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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 51 People

    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F May 2

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 1 Response Aug 10, 2012

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 27 Responses Mar 15, 2009

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 Dec 22, 2008

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    Ch And My Baby

    My mother was diagnosed with "the worst case of hashimotos" her doctor had ever seen about a year before I got pregnant. We had never really heard of this disease before, but as we dug into it we discovered that I exhibited a lot of the symptoms associated with hashimotos. So I...
    Jan 9, 2013

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my pain & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    Related Experiences

    hiya! I'm 16, and I have congenital cholesteatoma. I've had them since I was born (duh) and I was actually that one kid who was the youngest to have one removed, go me! Articles...
    janelisbet janelisbet 16-17, F 1 Response Sep 21

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    In all probability the most important benefit of the Hypothyroidism Revolution method compared to other Hypothyroidism remedies on the internet is that it was created to tackle the...
    Anthony825d5cr0 Anthony825d5cr0 31-35, M 1 Response Sep 15

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    A lot of the first foods that arrive at mind are any food items which contains soy. This involves soybeans, edamame, soy milk, tofu, and many others. Soy may be very estrogenic and...
    Joshua603b4zn8 Joshua603b4zn8 31-35, M 1 Response Sep 8

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    ThatR17;s why our employed personel gets the The Hypothyroidism Revolution from your operator initially, perform some exploration and tests, and choose if it is value acquiring or...
    Anthony825d5cr0 Anthony825d5cr0 31-35, M 1 Response Sep 9

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      For those who have by now been diagnosed and taken care of for hypothyroidism and go on to obtain any or all these symptoms, you must talk about it along with your medical...
    Andrew558n8la3 Andrew558n8la3 31-35, M 1 Response Sep 15

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    You continue to can Speak to Tom following you purchase the program and heR17;ll undertake the program to some vegetarian food plan.This sort of e mail coaching is amazingly...
    Anthony825d5cr0 Anthony825d5cr0 31-35, M 1 Response Sep 15

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    The unmanageable inflammation ruined many joints in a short stretch of time. For the first time in practically 8 a long time, I've had the most important reduction in In general...
    Anthony825d5cr0 Anthony825d5cr0 31-35, M 1 Response Sep 9

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    Or just one. Poorly diagnosed. My grandmother was misdiagnosed. So fear fills me. And heart attacks made research painful. Cigs may have caused them. Or seroquel...
    Livyn4pals Livyn4pals 46-50, M 2 Responses a week ago

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    I was first diagnosed June of 2013. After I had gone in in March and May of 2013, asking for my thyroid to be checked because I knew my body was failing. I was 22 but I felt like I...
    acsalbright acsalbright 22-25, F 3 Responses Sep 3

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    I have a heart disease known as Tetralogy of Fallot, and I've had since before birth. This is a defect that causes a hole in ones heart, and I had surgery after I was born. This...
    StarShineGirl StarShineGirl 16-17, F 2 Responses Sep 6

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    Possible POTS?- This post is super long-sorry! (POTS towards end) Hi, I'm an 18yr old female from Australia hoping to get some help about my mystery illness! In January I...
    lilbg6 lilbg6 18-21, F 1 Response 6 days ago

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    i went to the doctors one day for a physical, the lady sent me to endocrinologist. he took my blood work and said my levels were very low and i was too take a pill of 88 milligrams...
    mlhenry mlhenry 18-21, F 1 Response Sep 1

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    So I went to my gynecologist, and ended up being tested for my irregular menstrual cycle. They found some issues with my thyroid, and told me to get it checked out with my primary...
    rollingdoro rollingdoro 22-25, F Sep 20

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    I have been out of my abusive relationship for many years about 7 years now and it is still something that haunts me. I don’t really have an outlet to talk about it and try and...
    Ruger1212 Ruger1212 31-35, F 10 hrs ago

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    I have a pretty weak bladder. So if I don't make sure to go before bed, sometimes it just happens. And anytime I laugh I have to keep it in check or my bladder will decide it's...
    rubyf rubyf 18-21, F 3 Responses 17 hrs ago

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    I have cancer and am drowning in bills. I have another surgery on Oct 22, 2014 and then radiation treatments and it is so hard to try to recover and be healthy and strong with the...
    butterflyprincess666 butterflyprincess666 26-30, F 17 hrs ago

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    Me and my ex broke up yesterday. We also have a 2 week year old son. I'm 18, not that It's relevant to this post. I'm always going to be in my son's life, I aspire to be the best...
    ADifferentDude ADifferentDude 18-21, M 2 Responses 16 hrs ago

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    I don't get how people can be able to have hundreds of friends... Most of the people I know are somewhere between acquaintances and friends. And there is a smaller group that I...
    Roccondil Roccondil 22-25, M 1 Response 11 hrs ago

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    but I'm okay with that. I have 1 friend married 25 1 son she's a christian that lives and breaths for God. Been friends with her almost 9 yrs. Then I have another friend 32 2 boys...
    jbnj12 jbnj12 26-30, F 11 hrs ago

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    I'm hoping someone can help. I live in a terraced house. I've had 3 roofers in and each has done work. They have fixed broken slates and replaced missing ones, they have redone all...
    xlxSpiraxlx xlxSpiraxlx 26-30, F 7 hrs ago

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    I recently had a call from a highschool friend informing me about our friend having cancer. Naturally, I am shocked. At our age, at this point in time, I feel like we shouldnt have...
    BloviatingBuffoon BloviatingBuffoon 70+, F 2 Responses 4 hrs ago

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    I had a dream last night that he had to get his leg amputated. I was telling my best friend how I felt so bad for this guy and she had no empathy at all and almost laughed. Then I...
    ThePinkP0werRanger ThePinkP0werRanger 26-30, F 3 hrs ago

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    I've never ever EVER in my life been comfortable talking about the fact that I have hidradenitis suppurtivia. For the majority of my life I had no idea there was a name for this...
    msh0neydip msh0neydip 31-35, F 1 Response 2 hrs ago

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    Being numb. I know hat most people say that we don't know what we've got, till its gone . An. Believe that But for people like me would give it all away just to be free and run...
    Killerinstict Killerinstict 13-15, F 1 hr ago

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    The thoughts are constant, they come much more often, the feelings of worthlessness, hopelessness, anger, fear, depression! I don't know what to do anymore! I coped for a while by...
    sm1ttay sm1ttay 16-17, M 56 mins ago

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    When I was younger, I loved older women. However, as I have gotten older I have begun to like younger women. I am 25 and usually don't like to date women older than 20. I think it...
    bktaylor1989 bktaylor1989 22-25, M 18 hrs ago

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    Does anyone have anxiety and smoke to help relieve it? I smoke cigarettes and I'm trying to stop after years of smoking, I get really bad anxiety when I start to withdrawal. It...
    mattcom mattcom 22-25, M 3 Responses 18 hrs ago

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    Add me if you have it! I am 'TegsDaUnicorn' :DDD
    0LOvEsHaTeRs0 0LOvEsHaTeRs0 13-15, F 17 hrs ago

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    Ive been taking lexapro for almost 4 months; stopped taking them a couple of days ago and now i feel woozy, light headed and angry some of the time. I get these feelings of muscle...
    xsmall xsmall 18-21, F 17 hrs ago

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    He's a cute *** sexy dude and I love him, we've been talking for about 2 weeks now on here and we've FaceTimed a few times...I have a crush on him...but I live here in vancouver...
    Nathanlucky021 Nathanlucky021 13-15, M 1 Response 16 hrs ago

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    I've had sex in a car 3 times...actually once was outside the car in a parking lot. I also had sex in my car and was almost busted by the cops. It was so hot!! I still have the...
    askmeplease askmeplease 41-45, F 4 Responses 16 hrs ago

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