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I Have Complex Regional Pain Syndrome, Type I

Complex Regional Pain Syndrome, Type I anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Complex Regional Pain Syndrome, Type I. You're not alone. 190 People

    Scared About Maybe Needing More Surgery

    I broke my arm in August last year. A very nasty break. The pain was pretty bad for a while and I was very lucky to be diagnosed quickly with CRPS. As a result it has become much, much better. But I may need to have another surgery and the doctor told me I'd be likely to get CRPS...
    sunnygirls2 sunnygirls2 26-30, F 1 Response Jan 28, 2013

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    I know how you feel,

    after an accident to my knee (I was knocked over in a crowd and hit my knee on the corner of a concrete step) which showed nothing on x-ray I suffered with excruciating pain whereby even the sheet brushing my knee whilst I was asleep would wake me up in agony. After 8 months of...
    LadyMandy LadyMandy 51-55, F 2 Responses Feb 18, 2014

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    Never Thought I Could Walk Again

    My name is Amanda. I got injured my eight grade year. I slipped down my stairs and broke my railing in half with my foot. I improved from my injury but re-injured it in gym my freshman year. I couldn't walk, I lost complete feeling in my foot. I have gone through 5 doctors, which...
    Amanda1521 Amanda1521 18-21, F Sep 16, 2013

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    My Crps Is Gone!

    Hi everyone, My name is Kate and I joined this forum because, like you all, I had been been living with CRPS for the past year and a half. I use the word had because after I went to test out an experimental treatment in London yesterday, I have no pain in my foot anymore! Now I...
    HunniBubble HunniBubble 22-25 1 Response Mar 16, 2013

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    New Year...new Attitude! Rsd/crps

    I have had a major relapse for lack of a better word. I went back to my pain doctor and he tried a pain patch and increased the nerve blocker and I am out of bed for the first time in a month (for more than an hour)!!! Yeah....while I'm on twice the medication and still...
    easyloper easyloper 41-45 2 Responses Jan 21, 2011

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    Crps Has Messed Me Up.

    HI IVE GOT TYPE 3 CRPS,IVE NEVER GONE THROUGH THE STAGES IVE GONE STRAIGHT TO 3.I HAVE IT IN MY FINGERS HAND,TO ADD TO IT IM LEFT HANDED AND ITS THE HAND WITH IT.IVE LOOKED AT ALOT OF PEOPLE EXPERIANCES AND FEEL REALY SAD THERES SO MANY OF US IN SO MUCH PAIN.IVE TRYED ALL THE...
    misscatatude misscatatude 46-50 6 Responses Jun 27, 2010

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    I was wondering if anyone else has dealt with

    this. I have CRPS in my left foot. Now I am dealing with horrible ingrown toe nail on my big toe, and it becoming infected. I will be seeing a new foot doctor later this week. I was just wondering what I might be dealing with...
    CRPSsurviving CRPSsurviving 26-30, F 1 Response Jul 7

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    Complex Regional Pain Syndrome, Why Me?

    I have not slept a peaceful 8 hours since 6/24/08. The pain is a burning torching feeling. FORGET emotions, I think you get so use to not having emotions because you know your going to hurt worst then the norm. I am affected on my right side of my neck, right shoulder into the...
    BetsyJoy BetsyJoy 51-55, F 3 Responses Dec 16, 2011

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    Trying To Help A Friend....

    Hello, I have recently recovered from relapsed Hodgkin's Lymphoma, which I was diagnosed with in 2009. After 4 years of living in uncertainty and in the face of possible death, and through gruesome chemotherapy, bone marrow transplant and radiotherapy, it's safe to say it had a...
    Shadoweyes19 Shadoweyes19 22-25, M Aug 20, 2013

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    Teen Athlete With CRPS: My Story From The Start

    I was a very active elite athlete at my high school. In fact I was the top girls athlete in our school. I had just started my sophomore year of track and field and my coaches were very excited about this year because I had huge potential to be a top state athlete. That all fell...
    elizabrooke elizabrooke 18-21 3 Responses Jul 5, 2013

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    My Daughter's Experience

    In April of 2010, my 11year old daughter bumped her head on the wooden bannister at home.  She didn't say anything to me about it but later on, while out shopping, she began to complain of severe headaches, sensitvity to light and a soreness around her head.  It wasn't until...
    lesleyann1962 lesleyann1962 46-50 2 Responses Mar 21, 2011

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    Trying To Understand Crps Type 1

    I am new here and i also have crps type 1.I have been on all different types of medications and treatments but nothing seems to work. Everyday i wonder what the future holds. The specialist and doctors keep saying that this isn't a permenant condition, it will eventually burn out...
    flaminggal flaminggal 41-45, F 12 Responses Jan 27, 2010

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    We have made it easy

    for all those who have been waiting for their dream come true of owning a world Pre owned Ferrari Car. Above everything, our lucrative offers for buying a second hand Ferrari car is another plus point for buying with us. Our aim for keeping our customer’s happy and we try to...
    exoticferraricars exoticferraricars 26-30, M Mar 5, 2014

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    17 Yrs Old And In Pain

    My daughter is 17 yrs old and has been diagnosed with CRPS type 1, no one my family had ever heard of this disease. The thought of my "baby" having chronic pain the rest of her life is devastating! We had a nerve block done yesterday that did relieve some pain in the forearm but...
    Leslieparrish64 Leslieparrish64 46-50 8 Responses Apr 11, 2012

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    Every Day Is A Struggle.

    I'm 19 I'm in college, just moved in with my boyfriend and best friend. life was amazing. I had never heard of CRPS before I was diagnosed. I never had trauma to my left leg. One night watching movies I got up to pop popcorn and my whole leg from my hip to my toes shut down. No...
    Livelovelaugh19 Livelovelaugh19 18-21, F Jan 28, 2013

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    I To Have Been Diagnosed With Crps.

    I have had crps going on two years now. I was diagnosed after having carpal tunnel surgery. The pain started in my left wrist and continued up my arm into my shoulder. I had already had the same surgery on my right hand so I knew what to expect on my left. So I thought. I told my...
    Aphrodyte71 Aphrodyte71 41-45, F 1 Response Feb 15, 2013

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    A Bike Ride

    i was riding my harley nice summer night when i was runoff the road by a car ended up hiting a tree at 70mph i woke up in a hospital and no longer had the use of my left arm the doc said i had a nerve injury among many others and that if i was lucky the nerve would heal itself...
    hurtssomuch65 hurtssomuch65 41-45, M Jan 29, 2013

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    I was diagnosed almost 3 years ago.

    I tore my Achilles tendon in my left foot. I am now trying to start a benefit dinner. The theme is fire and ice. I was just wondering if anyone has any tips on decorations... I'm really hoping that I will be walking without assistance by then...
    CRPSsurviving CRPSsurviving 26-30, F Jun 20

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    I Have Crps Type Ii (causalgia)

    I suffered an injury during my time with the army. I was injured and well after my injury should have healed, the pain persisted. They followed up with doctors which led to my medical discharge. They said I had Degenerative Arthritis. My pain on a scale from 1-10 was at a...
    stewjds stewjds 26-30 1 Response Jan 24, 2013

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    My Life With Crps

    In September 1998 I was in a auto accident. I was lucky except for some burns and bruises. So I thought I ended up having to have a sm torn ligament in my wrist repaired. That was in June 1999. Three weeks later I was having pain in my wrist hand and 3fingers. My surgeon tried...
    Pamd1116 Pamd1116 36-40, F 5 Responses Mar 19, 2012

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    Hiya

    sorry i havnt been on in a long time, i have been suffering depression and have bearly survived. i have had the worst time. crps has spread nerly in my whole body. im so scared. sorry i havnt been on :(
    jess902 jess902 13-15, F 4 Responses Feb 13, 2013

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    CRPS For 7 Years.. Any Reccomendations For Treatments From Pain Clinic?

    So about 7 years ago I injured my right ankle and the pain has never gotten better. I was diagnosed with CRPS about 6 years ago and the doctors have tried surgery and all that to no avail. I find it really difficult to find people who understand what it is like living with severe...
    Amanda0328 Amanda0328 31-35 6 Responses Jul 17, 2013

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    Ive Recently Been Diagnosed With This Disease!!

      I've been diagnosed with Complex Regional Pain Syndrome but I really dont think that its type 1--I think that its closer to being type 2. This disease has taken over my life, if you call being in pain 24/7 a life.  I dont think that the doctors around here are sure...
    tiredofpain07 tiredofpain07 46-50, F 19 Responses Sep 26, 2009

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    5 Years Of Dealing With Crps

    I was at work doing my daily activities. When i was hurt since that day i have had un believable pain, muscle spasume joint pain i even drop things now. Its So frustrating especial dealing with a doctor that kind just pushes me off to the side and keeps compareing me to other...
    Calipso32 Calipso32 31-35, F 2 Responses Mar 22, 2013

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    Remission?? Crps/rsd Dreaming!

    I have heard a rumor that total remission is possible with CRPS/rsd. Is that a fantasy the doctors tell you thinking it will keep you mentally in a better place? Is a real possibility? I have never met anyone who has had it disappear after onset but I have heard more than one...
    easyloper easyloper 41-45 15 Responses Jan 12, 2011

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    Wow....life Can Change In An Instant

    I was just running to catch a loose horse and in my hurry didn't look where I was going and walked right off a step (a SINGLE step) and fell to the ground. I thought for sure I had broken my foot it hurt so bad. After a trip to the hospital (where a rude and grumpy ER doctor...
    easyloper easyloper 41-45 5 Responses Dec 27, 2010

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    I Have Crps 1

    I was diagnosed with CRPS 1 almost a year ago.  I didn't believe the diagnosis and got a 2nd and 3rd opinion.  Everything I have seen on the sites is that it is permanent but no one seems to be able to tell me what happens in the future.  The only thing that all...
    Aclinka Aclinka 36-40, F 37 Responses May 12, 2010

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    A Night Out With A So Called Friend Ruined My Life...

    a friend asked me to go out with her one night to celebrate her divorce. we went to a bar i had 3 drinks leaned against a sink to adjust my pants leg out the back of my heels and the sink collapsed around my hand cutting all tendons nerves muscles and ligaments. 5 hours of...
    alexisd86 alexisd86 26-30, F 4 Responses May 4, 2013

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    If I Tell You This...

    i have complex regional pain syndrome type 3. or stage 3, whatever. i know this due to the simple fact that i have been through at least 4 different specialists in the past year and a half. i look back over that year and think, i used to be normal, now im not. let me explain it...
    deleted deleted 26-30 10 Responses Feb 16, 2012

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    Suffering In Pain Silently On My Couch So My Children Don't Worry.....

    I awoke to my husband coming home this morning, he works nights. All of my dogs ran to greet him at the door and my daughter woke me up saying "Daddy's home"!! I then knew we were up for the day. I have severe pain the moment I stepped foot on my floor. I can only get around...
    hazelnutcoffee hazelnutcoffee 36-40 6 Responses Dec 30, 2010

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    Cant Beleive There Is No End To The Worst Pain I Have Ever Felt

    I just learned about CRPS just this week, my dad actually stumbled on a website containing information about the disease. I was in shock after reading the exact description of what has been going on with me. I have had over 20 doctorsin 3 years tell me that there is nothing wrong...
    jheff39 jheff39 26-30 4 Responses Oct 1, 2012

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    I have CRPS type II, still in the first stages

    of diagnosis. I have had a bone scan that showed changes in the bone, I will get a nerve block soon to help in diagnosing this painful problem. I have been suffering with this for 6 months. Severe PAIN! I have been put on Lyrica which has toned down the burning pain. I went...
    Terrig1 Terrig1 46-50, F 3 Responses May 21, 2014

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    What Can I Do?

    I have had crps for 2 and a half years now (since the age of 13) I first got an injury to my tendons in my foot playing football in the rain on wet AstroTurf. Now if you have ever been in wet AstroTurf it is like running on wet carpet (you can imagine how slippy that is) now this...
    Buzzbee1235 Buzzbee1235 13-15 2 Responses Apr 24, 2013

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    Is Crps Causing Weird Side Effects??

    I think I read somewhere that CRPS can cause changes in behavior, mood, nail and hair, etc. I have a question: Can it really change those things?? My hair has gone curly....CURLY out of the blue! I sweat reandomly for no apparent reason (and I mean SWEAT). I get the mood changes...
    easyloper easyloper 41-45 14 Responses Dec 31, 2010

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    Life After The Diagnoses....

    I was recently diagnosed with CRPS1. I have been living with the severe pain for over a year because after a foot injury where a motorized chair ran over the front of my foot and the x-rays showed ;no broken bones there was no way for me to make anyone understand the severity of...
    tabithaAD tabithaAD 46-50, F 2 Responses Sep 11, 2013

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    Rsd/crps

    Hi everyone. I was diagnosed with RSD of my back and legs7 months ago after being rear ended in a car accident. I'm 24 years married with two children. It's been a huge adjustment. Everyday I hurt, the constant burning and twitching of my legs is unbearable. I have good days but...
    Sherbz Sherbz 26-30, F 6 Responses Apr 24, 2013

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    It Rules My Life

    I began getting serve pain at 17, that was 16 years age. Now the pain which started in my Knee has spread through my both hips, leg, ankles, back, nerve damage, carpel hand syndrome, lower arms and my neck I am in constant pain and left wheelchair bound, if I attempt to stand...
    nikiroulston nikiroulston 31-35 1 Response Jul 7, 2013

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    Advise Please....

    Hi, I'm Jemma. I am 28 years old and yesterday was advised I have crps. My doctor was honest & advised that he knew very little about crps. I am waiting for an appointment with the specialist to find out what's next. My symptoms have been hidden by a foot infection due to chronic...
    Jemma1007 Jemma1007 26-30, F 3 Responses Apr 9, 2013

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    Trying To Understand My Cprs

    April of this year, I took a small fall off a motor scooter which caused me to get a hairline fracture in my right hand. The fracture repaired but the pain and swelling stayed along with lack of mobility of my wrist. My PT was the first to recognize this and within 8 weeks of...
    Shsmith2 Shsmith2 56-60, F 1 Response Jul 23, 2013

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    Can No Longer Walk Without Assist And Only 35yrs Old Have Constant Fever Diagnosed Crps Type 1

      i was in a horrendous accident 5 years ago and  had several cast on my leg and two years for bruising to dissappear  but swelling and discoloration of entire rt side persisted  and then diagnosed with rsd  and degerative bone disease as well...it has so progressed . that...
    mindyhomesick mindyhomesick 36-40 Apr 18, 2012

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    Support groups for CRPS in the USA www.

    rsdhope.org/support-groups.html
    CRPSWarrior CRPSWarrior 36-40, F May 31

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    My Husband Has Crps

    Hi my husband has had CRPS for 2 years since he had a toe fusion operation, he has recently had a neurostimulator implant but this does not seem to have helped much and he is still on 29 tablets a day and lidocaine and morphine patches daily. He gets very depressed and lonely as...
    kim73 kim73 36-40, F 1 Response Oct 25, 2011

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    4 months I had rotator cuff surgery with a full

    recovery expected. Needless to say after several phydical therapy tratments and pain meds I had little to no relief. Finally after being diagnosed with frozen shoulder I was sent to a pain management clinic. After the dr. Reviewed my chart he sat down and explained to me every...
    fancyface19 fancyface19 46-50, F Jul 22, 2014

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    RSD

    I had surgery last year on my right knee to prolong a knee replacement. The incision was just below my knee. The incision got infected which compromised the skin. The orthopedic cut out all the dead skin, which then left me with a hole in my shin. No I am not kidding when I say...
    Missfubar2u Missfubar2u 41-45, F Aug 31, 2013

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    I Have CRPS Too

    I can't really attribute the commencement of this disease to any particular injury. I started getting burning pains in my wrist and I thought I had RSI. I took some time off work and it went away. I went back to work and the pain flared up even bigger than the first time...
    Kimbo3000 Kimbo3000 36-40, F Oct 10, 2013

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    Six years ago I broke my left foot.

    Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to the extent that I couldn't get a shoe on and tie the laces, even a flip flop was uncomfortable. Various experts looked at it and no real...
    barefootshirtless barefootshirtless 41-45, M 2 Responses Dec 9, 2014