I Have Complex Regional Pain Syndrome, Type I

Complex Regional Pain Syndrome, Type I anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Complex Regional Pain Syndrome, Type I. You're not alone. 201 People

    Hello- I've been diagnosed with CRPS

    since July. I'm getting ready to have a spinal cord stimulator trial and was wondering if anyone else has had this done and how it worked for you. I have CRPS in my left foot all the way up tho my knee. my pain level is at a 7 or 8 every day. I'm currently still working or we...
    leah2185 leah2185
    31-35, F
    Mar 22, 2016

    Suffering In Pain Silently On My Couch So My Children Don't Worry.....

    I awoke to my husband coming home this morning, he works nights. All of my dogs ran to greet him at the door and my daughter woke me up saying "Daddy's home"!! I then knew we were up for the day. I have severe pain the moment I stepped foot on my floor. I can only get around...
    hazelnutcoffee hazelnutcoffee
    6 Responses Dec 30, 2010

    Life After The Diagnoses....

    I was recently diagnosed with CRPS1. I have been living with the severe pain for over a year because after a foot injury where a motorized chair ran over the front of my foot and the x-rays showed ;no broken bones there was no way for me to make anyone understand the severity of...
    tabithaAD tabithaAD
    46-50, F
    2 Responses Sep 11, 2013


    Hi everyone. I was diagnosed with RSD of my back and legs7 months ago after being rear ended in a car accident. I'm 24 years married with two children. It's been a huge adjustment. Everyday I hurt, the constant burning and twitching of my legs is unbearable. I have good days but...
    Sherbz Sherbz
    26-30, F
    6 Responses Apr 24, 2013

    I Have Crps Type Ii (causalgia)

    I suffered an injury during my time with the army. I was injured and well after my injury should have healed, the pain persisted. They followed up with doctors which led to my medical discharge. They said I had Degenerative Arthritis. My pain on a scale from 1-10 was at a...
    stewjds stewjds
    1 Response Jan 24, 2013

    Every Day Is A Struggle.

    I'm 19 I'm in college, just moved in with my boyfriend and best friend. life was amazing. I had never heard of CRPS before I was diagnosed. I never had trauma to my left leg. One night watching movies I got up to pop popcorn and my whole leg from my hip to my toes shut down. No...
    Livelovelaugh19 Livelovelaugh19
    18-21, F
    Jan 28, 2013

    Can No Longer Walk Without Assist And Only 35yrs Old Have Constant Fever Diagnosed Crps Type 1

      i was in a horrendous accident 5 years ago and  had several cast on my leg and two years for bruising to dissappear  but swelling and discoloration of entire rt side persisted  and then diagnosed with rsd  and degerative bone disease as well...it has so progressed . that...
    mindyhomesick mindyhomesick
    Apr 18, 2012

    I Was Just Diagnosed With Crps 1 Following A 2nd Back Surgery

    I was just diagnosed and I am not sure of anything yet.  I know it hurts, it's more the constant numbness, pins & needle feelings, exhaustion, and cold/heat flashes.  The dr.s first suspected it after the skin on the bottoms of my feet started cracking and drying and...
    LLgirlsmommy LLgirlsmommy
    26-30, F
    2 Responses Feb 23, 2010

    If I Tell You This...

    i have complex regional pain syndrome type 3. or stage 3, whatever. i know this due to the simple fact that i have been through at least 4 different specialists in the past year and a half. i look back over that year and think, i used to be normal, now im not. let me explain it...
    deleted deleted
    10 Responses Feb 16, 2012


    sorry i havnt been on in a long time, i have been suffering depression and have bearly survived. i have had the worst time. crps has spread nerly in my whole body. im so scared. sorry i havnt been on :(
    jess902 jess902
    13-15, F
    4 Responses Feb 13, 2013

    What Can I Do?

    I have had crps for 2 and a half years now (since the age of 13) I first got an injury to my tendons in my foot playing football in the rain on wet AstroTurf. Now if you have ever been in wet AstroTurf it is like running on wet carpet (you can imagine how slippy that is) now this...
    Buzzbee1235 Buzzbee1235
    2 Responses Apr 24, 2013

    My Husband Has Crps

    Hi my husband has had CRPS for 2 years since he had a toe fusion operation, he has recently had a neurostimulator implant but this does not seem to have helped much and he is still on 29 tablets a day and lidocaine and morphine patches daily. He gets very depressed and lonely as...
    kim73 kim73
    36-40, F
    1 Response Oct 25, 2011

    I have CRPS type II, still in the first stages

    of diagnosis. I have had a bone scan that showed changes in the bone, I will get a nerve block soon to help in diagnosing this painful problem. I have been suffering with this for 6 months. Severe PAIN! I have been put on Lyrica which has toned down the burning pain. I went...
    Terrig1 Terrig1
    46-50, F
    4 Responses May 21, 2014

    Crps Has Messed Me Up.

    misscatatude misscatatude
    6 Responses Jun 27, 2010

    I To Have Been Diagnosed With Crps.

    I have had crps going on two years now. I was diagnosed after having carpal tunnel surgery. The pain started in my left wrist and continued up my arm into my shoulder. I had already had the same surgery on my right hand so I knew what to expect on my left. So I thought. I told my...
    Aphrodyte71 Aphrodyte71
    41-45, F
    1 Response Feb 15, 2013

    Is Crps Causing Weird Side Effects??

    I think I read somewhere that CRPS can cause changes in behavior, mood, nail and hair, etc. I have a question: Can it really change those things?? My hair has gone curly....CURLY out of the blue! I sweat reandomly for no apparent reason (and I mean SWEAT). I get the mood changes...
    easyloper easyloper
    14 Responses Dec 31, 2010

    New Year...new Attitude! Rsd/crps

    I have had a major relapse for lack of a better word. I went back to my pain doctor and he tried a pain patch and increased the nerve blocker and I am out of bed for the first time in a month (for more than an hour)!!! Yeah....while I'm on twice the medication and still...
    easyloper easyloper
    2 Responses Jan 21, 2011

    17 Yrs Old And In Pain

    My daughter is 17 yrs old and has been diagnosed with CRPS type 1, no one my family had ever heard of this disease. The thought of my "baby" having chronic pain the rest of her life is devastating! We had a nerve block done yesterday that did relieve some pain in the forearm but...
    Leslieparrish64 Leslieparrish64
    8 Responses Apr 11, 2012

    Remission?? Crps/rsd Dreaming!

    I have heard a rumor that total remission is possible with CRPS/rsd. Is that a fantasy the doctors tell you thinking it will keep you mentally in a better place? Is a real possibility? I have never met anyone who has had it disappear after onset but I have heard more than one...
    easyloper easyloper
    14 Responses Jan 12, 2011

    I Have CRPS Too

    I can't really attribute the commencement of this disease to any particular injury. I started getting burning pains in my wrist and I thought I had RSI. I took some time off work and it went away. I went back to work and the pain flared up even bigger than the first time...
    Kimbo3000 Kimbo3000
    41-45, F
    Oct 10, 2013

    Trying To Understand My Cprs

    April of this year, I took a small fall off a motor scooter which caused me to get a hairline fracture in my right hand. The fracture repaired but the pain and swelling stayed along with lack of mobility of my wrist. My PT was the first to recognize this and within 8 weeks of...
    Shsmith2 Shsmith2
    61-65, F
    1 Response Jul 23, 2013

    My Crps Is Gone!

    Hi everyone, My name is Kate and I joined this forum because, like you all, I had been been living with CRPS for the past year and a half. I use the word had because after I went to test out an experimental treatment in London yesterday, I have no pain in my foot anymore! Now I...
    HunniBubble HunniBubble
    1 Response Mar 16, 2013

    Ive Recently Been Diagnosed With This Disease!!

      I've been diagnosed with Complex Regional Pain Syndrome but I really dont think that its type 1--I think that its closer to being type 2. This disease has taken over my life, if you call being in pain 24/7 a life.  I dont think that the doctors around here are sure...
    tiredofpain07 tiredofpain07
    46-50, F
    19 Responses Sep 26, 2009


    I had surgery last year on my right knee to prolong a knee replacement. The incision was just below my knee. The incision got infected which compromised the skin. The orthopedic cut out all the dead skin, which then left me with a hole in my shin. No I am not kidding when I say...
    Missfubar2u Missfubar2u
    46-50, F
    Aug 31, 2013

    It Rules My Life

    I began getting serve pain at 17, that was 16 years age. Now the pain which started in my Knee has spread through my both hips, leg, ankles, back, nerve damage, carpel hand syndrome, lower arms and my neck I am in constant pain and left wheelchair bound, if I attempt to stand...
    nikiroulston nikiroulston
    1 Response Jul 7, 2013

    Cant Beleive There Is No End To The Worst Pain I Have Ever Felt

    I just learned about CRPS just this week, my dad actually stumbled on a website containing information about the disease. I was in shock after reading the exact description of what has been going on with me. I have had over 20 doctorsin 3 years tell me that there is nothing wrong...
    jheff39 jheff39
    4 Responses Oct 1, 2012

    4 months I had rotator cuff surgery with a full

    recovery expected. Needless to say after several phydical therapy tratments and pain meds I had little to no relief. Finally after being diagnosed with frozen shoulder I was sent to a pain management clinic. After the dr. Reviewed my chart he sat down and explained to me every...
    fancyface19 fancyface19
    46-50, F
    Jul 22, 2014

    I was wondering if anyone else has dealt with

    this. I have CRPS in my left foot. Now I am dealing with horrible ingrown toe nail on my big toe, and it becoming infected. I will be seeing a new foot doctor later this week. I was just wondering what I might be dealing with...
    CRPSsurviving CRPSsurviving
    26-30, F
    1 Response Jul 7, 2015

    I have had CRPS for 5 years.

    I am a flight attendant and had a passenger fall on me. I first noticed weakness in my legs and a shooting pain down my legs and severe low back pain. Over time I developed atrophy in my legs worse on the left side than right, I began having sharp stabbing pains in my left foot...
    dedelocken dedelocken
    51-55, F
    1 Response Aug 17, 2015

    Wanting To Know More

    I want to know if all of you had to say one word describing Complex Regional Pain Syndrome, what would it be? Please respond its for a project that I have soon. It will stay anonymous but from your personal experience what word would that be?
    Amanda1521 Amanda1521
    18-21, F
    2 Responses Oct 13, 2013

    Trying To Help A Friend....

    Hello, I have recently recovered from relapsed Hodgkin's Lymphoma, which I was diagnosed with in 2009. After 4 years of living in uncertainty and in the face of possible death, and through gruesome chemotherapy, bone marrow transplant and radiotherapy, it's safe to say it had a...
    Shadoweyes19 Shadoweyes19
    22-25, M
    Aug 20, 2013

    I Have Crps 1

    I was diagnosed with CRPS 1 almost a year ago.  I didn't believe the diagnosis and got a 2nd and 3rd opinion.  Everything I have seen on the sites is that it is permanent but no one seems to be able to tell me what happens in the future.  The only thing that all...
    Aclinka Aclinka
    36-40, F
    37 Responses May 12, 2010

    After 2 Years I Got A Diagnosis

    Over 10 years ago I had a snowboarding accident. I noticed pain in my rotator cuff and went to the dr. I was recommended to do physical therapy. I decided not to do the physical therapy. Over the next 10 years I noticed numbness in my hand and electrical nerve pain down my elbow...
    Nicoledenny Nicoledenny
    36-40, F
    1 Response Oct 14, 2013

    Crps, Type 1

    I was in an auto accident in October, 2009. In this accident, I aquired a Labrum tear in my right hip and developed CRPS, type 1. My story is a bit unique, I developed the CRPS in these areas- right buttock, right hip, right groin, and entire right leg. My buttocks on the right...
    hazelnutcoffee hazelnutcoffee
    11 Responses Sep 18, 2010

    My Daughter's Experience

    In April of 2010, my 11year old daughter bumped her head on the wooden bannister at home.  She didn't say anything to me about it but later on, while out shopping, she began to complain of severe headaches, sensitvity to light and a soreness around her head.  It wasn't until...
    lesleyann1962 lesleyann1962
    3 Responses Mar 21, 2011

    My Life With Crps

    In September 1998 I was in a auto accident. I was lucky except for some burns and bruises. So I thought I ended up having to have a sm torn ligament in my wrist repaired. That was in June 1999. Three weeks later I was having pain in my wrist hand and 3fingers. My surgeon tried...
    Pamd1116 Pamd1116
    36-40, F
    5 Responses Mar 19, 2012

    Advise Please....

    Hi, I'm Jemma. I am 28 years old and yesterday was advised I have crps. My doctor was honest & advised that he knew very little about crps. I am waiting for an appointment with the specialist to find out what's next. My symptoms have been hidden by a foot infection due to chronic...
    Jemma1007 Jemma1007
    31-35, F
    3 Responses Apr 9, 2013

    This Is Getting Harder Each Day.

    I am a 43 man that has been diagnosed with CRPS/RSD for the past 6 years. This is very difficult to deal with, and then the added side affects of the meds. How do people continue to get through each day. I am a retired Navy Hospital Corpsman and am still working full time. It...
    mraiderfan67 mraiderfan67
    3 Responses Jun 3, 2011

    CRPS For 7 Years.. Any Reccomendations For Treatments From Pain Clinic?

    So about 7 years ago I injured my right ankle and the pain has never gotten better. I was diagnosed with CRPS about 6 years ago and the doctors have tried surgery and all that to no avail. I find it really difficult to find people who understand what it is like living with severe...
    Amanda0328 Amanda0328
    7 Responses Jul 17, 2013

    I was diagnosed almost 3 years ago.

    I tore my Achilles tendon in my left foot. I am now trying to start a benefit dinner. The theme is fire and ice. I was just wondering if anyone has any tips on decorations... I'm really hoping that I will be walking without assistance by then...
    CRPSsurviving CRPSsurviving
    26-30, F
    Jun 20, 2015

    Wow....life Can Change In An Instant

    I was just running to catch a loose horse and in my hurry didn't look where I was going and walked right off a step (a SINGLE step) and fell to the ground. I thought for sure I had broken my foot it hurt so bad. After a trip to the hospital (where a rude and grumpy ER doctor...
    easyloper easyloper
    5 Responses Dec 27, 2010

    Trying To Understand Crps Type 1

    I am new here and i also have crps type 1.I have been on all different types of medications and treatments but nothing seems to work. Everyday i wonder what the future holds. The specialist and doctors keep saying that this isn't a permenant condition, it will eventually burn out...
    flaminggal flaminggal
    41-45, F
    12 Responses Jan 27, 2010

    5 Years Of Dealing With Crps

    I was at work doing my daily activities. When i was hurt since that day i have had un believable pain, muscle spasume joint pain i even drop things now. Its So frustrating especial dealing with a doctor that kind just pushes me off to the side and keeps compareing me to other...
    Calipso32 Calipso32
    36-40, F
    2 Responses Mar 22, 2013

    Teen Athlete With CRPS: My Story From The Start

    I was a very active elite athlete at my high school. In fact I was the top girls athlete in our school. I had just started my sophomore year of track and field and my coaches were very excited about this year because I had huge potential to be a top state athlete. That all fell...
    elizabrooke elizabrooke
    3 Responses Jul 5, 2013

    Support groups for CRPS in the USA www.

    CRPSWarrior CRPSWarrior
    41-45, F
    May 31, 2015

    I know how you feel,

    after an accident to my knee (I was knocked over in a crowd and hit my knee on the corner of a concrete step) which showed nothing on x-ray I suffered with excruciating pain whereby even the sheet brushing my knee whilst I was asleep would wake me up in agony. After 8 months of...
    LadyMandy LadyMandy
    51-55, F
    2 Responses Feb 18, 2014

    My Sons Is Pain Free Today After 2 And A Half Years With Rsd/crps.

    My son was 10yrs 2 months when he damaged his ankle hopping. He landed on a rut in the long grass. He couldn't put any weight on his leg and was in considerable pain/discomfort. Then started a long chapter of medical miss-management. No-one meant to hurt him, they just didn...
    1 Response Feb 16, 2013

    Crps/rsd Allodynia

    I have major crps in the dominant arm from an improperly administered TD vaccine, it happened in Nov, 2007, and I was finally diagnosed in Apr, 2010. My crps has progressed to the stage where the entire arm/skin is highly sensitive to temps, weight, circulation, skin turns red...
    FeelingTheBurn347 FeelingTheBurn347
    36-40, M
    8 Responses Sep 30, 2010

    Six years ago I broke my left foot.

    Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to the extent that I couldn't get a shoe on and tie the laces, even a flip flop was uncomfortable. Various experts looked at it and no real...
    barefootshirtless barefootshirtless
    41-45, M
    2 Responses Dec 9, 2014

    Never Thought I Could Walk Again

    My name is Amanda. I got injured my eight grade year. I slipped down my stairs and broke my railing in half with my foot. I improved from my injury but re-injured it in gym my freshman year. I couldn't walk, I lost complete feeling in my foot. I have gone through 5 doctors, which...
    Amanda1521 Amanda1521
    18-21, F
    Sep 16, 2013

    A Night Out With A So Called Friend Ruined My Life...

    a friend asked me to go out with her one night to celebrate her divorce. we went to a bar i had 3 drinks leaned against a sink to adjust my pants leg out the back of my heels and the sink collapsed around my hand cutting all tendons nerves muscles and ligaments. 5 hours of...
    alexisd86 alexisd86
    31-35, F
    4 Responses May 4, 2013

    We have made it easy

    for all those who have been waiting for their dream come true of owning a world Pre owned Ferrari Car. Above everything, our lucrative offers for buying a second hand Ferrari car is another plus point for buying with us. Our aim for keeping our customer’s happy and we try to...
    exoticferraricars exoticferraricars
    31-35, M
    Mar 5, 2014
More Stories