I Have Cadasil

A CADASIL anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with CADASIL. You're not alone. 9 People

    Third Year Anniversary Of My Diagnosis, A Poem

    Third Anniversary A poem by Janet Mills 9-2-12 Three years ago today As we sat in the doctor’s office Hands clasped together I knew before he spoke with solemn voice “You have CADASIL.” Three mere words An acronym of three syllables Altered my life and that of my husband...
    EnjoyLifeNow EnjoyLifeNow
    51-55, F
    Sep 9, 2012

    This Life Altering Condition Has Helped Me Appreciate Life!

    CADASIL: Cerebral Autosomal Dominant Arteriopathy with Sub-Cortical Infarcts and Leukoencephalopathy, is a rare genetic degenerative neurological syndrome that causes migraines, strokes and dementia. I was diagnosed with CADASIL in the fall of 2009 after several years of feeling...
    EnjoyLifeNow EnjoyLifeNow
    51-55, F
    7 Responses Dec 17, 2010

    Cadasil Conference - June 27-29, 2013 in Boston, Massachusetts, USA

    It is so good to connect with others touched by CADASIL in person. I have attended three conferences/get-togethers since my diagnosis in 2009 (in 2010, 2011, and 2012), and every time I make more friends and learn more about my condition and what is being done about it in the...
    EnjoyLifeNow EnjoyLifeNow
    51-55, F
    Mar 12, 2013

    There is a northern Colorado CADASIL meet-up

    planned for June 4 from 11-3 in Johnstown, CO. There are also some upcoming CADASIL meet-ups in Texas, North Carolina, and New York. Please contact me if you're interested! info@cadasilassociation.org
    EnjoyLifeNow EnjoyLifeNow
    51-55, F
    Apr 21
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