I Have Cohen Syndrome

A Cohen Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cohen Syndrome. You're not alone. 3 People

    My son has Cohen Syndrome,

    and was diagnosed at age 4. He had a small head (was generally very small, but proportional h/w), and PDD-NOS. He is non-verbal, and a really happy kid. He is 7 at the time of this post. I would like to find other families whose kids pace this disorder to help figure out how...
    tcbailey tcbailey
    46-50, M
    1 Response Jan 5, 2014

    My Daughter Has Cohen Syndrome

    I am the mother of 4 children.. my youngest daughter was globally developmentally delayed and had low muscle tone at birth.. she had a small head and was in her own world for the first 8 months.. we made several attempts over the years to get a diagnosis.. finally in Jan -08 with...
    finn9 finn9
    Jul 14, 2008

    Have Questions and Answers

    Diagnosis Cohen Syndrome. Would like to connect with others. Pass on infomation , answer questions.
    gsmom gsmom
    1 Response Jun 30, 2008
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