I Have Chronic Fatigue Syndrome

Personal Stories, Advice, and Support 375 People

    Does anyone else experience a great feeling of

    anxiety and impending constant doom from this? Like something is terribly wrong...does anyone else feel this horrific panic deep in the soul and mind? Besides the other more obvious symptoms? Answer me that first and then let me know if you feel any of these symptoms...like not...
    myreality1 myreality1
    36-40, M
    Jan 30, 2016

    I'm so tired of being tired.

    At least I'm watching Orange is the new Black and have started a new audio book.
    joyofabluesky joyofabluesky
    31-35, F
    4 Responses Jun 12, 2015

    anybody have some tips trying to socialize

    while having this disease? I have had it for 6 years now since 6th grade and it gets kinda depressing thinking about all the social stuff im missing out on.
    imtiredwastaken imtiredwastaken
    18-21, M
    1 Response Mar 26, 2016

    I've been exhausted for years

    but constantly battled through it. I would be exhausted in the mornings and have to hype myself up on adrenalin in order to get through the day. In work I did the same, pushing through in a hyped up state until at the evening and weekends I'd totally crash, unable to move or...
    Tellotro Tellotro
    36-40, M
    Dec 14, 2013

    I personally don't have CFS

    but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels determine how well or unwell she is. I feel your pain in an empathetic sort of way, I can never understand how you really feel and I...
    IamLerato IamLerato
    26-30, F
    1 Response Apr 14, 2014

    Any way to stop feeling fatigued?

    Anyone had any luck gaining energy back?
    WhiskeyT WhiskeyT
    22-25, F
    3 Responses Feb 2, 2016

    Well, I though I would come here

    and make some friends who "understand you". I joined the Chronic Fatigue Syndrome group and the "I need somebody to talk to" group. Then I sent messages to people with chronic fatigue who "needed somebody to talk to". I received 0 responses.
    unAmigo unAmigo
    41-45, M
    2 Responses Apr 27, 2014

    Dear CFS: **** you! I hate not being able to

    think clearly. I hate not being able to play with my kids Saturday *and* Sunday. Instead, I have to pick one day and then use the other to sit like a lump on a log doing nothing. I hate having my various "home projects" all just sitting there, mocking me, because I don't have...
    LookingForIt987 LookingForIt987
    46-50, M
    4 Responses Feb 11, 2015

    My Story So Far

    Jan, 1999 i had meningo encephalitis.  Even though I recovered from the infection, my life has not been the same as I never have been back to pre-infection health.  Six months later, I was diagnosed with ME.  The next year, my health had deteriorated so much that I...
    ClubDuvet ClubDuvet
    36-40, F
    5 Responses Jul 7, 2007

    My Mother Thinks I'm Wasting Life, She Doesn't Understand My Illness..

    I'm on summer holiday at the moment. I haven't been able to see friends for the past week because my fatigue is on a downward spiral. My mother said to me today 'don't you think you're wasting your life? you should get out there and stop cancelling plans with people'.. also, my...
    dancingwithpandas dancingwithpandas
    18-21, F
    4 Responses Jul 7, 2012

    My story & my help on slowly

    and successfully recovering... Back in August 2013 I was finding it increasingly difficult to overcome a routine chest infection. I was on work experience at a local solicitors and did not want to take a day off; even though consequently I was running myself into the ground...
    lucylu521 lucylu521
    26-30, F
    2 Responses Mar 10, 2014

    Recovering :)

    So finally, as I come pretty close to the 3rd year of Chronic Fatigue I can write a happy story about it :) I feel good:) I can get through stressful situations now.. They still wear me out, but at least I can do them :D I can get through the day without taking a nap. My immune...
    deleted deleted
    3 Responses Sep 21, 2012

    I have had CFS for about 12 years

    and am sick of people either not believing that I have it or giving me "helpful" advice (such as: oh, just push yourself a little more each day...) Hello! I work full time and want to die almost every day when I come home from sheer exhaustion! I can't push myself any further...
    TealGirl TealGirl
    36-40, F
    1 Response Dec 26, 2014

    Is it normal to struggle with suicidal thoughts

    from having this illness? I've had it since I was a young teen and am now 23. I just want to feel better but it's been years and it seems I won't feel better until I die. Every day is just torture for me. I live with my parents who are in their 60s and they take care of me. I'm...
    fallenstar23 fallenstar23
    22-25, F
    6 Responses Jun 9, 2015

    Where I Am Today

    I am 22 and suffer from Chronic Fatigue Syndrome, Polycystic Ovarian Syndrome,Hypothyroidism, Depression, Anxiety, Obsessive Compulsive Disorder, abnormal liver function and have suffered from most of these issues my whole life. CFS onset began severely in 2007/08 after a bad...
    Pamhalpert Pamhalpert
    22-25, F
    3 Responses May 21, 2012

    anyone here from the Uk

    who has it? finding the nhs not that helpful ty
    mysmugcat mysmugcat
    41-45, F
    3 Responses Mar 26, 2015

    CFS In Highschool

    It started out the doctors were running all of these tests and thought I had some brain disease. When it came down to it they said that I had mono. Then epstine bar. Then when I didnt bounce back and I still didnt bounce back and now 7 months later I still havent bounced back the...
    blondebombshell blondebombshell
    18-21, F
    7 Responses Dec 23, 2007

    I have had this illness

    for over three years now, and I have been dealing with it decently. I can still do things, and love my life somewhat regularly. Sure, I am currently only taking two classes and going to half days of school twice a week, but at least I can still go. I don't have enough credits to...
    Invisibleninja12 Invisibleninja12
    18-21, F
    2 Responses Feb 7, 2014

    It Gets Better!!

    I was diagnosed with Chronic Fatigue Syndrome and Connective Tissue Disorder when I was in 8th grade (age 13). I struggled with the constant lack of energy, aches and pains, and lack of desire to do anything other than sleep. I started to experience the depression and stopped...
    laurenalese laurenalese
    22-25, F
    2 Responses Nov 18, 2013

    Surviving With Cfs

    My name is Jennifer.  I am 31 years old, and have been suffering with CFS and POTS (an orthostatic intolerance issue) since I was 17.  Before becoming ill I was very physically active.  I ran competively, lifted weights, and participated in other athletics.  A stomach virus...
    mintlime mintlime
    26-30, F
    2 Responses Dec 19, 2010

    I was diagnosed when I was 13.

    And I've gotten worse and worse. It's so exhausting even getting to the toilet. Headaches every day, noise just goes right through me. My muscles just feel so weak. Like I've walked for miles and miles. I can't write anymore because my hand and arm shake from weakness. I hate...
    deleted deleted
    1 Response Aug 26, 2015

    Missing out on so much school baffled my

    parents. They did not know what was making me so sick until my diagnosis. Battling the pain and exhaustion has been difficult due to the fact that I love physical activities. Now that we know what is causing the way I am, we are finding some great diets to help cure CFS.
    chlo3ann3 chlo3ann3
    16-17, F
    1 Response Oct 8, 2014

    Letter For Family Members And Friends

    Hey everyone, I had CFS for two years during college.  It was the worst time of my life, and I feel for each and every one of you out there who is currently experiencing the disease.  I came across experience project when doing research for a project I'm working on...
    IBeatItSoDontGiveUp IBeatItSoDontGiveUp
    22-25, F
    8 Responses Nov 25, 2010

    Today, I went to an inner-school Taekwondo

    tournament, which means it is only a competition for those who go to the gyms owned by the person hosting it. My instructor, Master Brice, owns two gyms, and it was a small tournament, with only 30 people or so. I have been doing Taekwondo for 4 years now, and I have had CFS for...
    Invisibleninja12 Invisibleninja12
    18-21, F
    2 Responses Apr 27, 2014

    People say "oh your lucky,

    I wish I could stay at home and not work" and I just want to slap them. Id give anything to be able to work again. Yes I'm home but I can't even help around the house and cant take care of myself. Ooohhhh im living the dream. Yea. Right.
    Besillybeyou Besillybeyou
    26-30, F
    2 Responses Mar 17, 2015

    Hi. I'm Chris.An aussie guy.

    I just joined EP. I'm a cfs suffere since the year 2000.I look after myself as best as I can. I use acupressure everyday because it gives me a little boost of energy to do household chores. I'm stuck at home because cfs is severe. I also use a technique that helps my overall...
    deleted deleted
    Feb 22, 2016

    I am suffering from Chronic Fatigue Syndrome.

    It is making my daily live extremely difficult and jeopardizing my employment. Several days in the past months intense pain, exhaustion, and brain fog has kept me in bed for days at a time. I feel alone and am very depressed. I would like to find someone who understands and...
    SeekingFriends49 SeekingFriends49
    51-55, M
    4 Responses Apr 29, 2014

    I Have Chronic Fatigue And/or Cfs. :)

    Hey everyone. I'm 14 and i'm living with chronic fatigue and/or CFS. i first began getting many symptoms of this when i was 11. so i've been living with it for roughly 3 years. i was doing a lot of research just about different ways to help cope with some of the symptoms today...
    prettylittletruth prettylittletruth
    18-21, F
    5 Responses Jan 15, 2013

    Never Enough Sleep...

    Chronic fatigue syndrome (CFS) is something I have suffered from a very young age. My muscles just tire faster than normal and my body aches/tires more frequently than a normal persons. Lately, though, it has been more severe. I am assuming its due to the stress from graduation...
    deleted deleted
    3 Responses Oct 24, 2011

    Hi I wanted to post that I am with a company in

    the US for all natural products for various medical conditions, one product that helps inflammatory issues, another product that helps in the aide for better sleep. We have over 30 yrs of research behind our products. If interested in learning more, message me, would be happy...
    carolgem carolgem
    46-50, F
    May 26, 2015

    How do you guys not kill yourself?

    I think about it constantly. This life I have is no life at all. I can't do anything and there is no help. I'm completely dependent on my old parents for everything. I'm 23 I'm young and this should be a great time in my life and it's miserable prison. My life consists of...
    fallenstar23 fallenstar23
    22-25, F
    6 Responses Nov 17, 2015

    I live in my pyjamas.

    I feel like the energy Is better spent baking peanut cookies for my toddler then getting dressed.
    joyofabluesky joyofabluesky
    31-35, F
    1 Response Aug 31, 2015

    I don't know for sure,

    but I know it's not normal. How can you be so tired from nothing? And this condition is what makes me depressed. Like I can be perfectly normal and then suddenly this thing flares up again and then I feel so weak and exhausted. It's like chronic exhaustedness. I am suspecting...
    fcksociety fcksociety
    22-25, F
    Feb 8, 2016

    Hi wanted to share my facebook page www.

    facebook.com/healthyproductswithcarol where I try to keep up often with testimonials from past users to show how our products have helped them. We are a US base company of all natural products for various medical conditions. Check out my page , message me if interested in...
    carolgem carolgem
    46-50, F
    May 27, 2015

    On Behalf Of My Mother

    My other has had chronic fatigue syndrome for 18 years now - my whole life. Over all the doctors she has come accross, there is only one that has ever believed her and has been able to cure CFS, he is the man to this day who keeps my mother alive and breathing. It all began from...
    MirandaForever MirandaForever
    18-21, F
    Oct 22, 2012

    How Mine Started

    Not going to make this long.  I was in a miserable relationship and got very, VERY sick.  I went to the doctor and they told me I had mono, epstein~barr.......... I couldnt care for my kids.  This fatique went on for YEARS and I couldnt finish anything I started...
    Neveah Neveah
    18-21, F
    7 Responses Jun 17, 2008

    I have this but I have periods of denial

    which mess me up mentally because admitting to having such a disabling disease is so difficult. I go to college because my parents forced me too. I struggle to get my assignments done and study. I have good days and bad days but at least 3 bad days a week where the most I can do...
    fallenstar23 fallenstar23
    22-25, F
    1 Response Apr 16, 2015

    I have CFS but won't let it ruin my life!

    ! I will do anything it takes to get better!
    ILoveBearGryllz55 ILoveBearGryllz55
    18-21, F
    May 8, 2014

    A Recent Diagnosis

    so i have recently been diagnosed with CFS in the last month although i think i have probably had it a lot longer than that, prehaps 6 to 12 months but anyway, i guess just over a month ago things became more intese and thats when i went to the doctor. i just felt like i had no...
    musicqueen musicqueen
    26-30, F
    5 Responses Jun 18, 2010

    Hi, I'm 16 and I've had Chronic Fatique Syndrome

    for over 6 years, after suffering an illness. Studying and working properly always seem to be a tough job for me. I go to school only 1-3 days a week and sometimes i have to stay at home for months. I always feel ill, exhausted, and sometimes have headache or stomachache but...
    tranminh97 tranminh97
    18-21, F
    4 Responses Jan 16, 2014

    I have been ill for 10 years I have just turned

    24 and have only been diagnosed a month a go with CFS , the daily challenges I have just getting up in the morning the constant tiredness then the aches and the pains the headaches to the feeling sick and disturbed sleep always the tollorance to lights and loud noises to smells...
    deleted deleted
    2 Responses Mar 7, 2016

    I would like to just say

    that I've had CFS for over 10 years yes it has been very hard to deal with and understand being from the UK the nhs hasn't been the best as I've been pasted from consultant to doctors to all kind of hospitals to only just get diagnosed a month ago with CFS so 10 long years of...
    deleted deleted
    Mar 8, 2016

    I Feel Lonely And Afraid As A Teenager After 10 Years Of Fatigue Syndrome.

    Hello. Im a 16 year old girl from Norway and i have ME fatigue syndrome. I have had this for about 10 years now since i was only 6 years old when it started. the only thing i can remember is that i was getting better from a terrible flu, and next day i could not get out of bed...
    ConcerningSpace ConcerningSpace
    18-21, F
    5 Responses Jun 8, 2012

    Hi, I've had CFS for many years.

    I go out when I'm feeling ok but on the whole I'd prefer to be able to speak to people online. I'm happy and upbeat. CFS doesn't mean all we talk about is illness. I love talking about most topics.
    LizardW13 LizardW13
    51-55, F
    1 Response May 27, 2015

    Ok so this is important

    for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to get good results. Just this year, my mother and I found a doctor who had gotten a degree in functional medicine. It is a new...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Jan 14, 2015

    Chronic Fatigue

    About 10-12 years ago, I started to have problems with disabling fatigue. I went through a good number of diagnostic work-ups and several doctors ended up telling me I had CFS. I have been rather resistant in accepting this as a diagnosis. It's not that I don't believe that I...
    femme7 femme7
    41-45, F
    1 Response Jul 15, 2008


    How does anyone do it? Being so young yet feeling so old, feeling like you will never get to live the life you dream of? How does anyone cope with it? I'm always stressed wondering will I be able to do the things I want to do when I get older? Will I ever graduate? How will I...
    LonelinessIsACurse LonelinessIsACurse
    3 Responses Aug 21, 2012
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