I Have Camurati-engelmann Disease

A Camurati-Engelmann Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Camurati-Engelmann Disease. You're not alone. 2 People

    I Have Ced

    I was diagnosed with CED when i was 16 and im 24 this year. i have pains and always have and i also have muscle weakness and problems with my joints. i cant walk and my thighbones look like bananas. isnt much more to say realy. I just hope someone finds me here
    Mattias Mattias
    22-25
    2 Responses Jul 21, 2009

    I Am Diagnostic With Camurati-engelmann Disease

    I am 46 years old,  at the age of 18 I was diagnostic with Myositys, I was on corticosteroids for 9 years and seems like no more pain or weakness since then.  About 4 years ago I started to feel bone pain, targeting my long bones and hip and getting worse day by day...
    juliahaj juliahaj
    41-45
    2 Responses Dec 9, 2009
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