I Have Chronic Interstitial Cystitis

Personal Stories, Advice, and Support 66 People

    Interstitial Cystitis Is A Horrible Disease.

    Hi, I have never done this before but what can it hurt.  I was diagnosed with IC by cystoscopy when I was 20.  I went through the Rim-so treatments for six weeks and went into a type of remission with flare ups only occasionally.  When I was 27 it came back and...
    westvirginia westvirginia
    36-40, F
    4 Responses Mar 29, 2010

    Forbidden Fruit

    We who suffer from IC know all too well the lure of those forbidden foods.  Coffee.  Chocolate.  Orange juice.  Pineapple.  ::sigh::  How delicious they are, and how tempting they become when we are not supposed to eat them.  I suffered a major flare a few weeks ago, and...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    2 Responses Jan 1, 2012

    I Have Interstitial Cystitis

    It is ruining my life. There is no cute. Everything I try seems like I'm running in circles with knives inside me. I'm in so much pain and it's caused so many other problems. I shouldn't have to live like this.
    RockYouBebeh RockYouBebeh
    22-25, F
    2 Responses Oct 23, 2013

    Chronic Pain

    I suffer with this everyday i think i got cystitis by me having chrons i have had all kind of problems since i was 21,I get frustrated everyday cause i feel like no one understands how i feel I got depression when i had to leave my job and now i can't go back It is very hard for...
    kellie41143 kellie41143
    41-45, F
    1 Response Jan 18, 2013

    Opinion

    BLN Report:Higher trading margins put pressure on gold.Beijing downgrades Us Treasury to A+,is anybody listening?Bank of America's backdoor bailout thru Fannie Mae.Former Labor secretary Robert Reich: Obama hopes to distract the American people so we forget about grim...
    eline1972 eline1972
    51-55, M
    Aug 11, 2011

    IC/PBS

    Hello All: I have been having issues for a long time now.  First I was diagnosed with Lichen Schlerosis.  Then I have been having issues not being able to pass urine.  And having pain when my bladder fills up and empties.  I was sent to a urologist and after...
    trouble1963 trouble1963
    46-50, F
    3 Responses Sep 13, 2009

    KEEPING Hold of Hope.

    IC IS A DEBILITATING AND CHRONIC BLADDER DISEASE WHICH BRINGS BOTH BREATH-TAKING PAIN AND A VERY CHANGED LIFE-STYLE. I WOULD LOVE TO MEET UP IN HERE WITH ANYONE ELSE WHO SUFFERS FROM THIS TRULY AWFUL DISEASE. I HAVE CONTEMPLATED SUICIDE DUE TO INTRACTABLE PAIN TWICE; BUT EACH...
    magoosy magoosy
    46-50, F
    6 Responses Dec 11, 2007

    Whats Wrong With Me?

    I have had light urinary problems since a young age but no more than a random UTI here and there. When I got pregnant with my daughter when I was 18 years I had on and off UTI's that would go away and come back. Towards the end of my pregnancy I find out I have kidney stones...
    cindys20 cindys20
    18-21, F
    1 Response Sep 28, 2009

    Someone Please Help Me

    I can't take it anymore.. I have ic to the point that I am in bed 75% of the time.. I was on pain meds, and recently was taken off, is there anything that helps? I am desperate.
    islandl59 islandl59
    56-60, F
    2 Responses Oct 14, 2013

    Pain

    I need advice on what to do about the pain. It's getting worse.
    Letsgohavefun Letsgohavefun
    51-55, F
    1 Response Nov 29, 2012

    Opinion

    BLN Report:London riots continue.Revenge-S and P downgrades Warren Buffet.As Wall St. reels from the S and P downgrade of American debt,Democrats-including the Obama administration-lay blame on Tea Party.Moody's downgrades Puerto Rico general obligation bonds to Baa1 from A3...
    eline1972 eline1972
    51-55, M
    Aug 8, 2011

    Opinion

    BLN Report:Michio Kaku and Paul Krugman agree,we need the space aliens to save our world.Nuclear experts: Radioactive rain-outs will continue for a year-even in Western US and Canada-because Japanese ar e burning radioactive materials.Bernanke pledges to screw your grandma for at...
    eline1972 eline1972
    51-55, M
    Aug 15, 2011

    I Need Help.

    I got diagnosed with IC when I was 14, I am now 18. I just recently got a job and I dont know if it is the stress from the job that makes me have flares or what. But I just need to know if there is any medicine that I can take that will help my symptoms NOW! Please HELP?
    tlg1040 tlg1040
    18-21
    2 Responses Apr 12, 2012

    Whats Wrong With Me?

    I have had light urinary problems since a young age but no more than a random UTI here and there. When I got pregnant with my daughter when I was 18 years I had on and off UTI's that would go away and come back. Towards the end of my pregnancy I find out I have kidney stones...
    cindys20 cindys20
    18-21, F
    2 Responses Sep 28, 2009

    I'M So Sick Of Being Sick!

    I was labelled with Adenomyosis 2.5 years ago & my Ab has been inflamed since then. The doctor told me 9 months ago that I had Hashimoto's & Grave's & wanted to put me on a magic 'fix all' thyroid pill but I wanted to treat it naturally. So I have been eating only foods that...
    trix11 trix11
    46-50
    2 Responses May 25, 2013

    Opinion

    BLN Report:AWOL Muslim soldier admits "terror plot" against Ft. Hood.US economy slowed to a snails pace in2nd quarter. (1.3% compared to 1.8% 2nd quarter) (0.4 %compared to 1.9% in 1st quarter). Total expansion this year 1.7%.US government twice the size it was a decade ago.WU...
    eline1972 eline1972
    51-55, M
    Jul 30, 2011

    Spouse Has Ic

    My boyfriend has IC,pelvic floor and fibermialga. Sometimes I just need a someone to talk to about it. I feel alone and lost and don't know what to do. We been together for almost 4 years on and off. He got all if it very young at age of 19 and he is going to be 31 in Jan. I'm 28...
    Babierat1 Babierat1
    26-30, F
    2 Responses Dec 5, 2012

    Hi everyone, I was recently diagnosed with IC

    after about 10 years of chronic pain and urinary symptoms. I'd really like to connect with people having the same problem. It's been a very hard, very lonely road. And I also don't want anyone else to feel alone either, so please talk to me if you want to.
    queenleia queenleia
    26-30, F
    2 Responses Oct 20, 2015

    Severe, Bleeding Ic

    At times, making myself live life can be a challenge. My illnesses began during early ,childhood.  I cannot remember a day of not being medicated with prescriptions.  I have been diagnosed with rare immunity diseases which can cause anaphylaxis, burning flushing skin, hives...
    Disenchantedangel Disenchantedangel
    36-40, F
    1 Response May 14, 2012

    hello, since i was 19 i have had INTERSTITIAL

    CYSTITUS its hard to live with always needing to go to the bathroom lots of bladder pain, i would like to hear from others who have this and know the pain we go thru, and any advice, because i was feeling good for yrs and now its back again and worse, thanks
    debbiecaron debbiecaron
    41-45, F
    2 Responses Jan 3, 2014

    I Have Just Been Diagnosed With Interstitial Cystitis

    I never thought anything like this exsited. Feb 09 I was diagnosed with Melanoma, after surgery to remove it and 4 lymph nodes later I was fine. Then I had a tennis ball size cyst on my right ovary removed april 09. Thinking all is well with my health a year later I had another...
    trolllygirl11 trolllygirl11
    36-40
    2 Responses Sep 15, 2010

    Being in chronic pain is a personal hell on

    earth. I have wasted so many weekends doing nothing because I cannot get out of bed. I have missed work because I cannot function. I have cancelled plans more times than I can count because of the pain. This is nothing more than a b*tch fest because I need to vent. I don...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    Jun 2, 2014

    Diagnosed at age 16. It's been hell.

    I hate my bladder. So dang painful!!
    slar515 slar515
    22-25, F
    1 Response Jan 27, 2015

    Calcium Bentonite Clay & Chronic Infections.

    8 weeks ago I was at the end of my pain threshold, I had infections that would not disappear. Strong antibiotics wouldn't work on me, virtually everything I ate made me sick, or pass blood. Then someone suggested Calcium Bentonite Clay so I googled everything I could find about...
    trix11 trix11
    46-50
    1 Response Jul 15, 2013

    Help Me!!

    Hi my name is Christine and i was diagnosed with ic a couple months ago when they did the cystoscope procedure on me with the camera and found red marks on my bladder. It constantly feels like my bladder is full, i can't sleep at night bc i have to pee all night and all day, and...
    christineobenstine christineobenstine
    18-21
    4 Responses Jun 25, 2011

    Was Dx.In December

    I was dx.with chroic IC in December. And sents then i have not been able to work a full week.The pain is so bad and I swell all over.The pain is so bad tbut hat my droctor has put me on Hydro pain pills.When I went to him last month I had lots of red and white blood cells in my...
    sherryannruss sherryannruss
    46-50
    Mar 27, 2013

    I was diagnosed in1983.

    .. my sister was diagnosed 4 yrs before that... at the time we were the only familial case on eaST COAST... I AM NOW TALKING BECAUSE IM OUT OF REMISSION BIG TIME AND I FEEL LONELY IN THIS SUFFERING ITS NOT A Glamorous diseaseso people shy...away...i need to talk to people that...
    seeblue35 seeblue35
    56-60, F
    Mar 20, 2014

    The Pain Goes On

    After a bout with a flare up of Fibromyalgia symptoms recently, now I am struggling through an IC flare. Oh lucky me.... I'm never sure what comes first. Does the Fibro set off the IC, or does the IC set off the Fibro? I know they definitely play off of one another, much like...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    1 Response Jul 12, 2013

    Since age 10, I have been diagnosed with a

    deceptively painful chronic condition know as Interstitial cystitis. The pain since that day has steadily increased with age. I am at a point of indecision. I have a great dream that I am attempting to complete, however I am physically capable of doing so. I cannot press through...
    CJPain CJPain
    26-30, M
    1 Response Aug 30, 2014

    I Need Help

    hello, i am a 65 year old woman who is very active.  i walk 1 to 2 miles a day.  i dont drink any soft drinks, smoke or drink alcohol other than a glass of red wine on occasion with dinner.   about 6 weeks ago i started to feel sickly  .   i...
    grg511 grg511
    61-65
    4 Responses Jun 23, 2010

    Everyday Struggle

    Hi my name is Erin and I just turned 23! I fight an everyday battle with Interstitial Cystitis,Endometriosis, and Gastroparesis. I have struggled with all of these conditions since I was 11. I knew i had endometriosis since I was 12 and same for the gastroparesis. But I was...
    erinmariegoodfriend erinmariegoodfriend
    22-25
    2 Responses Oct 14, 2012

    I Wouldn't Wish This On My Worst Enemy...

      …..the unbearable, unrelenting pain that a sufferer of Chornic Cystitis has to go through.   After 9 years of pain it’s like a weekly, sometimes even daily torture. I feel like I’m being tortured and it feels like no medical professionals want to...
    MissKins MissKins
    26-30, F
    6 Responses Sep 7, 2009
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