I Have Chronic Interstitial Cystitis

Personal Stories, Advice, and Support 66 People

    Forbidden Fruit

    We who suffer from IC know all too well the lure of those forbidden foods.  Coffee.  Chocolate.  Orange juice.  Pineapple.  ::sigh::  How delicious they are, and how tempting they become when we are not supposed to eat them.  I suffered a major flare a few weeks ago, and...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    2 Responses Jan 1, 2012


    Hello All: I have been having issues for a long time now.  First I was diagnosed with Lichen Schlerosis.  Then I have been having issues not being able to pass urine.  And having pain when my bladder fills up and empties.  I was sent to a urologist and after...
    trouble1963 trouble1963
    46-50, F
    3 Responses Sep 13, 2009

    I Need Help.

    I got diagnosed with IC when I was 14, I am now 18. I just recently got a job and I dont know if it is the stress from the job that makes me have flares or what. But I just need to know if there is any medicine that I can take that will help my symptoms NOW! Please HELP?
    tlg1040 tlg1040
    2 Responses Apr 12, 2012

    Help Me!!

    Hi my name is Christine and i was diagnosed with ic a couple months ago when they did the cystoscope procedure on me with the camera and found red marks on my bladder. It constantly feels like my bladder is full, i can't sleep at night bc i have to pee all night and all day, and...
    christineobenstine christineobenstine
    4 Responses Jun 25, 2011

    I'M So Sick Of Being Sick!

    I was labelled with Adenomyosis 2.5 years ago & my Ab has been inflamed since then. The doctor told me 9 months ago that I had Hashimoto's & Grave's & wanted to put me on a magic 'fix all' thyroid pill but I wanted to treat it naturally. So I have been eating only foods that...
    trix11 trix11
    2 Responses May 25, 2013

    I was diagnosed in1983.

    .. my sister was diagnosed 4 yrs before that... at the time we were the only familial case on eaST COAST... I AM NOW TALKING BECAUSE IM OUT OF REMISSION BIG TIME AND I FEEL LONELY IN THIS SUFFERING ITS NOT A Glamorous diseaseso people shy...away...i need to talk to people that...
    seeblue35 seeblue35
    56-60, F
    Mar 20, 2014

    Someone Please Help Me

    I can't take it anymore.. I have ic to the point that I am in bed 75% of the time.. I was on pain meds, and recently was taken off, is there anything that helps? I am desperate.
    islandl59 islandl59
    56-60, F
    2 Responses Oct 14, 2013


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    eline1972 eline1972
    51-55, M
    Aug 8, 2011

    Being in chronic pain is a personal hell on

    earth. I have wasted so many weekends doing nothing because I cannot get out of bed. I have missed work because I cannot function. I have cancelled plans more times than I can count because of the pain. This is nothing more than a b*tch fest because I need to vent. I don...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    Jun 2, 2014

    I Have Interstitial Cystitis

    It is ruining my life. There is no cute. Everything I try seems like I'm running in circles with knives inside me. I'm in so much pain and it's caused so many other problems. I shouldn't have to live like this.
    RockYouBebeh RockYouBebeh
    22-25, F
    2 Responses Oct 23, 2013

    Interstitial Cystitis Is A Horrible Disease.

    Hi, I have never done this before but what can it hurt.  I was diagnosed with IC by cystoscopy when I was 20.  I went through the Rim-so treatments for six weeks and went into a type of remission with flare ups only occasionally.  When I was 27 it came back and...
    westvirginia westvirginia
    36-40, F
    4 Responses Mar 29, 2010

    Spouse Has Ic

    My boyfriend has IC,pelvic floor and fibermialga. Sometimes I just need a someone to talk to about it. I feel alone and lost and don't know what to do. We been together for almost 4 years on and off. He got all if it very young at age of 19 and he is going to be 31 in Jan. I'm 28...
    Babierat1 Babierat1
    26-30, F
    2 Responses Dec 5, 2012

    Since age 10, I have been diagnosed with a

    deceptively painful chronic condition know as Interstitial cystitis. The pain since that day has steadily increased with age. I am at a point of indecision. I have a great dream that I am attempting to complete, however I am physically capable of doing so. I cannot press through...
    CJPain CJPain
    26-30, M
    1 Response Aug 30, 2014

    Whats Wrong With Me?

    I have had light urinary problems since a young age but no more than a random UTI here and there. When I got pregnant with my daughter when I was 18 years I had on and off UTI's that would go away and come back. Towards the end of my pregnancy I find out I have kidney stones...
    cindys20 cindys20
    18-21, F
    1 Response Sep 28, 2009

    Whats Wrong With Me?

    I have had light urinary problems since a young age but no more than a random UTI here and there. When I got pregnant with my daughter when I was 18 years I had on and off UTI's that would go away and come back. Towards the end of my pregnancy I find out I have kidney stones...
    cindys20 cindys20
    18-21, F
    2 Responses Sep 28, 2009

    Everyday Struggle

    Hi my name is Erin and I just turned 23! I fight an everyday battle with Interstitial Cystitis,Endometriosis, and Gastroparesis. I have struggled with all of these conditions since I was 11. I knew i had endometriosis since I was 12 and same for the gastroparesis. But I was...
    erinmariegoodfriend erinmariegoodfriend
    2 Responses Oct 14, 2012

    The Pain Goes On

    After a bout with a flare up of Fibromyalgia symptoms recently, now I am struggling through an IC flare. Oh lucky me.... I'm never sure what comes first. Does the Fibro set off the IC, or does the IC set off the Fibro? I know they definitely play off of one another, much like...
    ForgottenSunshine ForgottenSunshine
    26-30, F
    1 Response Jul 12, 2013

    Chronic Pain

    I suffer with this everyday i think i got cystitis by me having chrons i have had all kind of problems since i was 21,I get frustrated everyday cause i feel like no one understands how i feel I got depression when i had to leave my job and now i can't go back It is very hard for...
    kellie41143 kellie41143
    41-45, F
    1 Response Jan 18, 2013

    hello, since i was 19 i have had INTERSTITIAL

    CYSTITUS its hard to live with always needing to go to the bathroom lots of bladder pain, i would like to hear from others who have this and know the pain we go thru, and any advice, because i was feeling good for yrs and now its back again and worse, thanks
    debbiecaron debbiecaron
    41-45, F
    2 Responses Jan 3, 2014

    Calcium Bentonite Clay & Chronic Infections.

    8 weeks ago I was at the end of my pain threshold, I had infections that would not disappear. Strong antibiotics wouldn't work on me, virtually everything I ate made me sick, or pass blood. Then someone suggested Calcium Bentonite Clay so I googled everything I could find about...
    trix11 trix11
    1 Response Jul 15, 2013

    I Have Just Been Diagnosed With Interstitial Cystitis

    I never thought anything like this exsited. Feb 09 I was diagnosed with Melanoma, after surgery to remove it and 4 lymph nodes later I was fine. Then I had a tennis ball size cyst on my right ovary removed april 09. Thinking all is well with my health a year later I had another...
    trolllygirl11 trolllygirl11
    2 Responses Sep 15, 2010


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    eline1972 eline1972
    51-55, M
    Aug 15, 2011


    BLN Report:Higher trading margins put pressure on gold.Beijing downgrades Us Treasury to A+,is anybody listening?Bank of America's backdoor bailout thru Fannie Mae.Former Labor secretary Robert Reich: Obama hopes to distract the American people so we forget about grim...
    eline1972 eline1972
    51-55, M
    Aug 11, 2011


    I need advice on what to do about the pain. It's getting worse.
    Letsgohavefun Letsgohavefun
    51-55, F
    1 Response Nov 29, 2012

    Was Dx.In December

    I was dx.with chroic IC in December. And sents then i have not been able to work a full week.The pain is so bad and I swell all over.The pain is so bad tbut hat my droctor has put me on Hydro pain pills.When I went to him last month I had lots of red and white blood cells in my...
    sherryannruss sherryannruss
    Mar 27, 2013

    KEEPING Hold of Hope.

    magoosy magoosy
    46-50, F
    6 Responses Dec 11, 2007


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    eline1972 eline1972
    51-55, M
    Jul 30, 2011

    Severe, Bleeding Ic

    At times, making myself live life can be a challenge. My illnesses began during early ,childhood.  I cannot remember a day of not being medicated with prescriptions.  I have been diagnosed with rare immunity diseases which can cause anaphylaxis, burning flushing skin, hives...
    Disenchantedangel Disenchantedangel
    36-40, F
    1 Response May 14, 2012

    I Need Help

    hello, i am a 65 year old woman who is very active.  i walk 1 to 2 miles a day.  i dont drink any soft drinks, smoke or drink alcohol other than a glass of red wine on occasion with dinner.   about 6 weeks ago i started to feel sickly  .   i...
    grg511 grg511
    4 Responses Jun 23, 2010

    I Wouldn't Wish This On My Worst Enemy...

      …..the unbearable, unrelenting pain that a sufferer of Chornic Cystitis has to go through.   After 9 years of pain it’s like a weekly, sometimes even daily torture. I feel like I’m being tortured and it feels like no medical professionals want to...
    MissKins MissKins
    26-30, F
    6 Responses Sep 7, 2009

    Diagnosed at age 16. It's been hell.

    I hate my bladder. So dang painful!!
    slar515 slar515
    22-25, F
    1 Response Jan 27, 2015

    Hi everyone, I was recently diagnosed with IC

    after about 10 years of chronic pain and urinary symptoms. I'd really like to connect with people having the same problem. It's been a very hard, very lonely road. And I also don't want anyone else to feel alone either, so please talk to me if you want to.
    queenleia queenleia
    26-30, F
    2 Responses Oct 20, 2015
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