I Have Bullous Pemphigoid

A Bullous Pemphigoid anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Bullous Pemphigoid. You're not alone. 20 People

    Bullous Pemphigoid

     BP is the most disgusting name and having this chronic disease that is now out of remission, I too cannot imagine a more debilitating state. The skin under the blister that break is so very burning and painful you can not imagine. The medications themselves have left me with...
    louthefoot louthefoot
    51-55, M
    6 Responses Feb 22, 2012

    What Is This Horrible Disease?

    I am basically an upbeat person, I spend a lot of time in meditation, have a gratitude journal and generally feel very blessed for my life, despite the difficulties that have been thrown my way. Now this...
    Dawninglight Dawninglight
    2 Responses May 5, 2013

    Trying Not To Scratch!

    I ask you, can their be anything more miserable than this curse? The hivey, blistering, running, scabby eruptions have really got me down tonight. This is complicated by the fact that I broke my dominant right arm a month ago after my BP diagnosis and it is completely immobilized...
    sullensue sullensue
    7 Responses Jan 3, 2012

    Self Hypnosis Helps

    I am glad to have found this support group.I think we can compare personal findings.  For example, self hypnosis has helped me, beside all the medication that I am taking, which I am not sure about.Jack07
    jacko7 jacko7
    3 Responses Mar 7, 2011

    I am not the actual person

    who has bullous pephigoid. My mother was diagnosed this past Monday with this nightmarish disease. She was 69 years old this past August and she is a major part of my life. The majority of her body is covered in medium to large fluid filled blisters and the ones that have...
    Jules2109 Jules2109
    46-50, F
    Sep 10, 2014

    I have been diagnosed with bulloud pemphigoid.

    Im on steroids and they want to put me on methotrexate which im not keen on. I have been dealing with this condition for months now. It js mainly on my neck. Will diet help.
    bisselle bisselle
    51-55, F
    Jan 25, 2016
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