I Have Congenital Hydrocephalus

Congenital Hydrocephalus anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hydrocephalus. You're not alone. 19 People

    I Was Born With Hydrocephalus

    Dear all, I came across this site and wanted to share my experience with you..... I was born with congenital hydrocephalus. We're talking 35 years ago now, so quite a while back! I don't remember much, being a child, I don't think you do as much. All I remember is having...
    Deluxe1 Deluxe1
    36-40, F
    Feb 24, 2013

    Does anyone else feel completely hungover

    when there is rainy weather? the change in the barometer really just does not agree with my hydrocephalus.
    Morganks88 Morganks88
    26-30, F
    Jun 2, 2015

    Small Miracles. How One Mother Is Overcoming The Challenges Of Congenital Hydrocephalus

    I just read this story online and figured I'd share it. It's a very heart warming tale. Check it out when you have a chance: Ruby is a single mother of four children. Her youngest daughter was born with Congenital Hydrocephalus, which is a buildup of excess cerebrospinal fluid...
    anviladv anviladv
    31-35, M
    Dec 29, 2009

    When I was born, I was in a hospital

    for a while because of my hydrocephalus and my mom had toxemia. The doctors told my parents the hydrocephalus went away on its own miraculously, but that I would grow up with a learning disorder. My parents took me to a special therapy to have my motor skills and cognitive...
    hiddenkitty hiddenkitty
    18-21, F
    Aug 18, 2015

    Do you suffer from Hydrocephalus

    as well? Or are you a parent of someone with it. I have created a website which you may find interesting. The website is accessible to everyone and can be found at the following link. http://www.hydrocephalusgroupinternational.com
    aussieman01 aussieman01
    56-60, M
    Oct 26, 2014

    Living With Hydrocephalus!!!

    When I was born 40 years ago my parents  was given some unexpected news about their child that any parents would ever want to hear from a doctor about their new boudle of joy;that their child would be born with something wrong with them. Shortly after I was born the doctor's...
    Rosena Rosena
    36-40, F
    2 Responses Oct 21, 2009
More Stories