I Have Cholesteatoma

ive had an ear infection for the last year horrible smelling and coloured discharge hearing loss facial paralysis the list is endless after a year of being on antibiotics almost permanently my gp referred me to an ent clinic who said my...

hi everyone, I had surgery to my right ear 9 months ago, all has healed well and had a prosthetic hearing bone put in place at the same time. Only now I'm finding the ear very sensitive to cold and touch, it keeps disturbing me at night...

Hi, I am a 17 year old teenager and was recently diagnosed with a Cholesteatoma. I have gone through 3 different ENT doctors. The first one I really liked, Dr. Gambrell, and unlike the other two doctor's was actually taking next steps...

I have had chronic ear infections all my life. Gour surgies, now need a fifth one. Did not now till now they never go away..:/ this time I have had headaches, sinus infections for four months misdiagnosed now I have facial preasure on...

Hi I'm renew 1 year ago I was diagnosied with this ear disease cholesteatomia. One week after seeing an ent. The following week I was in surgery. OK cool I thought ill be able to hear after this sack of fluid is out. Or tumor as doctor...

I have had a "bad" ear for nearly 60 years. Started in childhood with what was diagnosed as a boil in my ear canal. The "doctor" lanced it and perforated the eardrum. I have had tubes inserted numerous times and of course lots of pain...

I have an  Cholesterol granuloma of the left  petrous apex .   Can someone please tell me about this  ,  I'm  to have a operation on March 29 , 2010 but I'am so afraid to the point I'am...

Hi my name is Bryan, I have cholesteatomas. I've had problems with this as long as I can remember I've had at least 4 surgeries throughout my childhood and problems consist even today. If you have this disease my heart goes out to you...

Hi all I'm in my 30s and have cholesteatoma only just found out in feb after 2years
Off ear infections, I only found out after I got fed up with the pain and the infections
So changed my doctors too refur me too the E.N.T ward at the...

after severe headaches that were brushed off i had a scan to check my putuitary gland and they accidently found the cholesteatoma the doctor where i live said it needed to come out soon i had an inner ear fistulization so that the cyst...

37, Male and live in the UK. Suffered ear related problems entire childhood and adult life. Severity ranged from glue ear, ear infections both outer and inner. Hearing loss, tinnitus/ringing & buzzing/whooshing. Got to age 21 and had my...

My boy friend has a Cholesteatoma. He is getting bad and the Dr keep messing around and we still aren't sher when he will get it taken care of.  He is taking pain medication but we arent getting aknofe to last between apointments...

was diagnosed with this condition 12 yrs ago,untreated chldhood ear infection.
i manage my condition quite well. but there are many things i cant do.
please contact me if you have this problem. we may be able to help each other...

Hello everyone! I had Cholesteatoma surgery in 2005 for about a year now ive had pain and my ear smells.....anyone know anything that will take the smell away? OTC? or home remedy? i dont have insurance and cant get checked out by a doc...

I think my son has Cholesteatoma, He just had his 3rd set of tubes put in on Friday and we seen a new ent right out of school just got his liscense and he had said he wanted to perform a ct on the bones behind my son's ears so we said...

I started with ear infections at age 3. I am now 57. Cholesteoma had been my life. Two years ago I started having ear infection in rt ear. What wad suppose to be a routine cleaning became my nightmare.

The ENT wasnot prepared for...

Our son was diagnosed 3years ago. He had 3 canal wall up procedures but each time it came back. Canal wall down is less invasive and you have less long term affects but it has a high rate of failure. Another option is canal wall down...

Hi, my husband is 27 and was just diagnosed with Cholesteatoma. After 2 years of not knowing what was wrong with him, we FINALLY found a Dr that knew what he was talking about. He has already had a CT scan and now we are waiting on the...