I Have Congenital Fiber Type Disproportion

A Congenital Fiber Type Disproportion anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Fiber Type Disproportion. You're not alone. 21 People

    My Son Has Cftd And I Am So Confused About It.....

    My son, who is now three, has had several life threatening episodes in the first few weeks of his life. He was hospitalized for months but no one could figure out exactly what was wrong with him. He had several issues, choking, excessive spitting up, weakness, lethargy, and...
    jannacookie jannacookie
    7 Responses Sep 16, 2012

    Have You

    Has anyone thought your weakness was basically a joke and got mad at you for being weak. Have you been so weak your muscles gave out and you collapse have you woken up with a million things you had to do but couldn't lift your hand. Finally other people who understand
    kaycoe kaycoe
    26-30, F
    May 6, 2013

    New Study On Cftd And Support Groups

    Hi everyone, I have already written a story on this site about my three year old son who has CFTD but decided to post another one to tell everyone about another support group on facebook called "Support for families and friends of people with congenital myopathy". I find...
    jannacookie jannacookie
    Nov 29, 2012

    Uncertain Future

    I am a 30 year old woman who was born with a rare form of Muscular Dystrophy called Congenital Fiber type disproportion. Right now, I battle a lot of pain due to several spinal fusions and reconstructive surgeries on my feet. I feel like my body is crashing. I went to college 5...
    Krin Krin
    6 Responses Sep 1, 2008

    Child With Cftd

    I have a 3 year old that was diagnosed with CFTD about 10 months ago, she is receiving PT. My concern is will she ever have a normal life, I do see that she is progressing in what she does, she is just starting to be able to go down small steps still cannot go upstairs though...
    yvettekarla yvettekarla
    6 Responses Oct 22, 2012
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