I Have Chronic Inflammatory Demyelinating Polyneuropathy

I have been diagnosed with CIDP it's still hard to admit even though I've been living with it for about 2 years now. Who would have thought at the age of 26 I would be worried about things like falling and not being able to get back up...

Hi,
I'm Eric, 46, Divorced Sigle Dad of 2. Last May, I got a Tetinis Booster. Two weeks later my fingers and toes started going numb. I consulted my Dr who said I was low in Folate? Anyway, things wosrened, September Iwas diagnosed w...

I was diagnosed with CIDP when I was four.  I am 21 now.  I hate this disease.  When I was first dx I was put on oral prednosione and IVIG. At first they did wonders.  I did IVIG's for five years.  I was...

i have  reasentlly been diagnosed with cidp - my fingers are numb and tingling and my body feels weak and fatigued - i seem to have good days and bad days and wonder if anyone else feels like this as i am not sure if this is normal...

Hi my name is Mark.

Back in 2003 I came down with GBS (Guillain-Barre' Syndrome) due to walking pneumonia. I shut the TV off one night and went to bed and the next morning I woke up paralyzed from the waist down. I was rushed to the...

I have just published the fourth part of the results onto my blog:

http://mycidp.blogspot.com

This is about: recommended treatments and general treatment effectiveness.

I hope they are as interesting to others as they are to me...

I have had over 350 completed responses to my survey into GBS & CIDP. I am now publishing my findings via my blog:

http://mycidp.blogspot.com

As I have gathered a significant amount of data, I will be publishing and commenting on the...

I had a laminectomy in '93 and conditions decreased from there.  Addictions to pain meds, treatment centers the works.  Finally I was diagnosed with cidp and the neurologist while finding the problem will  not follow the...

Hey. I'm a 21 year old male and I have CIDP. When I first had symptoms (18 years old) there was numbness in hands and feet, muscle twitching, limbs falling asleep VERY easily, severe weakness and fatigue as if i had just done a...

I have had Chronic Inflammatory Demyelinating Polyneuropathy since 1996. I still have some numbness and get very tired
at times. In fact sometimes I will sleep for two to three days. I have not
had to have any IVIG treatments since...

When I was ten years old, I was an athlete until it happened. I started falling down and losing my balance for no apparent reason. My doctor had no idea what was going on, she even suggested to my parents that I was faking it for...

My son was diagnosed with CIDP over 2 years ago. Until we were able to establish the link between bartonella infection and CIDP we did not see any progress. We are trying to get the word out: get tested for bartonella. We offer...

I really hope this works...most post I have found for the group is rather old but here goes.

I am reaching out and decided to join because I was diagnosed with CIDP in June. My symptoms showed up in the last 2 weeks of May, gait...

Hi I am 29 yrs old and back in Aug 2008 I was diagnosed with guilliane barre syndrom.  My doctor admitted me to the hospital and treated me for this condition.  Fortunately he said I only experienced the sensory symptoms. ...

I have had Chronic Inflammatory Demyelinating Polyneuropathy since 1996. I still have some numbness and get very tired
at times. In fact sometimes I will sleep for two to three days. I have not
had to have any IVIG treatments since...