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I Have Bronchiectasis

Bronchiectasis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bronchiectasis. You're not alone. 95 People

    Newly Diagnosed.

    I've just been diagnosed with bronchiectasis. Its a bit of a relief really, i've had trouble with my chest for years but everyone has just put it down too asthma. I'm only 20 years old so it was still a bit of a shock. I'm guessing that its been caused by the treatment I had for...
    Tommehturtle Tommehturtle 18-21 Mar 27, 2012

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    Newly Diagnosed With Bronchiectasis + Pseudomonas Infection

    Hi to fellow sufferers!  I am newly diagnosed with Bronchiectasis + Pseudomonas Aeruginosa.  It is this bacterial infection that worries me most.  I have been on inhaled Tobramycin for about 25 days, and for the last week my doctor added Cipro, as I was not feeling...
    pampooh pampooh 61-65 20 Responses Nov 21, 2010

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    Mild Bronchietisis From Mac..cough Up Blood Periodically

    11 years ago I was diagnosed at 44 with MAC... I never coughed but one morning woke up coughing up blood. I was in the hospital for days. first in isolation then after my bronchoscopy they thought I had TB.. long story short I was treated for MAC for 18 months, and now I am left...
    ell3 ell3 51-55, F 1 Response Sep 21, 2012

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    Just Diagnosed

    Sufer from asthma since childhood but recently was fighting a whole buch of sinus and what it look to be bronchitys but after being super short of breath to the point of hyperventilating my Dr send me to the ER fearing a pulmonary emboli, after a CT scan determined that I had...
    Angels034me Angels034me 46-50 Sep 24, 2012

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    I Have Copd/bronchiectasis/mac Infection--all From Whooping Cough When I Was A Child

    I have the BRONCHIECTASIS too. My doctor thinks it all started when I had whooping cough as a kid. That progressed to COPD. In my late 20s I was diagnosed with a prolapsed mitral valve and that was "thought" to be the problem with my lungs! No treatment just advice to not double...
    FlashOBlue FlashOBlue 66-70, F Sep 19, 2012

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    I Have Bronchiectasis For 25 Years And How I Get Good?

    when i was in fourth grade a sun flower seed got in my lungs and i was coughing a thousand times a night. the thedoctors make  leroncoscope  and broncoscope. they said also  if   there is no good proceedings then cut out my 2 lobes of lung and they choose to wait then they...
    tuncay2 tuncay2 36-40 1 Response Oct 15, 2011

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    Ms. Dilarie :-)

     Service PLEASE NOTE:    I wrote out my story of about 6 paragraphs twice & both times it was lost!  for no good reason.   Something isn't working properly here!!!  Please get back to me on this.   I've wasted too many hours on this detailing...
    dilarie dilarie 61-65 1 Response Mar 30, 2010

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    Bronchiectasis - I Can't Even Say It, How Can I Have It?????

    My story must have begun when I was about 15 years old, but I never even knew it. I kept getting terrible pains in my chest, and I couldn't breathe. My mom took me to the doctor, and he said I just probably had some calcium deposits on my rib or something, and nothing was really...
    zenforce zenforce 51-55, F 4 Responses May 6, 2012

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    Am I The Youngest?

    Hello, You may call me Secrets505, though i prefer Shadow. I have had diagnosed bronchiectasis since i was 11 and i am now 15. I am really just annoyed with it, all it seems to be is medication, and never any good out of it. Anyway, i really want to know if i am the...
    Secrets505 Secrets505 16-17, F 4 Responses Nov 19, 2013

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    Help

    Just been diagnosed with bronchiectasis feel like crap why me ect had a really bad cough since last September and after 9 lots of antibiotics steroids and inhalers finally a ct scan that showed bronchectasis i had never heard of it but have been feeling awful for months. I have...
    mandy61 mandy61 46-50 Mar 28, 2012

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    I am a 70 try year old male recently diagnosed

    with bronchiectasis. About 6 months ago I developed a worsening cough. About 2 months ago I noticed I was short of breath and that too was worsening. In conjunction with this I developed a severe post nasal drip and an equally severe nasal discharge similar to a very severe head...
    Augie1776 Augie1776 66-70, M 1 Response Mar 15

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    Road To Recovery

    I got diagnosed after getting pneumonia when I had my baby after probably having symptoms for over 5 years. I was fit before then so it masked my symptons and my cough was put down to my asthma. My first bub was really small so i think she was starved of oxygen a bit. I had a...
    bindybee bindybee 41-45 2 Responses Dec 20, 2012

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    I am nearing 65 yrs. I have been fighting

    several genetic diseases since my 30's. All of them are said to be incurable. Now I have been diagnosed with Bronchiectasis. I have had problem cough and sinus issues for about 40 yrs. My system doesn't handle chemicals very well. If there is a side-effect, I usually get it...
    Paw49 Paw49 61-65, F Feb 20

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    Me Three!!!

    I was DX with this God awful disorder back in the mid 1990's, my life has never been the same. I found out when making one of my usual trips to the ER with pneumonia. After numerous trips the last ER Dr said there is something more going on here, u need to follow up with PCP, so...
    monkty monkty 61-65 Aug 10, 2012

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    Bronchiectasis Panel Being Developed, Pays $50 For Qualified Participants

    Hi, everyone! I have a wonderful opportunity to share your experiences with bronchiectasis and earn some money while doing so. I’m working with my client on behalf of Xcenda, part of AmerisourceBergen Consulting Services, who are an independent market research firm that...
    listenlearn listenlearn 41-45, F 2 Responses Mar 10, 2013

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    Bronchiectasis Just Diagnosed And Truly Fed Up

    I have had a terrible cough for seven months now after having had repeated courses of antibiotics I have been diagnosed with this awful disease after a CT Scan. I am really depressed and beginning to wonder what the future holds. The Consultant is talking about putting me on a...
    bowjangles54 bowjangles54 56-60, F 5 Responses Apr 10, 2012

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    Since 2 Years Old

    Hey guys.. E don't even remember when this started.. I was 2 years old, so what i know is what my parents told me all over the years.. So since i was 2 years old, i have almost every month an infection, witch leads to pneumonia, and witch sends me to bed... I cry almost every...
    Catthe91 Catthe91 22-25 1 Response Jul 2, 2013

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    Breathless In Orewa. Orewa Is On The Hibiscus Coast (hence The Logo) Twenty Minutes North Of Auckland, New Zealand.

    Check out my blog by googling BreathlessinOrewa where you will find in '4. My Other Online World' information about the present state of my bronchiectasis. See also my comment of November 18th 2011 on Pampooh's page (comment 11). Since then I have written up a more detailed...
    jspencer jspencer 70+, M Nov 18, 2011

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    I Found Out I Had Bronchiectasis When I Was 14 Years Old.

    I was 14 years old when I was diagnosed. At first I went into the doctors with a chest cold. The doctor put me on antibiotics and it didn't help. I tried so many different medicines that my doctor finally sent me to a lung specialist. At that time, I was told I had bronchiectasis...
    RobinHoopes RobinHoopes 31-35, F 1 Response Mar 31, 2012

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    The Bronchs

    Hi guys - as a new member thought I would share a little bit about how I have arrived here. At the age of 13 in a hospital in Bonnie Dundee I had my appendix removed. The anaesthetic temperature was so cold it ******** the linings of my nostrils and oh yes of course, gave me the...
    brisscot brisscot 56-60 Sep 30, 2012

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    I Was Just Diagnosed With Bronchiectasis

    Hello everyone! I was just diagnosed with Bronchiectasis. I was very scared that I had cancer! I had my CT before my Dr did and saw my diagnosis. From what I had read what is the difference? So much work to be able to breath on a daily basis. I struggle with the fact that I...
    Shirley29485 Shirley29485 46-50, F 2 Responses Oct 30, 2012

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    Living With Brochiectaisis Since The Age Of 26.

    I am a female,who was diagnosed with Brochiectasis at the age of 26. This condition also resulted in me having a lower lobectomy of my left lung. I am now 49, and am still dealing with it. I have to take Antibiotics constantly to treat reoccurring infections of Bronchititis. and...
    nyzki nyzki 46-50 Jul 2, 2013

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    My Experience Being Sick...

    I was always the sick one in the family, but I really wasn't sick that much more than other kids as a child. In college, though, I started getting these crazy sinus infections that never seemed to go away and got worse in time. I would have surgery, the symptoms would disappear...
    MeriBeri MeriBeri 36-40, F 2 Responses Apr 15, 2013

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    I Found A Cure For My Bronchiectasis

    Any person who suffers from this annoyingly frustrating disease has my empathy. I had it for 25 years until 4 months ago. I used to cough every night, yellow/pink/green/brown/grey phlegm and hemoptysis 3-4x year and hospitalized several times. I've taken every Cipro/Avelox...
    dsquared1 dsquared1 46-50 2 Responses May 18, 2013

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    Bronchiectasis With Asthma And Allergy

    I have been suffering from bronchiectasis and diagnosed last year. I had undergone left lung lower lobe resection. since then I found new life for 1 year but later I suffered from severe asthma attack for 3 months. Then it improved with medication. I have severe productive cough...
    ibrahimkhalil ibrahimkhalil 41-45 Nov 25, 2012

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    I Have Bronchiectasis

    I am a female 70 years of age and was diagnosed with Bronchiectasis at age 10 years of age after a bout of Measles.I subsequently had 2 lower lobectomies at age 12. At age 12 I moved to a dry climate and was asymptomatic until I returned to live in a damp climate at age 34. I was...
    Tamarawood Tamarawood 66-70 1 Response Mar 11, 2013

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    Ct Scan Reveals I Have Minimal Pulmonary Fibrosis And Minimal Bronchiectasis. My Chest Xray Revealed That My Lungs Are Scarred Due To Previous Pulmonary Tuberculosis Infection. Please Enlighten Me More On This Disease.,it's Worrying Me A Lot.,

    A few months ago.,i suddenly felt like coughing.,and when i did cough.,i spit blood.,and it just wouldnt stop.,so i took tranexamic acid to suppress the coughing up of blood.,it worked for a while but then it recurs.,so i rushed to a pulmonologist and had my chest xrayed.the...
    yellowbrat yellowbrat 46-50 3 Responses Jun 28, 2012

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    Can't Take This Lying Down

    I was diagnosed with brronchiectisis in 2006. I was hospitalized for 10 days and tested for everything possible. I had a pseudomona and an immune system deficiency. My pulse ox was down to 80. After that I went every month for immunoglobulin IV. Finally I seemed to be okay and...
    dandikat dandikat 56-60, F 2 Responses Sep 28, 2012

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    The Coughing Med Student

    I'm 25 and just diagnosed last year. For years my doctors thought it was just asthma despite my chronic wet coughing. I am very thankful for the pulmonologist that thought more was going on and got that CT scan. Now I'm on the right treatment but I still am coughing. It's...
    studentdoctor studentdoctor 26-30, M 1 Response Mar 2, 2013

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    Living With Bronchiectasis

    I was diagnosed with bronchiectasis in 2006.  My illness started in 2001 when I was working in a school with mold.  I developed pneumonia 3 times, had an ongoing sinus infection, and mold cultured my lungs.  In the next year I changed to a different school. ...
    swede1 swede1 56-60 19 Responses Apr 18, 2010

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    Me Too

    Actually my doctor diagnosed me today..So yeah I'm still in the learning fase.6 weeks ago I started with coughing, fevers and sweating and 2.5 weeks ago I went to the doctor, thought it was time to take a look, I know it would probably be pneumonia, but I never thought it would...
    Catootje Catootje 18-21, F 1 Response Apr 14, 2011

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    Newly Diagnosed

    I was just diagnosed with non cystic bronchiectasis. My pulmonologist thinks I developed it after having pneumonia 3 years ago. My immune system is normal and all my labs are normal. According to my CT scan, I have a mild case in both my lower lobes. Does this always progress to...
    AWblack AWblack 36-40, F 1 Response Jul 16, 2013

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    You Can Get Bronchiectasis Under Control Like I Did.

    Although the damage caused by bronchiectasis is said to be irreversible, natural remedies can help to prevent lung infections and reverse its symptoms. I have bronchiectasis since 2004 and I manage to control it without relying on antibiotic. In fact this year I had none. Look at...
    Tomascat Tomascat 41-45 1 Response Apr 12, 2013

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    Happy I Found You All!

    Hi I am a newbee and wish I had known about this site 4 years ago. In late 2009, a chest x-ray showed a problem- at first it was thought I had lung cancer. After many test CTscans-MRI-PET scan and scopes-I was diagnosed with bronchiectasis. Since this started I have had sinus and...
    dixe dixe 70+, F 1 Response Sep 10, 2013

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    Need Someone Who Understands

    I was diagnosed with bronchiectasis when i was 17, I am now 22. During the past 4 years, I have been on and off antibiotics. I am lucky if I have a good month. This past year I was hospitalized and ended up needing surgery to help clear things up but I have not felt well since...
    jbsrn jbsrn 22-25 5 Responses Aug 4, 2012

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    Sandra

    Have had one lung very infected and other bottom lobe removed.Have had this since I was a baby,have just turned 60 and still going. It's hard to explain to people what it feels like to have this.A doctor told me to say its like having the flu all the time.When I lived at home I...
    Risol Risol 61-65 Aug 30, 2012

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    I Too Have Bronchiectasis

    I'm a 64 year old male, who's had (since 1990) A-typical TB. And before that I had chronic sinus infections. Then after about 5 years of trreating my TB with anti-biotics my TB has cleared but now I have bronchiectasis. Lung disease seems to run in my family, mostly cancer. I...
    wonderYme wonderYme 61-65, M 1 Response Mar 8, 2012

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    I Need Advice...i Have Been Diagnosed With Bronchiectasis!!!

    I'm 54 years old and I was diagnosed two weeks ago! I have been really sick on anti-biotics since October, I've done about 6 round of anti-biotics along with Abuterol, steroids, and cough meds. I'm also Diabetic, Asthmatic, and have heart problems. Finally I had a CT Scan and the...
    mariadelsol mariadelsol 51-55, F 4 Responses Jan 14, 2013

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    A Lifetime Of Coughs

    I am 61 year old man. When I was five, I suffered a severe bout of measles and from then on, I had what my GP called, "a bad chest". Over the next 17 years, I had occasional severe chest infections that were treated by the usual for then antibiotics. In 1972 I began to have...
    oldbronch oldbronch 61-65 4 Responses Oct 6, 2012

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    Lifetime Of Bronchiectasis

    I've always had bronchiectasis, but 3 years ago i was diagnosed with pseudomonas pneumonia and have been battling this infection since then. I was told that i will need neb treatments then iv at home, then surgery by one pulmonologist then another told me if the new maintenance...
    emoflo2 emoflo2 46-50, F 3 Responses Dec 5, 2012

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    I Just Experienced Successful Treatment

    Had been on antibiotics that did not kill out infection and cough. Terrible coughing with lots of phlegm. Just tried Echinacea Goldenseal by Gaia Herbs. It has stopped my cough. Take carefully as it elevates blood pressure. I am a petite woman and took as prescribed on...
    curebronch curebronch 61-65 1 Response Feb 10, 2013

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    Just Diagnosed

    After a severe chest infection diagnosed last week following a CT scan. Probably as a result of respiratory collapse several years ago and pneumonia. Is pain normal? That is my main concern.
    Spycat Spycat 61-65 3 Responses Jul 11, 2012

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    Related Experiences

    So an update is in order, since I have been so lax in my attendance on EP. I am home AGAIN from yet another week away with the kids. Relaxation and rest certainly does wonders...
    knittingbadsweaters knittingbadsweaters 41-45, F 2 Responses 12 hrs ago

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    Hi everyone. I'm 22 years old and I just found out today that I have HPV. This morning I received a phone call from my OBGYN office exclaiming to me that I had a mildly abnormal...
    Haircuttermfer Haircuttermfer 22-25, F 1 hr ago

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    I am a extremely secret person so I think I enjoy this site most of all because I have a place I can let things off my chest yet still be anonymous to some degree. Anyways; with...
    Chicgeekgal Chicgeekgal 22-25, F 5 Responses 18 hrs ago

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    I think most of my EP friends know I was gone for about a week recently, but most of you don’t know where I was. I was actually on a vacation with my family “across the pond...
    SaraBee1995 SaraBee1995 18-21, F 3 Responses 11 hrs ago

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    I do not want to be contacted by those who are underage. Never mind categories. I don't think underage people should be on any type of social sites period. If they must, categories...
    OceanicXs OceanicXs 26-30, F 1 Response 6 hrs ago

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    I've had depression and anxiety pretty much my whole life, leading to two hospital stays in my late teens. At that stage it was suspected to be some sort of psychosis, or...
    BJH72 BJH72 41-45, M 3 hrs ago

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    I don't know how I let this happen and my heart wants to be hopeful but reality just doesn't make it seem likely! We live half a world apart and every opposite in our social...
    starstuff79 starstuff79 31-35, F 3 Responses 23 hrs ago

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    I’ve rewatched every episode of Naruto & Naruto Shippuden at least twice. Some I’ve watched three to ten times and my favorites have been watched over fifty times. And...
    NarutoShippudenFanGirl NarutoShippudenFanGirl 16-17, F 15 hrs ago

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    I know I write a lot here, but it's very therapeutic for me because these thoughts are constantly racing around in my head and getting them out is healthy. I usually wouldn't write...
    Serenity14 Serenity14 26-30, F 15 hrs ago

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    Finally found the man who I would love to spend my life with. Gives me more happiness caring and understanding I have ever been given. He try's his best to be understanding of my...
    awmusic awmusic 22-25, F 2 Responses 14 hrs ago

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