I Have Collagenous Colitis

A Collagenous Colitis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Collagenous Colitis. You're not alone. 31 People

    Recent Diagnosis

    I am a retired nurse that recently was diagnosed with Collagenous Colitis after a rather abrupt but bad case of diarrhea that I could not control. My gastroenterologist didn't do biopsy but told me that he has ruled out everything else and with my symptoms, the fact that I was...
    retiredrn retiredrn
    3 Responses Apr 7, 2012

    After I Got Flu Shot, Back To My Cc Started Again...

    I'm looking CC support group and wish to learn how others are copping with condition. After I read members story, It help me to understand more about CC. If my experience help other to watch out the flue shot may cause CC symptom return like it did, I'm glad to share my story. I...
    stayalive3 stayalive3
    66-70, F
    1 Response Oct 12, 2012

    Collagenous Colitis - A New Problem!

    I have Addison Disease, and now have been diagnosed with Collagenous Colitis. I don't know of any support group where one can get information and 'swap' stories on how to deal with this disease.
    turkeytrop turkeytrop
    Nov 10, 2011

    It Took A Long Time

    for a diagnosis. My "problem" started close to 25 years ago. At first it was only a day or two, then a week or two, then 5 weeks, then 6 weeks, then 2 & a half months. I was very fortunate to have a Gastroenterologist that was determined to find out the cause. I lost a lot of...
    Cherokee71 Cherokee71
    70+, F
    1 Response Sep 12, 2013

    Drug Did Not Agree With Me.

    I have had collagenous colitis for over 2 years. I also have had coeliac disease since 2007. Last August I was given the drug sulfasazaline and in October, my immunity and white blood cells were very low and my pharangytis turned into an abscess in my throat blocking my airway...
    dianejb dianejb
    56-60, F
    1 Response Apr 12, 2012

    Senior With Many Ailments

    I was diagnosed several years ago and mostly have been able to work around it with my diet.  I've just been diagnosed recently with panic attacks (from long ago events) and that has made the collagenous colitis much worse.  I'm taking some pepto bismol tablets...
    phylzy phylzy
    1 Response May 24, 2010

    My Life With Cc

    I think many of the stories on this site are very old. I've had CC for almost 3 years. My Doc thought it was IBS. I've been dealing with this rare form of colitis for so long. My story is absolutely horrible, but I've written a really light and funny essay if anyone wants to...
    okimmyo okimmyo
    4 Responses Feb 1, 2012


    I got cc at age 49. I gave up gassy foods. A few years later, it recurred, and I gave up lactose. All was OK again, but then I rebounded 2 years later, and gave up raw foods. Then 3 years later, I had to give up gluten. Last year I had a heart attack, and the medicine just about...
    joansdavis joansdavis
    70+, F
    1 Response Aug 6, 2011

    I am the new kid (Arnie) on the block.

    I have CC, diagnosed 11/2 years ago, along with IBS. At present maybe because of stress, who knows, I have persistence diarrhea, and of course pain from the IBS. I am a male and 75. Otherwise I am in good health, but I cannot be too far from a bathroom. By the way, I have tried...
    schwara schwara
    70+, M
    1 Response Jan 15, 2014

    Hi All! I'm The New Kid On The Block And Just Checking In...

    I was diagnosed with CC about three months ago. I'm female, 56 and currently on budesonide, a steroid prescribed by my gastrointestinal doc. Does anyone have any experience with this drug? It seems to help but I'm uncomfortable being on a freaking steroid 24/7. I've lost a...
    whitey56 whitey56
    56-60, F
    3 Responses Apr 9, 2012

    I Have Collagenous Colitis

    I just was diagnosed with Collagenous Colitis. I had colonrectal cancer and then had a resection, colostomy which was reversed 3 years ago. Had a lot of GI problems such as frequent BM, blaoting gas, but about 5 weeks ago began to have watery diarhea and had a colonscopy which I...
    KayeB KayeB
    70+, F
    1 Response Mar 27, 2012
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