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I Have Chronic Fatigue Syndrome

Personal Stories, Advice, and Support 297 People

    **cfs Hope For Treatment** Petition For Fda Approval

    I am not a CFS sufferer but I have been greatly touched by the testimony of those who live with this terrible disease and I feel strongly about a recent petition that has been started in hopes for FDA approval on a treatment called Ampligen. Please note that I and have no...
    Designyourlife Designyourlife 26-30 1 Response Jan 4, 2013

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    "hope"

    Watched a movei called: "Hope Floats". One of the best lines, for me is: "The beginnings are really scary, the endings are usually sad, but it is the middle that matters the most. so when you find yourself at the beginning, just give hope a chance to float up." Am not sure if...
    stigmafree stigmafree 31-35 2 Responses Sep 9, 2011

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    More Than Just Cfids: Update

    March 2010:  Thought I'd give an update on what's gone on since I wrote this 1-1/2 years ago...  Since I last wrote I've become more fatigued than ever, if you can imagine.  So much so, that I've basically become a shut-in.  I had to stop driving, the way I...
    brideprincess brideprincess 46-50, F 6 Responses Aug 14, 2008

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    I've been exhausted for years

    but constantly battled through it. I would be exhausted in the mornings and have to hype myself up on adrenalin in order to get through the day. In work I did the same, pushing through in a hyped up state until at the evening and weekends I'd totally crash, unable to move or...
    Tellotro Tellotro 36-40, M 1 Response Dec 14, 2013

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    I Have Chronic Fatigue And/or Cfs. :)

    Hey everyone. I'm 14 and i'm living with chronic fatigue and/or CFS. i first began getting many symptoms of this when i was 11. so i've been living with it for roughly 3 years. i was doing a lot of research just about different ways to help cope with some of the symptoms today...
    prettylittletruth prettylittletruth 16-17, F 7 Responses Jan 15, 2013

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    I Have Never Heard Of This Before Last Week

    I have been diagnosed with CFS, but I do a not agree with the label because it seems like its simple a throwaway diagnosis so people won't follow through with what might actually be ailling someone. I dont even like the name. It's proper name is ME. At least the UK regonises it...
    melayne101 melayne101 26-30, F 2 Responses Apr 11, 2013

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    I don't have the syndrome

    but I have chronic fatigue from an iron overload disorder called haemachromotosis. It causes me joint pain too. I've spent most of 2013 sleeping and now I'm a bit scared of what the next year might bring. I've finally got work part time teaching so I guess I will ease into it...
    hamletto hamletto 31-35, F 1 Response Jan 6

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    How Mine Started

    Not going to make this long.  I was in a miserable relationship and got very, VERY sick.  I went to the doctor and they told me I had mono, epstein~barr.......... I couldnt care for my kids.  This fatique went on for YEARS and I couldnt finish anything I started...
    Neveah Neveah 16-17, F 7 Responses Jun 17, 2008

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    I Am Older Than I Look

    Hello, my name is Eva, and I am seventeen years old. This is my first story on here, or any website for that matter, so I hope it goes well! I am healthy. I am happy. These are the two lies I try to tell myself every day. I am not a good liar, so I never believe them, however...
    Invisibleninja12 Invisibleninja12 16-17, F 3 Responses Oct 22, 2013

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    The Day My Life Got Turned Upside Down

    My last term of high school ever and my ever so perfect life got turned completely upside down. Dumped by my long term boyfriend out of the blue, and sufferring from what my doctors though was just a chest infection and thalessemia(hereditary iron deficiency) I thought life...
    trae123 trae123 18-21 3 Responses Dec 21, 2008

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    A Recent Diagnosis

    so i have recently been diagnosed with CFS in the last month although i think i have probably had it a lot longer than that, prehaps 6 to 12 months but anyway, i guess just over a month ago things became more intese and thats when i went to the doctor. i just felt like i had no...
    musicqueen musicqueen 22-25, F 5 Responses Jun 18, 2010

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    New!

    I was diagnosed with Ramsay Hunt Syndrome (after being misdiagnosed for a year with Bell's Palsy) and as part of that I've been told Post Viral Fatigue or Chronic Fatigue Syndrome was a common complication. In some respects I was happy to know I hadn't gone mad because every...
    LittleContender LittleContender 22-25, F 1 Response May 12, 2013

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    I have had this illness

    for over three years now, and I have been dealing with it decently. I can still do things, and love my life somewhat regularly. Sure, I am currently only taking two classes and going to half days of school twice a week, but at least I can still go. I don't have enough credits to...
    Invisibleninja12 Invisibleninja12 16-17, F 1 Response Feb 7

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    Post Viral CFS........ The Unknown Road That Lies Ahead And Seeking Support.

    Ive just been diagnosed with Post Viral Chronic Fatigue, a few months ago I was a fitness fanatic, full time Uni Student and Single Full time Parent with two children. The past few years I have had continuous things happen which have just totally wiped me out, psychologically and...
    dragongirlwithtattoo dragongirlwithtattoo 36-40, F 1 Response Sep 12, 2013

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    Chronic Fatigue

    About 10-12 years ago, I started to have problems with disabling fatigue. I went through a good number of diagnostic work-ups and several doctors ended up telling me I had CFS. I have been rather resistant in accepting this as a diagnosis. It's not that I don't believe that I...
    femme7 femme7 41-45, F 1 Response Jul 15, 2008

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    Sport Captain To Bench.

    I have CFS, i struggle to get through each day. Are there people like me out there? Do others know what I am going through? Or how i feel day to day? Is there people who spend an entire day in bed and still feel exhausted? or it is just me?? I am 19, no 19 year old lives this...
    Lana93 Lana93 18-21, F 2 Responses Dec 15, 2012

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    CFS In Highschool

    It started out the doctors were running all of these tests and thought I had some brain disease. When it came down to it they said that I had mono. Then epstine bar. Then when I didnt bounce back and I still didnt bounce back and now 7 months later I still havent bounced back the...
    blondebombshell blondebombshell 16-18, F 7 Responses Dec 23, 2007

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    I Have M.E. Also Known As CFS.

    I was diagnosed with ME a few months back, around Easter. I was in year 11 and it was coming up to the crucial time of my GCSE's. I had already attempted taking some mocks but they usual ended in panic attacks and not therefore completing them. I was in and out of school...
    memcircus memcircus 16-17, F 1 Response Jul 29, 2013

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    My Mother Thinks I'm Wasting Life, She Doesn't Understand My Illness..

    I'm on summer holiday at the moment. I haven't been able to see friends for the past week because my fatigue is on a downward spiral. My mother said to me today 'don't you think you're wasting your life? you should get out there and stop cancelling plans with people'.. also, my...
    dancingwithpandas dancingwithpandas 16-17, F 4 Responses Jul 7, 2012

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    I personally don't have CFS

    but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels determine how well or unwell she is. I feel your pain in an empathetic sort of way, I can never understand how you really feel and I...
    IamLerato IamLerato 22-25, F 1 Response 5 days ago

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    Believers

    I'm sick of the stereotype surrounding us! I am a person, I have feelings and no this pain isn't 'all in my head'. Why would I, a girl of 16 want to be stuck in the house? Why would I want that. I wouldn't. The problems I get, IBS, ovarian cysts, horrible headaches, sickness...
    AnonBlogger17 AnonBlogger17 16-17, F Oct 14, 2013

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    Hi, I'm 16 and I've had Chronic Fatique Syndrome

    for over 6 years, after suffering an illness. Studying and working properly always seem to be a tough job for me. I go to school only 1-3 days a week and sometimes i have to stay at home for months. I always feel ill, exhausted, and sometimes have headache or stomachache but...
    tranminh97 tranminh97 16-17, F 3 Responses Jan 16

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    Letter For Family Members And Friends

    Hey everyone, I had CFS for two years during college.  It was the worst time of my life, and I feel for each and every one of you out there who is currently experiencing the disease.  I came across experience project when doing research for a project I'm working on...
    IBeatItSoDontGiveUp IBeatItSoDontGiveUp 22-25, F 6 Responses Nov 25, 2010

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    One More Story

    I don't want to make this too long - I'll do my best to keep it short. I am a 30 year old woman. I first became ill in 1995 at age 13 after a severe viral illness. I went from being an active, intelligent, enthusiastic child to a mostly bedridden, deeply depressed invalid in...
    Eowynshope Eowynshope 26-30, F 4 Responses Aug 23, 2012

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    My Story So Far

    Jan, 1999 i had meningo encephalitis.  Even though I recovered from the infection, my life has not been the same as I never have been back to pre-infection health.  Six months later, I was diagnosed with ME.  The next year, my health had deteriorated so much that I...
    ClubDuvet ClubDuvet 36-40, F 6 Responses Jul 7, 2007

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    Trying To Find Someone To Understand

    I was diagnosed with CFS, about 18 months ago when I was still in college trying to get qualifications to go to uni to do psychology like I have always dreamed of. I started having my symptoms when I was first doing my gcse's and ended up being taken into hospital, as they...
    sammyjayne sammyjayne 18-21, F 3 Responses May 15, 2013

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    How It Started.

    When i was 13 i was diagnosed with CFS. After months of taking blood they had ruled out any other condition. At first i could still do normal things, apart from feeling tired after a while and needing a nap. But now everything has changed. I am now 16 and have completely dropped...
    deleted deleted 26-30 Mar 6, 2013

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    I Feel Lonely And Afraid As A Teenager After 10 Years Of Fatigue Syndrome.

    Hello. Im a 16 year old girl from Norway and i have ME fatigue syndrome. I have had this for about 10 years now since i was only 6 years old when it started. the only thing i can remember is that i was getting better from a terrible flu, and next day i could not get out of bed...
    ConcerningSpace ConcerningSpace 16-17, F 5 Responses Jun 8, 2012

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    Surviving With Cfs

    My name is Jennifer.  I am 31 years old, and have been suffering with CFS and POTS (an orthostatic intolerance issue) since I was 17.  Before becoming ill I was very physically active.  I ran competively, lifted weights, and participated in other athletics.  A stomach virus...
    mintlime mintlime 26-30, F 2 Responses Dec 19, 2010

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    My story & my help on slowly

    and successfully recovering... Back in August 2013 I was finding it increasingly difficult to overcome a routine chest infection. I was on work experience at a local solicitors and did not want to take a day off; even though consequently I was running myself into the ground...
    lucylu521 lucylu521 22-25, F 2 Responses Mar 10

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    Me

    Hi im living with cfs have been since 2006 wen i was diagnosed with it but had suffered a year before i new wat it was docs said it was a long term affect from meningacocal meningitis wich i had wen i was 11 made it thru that just but stil hear nd fighting thru living day to day...
    Ngapuhichic Ngapuhichic 26-30, F Feb 15, 2013

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    Stuck In The Movie "Groundhog Day"

     I developed Chronic Fatigue Syndrome (CFS) in 2004.  I was also diagnosed with fibromyalgia, which is very similar to CFS and often thought of as the same illness by some.  I will usually use the term fibromyalgia because it is more of a name versus just a description as CFS...
    jacknelson jacknelson 51-55, M 4 Responses Jan 17, 2011

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    Chronic Fatigue - Having Your Body Act As Your Very Own Prison Cell

    Chronic fatigue. Even the name sounds pathetic. When I tell people, they're just like 'oh...but it will get better won't it? I get that all the time, but I always feel better after having an early night'. If only. My name is Helena and I'm 18 years old, from the UK. I've been...
    littlemisspianogirl littlemisspianogirl 18-21, F 2 Responses Mar 24, 2013

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    It Gets Better!!

    I was diagnosed with Chronic Fatigue Syndrome and Connective Tissue Disorder when I was in 8th grade (age 13). I struggled with the constant lack of energy, aches and pains, and lack of desire to do anything other than sleep. I started to experience the depression and stopped...
    laurenalese laurenalese 18-21, F 2 Responses Nov 18, 2013

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    This Must Be The Begining For Me.

    Hi my name is Kristen. I am a 28 year old female. I can tell you that I have not had a dx of CFS yet but for parts of my entire life Ive had some strange symptoms which 2 months ago have all seem to come together and cause me serious fatigue. This must be the begining for me I...
    Rainshowers28 Rainshowers28 26-30 2 Responses Sep 4, 2010

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    On Behalf Of My Mother

    My other has had chronic fatigue syndrome for 18 years now - my whole life. Over all the doctors she has come accross, there is only one that has ever believed her and has been able to cure CFS, he is the man to this day who keeps my mother alive and breathing. It all began from...
    MirandaForever MirandaForever 18-21, F 4 Responses Oct 22, 2012

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    Will It Ever Go Away?

    I've had CFS for 3 years now, and it's only got worse. Pain everywhere, headaches, dizziness, so exhausted all the time, can't walk that much, chest pain, IBS, depression. It's horrible, I hate it. I just want to be normal again, I can't remember what it feels like to walk and...
    AnonBlogger17 AnonBlogger17 16-17, F 3 Responses Oct 18, 2013

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    My CFS Story And Yours!

    Greetings, I have had CFS on and off for 7 years. I've started collecting stories of people who have recovered and/or who have done something interesting with their life despite the illness for a podcast called cfsstories.com. Check it out and if you have a CFS story to tell...
    prillytee prillytee 36-40 1 Response May 18, 2013

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    Life?

    Hello! My name is Da-Yeon and i am currently 17 years old. I have had CFS for about 2 years, with it gradually getting worse. I am currently home tutored and dont go out very much. My muscles ache constantly and i feel so tired all the time. I want to know the cause of this and...
    dayunee dayunee 18-21, F 3 Responses Mar 12, 2013

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    Similar Symptoms?

    Hi, I've been sick since sep 2009. I became very sick one day with what seemed to be flu. I was throwing up, bad headaches, fever, etc. The fevers last for six months or so. I seemed to be getting better summer 2010, but then started feeling worse again. I even got back to work...
    1 Response Jan 15, 2013

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    Reacurrent Mono???

    I am a 38 year woman, 108 lbs, very active with no medical history other than having children. This was until I came down with Mono that kept me terribly sick for 4 months. I had symptoms of: 1. fever 2. fatigue 3. nausea 4. body aches 5. swollen spleen 6. excruciating pain in...
    autunm1973 autunm1973 36-40 3 Responses Sep 12, 2011

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    I Have Cfs Also

    I am 45 years old and I've had CFS for a number of years now.  I'm a stay at home mom. I did try to work some years back but my neck swelled and hurt, my throat was always sore and the brain fog made me slow and not a competent worker. I could never sleep when I needed to and...
    MsBlueDreamer MsBlueDreamer 41-45, F 4 Responses Oct 21, 2011

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    Never Enough Sleep...

    Chronic fatigue syndrome (CFS) is something I have suffered from a very young age. My muscles just tire faster than normal and my body aches/tires more frequently than a normal persons. Lately, though, it has been more severe. I am assuming its due to the stress from graduation...
    deleted deleted 26-30 2 Responses Oct 24, 2011

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    Ebstein Barr Virus

    A few years ago, my health took a turn for the worse and with bloodwork I was diagnosed with Epstein Barr Virus. I was so tired I couldnt walk across a room, I was quickly losing weight, my hair was falling out, my spleen was swollen, my glands were swollen, I had little bumps...
    tmarker86 tmarker86 26-30, F 2 Responses Dec 7, 2012

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    ME Blows

    I've been sick for nearly six years now. I knew I had it from the beginning because I was a big fan of Belle & Sebastian at the time, and the lead singer Stuart Murdoch has ME. Like most everyone else who has shared their personal stories here at experience project, I couldn't...
    stphnmclrn46 stphnmclrn46 22-25 3 Responses Jun 29, 2013

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    What Now?

    I was recently diagnosed with CFS though i hate the name, it makes it sound like i am just tired and people forget the other 20 odd symptoms im also dealing with. Unlike most it didnt take long for a diagnosis, id been sick for a while and as it was getting worse i went to see my...
    Jaimzie Jaimzie 22-25, F 1 Response Jul 21, 2013

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    I Feel So Let Down By Life...

    I have cfs and it's horrible....especially at my age. I have been yelled at so much by my parents when I try to tell them why i seen so tired, lazy, and sore. I don't even tell anyone when I hurt or where I hurt. I feel so helpless. I know it's not depression...one day I woke up...
    2 Responses Jan 12, 2013

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    New Cfs Patient

    I was diagnosed about a month ago with very little info from my doctor. I just remember hearing the words from the nurse who called about my blood results. She it was chronic fatigue and there was no cure. I was dumfounded. I had been struggeling at work. I felt an exhaustion I...
    brndholland brndholland 41-45, F 1 Response Apr 29, 2013

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    I Feel Tired All The Time.. What Is Up With Me?

    Hey everyone Maybe you all can help me. Over the last year-or-so I have been feeling tired all time. I don't feel like working, I would very happily go to bed and stay there all day! Over the past couple of weeks this wind of fatigue comes over me all of the sudden. I feel sick...
    loira3777 loira3777 26-30 1 Response Sep 11, 2013

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    Living Tired.

    So the story begins, I was a junior in high school, sick at home for about a month from what I was told was mono. The illness let up a bit and I resumed my everyday activities, I figured the brain fog and extreme fatigue I felt for weeks after this were just remnants of this bout...
    TimeWillShadow TimeWillShadow 19-21, M 2 Responses Apr 23, 2008

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    Recovering :)

    So finally, as I come pretty close to the 3rd year of Chronic Fatigue I can write a happy story about it :) I feel good:) I can get through stressful situations now.. They still wear me out, but at least I can do them :D I can get through the day without taking a nap. My immune...
    deleted deleted 26-30 4 Responses Sep 21, 2012

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    Coping

    How does anyone do it? Being so young yet feeling so old, feeling like you will never get to live the life you dream of? How does anyone cope with it? I'm always stressed wondering will I be able to do the things I want to do when I get older? Will I ever graduate? How will I...
    LonelinessIsACurse LonelinessIsACurse 16-17 3 Responses Aug 21, 2012

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    Related Experiences

    I have been diagnose with this last year sept. Experience alot of pain. Exercise helps, and to stay possitive. I know God is withme even in this. I like to hear from others.
    4icelady 4icelady 36-40, F 2 Responses 2 days ago

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    My doctor was finally able to pin down the problems making my arthritis worse. We both thought it was my anemia doing something with the arthritis but turns out we were wrong...
    Retronatrix Retronatrix 31-35, F 2 Responses Apr 1

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    i have chronic back pain. After using many painkiller and gel then heat and ice that never worked, i looked online how to treat it because it was awful. I learned that caffeine can...
    voslung voslung 36-40, M Mar 24

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    I am 26 years old and I have chronic pancreatitis with a surgery coming up. My story started 2.5 years ago when I had a snowboarding accident. When I fell I hit my abdomen pretty...
    christine921 christine921 26-30, F 1 Response Mar 27

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