A Congenital Amegakaryocytic Thrombocytopenia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Amegakaryocytic Thrombocytopenia. You're not alone.
amegakaryocytic thrombocytopenia. I am looking for a support group for this so myself and daughter can share the experience and stories with others.
Baby Finn was born 20th May 2013 in England UK. He was so poorly with this condition at birth and only lived for 3 hours.