I Have Celiac Disease

Personal Stories, Advice, and Support 259 People

    I always had these health problems no doctor

    could figure out. Finally when i was 19 it got BAD. I was in and out of the hospital on a weekly basis because I was so sick. I couldn't eat anything, I suffered from constant debilitating nausea and diarrhea, and I only weighed 80 pounds and could see every bone in my body (I'm...
    WhippedVanilla WhippedVanilla
    26-30, F
    1 Response Jan 5, 2014

    Binging On Gluten

    And I feel like total hell... My stomach hurts and my liver hurts and my heard hurts.The last six months have been in the top 2 of toughest times in my entire life and I am a food addict already.  I had been great with the gluten free diet for 4 years and was feeling great but...
    hobolady hobolady
    31-35, F
    2 Responses Jun 22, 2012

    I have had celiac sense I was in forth grade.

    I had lost 40% body fat, I was pale, never ate, never drank, always was tired, and was trying to do good in school. I felt like crap all the time. I was a mess. I wanted to die. I then took a my monthly blood draw because my brother and sister both had type one Diabetes. They...
    LucylovesBeatles LucylovesBeatles
    16-17, F
    1 Response Jun 1, 2014

    I have celiac disease.

    I where do I find a cook book for only gluten free foods
    dereksgirl22 dereksgirl22
    18-21, F
    2 Responses Jan 30, 2015

    I am working on a prototype

    for my entrepreneurship class and I need some real life feedback. So I was wondering if anyone had any opinons on a device that could test for gluten in all forms (liquid, solid, and scent/steam), such as size of device? max price you would pay? how often would you use it? how...
    StephiHope StephiHope
    22-25, F
    2 Responses Oct 6, 2015

    Yay (that was a sarcastic Yay) -

    though I have no symptoms, so now I have to meet with a dietitian and go gluten free Yay again...I have been trying to lose another 10 pounds, I guess this will be how it happens...but what a nuisance as I already watch what I eat. But I guess I should be glad we caught this...
    fun4us2b fun4us2b
    51-55, M
    May 21, 2015

    I think I probably have coeliac disease

    but it's not been confirmed by my GP. I used to have irritable bowel syndrome (IBS) and stopped eating food with gluten in it. The IBS completely overnight. I am a complete convert to gluten-free GF. I feel much healthier and eat a much better diet. I can never eat fast...
    twiglet21 twiglet21
    51-55, M
    2 Responses Feb 9, 2014

    I have been diagnosed with celiac disease

    for almost a year and it has been one of the hardest things I have ever gone through. After 2 years in Culinary School and earning my Associate of Applied Sciences in Culinary Arts, I transferred 8 hours away from home to be told (not even 2 months into the semester) that I have...
    StephiHope StephiHope
    22-25, F
    1 Response Oct 6, 2015

    Endoscopy

    So I visited the GI specialist today and I must say I am very frustrated by the whole thing. I felt rushed on explaining my symptoms. All he heard was I feel dizzy and said I'm prescribing vertigo medication. He even had the nerve to look at me and asked me if I ate. I found that...
    Layton19 Layton19
    22-25, F
    Jul 25, 2013

    Finally I Know Whats Wrong

    It started when i was young. I remember I was 5 years old and diagnosed with ezcema. It was so bad I lost all of my hair. I remember the nurse at school having to cut my socks off my feet and my hands had the worst blisters ever! As I got older it didn't improve, it seemed to get...
    kayboone06 kayboone06
    26-30, F
    3 Responses Dec 10, 2012

    My Mum has celiac disease .

    One speck of gluten sends her dashing off to the bogs. So it's a gluten free zone in our household . Actually gluten is a bit like glue . It helps sticks products together. It has no actual nutritional value . Gluten free products can often be crumbly . Scientists are looking...
    Homejames Homejames
    51-55, M
    Mar 1, 2015

    I Think I Have Celiac

    For the past month, I have had chronic headaches, stomach aches and foggy brain. I lose my train of thought all the time, and forget doing things. When I get something with wheat, my stomach blows up making me look like I'm 5 months pregnant. I feel so crappy after, and sometimes...
    skinny4life skinny4life
    13-15, F
    2 Responses Jun 1, 2013

    Wait.... No Wheat Products... None???!!?!?!!!

    Cinnamon bunsGrilled Cheese sandwichesGlazed DonutsCheeseburgers/HotdogsPIZZAI miss you already.:-(this sucks....
    TrustIsEarned TrustIsEarned
    46-50, F
    4 Responses Oct 11, 2011

    Taste The Success Of A New You Celiac Challenge

    I am 40 years old and have a few different medical issues one being celiac disease and the most fussy tummy ever. I am lactose intolerant and also anemic and this made it very hard to keep my weight under control and energy levels balanced. I have been in the hospital several...
    moneymom72 moneymom72
    36-40, F
    2 Responses Oct 14, 2012

    Celiac Disease

    Ive suffered with my stomach for many years and just 2 days ago through a blood test was told i have celiac disease , my dr has now taken a 2nd lot of blood tests to do a celiac screening or something .Ive been reading a little about celiac today online and to me its sounds a...
    iccleme iccleme
    36-40, F
    6 Responses Jan 15, 2012

    Celiac Newbie

    Ah gosh, it turns out i've most likely got celiacs, though my bloods when tested last yr were negative, the GP never told me i was meant to eat 4 slices of bread a day for 6 weeks before taking the test, or that apparently a quarter of tests are false. So i've been lactose...
    Smallbulldozer Smallbulldozer
    31-35
    3 Responses Aug 23, 2013

    Celiac Sucks!

    Anybody with celiac knows what a pain in the *** it is! I feel so limited in my choices to eat at restraunts, public pinics and other social gatherings. I think there hsould be more places that are gluten-free or have more choices for us that have Celiac and for those who agree...
    yaoiizawezome yaoiizawezome
    13-15, F
    5 Responses Jul 13, 2009

    So I was about to go on a date with a guy this

    weekend who I have been off and on with for a while but I figured hey why not. So I have Celiac disease which in a nutshell means I shouldn't partake of gluten because my body cannot tolerate it. (Along with lots of other details.) So my date texts me (doesn't call) and says my...
    deleted deleted
    26-30
    7 Responses Dec 20, 2013

    I have celiac decease

    and wish I did noth
    firyminx firyminx
    22-25, F
    1 Response May 7, 2014

    Is t me, or is this not much of a big deal?

    It's been only 2 weeks and I've found a ton of stuff to eat - and I can say I feel really good - better than before for sure - what's the downside - ? - please let me down easy....
    fun4us2b fun4us2b
    51-55, M
    1 Response Jun 10, 2015

    Finally Found Whats Wrong With Me

    hello i was just diagnosed 3 days ago although ive been having all the symptoms im kind of releaved that they finally found out i have celiac(after an endoscopy) but ive been sick for years but now i feel overwhemled with this gluten free diet i have never had to watch what...
    candylee2 candylee2
    46-50, F
    1 Response Sep 18, 2013

    After months of stomach aches

    and losing a ton of weight and looking pale, a doctor finally figured it out. So I was diagnosed with Celiac Disease when I was about 2 and a half years old. I didn't eat anything with wheat or gluten since then. But then I turned six and I accidentally ate some gluten crackers...
    deleted deleted
    26-30
    Feb 6, 2015

    Hello, I was born with celiac disease

    and was recently diagnosed within about 5 months ago and I just turned 16. I've been very sick my whole life with stomach pain, occasional vomiting, fatigue, depression, anxiety, malabsorption of vitamins, and severe constipation. I still suffer with a lot of these symptoms and...
    WolfAssassin16 WolfAssassin16
    16-17, F
    Mar 18, 2015

    Wonder how those to backpack

    or kayak camp in groups handle their Celiac and the possibility of cross contamination?
    camulos camulos
    41-45, M
    Aug 12, 2015

    Caught It Early

    I was diagnosed with celiac when I was 3. Before then, I was constantly sick. My mom took me to so many doctors, but they all said I just had a stomach bug or something. Finally, she took me to Children's Hospital of Philadelphia. I saw Dr. Piccoli, the head of the G.I...
    wanderingsoul19 wanderingsoul19
    18-21, F
    Jan 28, 2013

    My Wife Has To Yell At Me Cause I Never Listen

    So after years of dealing with stomach problems but never going to the Drs. 2 years ago I went to get it checked out, only after loosing a lot of blood to the toilet.........After lots of different testing including a endescopy and a colonoscopy I was finally told I have celiacs...
    tbaker85 tbaker85
    26-30, M
    1 Response Mar 6, 2012

    I Hope I Have Celiac Disease

    I Know it sounds really crazy to hope that you have something like that but I have so many autoimmune problems that it's just not funny. Let's see, there's diverticulitis, ankylosing spondylitis, high blood pressure, severe migraine, silent migraines, severe adhd, irritable bowel...
    ScatteredGrapes ScatteredGrapes
    41-45, F
    6 Responses Dec 6, 2011

    I have had celiac disease

    since I was 17months old. Although here in the UK we call it coeliac for some reason XD. I guess I have gotten use to having it because I have never eaten food (that I can remember) that has gluten in it. Every few years I take what they call "the challenge" to see whether I...
    hhannahw hhannahw
    18-21, F
    Feb 21, 2014

    It's so hard having celiac disease

    and no one in my house understands and doesn't take me seriously....nothing hurts more than seeing everyone eat pizza and having fun saying whats wrong with you why can't you eat food? It isn't funny..😪
    glisteningheartz glisteningheartz
    18-21, F
    7 Responses Feb 6, 2015

    Never Been Diagnosed With Celiac Disease...but

    Hi , I was never diagnosed with Celiac disease but as I was growing up I was diagnosed with classic narcolepsy, and in elementary school I was placed in some remedial classes because of low IQ. I may have had a clear day only three or four times a year. I remember that I knew to...
    Karen49 Karen49
    61-65, F
    1 Response Jun 29, 2012

    I Was A Banana Baby

    I was what was called a banana baby.  I am old enough  so that when symptoms of celiac first appeared (when I was about one year old), all the doctors could do was to eliminate everything but bananas from my diet, and slowly begin adding foods again.  This was...
    Griff25 Griff25
    51-55, M
    2 Responses Feb 16, 2010

    My Story

    It all started in the 4th grade. Me and my twin sister were always getting sick and we didn't know why. Most of our teacher and the kids at school assumed that we were faking the trips to the nurse all for the attention. But we had no control over how sick we were getting. Our...
    Irishgirl165 Irishgirl165
    13-15, F
    Jan 18, 2013

    Fantastic Birthday!

    So I was diagnosed with Celiac a year ago March 12th (I remember the last gluten meal I had, Indian food... not a bad ending I suppose)  Well anyway, I am a HUGE fan of sweets and baked goods in general plus I work in an office that frequently has food brought to it...
    hobolady hobolady
    31-35, F
    1 Response May 11, 2009

    Happy Celiac?

       My parents were Christian Scientists (and no it's not "faith healing" :p) Doctors were something you only went to if a suspected bone may have been broken etc. I went through a lot of discomfort of things growing up just because there really was no point in...
    housemouse housemouse
    36-40, F
    6 Responses Jan 21, 2010

    Weak Positive Blood Test

    I recently was tested for celiac disease. My blood work test came back as a weak positive. I'm not really sure what this means. I am almost positive celiac is what I have. My symptoms all started when I was younger my stomach has always hurt. I also have always extremely petite...
    Layton19 Layton19
    22-25, F
    1 Response Jul 23, 2013

    I found this blog online by someone with celiac

    disease. it's a new blog still but you should check it out! www.thethrivingceliac.com
    littlemissstaystrong littlemissstaystrong
    16-17, F
    Sep 14, 2015

    I have been suffering debilitating pain from

    celiac disease for the last 3-4 years and finally got a diagnosis February 3rd. I have been completely gluten free for 3 months but for those of you who are dealing with this too...it is ******* hard. Does anyone have advice or a favourite quote that helps them on the bad days?
    littlemissstaystrong littlemissstaystrong
    16-17, F
    2 Responses May 11, 2015

    I found out I have Celiac in 2008.

    I cannot eat bread, pasta, or cereal that contains wheat, barley, or rye. Anyone want to share recipes for gluten free?
    jrice356 jrice356
    46-50, F
    2 Responses Sep 1, 2014

    Thought all you celiacs would enjoy this: Types

    of people when they find out I'm a celiac: The careless: oh, you have to digest it in order to get sick, right? I can play with my playdough if I want to. I just won't touch you afterwards. One bite of this sandwich won't hurt you. The clueless: what is gluten? This bread isn't...
    deleted deleted
    26-30
    1 Response Apr 9, 2015

    Protagonist, Me Antagonist Dorritos

    I went to my nephew's hockey game and brought some snacks for the fam.  I have celiacs disease, so I'm usually very good about fighting the urge to eat the forbidden fruit, you know, everything!!  Anyways, I brought some Cool Ranch Dorritos for everyone else, I mean life is...
    ksarah1 ksarah1
    36-40, F
    1 Response Feb 15, 2012

    A Gluten-less Life

    I was diagnosed with celiac disease about 2 years ago. i didnt really experience any stomach problems but i was sleeping almost 20 hours everyday and was extremely exhausted and basically thought i was dying. interestingly enough i thought i had a hormone imbalance. my...
    sunshine207 sunshine207
    22-25, F
    1 Response Dec 13, 2012

    I Surviving Celiac Disease

    I don't know if any of you have celiac disease but I do. I found out when I was seven and I am still heartbroken. Eating has never been the same and I miss my favorite foods. Sometimes I break down and cry. Anyone out there have some advice?
    deleted deleted
    26-30
    Jul 20, 2013

    So I walked past a stand selling "Noglu" bread.

    ...couldn't resist it, since I have been trying to actually bake my own...Eight dollars later - I have to say that untoasted....eh....Toasted, with a little butter on it - pretty ok
    fun4us2b fun4us2b
    51-55, M
    Nov 19, 2015

    Since three weeks I'm on a gluten free diet.

    I started it because I just wanted to test out how that effects my health. After a long history of different diets I tried, this seems absolutely the best. Because: my depression disappeared!!! This is sooo gorgeous! I've always had thyroid problems, digestion problems and so...
    roselight77 roselight77
    26-30, F
    1 Response Feb 14, 2014

    I was just recently diagnosed with Celiac

    Disease, and i am really struggling to come to terms with it. i am a picky eater as it is, and now i have to change my entire diet around. I am having a really hard time dealing with all this news and i just don't know how to handle it anymore. i also work at a restaurant and...
    alyssalang18 alyssalang18
    18-21, F
    1 Response Dec 7, 2015

    I can deal with the dietary restraints,

    but haven't quite figured out the social part...I have been to a few parties and restaurants, and when I ask the question about how something was made.....Restaurant is easier - except then everyone at the table asks a million questions....which concern is nice, but getting old...
    fun4us2b fun4us2b
    51-55, M
    1 Response Jul 11, 2015
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