I Have Cataplexy

A Cataplexy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cataplexy. You're not alone. 53 People

    I Have Cataplexy

    i have just been told that i have cataplexy and its not like im scared or worried or anything as my symptons arent as bad as some other people on here have. i do go floppy but my speech or sight isnt affected, i do however stay in that situation for a long time, its between 4-15...
    mandieloasby mandieloasby
    18-21, F
    4 Responses Oct 2, 2009

    Mind & Body Sleep Apart

    March 14, 2010     Last week after my parents left for FLA, I came down with a nasty cold so I tried something different: Everyone was always on me about "drinking too much coffee", and I now use the saccharin for sweetener cuz I also have Type 2...
    mikecpage mikecpage
    46-50, M
    Apr 5, 2010

    My Daughters Life Begins 10 Times a Day

    My eldest daugher has narcalepsy and cataplexy. She is very sad and feels stuck in a motionless void. She begins to move forward and loses her momentum. She needs a life coach, someone to guide her in her awake bursts. She can't work, people make her faint and then she...
    mommylady5150 mommylady5150
    51-55
    1 Response Nov 6, 2008

    Cataplexy Catastrophy

              After lots of internet reading, stories of people with Cataplexy and doctors reports plus my own experiences, I think I’ve figured it out. I was diagnosed with it in 2007 but I now know I’ve had it since 2002...
    mikecpage mikecpage
    46-50, M
    1 Response Apr 5, 2010

    My Daughters Life Is Begins 10 Times a Day

    My eldest daugher has narcalepsy and cataplexy. She is very sad and feels stuck in a motionless void. She begins to move forward and loses her momentum. She needs a life coach, someone to guide her in her awake bursts. She can't work, people make her faint and then she...
    mommylady5150 mommylady5150
    51-55
    Nov 6, 2008

    It's Been a Whirlwind

    I am 35 years old and feel like I am starting life all over again. The past 4 years I started having these strange attacks whenever I had feelings of excitement, joy, sadness, anger....anything that was of high emotion I was feeling strange.  After my diagnosis of...
    Tallboyj Tallboyj
    31-35, M
    3 Responses Sep 27, 2009

    My Whole Family Has Cataplexy.

    One time we had some of the family over and this particular time me my mother and my sister were the one with cataplexy.  well we decided it would be fun to play a board game. I do not remember the name of the game, but it is the one that you make stuff with clay and guess...
    Doodlebu326 Doodlebu326
    22-25, F
    1 Response Apr 29, 2010

    Why Now???

    I am a early fourty something woman who has not been in the best health over the years but about 3 months ago I started finding myself on the floor and then a day or so later painfull bruises would apear. I contacted my doctor and I got the normal tests an EEG and an MRI was told...
    mombert5 mombert5
    41-45
    7 Responses Aug 28, 2009

    Narcolepsy/cataplexy/mircopouch Gastric Bypass Surgery = Never Ending Literal Nightmare

    I am a 39 year old women from the Detroit area living a literal nightmare that I myself can barely comprehend and definately do not want to just merely exist in silence to suffer any longer.  I am desperately seeking help and understanding to save my life and hopefully...
    STONGEK71 STONGEK71
    36-40, F
    2 Responses Oct 28, 2010

    I just went for a bike ride around my

    neighborhood. After one time around, I started on a second and in the distance I saw a man with his two children walking his two dogs, a St. Bernard and a black lab mix. I have never seen a St. Bernard in person before, so naturally this causes some excitement. I start to feel...
    MikayD18 MikayD18
    18-21, F
    Aug 5, 2015

    I Have Cataplexy

    I just figured this out on my own, not from a doctor. My doctor told me that my sleep study said that I didn't have narcolepsy, the blood test showed different. I've "passed out" 5 times and have always said that I could tell everyone word for word from...
    lauren63 lauren63
    41-45, F
    1 Response Apr 20, 2009

    Aimee

    my little girl is in the middle of being diagnosed with narcolepsy, cataplexy, i feel so sorry for her because when she was 3 she was also diagnosed with cerebral palsey. But i am also very proud of my little 6 year old because she tries soooo hard and will not let any of these...
    claredanielles claredanielles
    31-35
    1 Response Oct 31, 2008

    This Me

    I never really had any problems growing up, until the ripe age of my sophomore year. I used to be able to laugh so hard until my stomach hurt. That is a feeling long gone for me, as in my main years from Sophi-Junior years I would feel an urge to drop to the ground after laughing...
    HungTrinh HungTrinh
    18-21, M
    1 Response Oct 3, 2012

    Confused And Befuzzled

    edSince I was 15 years old I have had these weird episodes that I would lose total control of my muscles when I would laugh. Not just any laugh though it was usually something very funny and unexpected. When I was younger I never really thought much of it I don’t know why...
    britt2225 britt2225
    22-25, F
    1 Response Mar 5, 2010
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