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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 58 People

    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    Ch And My Baby

    My mother was diagnosed with "the worst case of hashimotos" her doctor had ever seen about a year before I got pregnant. We had never really heard of this disease before, but as we dug into it we discovered that I exhibited a lot of the symptoms associated with hashimotos. So I...
    Jan 9, 2013

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    I'm Jennifer. 28 years old,

    from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had always been treated with an air of mystery. .. when I was a kid, knew I had to take a pill for the rest of my life or I would "get...
    Genesis478 Genesis478 26-30, F 3 Responses Apr 12

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 2 Responses Apr 23, 2014

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 Feb 23

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    Congenital Secondary (Central) Hypothyroidism.

    Means my thyroid gland still works quite fine but it isn't being stimulated by my pituitary gland to release hormones. And the "Congenital" part is supposed to mean I was born with it but the Wikipedia article places Congenital Hypothyroidism in its own category separate from...
    Jugemu Jugemu 31-35, M Mar 7

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F 2 Responses Dec 25, 2014

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my pain & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    Related Experiences

    I have so much, nearly all negative, So much so that I feel I have no mind left.
    yeahtimesahundred yeahtimesahundred 31-35, F 35 mins ago

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    Recently I have been trying to date this really nice guy (who I honestly don't believe would ever hurt me) but I have been noticing that the anxiety I am having about him seeing me...
    Khrysanthemum Khrysanthemum 31-35, F 1 Response 59 mins ago

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    Just remember that you don't ever have to seek approval from anybody. I was never loved as a child and now I'm always seeking for approval. It seems as though the world says that...
    trovatobravo trovatobravo 18-21, M 1 hr ago

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    Part 2 (One week later) "Hey mom!" I walked into her bedroom wearing some shorts and a shirt that I wore a week ago "Do you think I've gained weight? I mean this used to fit...
    amanda369 amanda369 18-21, F 1 hr ago

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    Oddly enough people enter our lives at different times and each I believe with great meaning. When I have felt unwanted and undesired, when I needed to know I was still alluring...
    FairytaleDreams FairytaleDreams 36-40, F 1 Response 1 hr ago

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    this makes number 2 within a year. I am emotionless, embarrassed, ashamed, regretful (very regretful), scared, speechless. im not a heavy drinker. don't drink everyday, but I do...
    msari10 msari10 22-25, F 2 hrs ago

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    And needs help! I am married for 3 years, got a dog, 6 cats and just bought a house. My husband and I are high school sweethearts. We found out I have pcos when I was 20 after...
    Mlamtn Mlamtn 26-30, F 3 hrs ago

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    "Do you have a problem with that?" is one of the contemporary American catchphrases. . Yes, I do. I have many problems with most of what is going on in this society. Very basic...
    ElvisPrickly ElvisPrickly 51-55, M 3 hrs ago

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    I no longer mind the idea of destroying myself. In fact, I have been craving it; and have been smoking and drinking at every given opportunity. I feel determined to self destruct...
    CaitlinBuchan97 CaitlinBuchan97 18-21, F 5 Responses 4 hrs ago

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    I have cried myself to sleep more than once. And tonight, i think its going to be another night....I just know its happening, I can't stop the tears now, and I haven't even laid...
    BroknGirl89 BroknGirl89 26-30, F 4 hrs ago

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    We see the world in three dimensions and many people understand the fourth dimension to be time. Does anyone have a confident understanding of what the fifth dimension consists of...
    ItsTooEasy ItsTooEasy 51-55, M 1 Response 5 hrs ago

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    Tonight I have been destroyed by the one I thought would never do it to me I thought she loved and cared for me but what she had said to me tonight I now no differently. I am...
    Sirwithherkey Sirwithherkey 36-40, M 5 hrs ago

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    I know what it's like to wait until everyone's sleeping till you can be alone and hurt yourself. I know what it's like to spend an hour in the shower because it's the only place...
    Bitxh0x Bitxh0x 13-15, F 5 hrs ago

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    It's true that I don't need either to have fun, I've had lots of fun without them, but I also have fun with them. So to me it's fun getting drunk and/or high with friends and...
    udamansteel udamansteel 16-17, F 5 hrs ago

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    I now have 5 tattoos! one of which is a very realistic looking black widow on my shoulder. it's fun when people get behind and start to freak out because they think I have a spider...
    ShysietheVampiric ShysietheVampiric 18-21, F 6 hrs ago

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    So I made an account for this website to share my story about having polycyclic ovary syndrome. I was only diagnosed two days ago but after talking to my doctor and reading...
    JudgementFreeMe JudgementFreeMe 22-25, F 6 hrs ago

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    Lately i have been dreaming alot about Stars and planets. I usually meet people that i know in Real life First Dream: Chasing Stars, i was just flying and gathering...
    Selfconsciousness Selfconsciousness 18-21, M 6 hrs ago

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    I’ve had enough of this crap. Enough is enough is enough. I really need to take a break, away from this crazy stuff. You’ve made my life a misery. Well, now the worm has turned...
    TonyGrey TonyGrey 31-35, M 7 hrs ago

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    My husband loves me like a person loves a loyal dog. He's never been in love with me and he's only staying with me because he doesn't have another place to immediately go to, and...
    milalew milalew 26-30, F 7 hrs ago

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    It would be nice to make some friends on here, that actually seem interested in talking, and I don't have to put all my effort talking while they say three words all the time and...
    mr8bitmonster mr8bitmonster 18-21, M 1 Response 7 hrs ago

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    Humm... I have a date tonight i am not sure about... Don't really want to go at this point... but It's my first one in a VERY long time... I ask, but everyone i ask says no...
    nocool nocool 41-45, M 11 Responses 8 hrs ago

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    I have urge incontance and used to have a few accents but i started to wear protection and now not a problim if i cant hold it
    MattB1997 MattB1997 16-17, M 8 hrs ago