A poem by Janet Mills
Three years ago today
As we sat in the doctor’s office
Hands clasped together
I knew before he spoke with solemn voice
“You have CADASIL.”
Three mere words
An acronym of three syllables
Altered my life and that of my husband...
CADASIL: Cerebral Autosomal Dominant Arteriopathy with Sub-Cortical Infarcts and Leukoencephalopathy, is a rare genetic degenerative neurological syndrome that causes migraines, strokes and dementia.
I was diagnosed with CADASIL in the fall of 2009 after several years of feeling...
It is so good to connect with others touched by CADASIL in person. I have attended three conferences/get-togethers since my diagnosis in 2009 (in 2010, 2011, and 2012), and every time I make more friends and learn more about my condition and what is being done about it in the...