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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 52 People

    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 Dec 22, 2008

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Should I consider dating someone with TGA? Hi all, I have recently met this great guy and I am just starting to get to know him but he has already told me that he has TGA. He is...
    LittleRedStuff LittleRedStuff 36-40 1 Response Nov 1

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    So it has been a week since I started my medication for hypothyroidism and I feel worse than before! I am tired, moody, I ache all over and I can't do my job at my best! I can't...
    youngteach youngteach 22-25, F 2 Responses Oct 21

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    So, it's taken me several years to build up the courage to even think about this story. My only wish is to purge myself and to hopefully inspire, inform, and encourage guys like me...
    JamesMcC93 JamesMcC93 18-21, M 3 Responses Nov 6

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    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response 2 days ago

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    I work with endocrinology patients. This may help some of you, so I would like to put it out there.I would like to take a moment to share a new research article with you that...
    kmr9346 kmr9346 22-25, F 2 days ago

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    Hi all!I would like to take a moment to share a new research article with you that highlights the connection between thyroid inflammation (autoimmune thyroid diseases like...
    kmr9346 kmr9346 22-25, F 2 days ago

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    I think I might have it actually I'm not 100% sure Since July my beautiful silky usually greasy hair has become very dry and brittle and my scalp is very dry and flaky. I've been...
    kelbel95 kelbel95 18-21, F 2 Responses Oct 22

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    I had a right side thyroidectomy about two years ago, because of some problems with insurance I didn't start taking medication, until a couple of months ago. I have a problem...
    ofthisgirl90 ofthisgirl90 22-25, F 1 Response Oct 26

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    I am engaged to my best friend of 8 years, partner of 3 years who happens to be in the military. We both want kids someday. We are not in the situation currently to have a child...
    Lexx42 Lexx42 18-21, F 1 Response 7 hrs ago

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    A few years ago I was participating in a marathon event and at the half way mark I was super tired and felt just like I was running through treacle. As I am keen on fitness I...
    jjthornton jjthornton 41-45, M 5 hrs ago

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    Just found out... I wasn't surprised when the doctor told me the news. I had already been doing my research on it and my symptoms were practically identical to everything I was...
    anomalnonomous anomalnonomous 26-30, F 1 Response 6 hrs ago

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    sorry i need to vent yesterday i found out tmy mom does have lung cancer im probably youn g i went had a few glasses of wine then i was like a kid phoned people its cause im not a...
    hannahabbie hannahabbie 46-50, F 2 hrs ago

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    Top 4 questions/requests people have asked me by mail. 1) Hi ZA, why do health experts say light Brown three are the healthiest stools? Anyway we can achieve it too? My A to him...
    ZADoubleMesser ZADoubleMesser 22-25, F 1 hr ago

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    If at least two of them have a Yes as your answer, you're a great friend to bond with :) 1. Do you enjoy messing yourself? 2. Do you enjoy messing stuff up? 3. Do you plan your...
    ZADoubleMesser ZADoubleMesser 22-25, F 48 mins ago

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    when I was a child I had a racist step father who beat me kicked me spat upon me and cursed filthy things in dutch. my mother hated me beat me and belittled me! and both dared to...
    Arimatthewdavies Arimatthewdavies 51-55 40 mins ago

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    It is so tough to change or heal. When for my entire adult life, I have been in bad relationships. I have no more relationships( boyfriends) the past 2 years but I still get...
    Howtobeme Howtobeme 51-55, F 7 mins ago

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    Dreamt about my old crush approaching me then he said in my ear "I have a gf that I miss so much. Why did you leave without telling me?" Then when things got existing I woke up...
    itsjustme11119 itsjustme11119 16-17, F 1 Response 8 hrs ago

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    Sorry just deleting some people on my circle. I'd rather have few on my circle than have a long list but you never actually spoken to them.
    Lakee112812 Lakee112812 36-40, F 2 Responses 5 hrs ago

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    For most of my adult life I've suffered from alcoholism. For years I lived under the illusion of control, 'I got this, I can handle this, I know what I'm doing' were my standard...
    Allysoninaz Allysoninaz 46-50, M 2 Responses 1 hr ago

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    I want to know, have you ever seen the rain? I want to know, have you ever seen the rain Comin' down on a sunny day?
    jml2000 jml2000 56-60, M 28 mins ago

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    I have a lot on here. Lots of people think I'm a man pretending to be a woman. People ***** at me saying I'm an attention seeker. Why do they give a ****?
    BreakingTheBad BreakingTheBad 22-25, F 9 hrs ago

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    I have an African grey named Bailey, he is my baby! Parrot are so hilarious! Your birdy talk?
    happyowlseatingpizza happyowlseatingpizza 18-21, F 9 hrs ago

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    One thing I really regret is pushing people away. I've realized I missed out on great opportunities and I may never be able to have another chance. My insecurities and my past...
    nostalgickittens nostalgickittens 16-17 9 hrs ago

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    one of my roommates is a pole dancer! we r friends from b4. not in the friend zone by choice, but cuz neither of us been single amd/or available at the same time, it just hasn't...
    hardinya247 hardinya247 41-45, M 8 hrs ago

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    my account name is 2ndchance2savealife have a nice night :)
    GayboySammy94 GayboySammy94 18-21 8 hrs ago

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    I have been disabled since 2006 and I am now starting a new business of Real Estate Investing!
    Newfie99 Newfie99 51-55, F 7 hrs ago

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    I dreamed of my crush. He was asking me to go to the gym with him because he needed a lot of physical activity. He also asked me to go to his place to keep him company. He also...
    EruIluvatar EruIluvatar 70+, F 1 Response 7 hrs ago

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    It's a bit shorter the usual. Been thinking about cutting it a bit more but not sure if I can pull off the short look. With the Oval face shape maybe. Isn't it supposed to be...
    katariffik katariffik 31-35, F 2 Responses 6 hrs ago

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    I have had erythema nodosum, only one bout of it because I found a cure, sure it took a little while to clear up but got there in the end CHLOROPHYLL! Try it people :) it really...
    AmyRob11 AmyRob11 22-25, F 6 hrs ago

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