    emilysorrell emilysorrell 16-17, F Feb 7

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    My sister does, and I'm that sibling. I have asperger's syndrome, a form of high-functioning autism. When I was younger I would get angry at the littlest things. I remember...
    ftmFreddy ftmFreddy 18-21, T 1 Response Feb 9

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    Hello. I have been experiencing symptoms for 6 months now and I was very recently diagnosed with Rumination Syndrome. I am on 20mg of Amnitriptolyn to help cure but there hasn't...
    minmouse614 minmouse614 26-30, F 1 Response Feb 9

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    Dear CFS: **** you! I hate not being able to think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the...
    LookingForIt987 LookingForIt987 41-45, M 2 Responses Feb 11

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    I got into a relationship with a man I thought was my soulmate, it happened online and he lived in a different state. He flew over twice and I flew to see him once. For 6 months...
    CosmicPrincess CosmicPrincess 26-30, F 1 Response Feb 14

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    After 5 years of battling with POTS I have finally managed to stay healthy long enough that my doctor approved me for a volunteering program in South Africa! After years of wishing...
    haileybb haileybb 18-21, F 1 Response Feb 14

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    Hi, I'm 21. I slipped a disc in December 2014. I had CES symptoms for 2 weeks before having my disc removed as I was on a cruise ship. I guess I'm lucky as I can walk normally with...
    sdavis313 sdavis313 18-21, F 1 Response Feb 15

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    Hi everyone! So I'll be posting my full story later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being...
    Abbyrk Abbyrk 16-17, F 1 Response Feb 15

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    I can't say 100% that I have this (just 98%) I wish I knew how to get better because I also have pseudotumor cerebri and the two are going in circles with each other right now...
    lu7998 lu7998 31-35, F Feb 16

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    Hi I'm 24 years old and currently being diagnosed with pts. 5 months ago I had my first symptom which came out of no where and was severe! I have had sooo many tests as you would...
    megzeee megzeee 22-25, F 1 Response Feb 18

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    As an Aspie, I get very tired having to socialize and talk to people. I'm often accused of being aloof, standoffish, or downright rude. It's not my intention to be mean or...
    Sorgun Sorgun 26-30, M 3 Responses Feb 21

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    I am 31 and my husband is 31 as well?we are a gay couple? for the last 7 years My husband has been aware of his Aspergers Diagnosis and I, Have done a very extensive amount of...
    KnightOfTheMadHatter KnightOfTheMadHatter 31-35, M Feb 22

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    Hello. I am a 23 year old male, and this is my story that I want people to know. It all began back in my old home. My parents were great and wonderful parents to the eyes of the...
    familymaynotbeforever91 familymaynotbeforever91 22-25, M 3 Responses Feb 25

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    I was born weighing two pounds and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree 18-21, M 1 Response Feb 25

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    Have any of you kept up with news recently? Apparently, there are studies now that show this is a disease and the medical community will start treating it as a disease. Looks like...
    awesomesauce2 awesomesauce2 22-25, M 3 Responses Feb 25

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    I have just ran across DSPS today in researching and trying to find out what exactly has been wrong with me for most of my life. I've classified myself as a night owl since I was...
    CrowWoman CrowWoman 51-55, F 1 Response 3 days ago

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