I Have Central Core Disease

A Central Core Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Central Core Disease. You're not alone. 10 People

    Hello. I was born in 1970

    and experienced all the delayed milestones, etc. The Doctor at the time labeled it "floppy child syndrome" but after recent research, I believe that I have CCD. I did lots of physical therapy when I was a child that may have helped some, although I am not sure. My main...
    debbiebarnum debbiebarnum
    46-50, F
    Mar 25, 2014

    I wish I could meet more people with this

    disease because it's hard to know what to expect. I have a very mild case but it was the source of a lot of stress and difficulty growing up; particularly since it was not diagnosed until later. I must have support to go up stairs or get up off the floor, otherwise I'll fall...
    urns urns
    Jan 18, 2014

    Adapting To Change With Ccd

    Hello! I am a 51 year old female with CCD. I have always had weak muscles but was actually diagnosed in 1980. I have always done more than my doctors said I would and am very determined to keep my level of functioning high. I work very hard to do that. I married a wonderful...
    MJChief MJChief
    2 Responses Nov 19, 2012

    Central Core

    sono una donna di 52 anniĀ  che dal 2006 ha scoperto di avere questa malattia e credetimi la mia vita e cambiata nn so che sara del mio futuro e difficile da accettare ma sento che giorno dopo giorno mi sento sempre piu debole e volevo conscere le persone con la mia stessa...
    selly52 selly52
    51-55, F
    Feb 14, 2012
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