I Have Central Core Disease

A Central Core Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Central Core Disease. You're not alone. 10 People

    Central Core

    sono una donna di 52 anniĀ  che dal 2006 ha scoperto di avere questa malattia e credetimi la mia vita e cambiata nn so che sara del mio futuro e difficile da accettare ma sento che giorno dopo giorno mi sento sempre piu debole e volevo conscere le persone con la mia stessa...
    selly52 selly52
    51-55, F
    Feb 14, 2012

    I wish I could meet more people with this

    disease because it's hard to know what to expect. I have a very mild case but it was the source of a lot of stress and difficulty growing up; particularly since it was not diagnosed until later. I must have support to go up stairs or get up off the floor, otherwise I'll fall...
    urns urns
    Jan 18, 2014

    Adapting To Change With Ccd

    Hello! I am a 51 year old female with CCD. I have always had weak muscles but was actually diagnosed in 1980. I have always done more than my doctors said I would and am very determined to keep my level of functioning high. I work very hard to do that. I married a wonderful...
    MJChief MJChief
    2 Responses Nov 19, 2012

    Hello. I was born in 1970

    and experienced all the delayed milestones, etc. The Doctor at the time labeled it "floppy child syndrome" but after recent research, I believe that I have CCD. I did lots of physical therapy when I was a child that may have helped some, although I am not sure. My main...
    debbiebarnum debbiebarnum
    46-50, F
    Mar 25, 2014
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