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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 57 People

    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23, 2014

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 Feb 23

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Ch And My Baby

    My mother was diagnosed with "the worst case of hashimotos" her doctor had ever seen about a year before I got pregnant. We had never really heard of this disease before, but as we dug into it we discovered that I exhibited a lot of the symptoms associated with hashimotos. So I...
    Jan 9, 2013

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F 1 Response Dec 25, 2014

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    Congenital Secondary (Central) Hypothyroidism.

    Means my thyroid gland still works quite fine but it isn't being stimulated by my pituitary gland to release hormones. And the "Congenital" part is supposed to mean I was born with it but the Wikipedia article places Congenital Hypothyroidism in its own category separate from...
    Jugemu Jugemu 31-35, M Mar 7

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    I'm Jennifer. 28 years old,

    from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had always been treated with an air of mystery. .. when I was a kid, knew I had to take a pill for the rest of my life or I would "get...
    Genesis478 Genesis478 26-30, F 2 Responses Apr 12

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Related Experiences

    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    hi I recently found out that I have hypothyroidism which my doctor mistook for pcos as I was getting the symptoms of pcos from hypothyroidism (aka my husband and I were having...
    rachel1996 rachel1996 18-21 2 Responses 2 days ago

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    I was wondering what will happen to my hormones if I don't take my levothyroxine at the same time every single day? I was 4 hours late today because I forgot to take it and I'm...
    rachel1996 rachel1996 18-21 4 Responses 1 day ago

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    I was diagnosed with congenital absence of the inferior vena cava a couple years ago. I was born with it, and although my mom said I was born with one leg that was swollen and...
    deleted deleted 26-30 1 Response May 20

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    Hi there, my name is Nick and I'm 19. I was born with congenital nystagmus and since have had 6 eye surgeries that have left me with strabismus. I was born with a head turn and was...
    soccerfan31 soccerfan31 18-21, M 4 Responses May 12

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    Thanx to my hypothyroidism, I have a real bad sleeping schedule. Tried several (herbal/natural) remedies, breathing excersises, meditation and"fixed schedules". Some days I am so...
    MissLunaDomina MissLunaDomina 31-35, F 11 Responses May 18

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    Kind of, if you can call it that.I dont listen to music every day or even every week but I find music can have a strong impact on my emotions. It can make me happy and feel like...
    stargirl58 stargirl58 26-30, F 7 hrs ago

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    I'm Bipolar. I was diagnosed when I was 27, but have been bipolar since I was a kid. Ever since I found out, My therapist taught me techniques to keep myself grounded and to tell...
    edizzy666 edizzy666 31-35, M 1 hr ago

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    They gray skies correctly illustrates the somber mood I am in. The brief and random thunder describes a sadness within. Light drizzle falls upon me as I take leisurely stroll in...
    FightingPhoenix FightingPhoenix 46-50, M 1 Response 8 hrs ago

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    so here lately ive been a complete mess. my words keep getting turned around and replacing r's with w's and adding extra letters to my words. i keep losing my words. sometimes i...
    Aeril Aeril 18-21, F 4 hrs ago

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    it's never changing, we're with different crowds, we have different goals, we're different. we have different friends, we're on different roads and honestly. we dont, wont, and...
    debonaireash debonaireash 18-21, M 28 mins ago

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    I went through hell and back to get my degree but I'm still not happy. At my graduation I didn't care to stay I just wanted to leave. Everyone was rejoicing around me and I'm just...
    CrystalKlear17 CrystalKlear17 18-21, F 3 Responses 5 hrs ago

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    A smaller circle to me means a closer bond to those of you with which I share a particular connection. Some of you fill my heart with great spirit. Some ignite my soul with fiery...
    Loverofpeace Loverofpeace 41-45, F 2 Responses 4 hrs ago

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    So I have chicken pox! Kudos to my son lol. On a serious note never thought I would have this at my age, I remember using calamine lotion as a kid so figured I had it before or...
    Mama86 Mama86 26-30, F 2 hrs ago

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    I think everyone is entitled to beliefs and opinions. Obviously we all have them and I think everyone has the right to be heard as long as it is said in a non demeaning way and as...
    stargirl58 stargirl58 26-30, F 1 Response 7 hrs ago

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    When I first discovered my personalities, I wasn't sure how to handle them, but as time went by, I got used to them and started loving each of them very much. Sometimes it's crazy...
    Silverfeather1993 Silverfeather1993 18-21, F 6 hrs ago

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    Yeah, his name is Tyler, one of my personalities. I honestly don't know what is his deal. For as long as I can remember, he's been trying to ruin my life, always getting rid of my...
    Silverfeather1993 Silverfeather1993 18-21, F 5 hrs ago

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    My friend is about to have her baby. I'm soooo jealous lol. But, I'm happy for her and I'm always going to be here to help her. I can't wait to get pregnant. Daily it passes my...
    Weareallmadhere22 Weareallmadhere22 13-15 1 hr ago

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    I'm 25 years old, female and Ive been ruminating as long as I can remember. Maybe it developed when I was very young? As far as I know, Ive always had it and Ive always just...
    Cintilatingsynchrony Cintilatingsynchrony 22-25, F 7 hrs ago

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    Apologizing doesn't have to be admittance of guilt, or regret. If you've done something that hurt someone you care about, you can apologize just to let them know you care. There's...
    LIVISHA LIVISHA 18-21, F 1 Response 7 hrs ago

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    Is it normal to have social anxiety but to not fear public speaking?
    biancaxxb biancaxxb 18-21, F 2 Responses 5 hrs ago

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    I have a condition called micropenis. I am only 5cm down there. I hate my life.
    lifewithamicropenis lifewithamicropenis 18-21, M 4 hrs ago