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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 53 People

    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F Dec 25, 2014

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 Dec 22, 2008

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23, 2014

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    Related Experiences

    I am feeling blessed! I got my results back and I am in the ideal range for hormone production, so yay! I have been feeling really good, but dealing with aches in my legs and some...
    youngteach youngteach 22-25, F 2 Responses Dec 27, 2014

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    Turns out I have subclinical hypohyoidsm. Basically my pituitary gland is wishing hard to get my thyroid gland to work. my TSH levels were high but my t4 and t3 were in normal...
    elnleah elnleah 22-25, F Jan 7

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    The core of this achievement lies in that ah-ha moment. I was a chubby child but never obese. I was thin throughout most of my adult life, but graduate school, having a child...
    moonchild0315 moonchild0315 36-40, F 3 Responses Jan 10

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    I have certain symptoms that make me think I have this, but I'm not always in constant pain. I always feel in a fog state, I have difficulty concentrating or remembering things. I...
    ofthisgirl90 ofthisgirl90 22-25, F 4 Responses 5 days ago

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    My story is an odd one im sure. I was conceived via an anonymous ***** donor who is my biological father, so someone i have never met and can never meet. My mom had me this way...
    samboooo samboooo 22-25, F 6 hrs ago

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    So I like this girl who is a friend of a friend, and she used to like me back. But then I did some **** that I'm not proud of and she found out through the grapevine. I didn't have...
    rssooch rssooch 18-21, M 6 hrs ago

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    So I have been on a journey trying to quit my addictions. So far I have quit smoking cigarettes(weed is a different story). I have quit coffee(this was sooooo hard and still is...
    orcore orcore 36-40, F 1 Response 2 hrs ago

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    "We were once too ******* happy. Our hearts were filled so much love than the world can contain. This is why reality decided to punish us. Because happiness couldn't exist without...
    butterfliesndut butterfliesndut 18-21, F 2 Responses 45 mins ago

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    Anyone else have monologues with themself when they are alone in the house? I always do this. It's not something i have even thought about until now. It's really weird. I think i...
    ThinkingCat ThinkingCat 18-21, F 1 Response 7 hrs ago

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    The fact that he's moved on so easily, that he's so able to say to me that he has a new girlfriend, it is killing me inside. I try to act strong, put a smile on my face and wish...
    grace97eun grace97eun 16-17, F 4 Responses 4 hrs ago

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    I have always grown up nudist. We just don't get dressed in the morning, its no big thing like we have to be naked all the time n stuff. My best friends (and my brother/sisters...
    purplelimeboyy purplelimeboyy 13-15, M 1 Response 7 hrs ago

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    My father has suffered from anxiety and depression most of my life. I am trying to find out what his trigger points are so I can help him try not to freak out. I know that his...
    ColumbiaTiger ColumbiaTiger 41-45, M 1 Response 1 hr ago

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    People are always telling me, my voice is really charming. I often wonder about what some of my EP friends voices might sound like as well. Being totally blind I don't even have...
    magnum64 magnum64 46-50, M 48 mins ago

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    In my current situation I can't make a move, but I'm running out of time to have any real relationship. Plus I have no idea if she feels that way about me
    AnthonyC123 AnthonyC123 18-21, M 7 hrs ago

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    I've always seen coworkers have affair after affair. So many "happily married" people having affairs with other "happily married" coworkers. I had a crush on one happily married...
    bongbabexo bongbabexo 31-35, F 7 hrs ago

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    Since my anaesthetic several days ago, my brain has been going crazy especially when I sleep. I have so many dreams in a night, but this one was a special one when I had a nap. I...
    uggh uggh 22-25, F 1 Response 5 hrs ago

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    I have a terrible experience with family members my mother was on the phone once and I heard her put my family and myself down to my sister in law she seems to like to talk about...
    Bella70 Bella70 41-45, F 1 Response 5 hrs ago

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    I'm 26 and have been single for my entire life. I was close to a relationship once when I was 22 and had my first kiss; but then he decided to go back to his ex, so ever since then...
    worrier07 worrier07 26-30, F 6 Responses 3 hrs ago

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    Today I had to run a mile and I wore knee high socks to school, so instead of asking to go to my locker and being that one stupid person, I just decided to run (and fast) without...
    noaaaaa noaaaaa 13-15, F 9 hrs ago

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    I can't look at myself without wanting to cry anymore... **** this... I'm going to start purging as soon as my lip piercing heals... I need to lose 30 more pounds and I WILL get...
    MrCutBleedSmile MrCutBleedSmile 18-21, M 1 Response 9 hrs ago

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    Ever since I can remember, I've always had a lot of trouble talking to people. I only had one friend up until my freshman year in high school. I didn't even know what social...
    ElvenQueenKayla ElvenQueenKayla 16-17, F 2 Responses 9 hrs ago

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    I have had trich for some time... I was a young child, and I would pull out my eyelashes and eyebrows. Right now, I mostly pull out my eyelashes and the hair on my head. It's not...
    ElvenQueenKayla ElvenQueenKayla 16-17, F 1 Response 8 hrs ago

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    Because your journey to a certain point in your life has taken you through a few twists and turns, you may be questioning whether you are on the right track. Since there have been...
    pyeito pyeito 31-35, M 8 hrs ago

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    I have two and will be getting a third
    1poker 1poker 22-25, F 1 Response 8 hrs ago

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    I was attracted to a man that worked with my dad when I was very young, people already in relationships, certain relatives. NOT NORMAL and very frustrating. And I have a hard time...
    Tabooyou24 Tabooyou24 22-25, F 3 Responses 8 hrs ago

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    I am not sure if this is a form of sleep paralysis, but I have once woken up from a nightmare in which a woman stabbed me in the spine with a large needle. I woke up sweating and...
    x3SilverWincanx3 x3SilverWincanx3 18-21, F 8 hrs ago

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    Its been 3 years since my best friend and first love came into my life.She was the sunshine that lit up my dark night.She Made me forget all my hardships back home.we did all kinds...
    Adrianaung Adrianaung 16-17, M 7 hrs ago

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    Lmao!!! I was in the grocery store yesterday. OOH look! A new ketchup bottle with 25% extra, Cool! I took the stuff I was going to buy to the counter (keep in mind that the...
    InnocentPigeon InnocentPigeon 70+ 1 Response 7 hrs ago

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    Crazy neighbor swears and yells abuse at us for no reason. If her dog barks she screams abuse about our cat even though it's usually inside and not anywhere near the dog! She hung...
    Amillionstars Amillionstars 36-40 1 Response 7 hrs ago

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