I Have Campomelic Dysplasia

A Campomelic Dysplasia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Campomelic Dysplasia. You're not alone. 15 People

    Elizabeth And Lucy

    My first child, Elizabeth, died from CD complications after only 6 days. They thought she had Osteogenesis Imperfecta until she was born. After Elizabeth we had 2 perfectly healthy children. I'm now 22 weeks pregnant with my fourth child, Lucy. The amnio confirmed our...
    Coolandrefreshing Coolandrefreshing
    41-45, F
    Aug 6, 2013

    My precious little boy Chè was born 11th feb

    2015 he was such a good little fighter sadly he lost the battle 8 hours after he was born he wasnt diagnosed with cd until after he was born we did know he had problems from our first scan we had countless scans and tests but the hospital could never seem to find exactly what it...
    samanthamummy samanthamummy
    22-25, F
    Sep 28, 2015

    Aminnie's Story

    My daughter is 6 months old and has campomelic dysplasia. i had an ultra sound and they wanted me to terminate my pregnancy.  i told them as long as i felt her moving and kicking that i wanted to keep her. i went into labor a month early and they told me when she...
    aminniebaby aminniebaby
    1 Response Nov 5, 2010

    My Son

    My son is 8 years old and has CD would like to hear from older people if any .
    williammacleod williammacleod
    1 Response Oct 15, 2011

    Campomelic Dysprasia

    Hi,my daughter who is 9 weeks old who is a twin has campomelic dysprasia,we were told there is not many ppl if any in the uk with this condition,we are waiting on a bed at great ormond street in london as adenbrookes in cambridge decided she should go to a hospice to die,i would...
    trace2009 trace2009
    31-35, F
    3 Responses Aug 26, 2012

    Maddox Ford- Gone But Never Forgotten

    My pregnancy was perfect, I barely even had morning sickness. Then, at 28 weeks, the day after my baby shower I went into labor. Maddox Ford was born November 7, 2011 with CD. He had bowed legs, clubbed feet, one arm wasshorter than the other, one leg was shorter than the other...
    maddoxmom maddoxmom
    1 Response Apr 26, 2012

    28 F With Campomelic Dysplasia

    I am a young adult with Campomelic Dysplasia and interested to meet someone to chat to out there of similar age (I'm 28) with the same condition.
    jessmcd83 jessmcd83
    2 Responses Apr 1, 2012

    Campomelic Displasia(((

    Good afternoon! We are the Russian family. Excuse me for my lameness language. In December 2010 my little girl with the diagnosis campomelic displasia was born. The preliminary diagnosis have put on 25 week of pregnancy, have told that interruption to do already late, it is...
    Olhen Olhen
    22-25, F
    3 Responses Mar 29, 2011

    My Daughter Jasmine

    My Daughter Jasmine was diagnosed with Campomelic Dyslasia 2 1/2 years ago , she has all the signs .dwarfism, respiotory,skelton issues..I was told that she would pass away while i was pregnant or if she did make it she would die after three weeks of age.Jasmine was born on Feb 1...
    JasmineMommy JasmineMommy
    7 Responses Jul 15, 2009
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