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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 58 People

    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 2 Responses Apr 23, 2014

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    Congenital Secondary (Central) Hypothyroidism.

    Means my thyroid gland still works quite fine but it isn't being stimulated by my pituitary gland to release hormones. And the "Congenital" part is supposed to mean I was born with it but the Wikipedia article places Congenital Hypothyroidism in its own category separate from...
    Jugemu Jugemu 31-35, M Mar 7

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 Feb 23

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    I'm Jennifer. 28 years old,

    from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had always been treated with an air of mystery. .. when I was a kid, knew I had to take a pill for the rest of my life or I would "get...
    Genesis478 Genesis478 26-30, F 3 Responses Apr 12

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F 3 Responses Dec 25, 2014

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 1 Response Feb 17, 2014

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Ch And My Baby

    My mother was diagnosed with "the worst case of hashimotos" her doctor had ever seen about a year before I got pregnant. We had never really heard of this disease before, but as we dug into it we discovered that I exhibited a lot of the symptoms associated with hashimotos. So I...
    Jan 9, 2013

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    Related Experiences

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    I have small lips ._. Curses!!!!
    BrokenInnocence BrokenInnocence 13-15, F 59 mins ago

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    Hey it's my birthday today!!! Let's all have a great day!!! :))))
    buscameenelcielo buscameenelcielo 26-30, F 9 Responses 2 hrs ago

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    Looking for an attractive man aged 26-40 to have a discrete relationship with my husband & I.
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    Im so sad thinkinf about my joints. My elbows are inflamed, red and swollen everyday. My knees are also swollen and i feel pain everywhere basically. I've seen doctors and im being...
    HigherCalling HigherCalling 26-30, F 3 hrs ago

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    So for the longest time I grew up pulling mainly my lashes. Then it turned into pulling at my brows, too. Now I'm at the point where I've been able to grow more lashes than I've...
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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 1 Response 4 hrs ago

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    I'm having a terrible day. I've worked 30 of 48 hours, I broke it off with my boyfriend, I have a migraine, I can't sleep, I'm probably going to be fired, and none of my friends...
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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 4 hrs ago

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    amelcc11 amelcc11 26-30, F 4 hrs ago

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    amelcc11 amelcc11 26-30, F 4 hrs ago

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    I kind of do.... I mean first of all, we have only explored less than 1% of Earths oceans, so if you look at that and say mermaids aren't real, then you're just an idiot. Then...
    CloverMermaid CloverMermaid 13-15, F 5 hrs ago

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    amelcc11 amelcc11 26-30, F 5 hrs ago