I Have Bronchiectasis

Bronchiectasis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bronchiectasis. You're not alone. 117 People

    I am nearing 65 yrs. I have been fighting

    several genetic diseases since my 30's. All of them are said to be incurable. Now I have been diagnosed with Bronchiectasis. I have had problem cough and sinus issues for about 40 yrs. My system doesn't handle chemicals very well. If there is a side-effect, I usually get it...
    Paw49 Paw49
    66-70, F
    Feb 20, 2014

    Mild Bronchietisis From Mac..cough Up Blood Periodically

    11 years ago I was diagnosed at 44 with MAC... I never coughed but one morning woke up coughing up blood. I was in the hospital for days. first in isolation then after my bronchoscopy they thought I had TB.. long story short I was treated for MAC for 18 months, and now I am left...
    ell3 ell3
    51-55, F
    2 Responses Sep 21, 2012

    Living With Bronchiectasis

    I was diagnosed with bronchiectasis in 2006.  My illness started in 2001 when I was working in a school with mold.  I developed pneumonia 3 times, had an ongoing sinus infection, and mold cultured my lungs.  In the next year I changed to a different school. ...
    swede1 swede1
    30 Responses Apr 18, 2010

    I Have Bronchiectasis For 25 Years And How I Get Good?

    when i was in fourth grade a sun flower seed got in my lungs and i was coughing a thousand times a night. the thedoctors make  leroncoscope  and broncoscope. they said also  if   there is no good proceedings then cut out my 2 lobes of lung and they choose to wait then they...
    tuncay2 tuncay2
    1 Response Oct 15, 2011

    Since 2 Years Old

    Hey guys.. E don't even remember when this started.. I was 2 years old, so what i know is what my parents told me all over the years.. So since i was 2 years old, i have almost every month an infection, witch leads to pneumonia, and witch sends me to bed... I cry almost every...
    Catthe91 Catthe91
    1 Response Jul 2, 2013

    Newly Diagnosed With Bronchiectasis + Pseudomonas Infection

    Hi to fellow sufferers!  I am newly diagnosed with Bronchiectasis + Pseudomonas Aeruginosa.  It is this bacterial infection that worries me most.  I have been on inhaled Tobramycin for about 25 days, and for the last week my doctor added Cipro, as I was not feeling...
    pampooh pampooh
    20 Responses Nov 21, 2010

    So my first post on here was about two years

    ago. Since then, things have not gotten much better. I am a nurse but am on my third job in two years because I am looking for a job that allows me to reserve some quality of life. It has been really hard finding a job that allows me to take care of myself as well as I need to...
    jbsrn jbsrn
    1 Response Nov 16, 2014

    Does any one here have a Smart Vest?

    I recently got one and I am trying to fly in a few weeks and the airlines is giving me lots of problems.
    abbyb17 abbyb17
    22-25, F
    Oct 30, 2015

    I had my 6 month follow up

    and will cycle back on the inhaled compound antibiotics. I described how my chronic Athsma is in mo way under control and continually exasperated by the non cf bronchiectasis. The Pulmonary Specialist I see, like and pretty much trust feels like he may want to consider a...
    MagLungPI MagLungPI
    56-60, M
    Feb 13, 2015

    My Experience Being Sick...

    I was always the sick one in the family, but I really wasn't sick that much more than other kids as a child. In college, though, I started getting these crazy sinus infections that never seemed to go away and got worse in time. I would have surgery, the symptoms would disappear...
    MeriBeri MeriBeri
    36-40, F
    2 Responses Apr 15, 2013

    I Just Experienced Successful Treatment

    Had been on antibiotics that did not kill out infection and cough. Terrible coughing with lots of phlegm. Just tried Echinacea Goldenseal by Gaia Herbs. It has stopped my cough. Take carefully as it elevates blood pressure. I am a petite woman and took as prescribed on...
    curebronch curebronch
    2 Responses Feb 10, 2013

    I Found A Cure For My Bronchiectasis

    Any person who suffers from this annoyingly frustrating disease has my empathy. I had it for 25 years until 4 months ago. I used to cough every night, yellow/pink/green/brown/grey phlegm and hemoptysis 3-4x year and hospitalized several times. I've taken every Cipro/Avelox...
    dsquared1 dsquared1
    3 Responses May 18, 2013

    Bronchiectasis - I Can't Even Say It, How Can I Have It?????

    My story must have begun when I was about 15 years old, but I never even knew it. I kept getting terrible pains in my chest, and I couldn't breathe. My mom took me to the doctor, and he said I just probably had some calcium deposits on my rib or something, and nothing was really...
    zenforce zenforce
    51-55, F
    4 Responses May 6, 2012

    I Found Out I Had Bronchiectasis When I Was 14 Years Old.

    I was 14 years old when I was diagnosed. At first I went into the doctors with a chest cold. The doctor put me on antibiotics and it didn't help. I tried so many different medicines that my doctor finally sent me to a lung specialist. At that time, I was told I had bronchiectasis...
    RobinHoopes RobinHoopes
    31-35, F
    1 Response Mar 31, 2012

    The Coughing Med Student

    I'm 25 and just diagnosed last year. For years my doctors thought it was just asthma despite my chronic wet coughing. I am very thankful for the pulmonologist that thought more was going on and got that CT scan. Now I'm on the right treatment but I still am coughing. It's...
    studentdoctor studentdoctor
    26-30, M
    2 Responses Mar 2, 2013

    Road To Recovery

    I got diagnosed after getting pneumonia when I had my baby after probably having symptoms for over 5 years. I was fit before then so it masked my symptons and my cough was put down to my asthma. My first bub was really small so i think she was starved of oxygen a bit. I had a...
    bindybee bindybee
    2 Responses Dec 20, 2012


    Just been diagnosed with bronchiectasis feel like crap why me ect had a really bad cough since last September and after 9 lots of antibiotics steroids and inhalers finally a ct scan that showed bronchectasis i had never heard of it but have been feeling awful for months. I have...
    mandy61 mandy61
    Mar 28, 2012

    Tried some yard work today.

    I'm in the worst shape of my life. I have a very long way to go to restore stamina and strength. Working in the yard was so much more enjoyable when I could ******' breathe.
    MagLungPI MagLungPI
    56-60, M
    1 Response Mar 29, 2015

    Tough morning. Threw up my coffee during a

    cough spree. Had to hit the Neb twice this AM. Already tired before leaving for work. My nemesis lives inside me and I'm at war with myself. This battle lost. Tomorrow is another day.
    MagLungPI MagLungPI
    56-60, M
    Feb 5, 2015

    After years of asthma,

    bronchitis, and pneumonia, I was diagnosed with Bronchiectasis in 2012 at 24 years old. The cough is frustrating, and embarrassing at times. I'm a runner, and since being diagnosed, I've been apprehensive to running as much as I used to. I take albuterol, and symbicort inhalers...
    dinahjoy dinahjoy
    26-30, F
    3 Responses Jan 18, 2015

    Can't Take This Lying Down

    I was diagnosed with brronchiectisis in 2006. I was hospitalized for 10 days and tested for everything possible. I had a pseudomona and an immune system deficiency. My pulse ox was down to 80. After that I went every month for immunoglobulin IV. Finally I seemed to be okay and...
    dandikat dandikat
    56-60, F
    3 Responses Sep 28, 2012

    Hello everyone! Just joined the group

    after reading stories that have already been posted. This is my first attempt to join a support group. It will be nice to relate to folks that share such a formidable foe. Officially diagnosed in 2011 by my allergist while he was trying to stabilize my chronic Athsma (since...
    MagLungPI MagLungPI
    56-60, M
    Jan 11, 2015

    I'm just sick and tired of being sick

    and tired. I've known for a long time something was wrong, growing up coughing like I did was not normal, but not having access to good doctors till moving to the Houston area delayed the healing process by who knows how long. In the last year I've had two bronchoscopies, a PICC...
    SandyJuly SandyJuly
    26-30, F
    1 Response Aug 8, 2015

    Bronchiectasis Just Diagnosed And Truly Fed Up

    I have had a terrible cough for seven months now after having had repeated courses of antibiotics I have been diagnosed with this awful disease after a CT Scan. I am really depressed and beginning to wonder what the future holds. The Consultant is talking about putting me on a...
    bowjangles54 bowjangles54
    56-60, F
    5 Responses Apr 10, 2012

    This was a very tough week

    for me. I hate to feel sorry for myself. It's not my nature. **** it.
    MagLungPI MagLungPI
    56-60, M
    Feb 28, 2015

    Happy I Found You All!

    Hi I am a newbee and wish I had known about this site 4 years ago. In late 2009, a chest x-ray showed a problem- at first it was thought I had lung cancer. After many test CTscans-MRI-PET scan and scopes-I was diagnosed with bronchiectasis. Since this started I have had sinus and...
    dixe dixe
    70+, F
    2 Responses Sep 10, 2013

    Newly Diagnosed

    I was just diagnosed with non cystic bronchiectasis. My pulmonologist thinks I developed it after having pneumonia 3 years ago. My immune system is normal and all my labs are normal. According to my CT scan, I have a mild case in both my lower lobes. Does this always progress to...
    AWblack AWblack
    41-45, F
    1 Response Jul 16, 2013

    Does anyone else dealing with the associated

    chronic cough ever experience cough syncope?
    MagLungPI MagLungPI
    56-60, M
    Jan 28, 2015

    So I had my first work out in three months.

    Cardio and weights. Got my heart rate up but didn't push it. My endorphins are raging and it really reassured me I can work through this condition and get my *** back into much better shape. Feeling very positive.
    MagLungPI MagLungPI
    56-60, M
    Jan 26, 2015

    I Need Advice...i Have Been Diagnosed With Bronchiectasis!!!

    I'm 54 years old and I was diagnosed two weeks ago! I have been really sick on anti-biotics since October, I've done about 6 round of anti-biotics along with Abuterol, steroids, and cough meds. I'm also Diabetic, Asthmatic, and have heart problems. Finally I had a CT Scan and the...
    mariadelsol mariadelsol
    51-55, F
    4 Responses Jan 14, 2013

    A Lifetime Of Coughs

    I am 61 year old man. When I was five, I suffered a severe bout of measles and from then on, I had what my GP called, "a bad chest". Over the next 17 years, I had occasional severe chest infections that were treated by the usual for then antibiotics. In 1972 I began to have...
    oldbronch oldbronch
    4 Responses Oct 6, 2012

    I Too Have Bronchiectasis

    I'm a 64 year old male, who's had (since 1990) A-typical TB. And before that I had chronic sinus infections. Then after about 5 years of trreating my TB with anti-biotics my TB has cleared but now I have bronchiectasis. Lung disease seems to run in my family, mostly cancer. I...
    wonderYme wonderYme
    61-65, M
    1 Response Mar 8, 2012

    I am a 70 try year old male recently diagnosed

    with bronchiectasis. About 6 months ago I developed a worsening cough. About 2 months ago I noticed I was short of breath and that too was worsening. In conjunction with this I developed a severe post nasal drip and an equally severe nasal discharge similar to a very severe head...
    Augie1776 Augie1776
    70+, M
    2 Responses Mar 15, 2014

    I recently was diagnosed with Bronchiectasis.

    I have not been sick or anything, but had been having random chest pains near my heart and random shortness of breath, so I went to get my heart checked out. I got really out of breath on the stress test, but my heart tested fine, other than a harmless murmur. I was also sent...
    tada3 tada3
    Dec 11, 2014

    Need Someone Who Understands

    I was diagnosed with bronchiectasis when i was 17, I am now 22. During the past 4 years, I have been on and off antibiotics. I am lucky if I have a good month. This past year I was hospitalized and ended up needing surgery to help clear things up but I have not felt well since...
    jbsrn jbsrn
    6 Responses Aug 4, 2012

    I have had bronchiectasis

    since I was 7 but wasn't diagnosed til I was 27. I have been to 4 different hospitals trying to figure out what it was. The doctors thought maybe CF but all the test came back negative. I was told that I was going to die at 18. I had to quit school because I couldn't be around...
    kkrosen1 kkrosen1
    2 Responses Sep 19, 2014

    You Can Get Bronchiectasis Under Control Like I Did.

    Although the damage caused by bronchiectasis is said to be irreversible, natural remedies can help to prevent lung infections and reverse its symptoms. I have bronchiectasis since 2004 and I manage to control it without relying on antibiotic. In fact this year I had none. Look at...
    Tomascat Tomascat
    2 Responses Apr 12, 2013

    Living With Brochiectaisis Since The Age Of 26.

    I am a female,who was diagnosed with Brochiectasis at the age of 26. This condition also resulted in me having a lower lobectomy of my left lung. I am now 49, and am still dealing with it. I have to take Antibiotics constantly to treat reoccurring infections of Bronchititis. and...
    nyzki nyzki
    1 Response Jul 2, 2013

    Me Too

    Actually my doctor diagnosed me today..So yeah I'm still in the learning fase.6 weeks ago I started with coughing, fevers and sweating and 2.5 weeks ago I went to the doctor, thought it was time to take a look, I know it would probably be pneumonia, but I never thought it would...
    Catootje Catootje
    18-21, F
    1 Response Apr 14, 2011

    And what sucks the most is how much this ****

    has negatively affected intimacy with my wife. Sex is tough when you can't breath or fend off the cough.
    MagLungPI MagLungPI
    56-60, M
    Mar 13, 2015

    I Was Just Diagnosed With Bronchiectasis

    Hello everyone! I was just diagnosed with Bronchiectasis. I was very scared that I had cancer! I had my CT before my Dr did and saw my diagnosis. From what I had read what is the difference? So much work to be able to breath on a daily basis. I struggle with the fact that I...
    Shirley29485 Shirley29485
    46-50, F
    2 Responses Oct 30, 2012

    I Have Bronchiectasis

    I am a female 70 years of age and was diagnosed with Bronchiectasis at age 10 years of age after a bout of Measles.I subsequently had 2 lower lobectomies at age 12. At age 12 I moved to a dry climate and was asymptomatic until I returned to live in a damp climate at age 34. I was...
    Tamarawood Tamarawood
    1 Response Mar 11, 2013

    So I've now had three sessions in a salt cave

    (Halotherapy). I feel a benefit and some relief. Jury is still out with seven more sessions in my trial period. Been finding positive and negative reviews in my online research. So far so good for me.
    MagLungPI MagLungPI
    56-60, M
    2 Responses Mar 25, 2015

    I am about to begin inhaled antibiotic

    for bronchiectasis . My insurance has agreed to pay for a prescription of it but that is all I know. It is thousands per month. Please let me know of your experience with whether your insurance backs out on you after while or tries to find a way not to pay. If I start this...
    Jewell2u Jewell2u
    61-65, F
    2 Responses Apr 15, 2015

    I got diagnosed with bronchiectisis

    when I was 10 and I am now 17. I get very embarrassed about my coughing but I have found that the easiest thing to do is just tell everyone about your condition so they will understand why you sound the way you do. My boyfriend and I have been together for a good while now and...
    cydneyjoann cydneyjoann
    18-21, F
    1 Response Nov 11, 2014

    HI Everyone! I'm getting over my bronchiectasis.

    I was diagnosed...misdiagnosed and then really diagnosed with bronchiectasis when I contacted pseudomonas in 2012. I met an herbalist who does custom Chinese herbal formulas. She said the root of my problems was actually my large intestine and that in Chinese medicine the lungs...
    BronchiLady BronchiLady
    36-40, F
    2 Responses Jun 10, 2015

    Ct Scan Reveals I Have Minimal Pulmonary Fibrosis And Minimal Bronchiectasis. My Chest Xray Revealed That My Lungs Are Scarred Due To Previous Pulmonary Tuberculosis Infection. Please Enlighten Me More On This Disease.,it's Worrying Me A Lot.,

    A few months ago.,i suddenly felt like coughing.,and when i did cough.,i spit blood.,and it just wouldnt stop.,so i took tranexamic acid to suppress the coughing up of blood.,it worked for a while but then it recurs.,so i rushed to a pulmonologist and had my chest xrayed.the...
    yellowbrat yellowbrat
    3 Responses Jun 28, 2012

    Am I The Youngest?

    Hello, You may call me Secrets505, though i prefer Shadow. I have had diagnosed bronchiectasis since i was 11 and i am now 15. I am really just annoyed with it, all it seems to be is medication, and never any good out of it. Anyway, i really want to know if i am the...
    Secrets505 Secrets505
    18-21, F
    3 Responses Nov 19, 2013

    This will start a series of visits to a salt

    therapy center. Halotherapy is what it's called. We'll see.
    MagLungPI MagLungPI
    56-60, M
    1 Response Mar 16, 2015

    Breathless In Orewa. Orewa Is On The Hibiscus Coast (hence The Logo) Twenty Minutes North Of Auckland, New Zealand.

    Check out my blog by googling BreathlessinOrewa where you will find in '4. My Other Online World' information about the present state of my bronchiectasis. See also my comment of November 18th 2011 on Pampooh's page (comment 11). Since then I have written up a more detailed...
    jspencer jspencer
    70+, M
    Nov 18, 2011
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