I Have Colloid Cysts of Third Ventricle

A Colloid Cysts Of Third Ventricle anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Colloid Cysts Of Third Ventricle. You're not alone. 36 People

    Just Diagnosed With A Colloid Cyst Of Third Ventricle...

    And i am petrified. No, make that, scared shitless.  I mean, i know nothing about this other than the little bit of info my neurosurgeon gave to me in the hospital, which i was in there because i had an intracerebereal hemmorage, and had gone in to E.R. because i couldn't...
    Elexxsis Elexxsis
    46-50, F
    5 Responses Nov 23, 2009

    Where Do I Go From Here?

    My name is Paige and on my 25th birthday I was diagnosed with having this cyst. I don't like to talk about this with too many people because I don't want to make a big deal about something I know nothing about. I found this site on accident and am hoping it will be beneficial...
    Paigenoel Paigenoel
    22-25, F
    1 Response Jan 30, 2013

    Just Found Out

    Hi all, I just found out a few days ago that I have a colloid cyst. I'm scheduled for a craniotomy at the end of June. I can't say that I'm worried about it. I truly have God's peace surrounding me! The only thing I shed a few tears over was having to cut my hair! It's very long...
    Joyfuldme Joyfuldme
    51-55, F
    1 Response May 22, 2013

    Colloidal Cyst

    I have been impotent and stressed out ever since my operation for a colloidal cyst. I put this down to potential trauma to the hypothalamus. Have any other males had this problem?
    pogopatterson pogopatterson
    Nov 21, 2012

    Colloid Cysts Of Third Vetricle

    hi i found out about my cyst in may 2003 at the age of 33 ,was having really bad headaches so went to see my gp who told me to try long walks and vitimins which i did for a couple of months. When one day i tried to go to work without wearing my trousers who forgets to do...
    pamaliapink pamaliapink
    41-45, F
    Oct 24, 2012

    Colloid Cyst Surgery - Twice!

    I have just found out that my colloid cyst on the third ventricle is back! I am lucky to live close to an excellent hospital with great neurosurgeons. I have had surgery twice now, 1992 and 1996. Having had hydrocephalus and survived 5 cerebral haemorrhages before the first...
    farrell1963 farrell1963
    46-50, M
    Oct 18, 2012

    Colloid Cyst Not Completely Removed - Vp Shunt

    Just over a month ago I had to have emergency operation due to pressure in my brain that was caused by a colloid cyst of the third ventricle. I had headaches for a month before I had the operation. My neurosurgeon could not completely remove the cyst, but told me that the most...
    adeles1702 adeles1702
    1 Response Dec 19, 2012

    I Had A 9cm Colloid Cyst Of The Third Ventricle

    In November of 2011 I experienced debilitating headaches for a few days, followed by a few days of violent vomiting, and finally I froze up when getting out of bed. My wife called the paramedics and while they were here I seemed to snap out of it, so they left. The very next day...
    nuclearnorm nuclearnorm
    46-50, M
    3 Responses Aug 28, 2012

    I am 17 and I just got diagnosed

    after an incidental finding on a CT scan. When I was 3, 4, and 5 I had fainting spells and would seize. No one thought of it as a big deal, just a stage I would grow out of. Then, around the age of 10 I began getting bad headaches, but again I thought maybe it was just a normal...
    jay1215 jay1215
    18-21, F
    Nov 11, 2015

    I have a cyst, have known about it

    for almost two years and my symptoms have gotten worse. I keep going to the E.R. only to be given benadryl and motrin and nausea meds to make me sleep, never relieves my headache. I have a new neurosurgeon and he says it needs to come out, but I don't see him until the 9th and...
    BucketListKick BucketListKick
    31-35, F
    1 Response Jan 2, 2014

    Scared And Need Answers?

    I was diagnosed with a collid cyst about 6 yrs ago ive been doing yearly mri and cat scans .. It has stayed the same at 8mm but latley ive been having alot of dizziness when i bend over or tilt my head back i thought it was a ear thing .. but the doctors said they are fine .I...
    singlemomz0f3 singlemomz0f3
    36-40, F
    2 Responses Jun 4, 2012

    Colloid Cyst Of The 3rd Ventricle The Second Time Around.

    I got mine removed in 2007 at the age of 37.Now right before my 43rd birhtday I got diagnosed as having another one in my third ventricle about 5mmX7mm.So I have to go through another craniotomy:(. I am an RN & went through the first resection in 2007 after having to drop out of...
    1786baba 1786baba
    Nov 14, 2012

    I Had A Colloid Cyst Removed From My Third Ventricule

    LARRY21151 LARRY21151
    Dec 8, 2012

    Fight For My Life

    My name is Brian, I was diagnosed with a colloid cyst about 4 years ago and since then i feel that i am fighting for my life, i go through everything from massive headache 24/7 to loss of vision. It feels as though i am not the person i used to be anymore, this experience has...
    Nismo8186 Nismo8186
    2 Responses Apr 26, 2012

    Nearly Died From A Colloid Cyst... Now Help Run A Support Group

    Hey everyone, A year ago today, I checked into the hospital feeling dizzy, having difficulty walking and with a one-sided headache. It felt almost as if I were drunk... but I had not been drinking any alcohol. A part of me felt like a fool for going to the ER (as I had a...
    umdisotopes umdisotopes
    26-30, M
    2 Responses Sep 29, 2012

    I am 35 and found out on my 31st bday

    after I blacked out that I had a colloid cyst. A bit of history...my 1st migraine was at 13 and my 1st blackout migraine @16. I have had many ct scans and this cyst was either over looked or was just not viable in those early ages. @20, I started having daily headaches, I mean...
    MarriedToTheMigraine MarriedToTheMigraine
    36-40, F
    Mar 3, 2015

    Started Out With Just Memory Loss And Ended Up Having Brain Surgery In Less Than 45 Days

    Hi my name is Barb. I am a 38 y/o female. I live in the Midwest. I am married and have 3 awesome kids. I found out that I have a colloid cyst because my father passed away January 2012 and my mother wasn't doing well she was having problems with dementia I thought. So I went to...
    Cystbgone Cystbgone
    36-40, F
    Feb 24, 2013

    My Story

    Basically from birth I suffered from headaches and life stopping migraines. When I was 16yrs old and driving down the road my vision completely "blacked out," I was wide awake but could only see dark. I slammed on my breaks and a few seconds later it was if it never happened...
    HayesBabiesMama HayesBabiesMama
    Sep 24, 2012

    Feeling Undecided And Stuck

    I had a bad headache at 4 in morning on 6/18, 4 days after a laparoscopic gyn procedure. I have had tension, sinus, and hormonal headaches for years, but was concerned b/c it was at a weird hour and so close to my procedure. I went to the er where the procedure was done, and had...
    mbb102a mbb102a
    41-45, F
    Jul 15, 2013

    I was diagnosed with a colloid cyst of the

    third ventricle 2 years ago, after briefly losing consciousnesses and falling down the stairs and needing an MRI. I was 22 at the time and even though I was a headache and migraine sufferer I ignorantly thought a brain cyst would be the last possible finding. The MRI detected a...
    sslewis sslewis
    26-30, F
    Jan 30, 2014

    It'S A Miracle I Am Here

    Hello, I was diagnosed with hydrocephaly on August 12, 1996. I had been having unusual headaches for two weeks prior to that and something told me to get my butt back to the hospital emergency room and tell them that this isn't normal for me, so my dad rushed me to Kaiser...
    plynette plynette
    Jun 26, 2013

    A Girl -- Her Fiance -- And His Third Ventricle Colloid Cyst

    On December 21st I took my 24year old fiance into the ER after he came home from work and I thought he was having a stroke. His left leg was dragging, he left arm clung to his side, and he stumbled and fell all over our house before I was able to convince him to get into the car...
    Jan 16, 2013
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