I Have Canavan Disease

A Canavan Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Canavan Disease. You're not alone.

    Help Canavan Research, Save Baby Lavie

    hello Lavi, a beautiful, 18 months old baby was diagnosed with Canavan disease about a year ago. As soon as he was diagnosed, we started searching everywhere for special treatments and found Dr. Paula Leone from New Jersey's Cell & Gene Therapy Center (CGTC).  We...
    give2lavi give2lavi
    Dec 6, 2009
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