Post

I Have Chronic Pancreatitis

Personal Stories, Advice, and Support 357 People

    Screwed By Gi Doctors

    I have seen GI doctors for 20 years and diagnosed with IBS and diverticular disease. Many polyps removed. The university I suffered from abdominal pain, bloating, cramping, and explosive diarrhea. I have been prescribed all kinds of anti spasm type meds, none of which...
    stillhurtin stillhurtin 66-70 7 Responses May 22, 2011

    Your Response

    Cancel

    i had my first attack 4 mos ago

    and dr. said if i would only stop drinking alcohol he would not see me again. Plus i could eat anything i wanted to eat. Back pain is constant and i have had 2 blood tests and 1 CTscan since the initial attack and all 3 tests have come back normal. i have not felt the same since...
    dakota0202 dakota0202 51-55, M 2 Responses Feb 20

    Your Response

    Cancel

    Hell And Back

    So my story begins with being diagnosed with acute pancreatitis in June of 2013. After five or six days of terrible pain and nausea I began to feel slightly better. Although my pain had gone down it was still very intense, and got worse it seemed the more I moved around. Around a...
    Ivira1 Ivira1 26-30, M 2 Responses Nov 15, 2013

    Your Response

    Cancel

    I Learned To Enjoy My Life With Pancreatisis

    I am 27 years old. I have been detected with chronic Pancreatitis two years ago. A small pain was there in my abdomen, After some tests like CT scan, blood tests, MRCP Dr. told that there are calcium stones found in my pancreas that should be removed. ERCP and ESWL was done which...
    kavita1 kavita1 26-30, F 1 Response Aug 2, 2013

    Your Response

    Cancel

    Hello everyone. I would like to know

    if anyone has had positive results from any type of medication, vitamins, exercise, and diet. I would also like to know if any else is as fed up with the healthcare system in treating our condition as I am. I first got diagnosed with Pancreatitis in spring 2011. I went to the ER...
    8point06 8point06 36-40 1 Response Jan 9

    Your Response

    Cancel

    Looking For A Chronic Pancreatitis Support Group In The East Coast?! Delaware?!

    Hello guys!!! I have given up on dealing wt random ER doctors and would like to find other people to go to/create a support group either virtual or physical to share treatment plants, do's and dont's , dr info, medications, tricks, any helpful info for all of us dealing with...
    JRHAYSA JRHAYSA 26-30, F 4 Responses May 28, 2013

    Your Response

    Cancel

    Normal Life Now

    NOTE --- THIS IS NOT MEDICAL ADVICE PLEASE CONSULT YOUR DOCTOR!!! I am so thankful to the people who helped me along in this story. I had a year of troubled stool that showed fat. I was told I had trouble digesting fat and continued to lower my fat intake for several months...
    jollx9 jollx9 31-35, M Nov 22, 2013

    Your Response

    Cancel

    19 Years

    August 29, 1989. I will never forget that day. It was the first day I heard the word "Pancreatitis". I was 21 years old. I had a 2 1/2 month old son and I was in serious pain. When I got tot the hospital, the doctor diagnosed Pancreatitis and then asked me how long I...
    An48103 An48103 36-40 9 Responses Aug 5, 2008

    Your Response

    Cancel

    New But Not New To Pancreatitis

    Hi everyone! My name is Anthony. I have had pancreatitis and other health issues since 2006. So just wanted to say hello!
    doubleaaaron doubleaaaron 31-35, M 2 Responses Feb 1, 2012

    Your Response

    Cancel

    My Pancreatits

    i am 17 years old and i was diagnosed with chronic pancreatitis at the age of 8. At first no one believed how bad the pain was, and my mother refused to take me to the hospital. After two weeks of being in agonizing pain, they finally took me and I was admitted that same day. I...
    emilyjjj emilyjjj 18-21, F 3 Responses Aug 4, 2013

    Your Response

    Cancel

    First off for all of us suffering,

    I know your pain is very real, and I believe you and I'm praying for you! I stumbled across this blog tonight while doing research on getting social security disability with this condition. I thank God I did it's so nice to know I am not alone.. Now for my story. My name is...
    Pancreasfighter Pancreasfighter 41-45, F Jul 23

    Your Response

    Cancel

    What A Choice

    Hello, I have had CP for a couple yrs. My dr has had me on lortab for the last year but now that doesn't help much anymore & they tell me that the only thing they can do for me now is to operate. But the thing is they have given me a choice. Either the Whipple Procedure or the TP...
    robzzzz robzzzz 56-60, M 4 Responses Oct 18, 2013

    Your Response

    Cancel

    have been dealing with this issue

    for about 16 years and I'm 38 years old.I was just diagnosed with pancreatitis idk if its acute or chronic.I go see my regular doctor in 6 days.Is it possible to have had this disease all along and they never knew it? I have had the same symptoms all these years.I have horrific...
    kristiegraham kristiegraham 36-40, F 3 Responses Mar 1

    Your Response

    Cancel

    oh my were to start ,

    my life has changed mental and fiscally, this Chronic Pancreatitis, , will be the death of me and i know this it has been a year and one month of pure hell, i can ot say or tell what my body will allow me to do , make plans i dont get to do that any longer , i can only function...
    cindyforlife cindyforlife 46-50, F 1 Response Dec 29, 2013

    Your Response

    Cancel

    I Have Chronic Pancreatitis

    I live in Spain and have had pancreatitis for about 5years. I now have cp and have just undergone an operation in March too remove some cysts. They also rearranged my intestines to bypass the pancreas apparently. I don't speak much Spanish so I presume that is what they said they...
    vickster1 vickster1 46-50, F 2 Responses Oct 21, 2013

    Your Response

    Cancel

    Going On Strike?

    Am i the ONLY person dealing with chronic pancreatitis? It seems as though in Delaware IM THE only person that shows up to the emergency room complaining about this Aweful pain with the full diagnosis on my records I still get turned away from the doctors. I am considering a...
    JRHAYSA JRHAYSA 26-30, F 6 Responses May 1, 2013

    Your Response

    Cancel

    Living Life to the Fullest With It, Not In Spite of It.

    I generally do not mention my personal ailments in the open forum, but I have been asked about this by several persons in the last few days so am writing about this in hopes that it may help someone else.  Please understand that I am not asking anyone to feel sorry for me, but...
    fungirlmmm fungirlmmm 41-45, F 24 Responses Mar 10, 2009

    Your Response

    Cancel

    I Have Chronic Pancreatitis

    When I was 10 years old I started getting very sick and the doctors thought I had Crones. When they finally discovered I had Chronic Pancreatitis, I had hit the record in that hospital with the highest Amylase and Lipase levels. I spent my whole 4th grade summer and part of 5th...
    marisap1990 marisap1990 22-25 2 Responses Oct 21, 2013

    Your Response

    Cancel

    I was diagnosed with acute pancreatitis 7 years

    ago. After several hospitalizations, loss of my spleen, a cyst that had to be drained and attached to my small intestine and having my gall bladder removed, I still seek answers. This site has been a Godsend. Nobody else will understand the pain I go through. I was 185 lbs...
    grammychandra grammychandra 41-45, F 1 Response Mar 17

    Your Response

    Cancel

    Calcification

    Last Tuesday was my first major pancreatic attack in almost six months, it was the longest I spent out of hospital in the almost 3 years I've had this. After a CT scan they have found that my pancreas has begun to calcify. Anybody have any experience with this? The consultant...
    dsaintd dsaintd 26-30, M 3 Responses Apr 24, 2013

    Your Response

    Cancel

    The Truth

    The truth is people I'm sorry to say that Doctors don't really care about you and couldn’t care less how sick you get. Most of them have no passion for their job, you can see it in their eyes, THE EYES TELL THE TRUTH. If your pancreas is destroying itself at a fast rate only...
    theRite2Die theRite2Die 26-30 2 Responses Apr 24, 2013

    Your Response

    Cancel

    hi there i am kelley i am 30

    and have 4 boys 13,10,4,and 5 months! i have been diagnosed since oct this year but been suffering for years as my amlyse results were always and still are normal! i was in intensive care for a month in oct which was so hard as my baby was so young! i was constant pain the...
    kelley1806 kelley1806 31-35, F 1 Response Dec 29, 2013

    Your Response

    Cancel

    I Hate My Pancreas

    I have acne, have had it since I was 20. In 2002 I went to a dermatologist to see what I could do about it. His first thought was to put me on Accutane. Worried only about the psychological effects I quickly agreed as I was tired of looking like a pre-teen. Before administering...
    Ihatemypancreas Ihatemypancreas 31-35, F 6 Responses Feb 21, 2012

    Your Response

    Cancel

    Need Some Advice

    So I recently told a little of my story of being diagnosed with Chronic Pancreatitis. I will summarize it a bit. I was 16 and started getting very severe pain in my upper left side of my abdomen. It went on for 6 years before I was finally diagnosed with chronic pancreatitis I...
    peds1987 peds1987 26-30 2 Responses Aug 9, 2013

    Your Response

    Cancel

    Can't Get An Official Diagnosis

    Not sure that anyone will find anything in my story helpful, but nonetheless I want to get it off my chest. Growing up I had the most amazing childhood with amazing parents who I grow closer to as I age. It's fairy tale some might say! Married at 21, graduated college, and moved...
    Praying4aCure Praying4aCure 26-30 4 Responses Jan 2, 2013

    Your Response

    Cancel

    Chronic Pancreatits In Age 32

    I m 32/m ,diagnosed pancreatits after twice hospitalised due to severe pain in abdomin . I drunk occasionaly and smoke twice daily. Now doc suggested one small pag also be dangerous . Now I stop drink completely. Also started homeopathic treatment . My father was having same...
    navinkhatri navinkhatri 31-35, M 1 Response Aug 7, 2013

    Your Response

    Cancel

    Do Not Give In To This Disease!

    I've had a diseased pancreas for six years now. Prior to my diagnosis, I drank vodka everyday for 3 years and had gall bladder issues at the same time. It was nearly a fatal combination for me. The end result is advanced chronic pancreatitis with calcifications. Luckily I have a...
    Sflo5046 Sflo5046 46-50 2 Responses Mar 1, 2012

    Your Response

    Cancel

    Hi. I'm 15 and I have chronic pancreatitis.

    When I was first diagnosed I was only 7. It started like a stomach virus but no one understood how much it hurt. I lived in a small town so the hospital didn't really have GI doctors. They sent me home, no school for a week. That was in October of 2006. Everything was ok for a...
    rayon1103 rayon1103 16-17, F 1 Response Feb 4

    Your Response

    Cancel

    Diagnosed And Have A Question Or Two

    Hi all, I was diagnosed a little over a year ago. I got CP from heavy drinking for around 5 years. The good news is that I finally wised up and quit drinking 31 days ago today!!! I have been hospitalized around 10 - 12 times in that time. I finally got it through my head, only...
    ktod72 ktod72 36-40, F 1 Response Mar 17, 2012

    Your Response

    Cancel

    14 Years

    I've had Chronic Pancreastitis for 14 years and I am 18 years old. They have no idea about why I have this disease and I am sick of suffering. Other things have happened to me, because of my pancreas. Right now, I am in the hospital again due to the disease. I really wish I could...
    alwaysandforever89 alwaysandforever89 16-18 9 Responses Jan 10, 2008

    Your Response

    Cancel

    I am lucky to be alive.

    At age 18, I had the Whipple procedure. Over twenty years later, I am suffering from the side effects of a surgery designed to save my life. I have chronic pancreatitis. I can't work, but I don't qualify for disability at the moment. However, I am still thankful and I am...
    BennettKP BennettKP 36-40, F 1 Response Dec 18, 2013

    Your Response

    Cancel

    In Need Of Help

    Hello my name is Daina and I am writing this for my cousin who is in the hospital with acute pancreatitis. he is a beloved father, uncle and husband. He works long hours and is the soul provider of the household. he was hospitalized after an attack yesterday. Doctors are doing...
    missyskee missyskee 26-30 4 Responses Nov 15, 2012

    Your Response

    Cancel

    I am a 42 year old with chronic pancreatitis

    and have had it for 2.5 years. In 2012 I spent more time in than out of the hospital. I let them take out my gallbladder and there was nothing wrong with it. I then went to the best GI doctor in the state and he found my problem. When you're born have 2 pancreatic ducts that...
    Cagunter Cagunter 41-45, F 2 Responses Apr 28

    Your Response

    Cancel

    Not Really But Kinda

    i don't have chronic pancreatitis, but i do get acute because of an autonomic dysfunction. I spent the month of february in the hospital this year, a total of four weeks last year and so on.
    farmlifeforme farmlifeforme 21-25, F 1 Response Nov 6, 2007

    Your Response

    Cancel

    8 Years and Tired of It

    I have been suffering from chronic pancreatitis now for about 8 years. It has cost be 2 jobs and almost cost me my marriage of almost 20 years. I now find myself unable to work a regular job due to the increased severity of my disease. I am now looking into obtaining disability...
    tiredofpain tiredofpain 41-45 27 Responses Jun 22, 2008

    Your Response

    Cancel

    I Hate Not Knowing!

    Hi. I have chronic pancreatitis and after 6 stents in my ventral bile duct they tell me if the duct doesn't heal with this last stent I will have the head of my pancreas removed! I just don't know of anyone who has faced this type of situation and i was wondering if anyone is...
    mybodh8sme mybodh8sme 46-50, F 1 Response Nov 3, 2013

    Your Response

    Cancel

    How Do People Function With Chronic Pancreatitis?

    My name is Shelly, my first attack with CP was in 2002, I was hospitalized for 7 days.  Since then I was having attacks every 4-6months, starting early 2008 I was having more and more frequent attacks.  In desperation I had my gallbladder removed with the high hopes...
    themomof3 themomof3 31-35, F 12 Responses Feb 19, 2010

    Your Response

    Cancel

    Ignorance Is Bliss

    I have come on here as i am finding it really hard to deal with this condition both physically and emotionally, i have decided i really need some sort of support from people that understand. i am 24 years old and have been suffering with pancreatitis since the age of 14 although...
    deebliss deebliss 22-25, F 4 Responses Feb 6, 2012

    Your Response

    Cancel

    I am 26 years old and I have chronic

    pancreatitis with a surgery coming up. My story started 2.5 years ago when I had a snowboarding accident. When I fell I hit my abdomen pretty bad flipping several times. I got up, shook it off and went home for lunch when noticed I was peeing blood. I went to the hospital and...
    christine921 christine921 26-30, F 3 Responses Mar 27

    Your Response

    Cancel

    Calcified Chronic Pancreatitis

    I am a 61 yr. old who was diagnosed with first pancreatitis then chronic pancreatitis now calcified pancreas cant take pancreas enzymes on essential enzymes and papaya enzymes. Benn loosing weight for the last 3 years and know one could figure out why until I had my first attack...
    nippyladybug1928 nippyladybug1928 61-65, F 2 Responses Apr 29, 2013

    Your Response

    Cancel

    Chronic Pancreasisits Began At 30 Due To Alcohol.

    I was diagnosed with Pancreatitis at age 25 while I was in the hospital for detoxing of alcohol, but it had never affected me & didnt for the next four years. I  drank & did drugs all through my 20's, & i definetly paid the price. I am now 32 & sober, living with chronic...
    janelomb janelomb 31-35, F 2 Responses Oct 27, 2011

    Your Response

    Cancel

    So Tired Of Doctors And ER Staff Dismissing My

      I just found this site and am so grateful for it. I will try to be brief, as I know we all have some similar issues. I had a gastric bypass in 2001, I'm a 42 year old female, wife, and mother. I did not meet the weight requirement and was not told of this. My...
    notgonnastopyet notgonnastopyet 41-45, F Oct 18, 2013

    Your Response

    Cancel

    It'S Hard..But,Believe Positive With No Questions..That'S The Only Treatment For Us..

    Hi all.. I am 21 now.I had this pain 1st time when I was 8 years old.I had only countable attacks until I finish my 19 years old.It was like only 5-7 times till that.But,after that I started to get attacks always.Its like 7-9 attacks in a year. This year I had 6 attacks only in...
    Kani02 Kani02 22-25, F 4 Responses Apr 26, 2013

    Your Response

    Cancel

    Which Came First The Diabetes Or The Pancreatitis

    For the past 10 yrs or so i've had type 1 diabetes and chronic pancreatitis.  Six of those years i've endured dr. after dr. accusing me of not taking my insulin because i would be in DKA every 2 weeks and my pancreatitis would flare up at the same time..Needless to say i now...
    annabelle7 annabelle7 41-45, F 1 Response Mar 27, 2012

    Your Response

    Cancel

    I've been having more severe pancreatic attacks

    and seriously considering the Whipple procedure. Please tell me about your experience. What should I know about the Whipple procedure? Having completed the procedure, would you have made the same decision given what you know now? Does your quality of life improve? Thanks
    lindatran54 lindatran54 31-35, F Aug 16

    Your Response

    Cancel

    Need Help Coping With This Diagnosis

    I am a 28 y/o woman and I was recently diagnosed with chronic pancreatitis in early September. I had my first attack in April of 2013. I woke up on a Sunday with, what I thought was a pulled muscle pain in my upper abdominal and ended the day in the ER because I couldn't stand up...
    kathrynm23 kathrynm23 26-30, F 4 Responses Oct 21, 2013

    Your Response

    Cancel

    Due to Alcoholism...

    Due to alcoholism, I have developed cronic pancreatits.  I will update my story ASAP as I have to head out to work.  Please sing up.
    Sneakyteaky Sneakyteaky 36-40, F 9 Responses Sep 13, 2007

    Your Response

    Cancel

    Tired Of Fighting

    I am 37 , and 9 years ago I started having doubling over  attacks of pain in my abdomin along with uncontrolable diarrehea it was so bad that i couldn't work or for that matter even go out in public I would go to the ER and the DR. and i guess because of my age...
    stevespunyou stevespunyou 36-40 3 Responses Sep 1, 2010

    Your Response

    Cancel

    Diagnosed At 12

    I was a seemingly normal 12 year old girl, on cheerleading and trying to make it at private school and what not, when one Friday night in September I was taken to the ER with incredible pain in my stomach, turned out to be an ovarian cyst that had ruptured. No big deal right...
    catrodriguez14 catrodriguez14 18-21, F 3 Responses Jan 9, 2013

    Your Response

    Cancel

    Terry

    It took 1 month to write this,I started out with acute pancreatitis ten years ago,and its not cute anymore. My thoughts are that God is in control, I'm 55 and I'm looking as if I;m on my way to a babyshower. the belly swelling has caused weight gain of 10 lbs in 3 days.The er did...
    jtmaqrchand1 jtmaqrchand1 51-55 3 Responses Sep 11, 2010

    Your Response

    Cancel

    Back At The Er Once Again

    Hi everyone. I have never been sick a day in my life. Just the usual colds. On February 1st of this year I fell and got a concussion. That resulted in several er visits as I was vomiting constantly. Two weeks after they diagnosed me with acute pancreatitis. I wound up having...
    Dani521 Dani521 31-35, F 5 Responses Dec 8, 2012

    Your Response

    Cancel

    Hi everyone. I lost my dad to Pancreatitis on

    September 24th 2013, after he fought this illness for 2 and a half years, he was only 53 years old. I have created an awareness page in his memory, and am in the process of trying to promote the disease to get it the recognition it truly deserves. Please can you pop over to www...
    DonnaLouise1988 DonnaLouise1988 26-30, F Dec 5, 2013

    Your Response

    Cancel

    Related Experiences

    I have hepatitis B. But I don't know where, when, or how I got it. I just turned 27 in June. And just a day before my birthday, I woke up feeling like I have been crushed by a lawn...
    confusedHepB confusedHepB 26-30, F 4 days ago

    Your Response

    Cancel