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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 57 People

    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F Dec 25, 2014

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 Feb 23

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    Congenital Secondary (Central) Hypothyroidism.

    Means my thyroid gland still works quite fine but it isn't being stimulated by my pituitary gland to release hormones. And the "Congenital" part is supposed to mean I was born with it but the Wikipedia article places Congenital Hypothyroidism in its own category separate from...
    Jugemu Jugemu 31-35, M Mar 7

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23, 2014

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    I'm Jennifer. 28 years old,

    from CT, USA and I was born with total Athyrosis. .. no Thyroid at all. I've yet to meet anyone with this condition and frankly, growing up, it had always been treated with an air of mystery. .. when I was a kid, knew I had to take a pill for the rest of my life or I would "get...
    Genesis478 Genesis478 26-30, F 1 Response 5 days ago

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my pain & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Related Experiences

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    I have blood tests on Monday because my doctor thinks I have Hypothyroidism. People that have it. If I have it What's the treatment? And will I have it for the rest of my life?
    Ridingtonewyork Ridingtonewyork 13-15, F 3 Responses Mar 19

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    Currently, I find myself with no friends. I have acquaintances, but no actual friends. I have drifted apart from most of the close friends I used to have. I made most of my friends...
    pixieowl pixieowl 26-30, F 1 hr ago

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    hey. I'm Sophia.: my parents are strict. and they expect me to be elegant and graceful, have high EQ and IQ. I have to be a good role model to my sister and I cannot go back home...
    SophiaKeil SophiaKeil 13-15, F 3 Responses 17 hrs ago

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    For some reason they still think being 15 years old going on 16 in a couple months is still too young/dangerous to stay home alone. They drag me everywhere with them and who wants...
    ThePrettyOnee ThePrettyOnee 13-15, F 10 hrs ago

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    Since the last time I was here, I had gotten engaged to my boyfriend of 3 years and moved to our own place. I love him very much because he's an all around nice guy, he's good at...
    SomeCorporateChick SomeCorporateChick 26-30, F 8 hrs ago

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    I think it's a combination of working out of my home in sales for the last 23 years and not having any "office buddies". I think it's moving to a "small" town where it's literally...
    steverick steverick 56-60, M 5 hrs ago

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    Caution: the following is a rant, not looking for pity, prayers or advice just venting it all out. Looking back on those years I am not filled with regret. I fell in love with the...
    Lestat93 Lestat93 22-25, F 2 Responses 2 hrs ago

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    After coming out that I prefer to dress up and that I am bi it's been kinda weird. Suddenly I have women who are normally kinda prudish just stripping down and dressing in front of...
    JessicaMarie35 JessicaMarie35 36-40, T 1 hr ago

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    Hi. Im new to this so.. please be understanding! I only have one personality. Her name is DoryBob and she is 3. Is it common to only have one alter?
    SallyandBob SallyandBob 16-17, F 16 hrs ago

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    My colleague (7yrs younger)at my new job Is flirting with me. he tries to touch me any chance he gets and coming up with cheesy lines thinking that will impress me. I'm still not...
    Mama86 Mama86 26-30, F 1 Response 15 hrs ago

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    This pain is inescapable, an anguish resides in a place where there was once love. This pain turns the minutes into hours, and it consumes ones joy. The epicenter of the hurt is in...
    PopaBlurf PopaBlurf 18-21, M 1 Response 14 hrs ago

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    Picked up these babies at work today. I have 100 of these little guys. And they're even “sterilized by gamma radiation.” Fancy. I've been craving to have a razor near by. Maybe...
    Ha12mo17y Ha12mo17y 26-30, F 13 hrs ago

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    Picked up these babies at work today. I have 100 of these little guys. And they're even “sterilized by gamma radiation.” Fancy. I've been craving to have a razor near by. Maybe...
    Ha12mo17y Ha12mo17y 26-30, F 2 Responses 13 hrs ago

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    Someone here answered my question and commented something that reminded me of a very very old thought which I haven't thought of since I was 8. I just remembered how when I was...
    MissGaga MissGaga 22-25, F 2 Responses 13 hrs ago

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    Having a bitchy resting face sucks. When I'm thinking deeply or concentrating, people usually think I'm sad and they ask me if I'm okay. I appreciate their concern but it gets...
    Bonjour32 Bonjour32 13-15, F 12 hrs ago

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    Sometimes you thought you did the right thing. Well, I thought I did. But, I forgot I did it, and got now I'm thinking I should not have done that. Because something shifted and I...
    graciousindifference29 graciousindifference29 26-30, F 1 Response 11 hrs ago

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    I am so down. I have recently become single and no longer have any friends. I am so lonely. All I have is my family an work friends.
    doglovverr56 doglovverr56 22-25, F 3 Responses 11 hrs ago

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    Hi I'm Chelsea. I was diagnosed with Duane Syndrome (Type 1) at a very early age as the first few weeks I was born were scary for my mom because she's told me about my left eye...
    lovelymoon11 lovelymoon11 18-21, F 10 hrs ago

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    This makes things tough for me here at times. I have to read and reread things a lot. I misspell things and everything. I like reading it's just at times I'll get frustrated and...
    solojo solojo 31-35, M 1 Response 6 hrs ago

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    soooo, im technically a guy, im 14, im trans and my parents dont know, so I have loads of girls clothes but I have to leave them at my friend's so my parents dont find them, so I...
    HeidiA123 HeidiA123 13-15, T 1 Response 6 hrs ago

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