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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 54 People

    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 1 Response Dec 22, 2008

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23, 2014

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2, 2014

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    Hi, I'am 20 years old (female) I have recently

    had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised that on my list of diagnosis lists congenital hypothyroidism was on and I had no treatment for this at any point in my life. I asked my doctor...
    glamnaomi glamnaomi 18-21 a week ago

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    I was born January '81 without a thyroid gland.

    My mom nursed me for 6 months, but after I was weaned, I quit developing and only gained weight. My muscles atrophied, my tongue got thick, eyes buggy, and had a herniated navel. Doctors didn't know what was wrong, but Dr. Freed did. When I was 13 months old, he put me on...
    mnb99 mnb99 31-35, F Dec 25, 2014

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my pain & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17, 2014

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

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    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Related Experiences

    I'm 16 and Iv had Hypothyroidism since I was 11. I'm taking 175 micrograms of levothyroxin (I hope that's how you spell it) and I want to talk to someone like me...
    Thenewdifferent Thenewdifferent 16-17, F 1 Response Feb 7

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    I've been recently diagnosed with hypothyroidism and I have yet to figure out how to deal with it. One of the things the depresses me the most is my hair loss and how ugly it has...
    nelly7 nelly7 18-21, F Feb 18

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    Mentally am stronger, my body can not catch up with me. I feel trapped. Like robust energy and life and positivity is hidden under my exterior. When my exterior is "acceptable...
    BlueSkysAreCold BlueSkysAreCold 22-25, F Feb 20

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    I'm 22 years old the mother of two and one on the way. for the past month i have been out of my doctors and endocrinologist whom thought i had hypothyroidism until i had an...
    jesskap jesskap 22-25, F Feb 21

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    Terminal insomnia, more specifically. Which means I don't have a problem falling asleep but I wake up too early. I usually wake up at around 330AM. Sometimes it's an hour later...
    Undeadly Undeadly 41-45, F 2 Responses 18 hrs ago

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    I would like to discuss my symptoms and share with others who have this condition,I have suffered from jaw pain for almost 3 years,the locking or inflammation is terrible and is...
    sar2015 sar2015 31-35, F 14 hrs ago

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    Hello fellow cyst survivors. I never thought there was a support group out there, I feel lucky to have come across this site. It is nice to know there are others out there who...
    20yrvet 20yrvet 41-45 7 hrs ago

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    I am 22 years old and have had CRIPPLING emetophobia for as long as I can remember. In fact, my fear is so bad that I can't even stand to hear or read the "v" word...so browsing...
    hummingbirdbullets hummingbirdbullets 22-25, F 20 hrs ago

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
    eriloves1D eriloves1D 16-17, F 19 hrs ago

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    One month after the breakup...I am now far away, the sun is out, I went from being cold to being extremely hot. I am in the tropics, I hear the cicadas ringing . I am mostly ok. I...
    wingeyes wingeyes 31-35, F 1 Response 9 hrs ago

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    I have never really been able to have friends because I was never allowed to hang out with anybody and I was never allowed to go outside of my house alone are certainly not go down...
    LonerToMost84 LonerToMost84 16-17, M 9 hrs ago

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    I always told myself and everyone that I was so glad to not have a drug addiction. I don't do drugs I never have. I'm a social drinker. And I hate cigarettes. But to think I could...
    AndrogynousBeauty AndrogynousBeauty 22-25 1 Response 8 hrs ago

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    I'm having a rough day so I think I'll share how I feel and just kinda document what's going on in my head so I can get my thoughts straight and maybe someone will read this and be...
    LeChatCurieux LeChatCurieux 18-21, F 1 Response 7 hrs ago

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    I have kept open mind to new ideas and experiences- as they say, a ship is safe in harbo, but that's not what ships are for. Accepting some level of risk in life is important. You...
    Zelaleme Zelaleme 46-50, F 16 hrs ago

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    Hey everybody!! I have had the SKYLA IUD for maybe over 2 months now? I haven't had any issues except I am a little concerned about my skin. I rarely break out but it seems like...
    faithengen1 faithengen1 22-25, F 13 hrs ago

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    My guy is amazing! I have never met a man like him. He texts me all the time. He shares his feelings. He tells me how beautiful I am. He might be a little afraid of getting hurt...
    ifoundhim ifoundhim 36-40, F 1 hr ago

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    Some of you will know about my horrific trash TV habit. I also have an addiction to trash Youtube videos..I mean EP has kind of taken over a lot of the time I used to spend on it...
    Blondiex15 Blondiex15 36-40, F 5 Responses 17 hrs ago

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    yes i have when they put me in a mental hospital. i was detained. it made me feel like a criminal and not a sick person at all . it made me feel i did somethink wrong.and i was...
    furrycats furrycats 31-35 15 hrs ago

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    Hi, my name is Shayla (Human) and I am the Aloha Female of The Aussie Darkness Wolf Pack (as a Wolf) and I was wondering if you want to join, just message me or comment (?). As a...
    TheAussieWerewolf TheAussieWerewolf 13-15, F 12 hrs ago

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    ALWAYS!! I have a million thoughts racing through my mind... Yet I feel as though I am unable to focus on what it is that I must do ... Sounds absolutely absurd I am sure, but as...
    JadedCredence JadedCredence 31-35, F 3 Responses 11 hrs ago

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    I'm looking for a little insight on Pica. I myself do not believe I have Pica but I believe my three year-old daughter does. Literally EVERYTHING she touches she tries to eat and...
    kasirae3192 kasirae3192 22-25, F 10 hrs ago

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    All I can say is... I'm in trouble. We have a family friend that we only see about once or twice a year, she is beautiful and a really nice and interesting person in general. She...
    Kayceyy Kayceyy 16-17, F 6 hrs ago

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    I’M CRUSHING ON MY PARTNER’S SIBLING Do you have a crush on your partner’s brother or sister? Do you secretly want to take things farther with them, but don’t want it to...
    NFTVCasting NFTVCasting 70+, F 5 hrs ago

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    I don't know where to begin. My mother is almost bipolar because of some of the things my mom does. She says things like " Be nice to so and so" but then a little bit later, my...
    TheCouchPotato TheCouchPotato 13-15, M 2 hrs ago

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    you'd think I would be used to it. that id remember how it felt. that it wouldn't hurt this bad after so long, 15 years actually. but it hurts the same. I wish I didn't have to...
    Kmarcum99 Kmarcum99 13-15, F