I Have Cone Rod Dystrophy

A Cone Rod Dystrophy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cone Rod Dystrophy. You're not alone. 4 People

    God Is With Me

    Almost five years ago, i started having trouble driving. Especially at night. I was 38 years old. I thought age was creeping up on me and i needed glasses. Through numerous trial and error trips to local optometrist and expensive glasses with no relief, I was referred by my...
    lovelyspirit lovelyspirit
    2 Responses Oct 30, 2012

    I'm 15 right now. My birthday is next month.

    My 16th. Most kids get really excites turning 16. For me, its just another year. I was born with a condition called cone-rod dystrophy. I can only really see 3 to 4 feet in detail in front of me. I've had to grow up fast and learn how to do things for myself. School was never...
    stayingstrong143 stayingstrong143
    18-21, F
    Feb 4, 2014

    Teenage Struggle With Eyesight

    I am 16 years old and have rod-cone Dystrophy... People keep talking about how it just came upon them. But i was born with it.. I have had glasses sense i was 18 months old. And i am struggling through high-school right now. My light sensitivity is so bad I need sunglasses when...
    Skyebluefeather Skyebluefeather
    18-21, F
    3 Responses May 29, 2013
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