I Have Bullous Pemphigoid

A Bullous Pemphigoid anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bullous Pemphigoid. You're not alone. 20 People

    I have been diagnosed with bulloud pemphigoid.

    Im on steroids and they want to put me on methotrexate which im not keen on. I have been dealing with this condition for months now. It js mainly on my neck. Will diet help.
    bisselle bisselle
    51-55, F
    Jan 25, 2016

    What Is This Horrible Disease?

    I am basically an upbeat person, I spend a lot of time in meditation, have a gratitude journal and generally feel very blessed for my life, despite the difficulties that have been thrown my way. Now this...
    Dawninglight Dawninglight
    2 Responses May 5, 2013

    Bullous Pemphigoid

     BP is the most disgusting name and having this chronic disease that is now out of remission, I too cannot imagine a more debilitating state. The skin under the blister that break is so very burning and painful you can not imagine. The medications themselves have left me with...
    louthefoot louthefoot
    51-55, M
    6 Responses Feb 22, 2012

    Self Hypnosis Helps

    I am glad to have found this support group.I think we can compare personal findings.  For example, self hypnosis has helped me, beside all the medication that I am taking, which I am not sure about.Jack07
    jacko7 jacko7
    3 Responses Mar 7, 2011

    I am not the actual person

    who has bullous pephigoid. My mother was diagnosed this past Monday with this nightmarish disease. She was 69 years old this past August and she is a major part of my life. The majority of her body is covered in medium to large fluid filled blisters and the ones that have...
    Jules2109 Jules2109
    46-50, F
    Sep 10, 2014

    Trying Not To Scratch!

    I ask you, can their be anything more miserable than this curse? The hivey, blistering, running, scabby eruptions have really got me down tonight. This is complicated by the fact that I broke my dominant right arm a month ago after my BP diagnosis and it is completely immobilized...
    sullensue sullensue
    7 Responses Jan 3, 2012
More Stories