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I Have Bronchiectasis

Bronchiectasis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bronchiectasis. You're not alone. 111 People

    So my first post on here was about two years

    ago. Since then, things have not gotten much better. I am a nurse but am on my third job in two years because I am looking for a job that allows me to reserve some quality of life. It has been really hard finding a job that allows me to take care of myself as well as I need to...
    jbsrn jbsrn 22-25 1 Response Nov 16, 2014

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    Ct Scan Reveals I Have Minimal Pulmonary Fibrosis And Minimal Bronchiectasis. My Chest Xray Revealed That My Lungs Are Scarred Due To Previous Pulmonary Tuberculosis Infection. Please Enlighten Me More On This Disease.,it's Worrying Me A Lot.,

    A few months ago.,i suddenly felt like coughing.,and when i did cough.,i spit blood.,and it just wouldnt stop.,so i took tranexamic acid to suppress the coughing up of blood.,it worked for a while but then it recurs.,so i rushed to a pulmonologist and had my chest xrayed.the...
    yellowbrat yellowbrat 46-50 3 Responses Jun 28, 2012

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    Bronchiectasis Just Diagnosed And Truly Fed Up

    I have had a terrible cough for seven months now after having had repeated courses of antibiotics I have been diagnosed with this awful disease after a CT Scan. I am really depressed and beginning to wonder what the future holds. The Consultant is talking about putting me on a...
    bowjangles54 bowjangles54 56-60, F 5 Responses Apr 10, 2012

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    I Found Out I Had Bronchiectasis When I Was 14 Years Old.

    I was 14 years old when I was diagnosed. At first I went into the doctors with a chest cold. The doctor put me on antibiotics and it didn't help. I tried so many different medicines that my doctor finally sent me to a lung specialist. At that time, I was told I had bronchiectasis...
    RobinHoopes RobinHoopes 31-35, F 1 Response Mar 31, 2012

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    I am nearing 65 yrs. I have been fighting

    several genetic diseases since my 30's. All of them are said to be incurable. Now I have been diagnosed with Bronchiectasis. I have had problem cough and sinus issues for about 40 yrs. My system doesn't handle chemicals very well. If there is a side-effect, I usually get it...
    Paw49 Paw49 66-70, F Feb 20, 2014

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    Bronchiectasis - I Can't Even Say It, How Can I Have It?????

    My story must have begun when I was about 15 years old, but I never even knew it. I kept getting terrible pains in my chest, and I couldn't breathe. My mom took me to the doctor, and he said I just probably had some calcium deposits on my rib or something, and nothing was really...
    zenforce zenforce 51-55, F 4 Responses May 6, 2012

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    After years of asthma,

    bronchitis, and pneumonia, I was diagnosed with Bronchiectasis in 2012 at 24 years old. The cough is frustrating, and embarrassing at times. I'm a runner, and since being diagnosed, I've been apprehensive to running as much as I used to. I take albuterol, and symbicort inhalers...
    dinahjoy dinahjoy 26-30, F 2 Responses Jan 18

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    I Was Just Diagnosed With Bronchiectasis

    Hello everyone! I was just diagnosed with Bronchiectasis. I was very scared that I had cancer! I had my CT before my Dr did and saw my diagnosis. From what I had read what is the difference? So much work to be able to breath on a daily basis. I struggle with the fact that I...
    Shirley29485 Shirley29485 46-50, F 2 Responses Oct 30, 2012

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    Hello everyone! Just joined the group

    after reading stories that have already been posted. This is my first attempt to join a support group. It will be nice to relate to folks that share such a formidable foe. Officially diagnosed in 2011 by my allergist while he was trying to stabilize my chronic Athsma (since...
    MagLungPI MagLungPI 56-60, M Jan 11

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    Newly Diagnosed.

    I've just been diagnosed with bronchiectasis. Its a bit of a relief really, i've had trouble with my chest for years but everyone has just put it down too asthma. I'm only 20 years old so it was still a bit of a shock. I'm guessing that its been caused by the treatment I had for...
    Tommehturtle Tommehturtle 18-21 1 Response Mar 27, 2012

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    I am about to begin inhaled antibiotic

    for bronchiectasis . My insurance has agreed to pay for a prescription of it but that is all I know. It is thousands per month. Please let me know of your experience with whether your insurance backs out on you after while or tries to find a way not to pay. If I start this...
    Jewell2u Jewell2u 61-65, F 2 Responses Apr 15

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    I Found A Cure For My Bronchiectasis

    Any person who suffers from this annoyingly frustrating disease has my empathy. I had it for 25 years until 4 months ago. I used to cough every night, yellow/pink/green/brown/grey phlegm and hemoptysis 3-4x year and hospitalized several times. I've taken every Cipro/Avelox...
    dsquared1 dsquared1 46-50 3 Responses May 18, 2013

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    This will start a series of visits to a salt

    therapy center. Halotherapy is what it's called. We'll see.
    MagLungPI MagLungPI 56-60, M Mar 16

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    I Have Bronchiectasis For 25 Years And How I Get Good?

    when i was in fourth grade a sun flower seed got in my lungs and i was coughing a thousand times a night. the thedoctors make  leroncoscope  and broncoscope. they said also  if   there is no good proceedings then cut out my 2 lobes of lung and they choose to wait then they...
    tuncay2 tuncay2 36-40 1 Response Oct 15, 2011

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    I had my 6 month follow up

    and will cycle back on the inhaled compound antibiotics. I described how my chronic Athsma is in mo way under control and continually exasperated by the non cf bronchiectasis. The Pulmonary Specialist I see, like and pretty much trust feels like he may want to consider a...
    MagLungPI MagLungPI 56-60, M Feb 13

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    I got diagnosed with bronchiectisis

    when I was 10 and I am now 17. I get very embarrassed about my coughing but I have found that the easiest thing to do is just tell everyone about your condition so they will understand why you sound the way you do. My boyfriend and I have been together for a good while now and...
    cydneyjoann cydneyjoann 18-21, F Nov 11, 2014

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    You Can Get Bronchiectasis Under Control Like I Did.

    Although the damage caused by bronchiectasis is said to be irreversible, natural remedies can help to prevent lung infections and reverse its symptoms. I have bronchiectasis since 2004 and I manage to control it without relying on antibiotic. In fact this year I had none. Look at...
    Tomascat Tomascat 41-45 1 Response Apr 12, 2013

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    Am I The Youngest?

    Hello, You may call me Secrets505, though i prefer Shadow. I have had diagnosed bronchiectasis since i was 11 and i am now 15. I am really just annoyed with it, all it seems to be is medication, and never any good out of it. Anyway, i really want to know if i am the...
    Secrets505 Secrets505 16-17, F 4 Responses Nov 19, 2013

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    I have had bronchiectasis

    since I was 7 but wasn't diagnosed til I was 27. I have been to 4 different hospitals trying to figure out what it was. The doctors thought maybe CF but all the test came back negative. I was told that I was going to die at 18. I had to quit school because I couldn't be around...
    kkrosen1 kkrosen1 36-40 1 Response Sep 19, 2014

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    The Coughing Med Student

    I'm 25 and just diagnosed last year. For years my doctors thought it was just asthma despite my chronic wet coughing. I am very thankful for the pulmonologist that thought more was going on and got that CT scan. Now I'm on the right treatment but I still am coughing. It's...
    studentdoctor studentdoctor 26-30, M 2 Responses Mar 2, 2013

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    I Too Have Bronchiectasis

    I'm a 64 year old male, who's had (since 1990) A-typical TB. And before that I had chronic sinus infections. Then after about 5 years of trreating my TB with anti-biotics my TB has cleared but now I have bronchiectasis. Lung disease seems to run in my family, mostly cancer. I...
    wonderYme wonderYme 61-65, M 1 Response Mar 8, 2012

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    Bronchiectasis Panel Being Developed, Pays $50 For Qualified Participants

    Hi, everyone! I have a wonderful opportunity to share your experiences with bronchiectasis and earn some money while doing so. I’m working with my client on behalf of Xcenda, part of AmerisourceBergen Consulting Services, who are an independent market research firm that...
    listenlearn listenlearn 41-45, F 2 Responses Mar 10, 2013

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    Happy I Found You All!

    Hi I am a newbee and wish I had known about this site 4 years ago. In late 2009, a chest x-ray showed a problem- at first it was thought I had lung cancer. After many test CTscans-MRI-PET scan and scopes-I was diagnosed with bronchiectasis. Since this started I have had sinus and...
    dixe dixe 70+, F 2 Responses Sep 10, 2013

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    Tough morning. Threw up my coffee during a

    cough spree. Had to hit the Neb twice this AM. Already tired before leaving for work. My nemesis lives inside me and I'm at war with myself. This battle lost. Tomorrow is another day.
    MagLungPI MagLungPI 56-60, M Feb 5

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    Living With Brochiectaisis Since The Age Of 26.

    I am a female,who was diagnosed with Brochiectasis at the age of 26. This condition also resulted in me having a lower lobectomy of my left lung. I am now 49, and am still dealing with it. I have to take Antibiotics constantly to treat reoccurring infections of Bronchititis. and...
    nyzki nyzki 51-55 1 Response Jul 2, 2013

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    Can't Take This Lying Down

    I was diagnosed with brronchiectisis in 2006. I was hospitalized for 10 days and tested for everything possible. I had a pseudomona and an immune system deficiency. My pulse ox was down to 80. After that I went every month for immunoglobulin IV. Finally I seemed to be okay and...
    dandikat dandikat 56-60, F 3 Responses Sep 28, 2012

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    HI Everyone! I'm getting over my bronchiectasis.

    I was diagnosed...misdiagnosed and then really diagnosed with bronchiectasis when I contacted pseudomonas in 2012. I met an herbalist who does custom Chinese herbal formulas. She said the root of my problems was actually my large intestine and that in Chinese medicine the lungs...
    BronchiLady BronchiLady 36-40, F Jun 10

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    I Just Experienced Successful Treatment

    Had been on antibiotics that did not kill out infection and cough. Terrible coughing with lots of phlegm. Just tried Echinacea Goldenseal by Gaia Herbs. It has stopped my cough. Take carefully as it elevates blood pressure. I am a petite woman and took as prescribed on...
    curebronch curebronch 61-65 2 Responses Feb 10, 2013

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    Need Someone Who Understands

    I was diagnosed with bronchiectasis when i was 17, I am now 22. During the past 4 years, I have been on and off antibiotics. I am lucky if I have a good month. This past year I was hospitalized and ended up needing surgery to help clear things up but I have not felt well since...
    jbsrn jbsrn 22-25 6 Responses Aug 4, 2012

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    This was a very tough week

    for me. I hate to feel sorry for myself. It's not my nature. **** it.
    MagLungPI MagLungPI 56-60, M Feb 28

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    I am a 70 try year old male recently diagnosed

    with bronchiectasis. About 6 months ago I developed a worsening cough. About 2 months ago I noticed I was short of breath and that too was worsening. In conjunction with this I developed a severe post nasal drip and an equally severe nasal discharge similar to a very severe head...
    Augie1776 Augie1776 70+, M 2 Responses Mar 15, 2014

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    So I've now had three sessions in a salt cave

    (Halotherapy). I feel a benefit and some relief. Jury is still out with seven more sessions in my trial period. Been finding positive and negative reviews in my online research. So far so good for me.
    MagLungPI MagLungPI 56-60, M 1 Response Mar 25

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    So I had my first work out in three months.

    Cardio and weights. Got my heart rate up but didn't push it. My endorphins are raging and it really reassured me I can work through this condition and get my *** back into much better shape. Feeling very positive.
    MagLungPI MagLungPI 56-60, M Jan 26

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    Breathless In Orewa. Orewa Is On The Hibiscus Coast (hence The Logo) Twenty Minutes North Of Auckland, New Zealand.

    Check out my blog by googling BreathlessinOrewa where you will find in '4. My Other Online World' information about the present state of my bronchiectasis. See also my comment of November 18th 2011 on Pampooh's page (comment 11). Since then I have written up a more detailed...
    jspencer jspencer 66-70, M Nov 18, 2011

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    Ms. Dilarie :-)

     Service PLEASE NOTE:    I wrote out my story of about 6 paragraphs twice & both times it was lost!  for no good reason.   Something isn't working properly here!!!  Please get back to me on this.   I've wasted too many hours on this detailing...
    dilarie dilarie 61-65 1 Response Mar 30, 2010

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    I Need Advice...i Have Been Diagnosed With Bronchiectasis!!!

    I'm 54 years old and I was diagnosed two weeks ago! I have been really sick on anti-biotics since October, I've done about 6 round of anti-biotics along with Abuterol, steroids, and cough meds. I'm also Diabetic, Asthmatic, and have heart problems. Finally I had a CT Scan and the...
    mariadelsol mariadelsol 51-55, F 4 Responses Jan 14, 2013

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    Living With Bronchiectasis

    I was diagnosed with bronchiectasis in 2006.  My illness started in 2001 when I was working in a school with mold.  I developed pneumonia 3 times, had an ongoing sinus infection, and mold cultured my lungs.  In the next year I changed to a different school. ...
    swede1 swede1 56-60 28 Responses Apr 18, 2010

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    Newly Diagnosed With Bronchiectasis + Pseudomonas Infection

    Hi to fellow sufferers!  I am newly diagnosed with Bronchiectasis + Pseudomonas Aeruginosa.  It is this bacterial infection that worries me most.  I have been on inhaled Tobramycin for about 25 days, and for the last week my doctor added Cipro, as I was not feeling...
    pampooh pampooh 61-65 20 Responses Nov 21, 2010

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    My Experience Being Sick...

    I was always the sick one in the family, but I really wasn't sick that much more than other kids as a child. In college, though, I started getting these crazy sinus infections that never seemed to go away and got worse in time. I would have surgery, the symptoms would disappear...
    MeriBeri MeriBeri 36-40, F 2 Responses Apr 15, 2013

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    Since 2 Years Old

    Hey guys.. E don't even remember when this started.. I was 2 years old, so what i know is what my parents told me all over the years.. So since i was 2 years old, i have almost every month an infection, witch leads to pneumonia, and witch sends me to bed... I cry almost every...
    Catthe91 Catthe91 22-25 1 Response Jul 2, 2013

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    I recently was diagnosed with Bronchiectasis.

    I have not been sick or anything, but had been having random chest pains near my heart and random shortness of breath, so I went to get my heart checked out. I got really out of breath on the stress test, but my heart tested fine, other than a harmless murmur. I was also sent...
    tada3 tada3 51-55 Dec 11, 2014

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    And what sucks the most is how much this ****

    has negatively affected intimacy with my wife. Sex is tough when you can't breath or fend off the cough.
    MagLungPI MagLungPI 56-60, M Mar 13

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    Road To Recovery

    I got diagnosed after getting pneumonia when I had my baby after probably having symptoms for over 5 years. I was fit before then so it masked my symptons and my cough was put down to my asthma. My first bub was really small so i think she was starved of oxygen a bit. I had a...
    bindybee bindybee 41-45 2 Responses Dec 20, 2012

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    I'm just sick and tired of being sick

    and tired. I've known for a long time something was wrong, growing up coughing like I did was not normal, but not having access to good doctors till moving to the Houston area delayed the healing process by who knows how long. In the last year I've had two bronchoscopies, a PICC...
    SandyJuly SandyJuly 22-25, F Aug 8

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    Me Too

    Actually my doctor diagnosed me today..So yeah I'm still in the learning fase.6 weeks ago I started with coughing, fevers and sweating and 2.5 weeks ago I went to the doctor, thought it was time to take a look, I know it would probably be pneumonia, but I never thought it would...
    Catootje Catootje 18-21, F 1 Response Apr 14, 2011

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