I Have Budd-chiari Syndrome

A Budd-Chiari Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Budd-Chiari Syndrome. You're not alone. 37 People

    Tips Transjugular Intrahepatic Portasystemic

    I had a tips procedure quite early on,I have had alot of them since unblockibg the shunt,im 23 ans find it hard on the basis of socialising,I have loads of friends but when they all go out drinking as I dont drink and find it boring going all the time as im the only one sober,I...
    sarahslh sarahslh
    26-30, F
    1 Response Sep 9, 2013

    Hi

     Hi, my name is Eva, I've been suffering from Budd Chiary syndrome since 1994. I'm 31 year old now. Anyone else out there? Let's share experience.  
    BuddBudy BuddBudy
    31-35, F
    12 Responses Nov 11, 2009

    My Daughter 13yrs Old Has Budd -chiari

    My daughter On Dec , 2011 was told she has Budd -Chiari, and we just found out Factor  V Leiden .The doctors put a Stint in her and have her on Blood Thinner Med's every 12 hrs.
    shoemom10 shoemom10
    13-15
    4 Responses Feb 1, 2012

    I GO FOR TREATMENT TOMORROW AND IM SCHEDULED TO

    SEE MY DOCTOR SO ILL KEEP YOU GUYS UPDATED ON WHATS GOING ON WITH THIS BUDD CHIARI JOURNEY.I ALSO HAVE ULTRASOUNDS AND LAB WORK COMING UP ON MY LIVER AS WELL...TTYL
    chrissyboo21 chrissyboo21
    22-25, F
    Jan 16, 2014

    My daughter has BCS. She's 6yrs old now.

    She was diagnosed when she was 18 months old. Her body was shunting itself when I was pregnant with her. She's currently on Coumadin. She has an unknown blood clotting disease that doctors believe has caused BCS. She also has a thyroid problem. They believe they are connected...
    annagracesmom annagracesmom
    41-45, F
    1 Response Nov 30, 2014

    Hi everyone! So I'll be posting my full story

    later but just wanted to do a short version. I'm 17 and was diagnosed in October 2014, they found out it was BCS after only being hospitalized for four days. I had a perfectly healthy liver and no blood clotting disorders prior to this, and my doctors still can't find a reason...
    Abbyrk Abbyrk
    18-21, F
    2 Responses Feb 15, 2015

    Hi

    Hi, my name is Cat, im 25 (soon to be 26) and about three yrs ago, I was diagnosed with Budd-Chiari Syndrome. Does anyone else have this? would love to talk to people who have this so I dont feel so alone!  
    cat1984 cat1984
    26-30, F
    2 Responses May 12, 2010

    My name is Susie and I am 23 years old.

    In the middle of November 13. I went to the hospital because I had so much liquid on my stomach that it looked like I was 9 months pregnant. They couldn't figure out what was wrong with me. They ended up taking 13.5 liters of fluid off my stomach. They said if I would of wait d...
    suexzee90 suexzee90
    26-30, F
    2 Responses Feb 3, 2014

    Budd Chiari Syndrome

    I was diagnosed with Budd chiari syndrome last august i looked pregnant and all i did was sleep. i went for the tips procedure but they couldn't insert the shunt so they are going to try again. i was just wondering when i have the shunt inserted will there be so much fluid in my...
    jbird27 jbird27
    26-30, F
    1 Response May 7, 2012

    i am a 37 year old lady

    who has had problems with my health since 98 but last year i was found to have budd chiari i have had the tips op done to help just wanted to talk to other people with bc as not many people have it or even know what it is
    zeusbou10 zeusbou10
    36-40, M
    3 Responses Feb 6, 2014

    Holding On...

    I was diagnosed with Buds-Chiari in July 2012. I was blessed with my son Paul Jr. on March 5, 2012! Not long after, in June, I was told I needed my gallbladder removed. The surgeon had mentioned thag my liver and spleen looked enlarged but wanted to wait for swelling to go down...
    PaulJrsMommy PaulJrsMommy
    26-30, F
    Feb 11, 2013

    ON FRIDAY JANUARY 17TH I SEEN MY HEPATOLOGY

    DOCTOR AND HE SAID THAT IM STILL DOING GOOD.HE SAID ONLY THING IS IM HEMOLYSING A LITTLE BIT BUT THATS OK.MEANING SOME OF MY RED BLOOD CELLS ARE STILL BEING DESTROYED.MY HEOGLOBIN IS STILL UP AND THAT MEANS NO BLOOD TRANSFUSION YAYYY.MY BILI WAS UP TO 6.8 LAST WEEK BUT IT DROP...
    chrissyboo21 chrissyboo21
    22-25, F
    Jan 19, 2014

    Recently Diagnosed With Budd Chiari

    Hi, I am a 28 year old woman diagnosed with Budd Chiari in Feb 2010.  My doc thinks the blockage is only partial and that my body is naturally adapting-making alternate paths for blood flow.  So, I am in a wait and see mode for an indeterminate amount of time.  I...
    rtaylor81 rtaylor81
    31-35, F
    5 Responses Jun 5, 2010

    Budd Chairi Survior Looking To Chat With Friends With Similar Issues.

    Hi, my name is Sandy.  I  have had Budd-Ch since 98 and MPD-PV since 68.  I had a side to side portal caval shunt put in in 98 to decompress my liver, even though I was a candidate for a Transplant.  I am looking for others with similar issues.  ...
    shorwitz shorwitz
    51-55, F
    14 Responses Jun 14, 2010

    Update- Budd Chiari

    Hello- I was diagnosed with Budd Chiari in 2010 and have since had a TIPS procedure and been listed for transplant. Everything went great with the TIPS and I feel great most of the time. I'm hoping to put off transplant for many years if things continue to go well with the TIPS...
    rtaylor81 rtaylor81
    31-35, F
    2 Responses Jul 30, 2012

    HI MY NAME IS CHRISTINE AND I WAS DIAGNOSE WITH

    BUDD CHIARI SYNDROME MY SENIOR YEAR IN HIGH SCHOOL AROUND APRIL 17,2010.I WAS A FIT GIRL WHO RAN TRACK FOR 6 YEARS AND ALWAYS WENT TO THE DOCTOR AS A KID AND GOT CHECKED.ONE DAY DURING FINAL EXAMS I WAS EXEMPT FOR ONE OF MY TEST SO I COULD COME TO SCHOOL LATER IN THE DAY.SO...
    chrissyboo21 chrissyboo21
    22-25, F
    Jan 15, 2014

    Update- Budd Chiari

    Hello- I was diagnosed with Budd Chiari in 2010 and have since had a TIPS procedure and been listed for transplant. Everything went great with the TIPS and I feel great most of the time. I'm hoping to put off transplant for many years if things continue to go well with the TIPS...
    rtaylor81 rtaylor81
    31-35, F
    6 Responses Jul 30, 2012

    Lost Soooooo Much Weigh

    I was diagnose with budd chiari two years ago. Fit and heathy person l was. L began to get numbness in my hands for about a year prior to this. My white of my eyes were yellow, was feeling nausea and tired all the time. As am normally a 10/12 fitting clothes person l felt really...
    Cyn46 Cyn46
    46-50, F
    Jun 19, 2013

    Had The Transplant

    Got the call Christmas eve to say they had a liver for me. Had my transplant Christmas morning at 5.00 am. I was let home a week and a half later and everything is going good so far. The change even the day after was amazing, Thats not to say it was all plain sailing but so far...
    jbird27 jbird27
    26-30, F
    1 Response Jan 22, 2013

    My Diagnosis Date

    I was diagnosed in 1994 at the age of 18. i will share mire later. thanks
    tiggercnb tiggercnb
    41-45, F
    1 Response Jun 11, 2013

    Budd-chiari

    Hi I was diagnosed with Budd-chiari in may 2010. I didn't know at first why I felt so sick and bloated I looked like I was 9mths pregnant and just wanted to sleep all the time.  I finally had bloodwork done and my liver tests were extremely elevated so at first they thought...
    kristinmarie25 kristinmarie25
    26-30
    3 Responses Dec 2, 2010
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