I Have Calciphylaxis

A Calciphylaxis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Calciphylaxis. You're not alone. 10 People

    mostby8365 mostby8365
    1 Response Aug 6, 2015

    Well, I don't have calciphylaxis,

    but my mom did. I hate to say did, but she has just passed due to metabolic acidosis. The worst part is, she was actually being treated somewhat successfully for the calciphylaxis. Her legs were almost finished being debrided and they had begun the process of grafting skin back...
    rjean6688 rjean6688
    46-50, F
    1 Response Apr 30, 2015

    I Have Calciphylaxis & It Kills Me 24/7

    Hi.  My name is Rinish & I’m in my 30’s. I suffer from calciphylaxis. After suffering from Type 1 Diabetes & its many complications for 26 years, I was diagnosed with End Stage Renal Failure in 2009. I was working as a Registered Nurse but was  medically retired. I was put...
    rinish rinish
    31-35, F
    7 Responses Jan 15, 2011
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