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I Have Complex Regional Pain Syndrome Type II

Complex Regional Pain Syndrome Type II anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Complex Regional Pain Syndrome Type II. You're not alone. 4 People

    I Have Crps Ii

    I suffered an injury during my time with the army. I was injured and well after my injury should have healed, the pain persisted. They followed up with doctors which led to my medical discharge. They said I had Degenerative Arthritis. My pain on a scale from 1-10 was at a minimum...
    stewjds stewjds 26-30 2 Responses Jan 24, 2013

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    I Had Accident At Work,

    I had a accident at work, 12 months later Diagnosed with crps, Loads drugs later and going on 18 months now I'm still in pain, under a great pain team ( clinic ) having injections, some help few haven't . Still have few options open ( hoping ). Wife 3 kids, maybe explain more...
    Ninnyd Ninnyd 31-35, M Oct 8, 2012

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    Related Experiences

    4 months I had rotator cuff surgery with a full recovery expected. Needless to say after several phydical therapy tratments and pain meds I had little to no relief. Finally after...
    fancyface19 fancyface19 46-50, F 1 day ago

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    I was wondering if anyone in the US knows of a great POTS clinic. I tried the mayo clinic program and it didn't help. I need a clinic that can help with my muscle degeneration...
    POTSforever POTSforever 16-17, F 2 Responses Jul 9

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    Is there anyone who has pain in night, too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I...
    lebenskuenstlerin lebenskuenstlerin 46-50, F 3 days ago

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    I have had POTS since the last two months of my eighth grade year. It took until December for my illness to finally be diagnosed as POTS. But even though I had a diagnoses I still...
    POTSforever POTSforever 16-17, F 1 Response Jul 5

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    I went to the doctors today to check up on my lymes. Last Time I was in there they re tested me to make sure I had it we got the results today and it came back negative. But Iv...
    Megan2020 Megan2020 13-15, F Jun 26

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    Over a year ago I was diagnosed with Postural Orthostatic Tachycardia Syndrome. I've battled high school with this non curable disease, but I now I graduated and it is time for me...
    heyycutie16 heyycutie16 18-21, F 2 Responses Jul 13

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    So glad to have found this. The only other POTS groups I am a part of are on Facebook and I don't really want my friends knowing how much I struggle. Feeling comfort in the...
    Zebra223 Zebra223 26-30, F 1 Response Jul 3

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    Hey fellow POTSies! Just out of curiosity, what does everyone do as far as work/job/careers if anything? And if you are in school, what activities/sports/etc are you involved in...
    Ktglisson87 Ktglisson87 26-30, F 3 Responses Jul 3

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    I want to express my frustration without offending anyone. I get very down on myself when I read about other POTSies who are athletes or can run. I am extremely happy for them that...
    Zebra223 Zebra223 26-30, F 2 Responses Jul 3

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    Have any of you tried to go gluten free cuz of pots?? I just recently did and wondered what other people's experience has been with it?
    Ktglisson87 Ktglisson87 26-30, F 1 Response Jul 4

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    Do any of you have terrible memory loss/brain fog, severe muscle degeneration, feel extremely weak?
    POTSforever POTSforever 16-17, F 3 Responses Jul 15

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    There is hope. Learn about some of my experiences with pots and how I have learned to cope and help lessen my symptoms! I've been dealing with pots for a year now so I can promise...
    cassidybute cassidybute 18-21, F Jul 16

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    Does any one have cognitive memory loss?
    POTSforever POTSforever 16-17, F 2 Responses 5 days ago

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    Have any of you been in physical therapy and did what they told you to a gotten injured? This has happened to me several times.
    POTSforever POTSforever 16-17, F 1 Response 5 days ago

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    I have had chronic back pain for about 3 years now. It used to hurt so bad sometimes I didn't want to move, just lay there eyes open wide. I tried everything, physiotherapy...
    jonacular jonacular 22-25, M 1 Response Jun 27

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    Anyone else dealing with chronic pain? I have has 3 back surgeries, the last a fusion. None really helped, my left buttcheek and the back of my left leg is numb. Has been for 6...
    RMCG RMCG 51-55, F 1 Response Jun 26

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    I am dying, this week has been brutal. Pain at a 7-8 on the pain scale seriously messes you up. Have an appt on 7/7 and I have to push for a MRI (again) and maybe some steroid...
    RMCG RMCG 51-55, F 2 Responses Jun 27

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    The day I was sitting in the hospitals waiting room and a dr came in and I just knew by his face that my mum had past. Everything around me went in slow motion and I could hear my...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F Jul 1

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    Ugh today has been horrible. I'm in so much pain and I can't do anything to get comfortable
    toinfinityandbeyondx3 toinfinityandbeyondx3 18-21, F 1 Response 2 days ago

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    My mom has POTS and I need help understanding it more
    lilmisslouhoo lilmisslouhoo 13-15, F 2 Responses Jul 2

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    I am 13 now. I was diagnosed with it when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone...
    princesshayray princesshayray 13-15, F 2 days ago

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    My husband suffers from chronic wide spread nerve pain. He has been diagnosed with small fiber neuropathy, fibromyalgia, and myofacial pain syndrome. The best way to describe what...
    overwhelmedandexhausted overwhelmedandexhausted 26-30, F a week ago

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    So I do not have Lupus, but I was wondering if anyone could give me a little bit of feedback. I went to a neurologist a few years ago for muscle twitching everywhere. He...
    Anxiousgirl13 Anxiousgirl13 18-21 1 Response Jun 30

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    I've injured my back twice now within the last year and a half, among other things, but I'll focus on my back specifically for this. The first time it happened I was working for...
    KashikH KashikH 18-21 Jul 1

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    Somehow, thankfully, I'm able to sleep. I had a hip injection to help relieve pain. I won't have the full pain relief for a few days but I'm so tired from the injection process it...
    Kelloggs207 Kelloggs207 31-35, F Jul 2

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    I'm a painter. I almost always have a little paint in my hair or dried on my close and I don't care. I really just...don't
    Cozie Cozie 13-15, F 3 Responses Jul 13

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    It truly sucks having extremely painful periods. No doctor can tell me why I hurt so badly. I don't know if it has to do with PCOS or having cerebral palsy. No doctor has a...
    sweetstar1 sweetstar1 22-25, F 4 days ago

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    I have chronic back pain. Currently due to retrolisthesis above my L5,4,S1 fusion
    merrym637 merrym637 51-55, F 4 days ago

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    I've really screwed up. I try so hard to and I always slip back into my old ways. You would think after maybe three hospitalizations I would have everything under control but I'm...
    blahlahblah599 blahlahblah599 16-17, F Jul 6

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    I was on vacation and noticed a fairly large bald spot in the back. My hair is thinning and I'm dreading showering because every time more hair seems to fall out. Does anyone have...
    sugarplumsandgumdrops sugarplumsandgumdrops 31-35, F 1 Response Jul 16

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    so i got braces two weeks ago *havent experienced any pain* but my gums are becoming swollen, i brush like 4 times a day, and proxy brush every time when i brush. i cant figure out...
    boodlebug13 boodlebug13 13-15, F 6 days ago

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    My story is of us. We have been together for close to 10 months and the beginning felt like a fairytale. I had a cautious heart at first because this is my first relationship, my...
    livelydreamer2 livelydreamer2 18-21, F 1 Response Jun 24

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    When I was eleven I went to boarding school, leaving my three year old stepsister, Molly, at home. I had always been short for my age, and she had been rather tall but she was 3 so...
    betsy92 betsy92 18-21, F 1 Response Jul 13

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    I have BDD and I am constantly jealous of other girls... Wishing I looked like them! Wanting the opposite to everything I have!! It's painful :(
    hollieberri hollieberri 26-30, F 1 Response Jul 15

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    Questions About God These are my thoughts.... when you pray for your sins... god will throw your sins into the sea as if it never happened... but memory is the consequence... as...
    ChessHottie ChessHottie 18-21, F 3 Responses 3 days ago

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    I have no idea if this really has anything to do with anxiety, and I also have no idea if it's asthma or some other medical thing, hoping someone here can help me since I'm so...
    sugarcakes143 sugarcakes143 18-21, F 2 days ago

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    I had what I thought was piriformis until it became chronic, simultaneous with my toes becoming restless. That sounded more like RLS. Then I had an inspiration and started wearing...
    echinoderm echinoderm 51-55, M 11 hrs ago

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    So I found my aunts journals today. They were her cancer journals. She wrote in them from 2002 - 2005. She wrote down e everyday of her life with cancer. Every bit of pain she went...
    CeBeY1 CeBeY1 16-17, F 1 Response 31 mins ago

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 Jul 1

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 1 Response Jul 1

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    I have a rare disorder called Loeyz-Dietz syndrome in a bad form. 28 surgeries. 3 open heart. Another coming soon. I can walk and appear mostly normal, but I suffer minimum 8/10...
    longcat4u longcat4u 31-35, M 2 Responses Jun 30

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    Ugh. Joint pain is so bad when it rains. I just want to wrap up in a huge heating pad.
    ImBatmanNow ImBatmanNow 51-55, M 1 Response Jul 7

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    I have EDS and chronic joint pain. I also have Tendonitis. I wonder if my Tendonitis has anything to do with my EDS.
    elenanicole elenanicole 16-17, F Jul 11

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    OK! I don't believe then this not more out here for women with Ovarian Remnant Syndrome. I was told 12 yrs ago I have ORS and have had 5 surgeries to take the remnants out. I still...
    Julieban Julieban 46-50, F 1 Response Jun 25

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