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I Have Complex Regional Pain Syndrome, Type I

Complex Regional Pain Syndrome, Type I anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Complex Regional Pain Syndrome, Type I. You're not alone. 177 People

    Ive Recently Been Diagnosed With This Disease!! -   I've been diagnosed with Complex Regional Pain Syndrome but I really dont think that its type 1--I think that its closer...
    tiredofpain07 tiredofpain07 46-50, F 18 Responses Sep 26, 2009

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    Advise Please.... - Hi, I'm Jemma. I am 28 years old and yesterday was advised I have crps. My doctor was honest & advised that he knew very little about crps. I am waiting for an...
    Jemma1007 Jemma1007 26-30, F 3 Responses Apr 9, 2013

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    New Year...new Attitude! Rsd/crps - I have had a major relapse for lack of a better word. I went back to my pain doctor and he tried a pain patch and increased the nerve blocker...
    easyloper easyloper 41-45 2 Responses Jan 21, 2011

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    Trying To Understand Crps Type 1 - I am new here and i also have crps type 1.I have been on all different types of medications and treatments but nothing seems to work. Everyday i...
    flaminggal flaminggal 41-45, F 11 Responses Jan 27, 2010

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    This Is Getting Harder Each Day. - I am a 43 man that has been diagnosed with CRPS/RSD for the past 6 years. This is very difficult to deal with, and then the added side affects of...
    mraiderfan67 mraiderfan67 41-45 3 Responses Jun 3, 2011

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    I To Have Been Diagnosed With Crps. - I have had crps going on two years now. I was diagnosed after having carpal tunnel surgery. The pain started in my left wrist and continued up...
    Aphrodyte71 Aphrodyte71 41-45, F 1 Response Feb 15, 2013

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    Trying To Understand My Cprs - April of this year, I took a small fall off a motor scooter which caused me to get a hairline fracture in my right hand. The fracture repaired but...
    Shsmith2 Shsmith2 56-60, F 1 Response Jul 23, 2013

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    Remission?? Crps/rsd Dreaming! - I have heard a rumor that total remission is possible with CRPS/rsd. Is that a fantasy the doctors tell you thinking it will keep you mentally in a...
    easyloper easyloper 41-45 12 Responses Jan 12, 2011

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    I know how you feel, after an accident to my knee (I was knocked over in a crowd and hit my knee on the corner of a concrete step) which showed nothing on x-ray I suffered with...
    LadyMandy LadyMandy 51-55, F 1 Response Feb 18

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    Is There An Answer To This Incidious Disease - My wife has been diagnosed with CRPS,it started with a frozen  shoulder  3-10 the treatment was PT until surgery 10-10 followed by...
    lwbr lwbr 56-60 2 Responses Sep 5, 2011

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    Wow....life Can Change In An Instant - I was just running to catch a loose horse and in my hurry didn't look where I was going and walked right off a step (a SINGLE step) and fell...
    easyloper easyloper 41-45 5 Responses Dec 27, 2010

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    I Have Complex Regional Pain Syndrome Type 1 - I have been living with this for a long time but I have to say compared with some I am lucky as in my pregresion has slowed greatly...
    villagemum villagemum 31-35, F 5 Responses Mar 28, 2010

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    Every Day Is A Struggle. - I'm 19 I'm in college, just moved in with my boyfriend and best friend. life was amazing. I had never heard of CRPS before I was diagnosed. I never had...
    Livelovelaugh19 Livelovelaugh19 18-21, F Jan 28, 2013

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    My Life With Crps - In September 1998 I was in a auto accident. I was lucky except for some burns and bruises. So I thought I ended up having to have a sm torn ligament in my wrist...
    Pamd1116 Pamd1116 36-40, F 5 Responses Mar 19, 2012

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    Life After The Diagnoses.... - I was recently diagnosed with CRPS1. I have been living with the severe pain for over a year because after a foot injury where a motorized chair ran...
    tabithaAD tabithaAD 46-50, F 2 Responses Sep 11, 2013

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    If I Tell You This... - i have complex regional pain syndrome type 3. or stage 3, whatever. i know this due to the simple fact that i have been through at least 4 different...
    deleted deleted 26-30 8 Responses Feb 16, 2012

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    I Have Crps Type Ii (causalgia) - I suffered an injury during my time with the army. I was injured and well after my injury should have healed, the pain persisted. They followed...
    stewjds stewjds 26-30 Jan 24, 2013

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    Wondering If I Have It ???? - hello, i was told by a nuro doctor, that after almost a year of having major pain, swelling, and coloring in my leg, that it could be crps. what can i...
    ruby71 ruby71 41-45 2 Responses Jan 20, 2013

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    Crps, Type 1 - I was in an auto accident in October, 2009. In this accident, I aquired a Labrum tear in my right hip and developed CRPS, type 1. My story is a bit unique, I...
    hazelnutcoffee hazelnutcoffee 36-40 10 Responses Sep 18, 2010

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    Scared About Maybe Needing More Surgery - I broke my arm in August last year. A very nasty break. The pain was pretty bad for a while and I was very lucky to be diagnosed quickly...
    sunnygirls2 sunnygirls2 26-30, F 1 Response Jan 28, 2013

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    I Thought It Was Gone... - When I was about 10, after dance class i felt this weird pain in my right foot. We went to the doctors and he told me it was only dancers foot. So I went...
    tryingtokeepmyheadup tryingtokeepmyheadup 13-15, F 1 Response Jan 21, 2013

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    It Was Just A Broken Leg - On Dec 4, 2010 I broke my leg at work. I knew something wasn't right about 4 weeks after my injury but had no clue what what was wrong I just knew that I...
    Slipperyice Slipperyice 31-35 Jan 3, 2013

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    Teen Athlete With CRPS: My Story From The Start - I was a very active elite athlete at my high school. In fact I was the top girls athlete in our school. I had just started my...
    elizabrooke elizabrooke 18-21 3 Responses Jul 5, 2013

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    My Daughter's Experience - In April of 2010, my 11year old daughter bumped her head on the wooden bannister at home.  She didn't say anything to me about it but later on, while...
    lesleyann1962 lesleyann1962 46-50 2 Responses Mar 21, 2011

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    A Night Out With A So Called Friend Ruined My Life... - a friend asked me to go out with her one night to celebrate her divorce. we went to a bar i had 3 drinks leaned against a...
    alexisd86 alexisd86 26-30, F 4 Responses May 4, 2013

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    RSD - I had surgery last year on my right knee to prolong a knee replacement. The incision was just below my knee. The incision got infected which compromised the skin. The...
    Missfubar2u Missfubar2u 41-45, F Aug 31, 2013

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    My Sons Is Pain Free Today After 2 And A Half Years With Rsd/crps. - My son was 10yrs 2 months when he damaged his ankle hopping. He landed on a rut in the long grass. He couldn...
    1 Response Feb 16, 2013

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    Ive Recently Been Diagnosed With This Disease!! -   I've been diagnosed with Complex Regional Pain Syndrome but I really dont think that its type 1--I think that its closer...
    tiredofpain07 tiredofpain07 46-50, F 5 Responses Sep 26, 2009

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    Is Crps Causing Weird Side Effects?? - I think I read somewhere that CRPS can cause changes in behavior, mood, nail and hair, etc. I have a question: Can it really change those...
    easyloper easyloper 41-45 14 Responses Dec 31, 2010

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    Trying To Help A Friend.... - Hello, I have recently recovered from relapsed Hodgkin's Lymphoma, which I was diagnosed with in 2009. After 4 years of living in uncertainty and in...
    Shadoweyes19 Shadoweyes19 22-25, M Aug 20, 2013

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    After 2 Years I Got A Diagnosis - Over 10 years ago I had a snowboarding accident. I noticed pain in my rotator cuff and went to the dr. I was recommended to do physical therapy. I...
    Nicoledenny Nicoledenny 36-40, F Oct 14, 2013

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    Cant Beleive There Is No End To The Worst Pain I Have Ever Felt - I just learned about CRPS just this week, my dad actually stumbled on a website containing information about the...
    jheff39 jheff39 26-30 3 Responses Oct 1, 2012

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    We have made it easy for all those who have been waiting for their dream come true of owning a world Pre owned Ferrari Car. Above everything, our lucrative offers for buying a...
    exoticferraricars exoticferraricars 26-30, M Mar 5

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    Never Thought I Could Walk Again - My name is Amanda. I got injured my eight grade year. I slipped down my stairs and broke my railing in half with my foot. I improved from my...
    Amanda1521 Amanda1521 16-17, F Sep 16, 2013

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    17 Yrs Old And In Pain - My daughter is 17 yrs old and has been diagnosed with CRPS type 1, no one my family had ever heard of this disease. The thought of my "baby" having chronic...
    Leslieparrish64 Leslieparrish64 46-50 6 Responses Apr 11, 2012

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    My Husband Has Crps - Hi my husband has had CRPS for 2 years since he had a toe fusion operation, he has recently had a neurostimulator implant but this does not seem to have...
    kim73 kim73 36-40, F 1 Response Oct 25, 2011

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    I Have Crps 1 - I was diagnosed with CRPS 1 almost a year ago.  I didn't believe the diagnosis and got a 2nd and 3rd opinion.  Everything I have seen on the sites is...
    Aclinka Aclinka 36-40, F 35 Responses May 12, 2010

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    I Have CRPS Too - I can't really attribute the commencement of this disease to any particular injury. I started getting burning pains in my wrist and I thought I had RSI. I took...
    Kimbo3000 Kimbo3000 36-40, F Oct 10, 2013

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    Suffering In Pain Silently On My Couch So My Children Don't Worry..... - I awoke to my husband coming home this morning, he works nights. All of my dogs ran to greet him at the...
    hazelnutcoffee hazelnutcoffee 36-40 6 Responses Dec 30, 2010

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    5 Years Of Dealing With Crps - I was at work doing my daily activities. When i was hurt since that day i have had un believable pain, muscle spasume joint pain i even drop things...
    Calipso32 Calipso32 31-35, F 2 Responses Mar 22, 2013

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    My Crps Is Gone! - Hi everyone, My name is Kate and I joined this forum because, like you all, I had been been living with CRPS for the past year and a half. I use the word had...
    HunniBubble HunniBubble 22-25 1 Response Mar 16, 2013

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    I Have Crps Type 1 - I am 29 years old, and I have had Complex Regional Pain Syndrome Type 1 (the cold dystrophy part) for about 4 years now. It is really hard to cope with at...
    cutiegurl01108 cutiegurl01108 26-30, F 1 Response Jan 26, 2013

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    It Rules My Life - I began getting serve pain at 17, that was 16 years age. Now the pain which started in my Knee has spread through my both hips, leg, ankles, back, nerve damage...
    nikiroulston nikiroulston 31-35 1 Response Jul 7, 2013

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    First Day Of The Rest Of My Life With Crps. - I was never so thankful as I was today sitting at the Dr.s office and having him tell me that the pain in my arm had a name, it was...
    1 Response Jan 16, 2013

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    Crps Has Messed Me Up. - HI IVE GOT TYPE 3 CRPS,IVE NEVER GONE THROUGH THE STAGES IVE GONE STRAIGHT TO 3.I HAVE IT IN MY FINGERS HAND,TO ADD TO IT IM LEFT HANDED AND ITS THE HAND...
    misscatatude misscatatude 46-50 6 Responses Jun 27, 2010

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    CRPS For 7 Years.. Any Reccomendations For Treatments From Pain Clinic? - So about 7 years ago I injured my right ankle and the pain has never gotten better. I was diagnosed with...
    Amanda0328 Amanda0328 26-30 5 Responses Jul 17, 2013

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    Complex Regional Pain Syndrome, Why Me? - I have not slept a peaceful 8 hours since 6/24/08. The pain is a burning torching feeling. FORGET emotions, I think you get so use to not...
    BetsyJoy BetsyJoy 51-55, F 3 Responses Dec 16, 2011

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    Crps/rsd Allodynia - I have major crps in the dominant arm from an improperly administered TD vaccine, it happened in Nov, 2007, and I was finally diagnosed in Apr, 2010. My crps...
    FeelingTheBurn347 FeelingTheBurn347 36-40, M 8 Responses Sep 30, 2010

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    Rsd/crps - Hi everyone. I was diagnosed with RSD of my back and legs7 months ago after being rear ended in a car accident. I'm 24 years married with two children. It's been a huge...
    Sherbz Sherbz 22-25, F 6 Responses Apr 24, 2013

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    Why Me, Why Do We Have To Suffer, Why Dont People Recognise This Condition - I was work for a 4wd aftermarket accessory shop as a salesman, 3 days before christmas 2010, i was told...
    orey78 orey78 31-35 2 Responses Feb 13, 2012

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    Wanting To Know More - I want to know if all of you had to say one word describing Complex Regional Pain Syndrome, what would it be? Please respond its for a project that I have...
    Amanda1521 Amanda1521 16-17, F 1 Response Oct 13, 2013

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