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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 55 People

    Congenital Secondary (Central) Hypothyroidism.

    Means my thyroid gland still works quite fine but it isn't being stimulated by my pituitary gland to release hormones. And the "Congenital" part is supposed to mean I was born with it but the Wikipedia article places Congenital Hypothyroidism in its own category separate from...
    Jugemu Jugemu 31-35, M Mar 7

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 Feb 23

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23, 2014

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F Dec 25, 2014

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Related Experiences

    I have congenital cervical stenosis (more about lumbar spine later) with severe degenerative disc disease. Saw a Neurosurgeon Monday and he says I need surgery. Problem is, I have...
    VixBux VixBux 56-60, F 3 hrs ago

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    I was surprised by how many cases of A.D.D. have popped up online in a myriad of different mediums - Youtube videos, social media, websites, ect. - that are all centered primarily...
    Jugemu Jugemu 31-35, M 1 Response Mar 7

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    I have blood tests on Monday because my doctor thinks I have Hypothyroidism. People that have it. If I have it What's the treatment? And will I have it for the rest of my life?
    Ridingtonewyork Ridingtonewyork 13-15, F 3 Responses Mar 19

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    Today started with a visit from the neurologist. He asked how I was feeling and what I was able to accomplish. He had obviously already read what the nurses wrote though, since...
    ncbarr ncbarr 31-35, F 1 Response Mar 5

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    March 9, 2015 The next person that tells me to be positive is going to get punched in the throat. Don't tell me how to deal with this if you've never been through it. I'm being...
    ncbarr ncbarr 31-35, F Mar 11

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    I am 25 years old and can't have a baby. Due to health issues and infertility issues I can't ever be a mom! My husband and I have been together for 7 years. Three of them we have...
    becaree48 becaree48 22-25 49 mins ago

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    I am 25 years old and can't have a baby. Due to health issues and infertility issues I can't ever be a mom! My husband and I have been together for 7 years. Three of them we have...
    becaree48 becaree48 22-25 1 Response 49 mins ago

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    A VERY small part of me would want to be a house wife and have many babies and have a husband be the sole provider. But I have dreams of a career and I honestly can't imagine...
    churchdadatnight churchdadatnight 18-21, F 1 Response 2 hrs ago

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    Day Two on Amphetamine Salt Combo. Yesterday I was really concerned with understanding the difference between meds.(Adderall vs generic U29 Amphetamine Salt Combo) Today I have a...
    Tyler7sea Tyler7sea 26-30, M 34 mins ago

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    So I have a crush, he's probably 16-18 years old. He's playing an instrument which makes me fall for him even more. He's so cute. There's this time I have to deliver a paper at the...
    Awesome003 Awesome003 13-15, F 1 hr ago

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    So I have a story for you guys. I was introduced to my BF via is friend justin. After nick (bf) and I got together Justin starting treating me badly. Purposefully excluding me...
    nightnurse99 nightnurse99 26-30, F 5 Responses 1 hr ago

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    I had a dream about him, again. He was my cousin's first husband. Now in his mid 30s, still the most attractive man I know. They separated almost 5 years ago now. He was abusive...
    RykaRainbow93 RykaRainbow93 18-21, F 1 Response 40 mins ago

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    Hi there, I'm 28 and I recently had a CT scan for something completely unrelated and they found a lesion in my knee that might be OCD... I can feel the lesion but it's not painful...
    AliVessali AliVessali 26-30 1 hr ago

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    thats tonight...should have been asleep hours ago.
    ThePastIsDead ThePastIsDead 41-45, F 1 hr ago

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    I have a crush on this boy and at the beginning of the school year ,he used to make fun of me but then he told the counselor that he didn't mean nothing by it and I was thinking we...
    imdifferent97 imdifferent97 18-21, F Mar 1

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    I don't shave because I don't feel that I should have to. I mean, why is that even a thing? I feel beautiful in my own skin. I'm often told that having hairy armpits or hairy legs...
    justarandom justarandom 22-25, F 4 Responses Mar 1

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    I use to stutter when I was younger and now being slightly/completely (depending on who you ask) antisocial, I have had a hard time talking completely right. I tend to slur...
    TrojanPrincess TrojanPrincess 13-15, F 1 Response Mar 1

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    I broke my coccyx bone when I was about, 14. Me and my sister Patience was playing around while we imagined the "invisible man" tossing us into the walls. I must have landed on my...
    Egaip86 Egaip86 26-30, F 2 Responses Mar 1

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    And it's these things that I have no regrets about! I'm pretty much done with swearing off of things. Idk who I'll be in the next ten years.
    Allforaview Allforaview 18-21, F Mar 1

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    i think all of us have one :) a specific one, several, extreme, vanilla-ish... not wrong right?
    graciousindifference29 graciousindifference29 26-30, F 12 Responses Mar 1

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    I have been with my husband for almost 11 years and we have two beautiful children. He has been cheating on me for the past six months. It's pretty crazy what goes on in your head...
    sunnygirl29 sunnygirl29 26-30, F 2 Responses Mar 1

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    I have never even hugged a girl except my mum. I'm 17
    J7442 J7442 16-17, M 1 Response Mar 1

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    This is honestly the best console I've owned. It's the perfect system for a guy like me who used to be a more serious gamer. But, a lot of the "serious" games just got old with all...
    Frost119 Frost119 22-25, M Mar 1

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    Its not the most badass thing or i dont think it counts as breaking the law more like trouble with the law.But i was 12 (almost 13) and i was with my brother (10 almost 11) and our...
    KushHadMe KushHadMe 22-25, M