I Have Churg-strauss Syndrome

A Churg-Strauss Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Churg-Strauss Syndrome. You're not alone. 32 People

    Annie My Story

    HI MY NAME IS ANNIE IHAVE BEEN LIVING WITH CHURG STRAUSS FOR NEARLY 3 YEARS IM 27 AND AT FIRST IT WAS SCARY BUT NOW I THINK I HAVE EXCEPTED MY BODY THERE IS A LOT I KNOW BUT STILL SO MUCH I DONT AND I HOPE ON HERE I WILL BE ATLEAST A LITTLE WISER !!MAIL.COM.COM
    FAFJA02 FAFJA02
    26-30
    1 Response Jun 5, 2012

    Im The Youngest In Poland

    Hello Im 19 and 4 year earlier my CSS was diagnosed. I don't know what i must write on this forum. I want join to Churg-Strauss Syndrome "society" for sometimes get answer for my questions.
    Larens Larens
    18-21, M
    Oct 15, 2012

    Bad Css

    Hi, I'm from Europa, Bosnia and Herzegovina, and I have a Churg-staruss sindrome. Doctors are diagnosed that since 10 months ago. Everything symptoms been started 3 years ago with astma, allergies... but all gonna wrong last year when i been hospitalyzied. First i was 15 days in...
    benazirchanel benazirchanel
    18-21, F
    Nov 12, 2012

    So Much To Absorb

    Well our long awaited trip has come and gone. I am swimming with information. I had no idea how complex this really is. Dr. Nair was very very nice and explained everything as simply as he could. My son's system is compromised beyond anything I had expected. Plan A Build his...
    Journies Journies
    46-50
    Nov 7, 2013

    My Sons Journey With A New Diagnosis Of Churgs Strauss

    I am reading all of your stories and it is sad that there so many. My son has had asthma his whole life. Been hospitalized more times than I can count. He has been tutored at home more than he was in school. I was always considered an over baring parent. At age 15 yrs old. His...
    Journies Journies
    46-50
    3 Responses Oct 18, 2013

    My Name Is Lew and I Have Churg Strauss

    Hello My name is Lew Newmark I’m 51 years young and I am living with Churg Strauss Syndrome And this is My Story… It begins back around 16 years ago. I had just started my job with the company I presently work for ( which I will not mention here ) and I seemed to...
    animekid animekid
    51-55, M
    10 Responses Oct 14, 2008

    12 Years Of Misery.....and Now....churg-strauss....finally

    I am a 51 year old female who was just diagnosed with Churg-strauss. My nightmare started 12 years ago. I was 39 years old. It was in the fall when I first started getting ill. I had never been so ill in my life. I went to the med center several times, only to be told I have...
    kwansancherry kwansancherry
    51-55
    2 Responses Aug 22, 2012

    Css

    hi all.I became very ill 18 mths ago pneumonia constant antibiotics prednisolone latr onset asthma 52 i lost my job of 23 yrs in may .Just awaiting diagnosis of css have all symptoms high eosphills,skin pupuras , very bad fatigue,joint muscle pains so bad cant walk some mornings...
    kujude kujude
    51-55, F
    Oct 12, 2013

    I Am Denise Have Churge Straus

    hi im 15 and have css i not good on dates so i may be wrong but i will try to find out the dates k. when i was about 4 years old every year i would get a cold. then after 2 years i had a cold for the whole year the dr. just said i had i sinus infection so when i was 7 or 8 i had...
    mmadm mmadm
    13-15
    1 Response Mar 25, 2009

    Re: The Long Road To Confirming Chrug

    My story- started out with asthma that seemed to really get worse around the age of 18....played college level tennis inspite of the severe asthma. My asthma continued to get worse and over the years was put on inhaler at around age 35......then Severent until about age 42...
    mttulsa mttulsa
    51-55, M
    1 Response May 13, 2012

    Looking For Answers

    Well our long wait has arrived. Tomorrow we travel to see a specialist for my son. Not sure what to expect and I am sure I have a lot of questions to answer. I am very nervous and anticipating not a great outcome. I no there is no cure but we sure are hoping for some sort of...
    Journies Journies
    46-50
    Nov 2, 2013

    Churg-strauss Syndrom

    I just found out I have Churg-strauss syndrome.  I am 52 and would like to chat w/anyone else that has Churg-strauss.Thanks!!
    slaba58 slaba58
    51-55
    6 Responses Apr 4, 2011

    There´s A Hope...

    Hello! I´m from Spain (Europe). I´m 78 (male). Five years ago, I spent several weeks in a hospital with a "hard" allergical problem (again). At the end, the diagnosis was: "sistemic vasculitis with positive 'ANCA' "... (I´m sorry for my english....) I suffered several...
    mychurgstrauss mychurgstrauss
    70+
    Jul 26, 2012

    Bad Css

    Hi, I'm from Europa, Bosnia and Herzegovina, and I have a Churg-staruss sindrome. Doctors are diagnosed that since 10 months ago. Everything symptoms been started 3 years ago with astma, allergies... but all gonna wrong last year when i been hospitalyzied. First i was 15 days in...
    benazirchanel benazirchanel
    18-21, F
    2 Responses Nov 12, 2012
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