I Have Cleidocranial Dysostosis

Cleidocranial Dysostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cleidocranial Dysostosis. You're not alone. 5 People

    21 years old, paternal grandmother had it,

    father had it, I have it but my younger sister doesn't. Intelligent and successful but have always and continue to get teased about it. Get called freak, alien, the hills have eyes, ect. Looking for others who have it to hear their stories, trials and tribulations and coping...
    Darling03 Darling03
    22-25, F
    Sep 16, 2014
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