Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 53 People

    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 28 Responses Mar 15, 2009

    Your Response

    Cancel

    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

    Your Response

    Cancel

    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

    Your Response

    Cancel

    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

    Your Response

    Cancel

    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

    Your Response

    Cancel

    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 Dec 22, 2008

    Your Response

    Cancel

    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

    Your Response

    Cancel

    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my pain & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

    Your Response

    Cancel

    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 2 Responses Aug 10, 2012

    Your Response

    Cancel

    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

    Your Response

    Cancel

    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17

    Your Response

    Cancel

    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

    Your Response

    Cancel

    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

    Your Response

    Cancel

    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23

    Your Response

    Cancel

    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F 1 Response May 2

    Your Response

    Cancel

    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

    Your Response

    Cancel

    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

    Your Response

    Cancel

    Related Experiences

    Hashimotos Hypothyroidism success stories, want them. 😊
    Waiting4thatgloriousday Waiting4thatgloriousday 41-45 4 days ago

    Your Response

    Cancel
    It's so exhausting. I have been on medication for about 3 and a half years and I am told that my levels are normal sense I take my medication but I still have all the symptoms. I...
    maggiemae89 maggiemae89 22-25, F 3 Responses Dec 8

    Your Response

    Cancel
    You know, high school is a lot different than I thought it would be. People aren't mean or rude; for the most part, that is. I go to a small school, so everyone knows everyone...
    Anonymousgirl152 Anonymousgirl152 13-15, F 1 Response 15 hrs ago

    Your Response

    Cancel
    It's a terrible thing to know that you have always disappointed your own father, yet at 34 years old this is the realisation that I have gradually awakened to. Every year, I...
    Kitty786 Kitty786 31-35, F 12 hrs ago

    Your Response

    Cancel
    Mine are a 34GG and I'm only a size 10 (UK) which makes them look like footballs stuck inside my sweater so it's not easy to hide them! But I want to ask a question really. Have...
    Bustyshylady Bustyshylady 31-35, F 4 Responses 4 hrs ago

    Your Response

    Cancel
    Hello, I am new to the forum and I deal with C-PTSD. It's caused me to become a hermit who lives by herself and has no friends. I try to meet people and I'm friendly enough, I just...
    CanadianKestrel CanadianKestrel 31-35, F 2 Responses 16 hrs ago

    Your Response

    Cancel
    I can't really remember the last time I was happy. I mean, I've laughed and smiled, and even on the surface been happy, but its always shallow. underneath everything is a deep...
    Phreakaccident12 Phreakaccident12 18-21, M 15 hrs ago

    Your Response

    Cancel
    I guess it's more of a gum ache. I've had toothaches and they feel the same. But my gum is like split open and trying to kill me I think. It was something I ate. I could have been...
    DarkwingGoslyn DarkwingGoslyn 31-35 15 hrs ago

    Your Response

    Cancel
    I am open minded guy and want to make news open minded friends. Open to any topic and too all lifestyles. I want to have news friends here. Man, woman, couple, young or old, race...
    naughtyguy13 naughtyguy13 26-30, M 13 hrs ago

    Your Response

    Cancel
    In school, all the girls had to have injections and I'm absolutely terrified of needles and when my class got called to the hall to have the injections, I started to get really...
    Sinnister14 Sinnister14 13-15, F 2 Responses 13 hrs ago

    Your Response

    Cancel
    The worst betrayal I can imagine is when your best friend's Bo hits on you. Okay, I can't say that I was not thrilled because I knew I could have had him anytime I wanted him. You...
    tmorr tmorr 22-25, F 1 Response 10 hrs ago

    Your Response

    Cancel
    So yeah, I'm 13 and I've never met him, my mum told him she was pregnant and he left and never came back. I can find him coz my mum says that he gave her a fake name and a fake...
    cazziefish cazziefish 13-15, F 1 Response 8 hrs ago

    Your Response

    Cancel
    I had the absolute worst panic attack last night. I mean, I've had little ones before, like with being around a large group of people ( I have bad social anxiety), but I will never...
    lizygurl lizygurl 18-21, F 6 hrs ago

    Your Response

    Cancel
    travel start learning a new language find a direction only have one job have a vehicle get a dog make new friend be comfortable in my skin fix or leave my marriage be happy
    girlawaken girlawaken 41-45, F 1 Response 6 hrs ago

    Your Response

    Cancel
    So, everyone is tight on money this Christmas so here are some great gift ideas. And they are FREE!! Tomorrow (or today even) try saying "Good Morning" as though you really meant...
    elixyveth elixyveth 36-40, F 1 Response 5 hrs ago

    Your Response

    Cancel
    My boyfriend and I have been in an online relationship for a little over a month now. I love him, but lately things just haven't been the same as they used to. It's like he doesn't...
    Christy98 Christy98 16-17, F 2 Responses 5 hrs ago

    Your Response

    Cancel
    I can't do anything.... I can't even go outside. My mom is super overprotective and she says that I need to wear a winter coat, a scarf, and a hat in September. And my older...
    Jovanite Jovanite 13-15, M 4 hrs ago

    Your Response

    Cancel
    I've known him for two years. He always makes me smile and laugh when I'm upset, teases me, jokes around and worries about me when I have problems, spends time with me talking...
    sweetice007 sweetice007 18-21, F 1 Response 3 hrs ago

    Your Response

    Cancel
    On my friend...I just think she's so beautiful inside and out.I think I'm in love.I keep thinking about her.She's different and I love it.I love to talk to her.I love to touch her...
    wassup305 wassup305 13-15, F 3 hrs ago

    Your Response

    Cancel
    I see her almost everyday, we even live in the same house, yet I can never have her. I don't think I have ever seen a woman of such beauty, or ever known a woman of such a soft...
    Browncoat4077 Browncoat4077 26-30, M 3 hrs ago

    Your Response

    Cancel
    It's been 3 years since discovering what happened so long ago. When someone insists you have a child who is nearly grown, a child you were never told about, it sort of turns your...
    Casey28 Casey28 41-45, M 2 hrs ago

    Your Response

    Cancel
    in life, in future. I have faith in balance, and that something cant exist without its opposite. The only thing that can exist without an opposite is nothingness. and we know, at...
    ThePinkPowerRanger ThePinkPowerRanger 31-35, F 1 Response 2 hrs ago

    Your Response

    Cancel
    It's so easy to explain pain when you have a certain underlying condition. Either you say throbbing, shooting, radiating... And so on.. But how can you describe that pain when...
    dezeena dezeena 22-25, F 2 hrs ago

    Your Response

    Cancel
    I don't understand why people like to hurt me....Im not a bad person, im actually really nice but people still feel the need to treat me like I have no feelings. I used to have...
    Imstillhere122 Imstillhere122 18-21, F 1 hr ago

    Your Response

    Cancel
    I believe I am going to have major backlash from my choices tonight, but fugg it. I don't think NOT going to my in-laws on Christmas Eve is the worst thing a person could do. I am...
    secretme1970 secretme1970 41-45, F 26 mins ago

    Your Response

    Cancel
    So being that i read today Isis wants to do a religious cleansing of about 500 million people - seems like isareal and christian states or country - meaning wipe out ppl - if it...
    stephenrko stephenrko 31-35, M 19 mins ago

    Your Response

    Cancel
    I have 24/7 high pitched ringing in my ear, head starting several months ago.. I failed a hearing test for my dream profession because of it. I guess it's all my bad luck, was...
    arlfense arlfense 26-30, F 17 hrs ago

    Your Response

    Cancel
    Yep I do! I was always one of those people who thought PTSD was all in your head. A fake syndrome just to get attention. Well I got a wake up call! I got into a head on car...
    LetsGetDogWeird LetsGetDogWeird 18-21, F 1 Response 16 hrs ago

    Your Response

    Cancel
    Wish Seven years I’ve been waiting forA Christmas with you I wish forJust like the other years that passed byMy wish for Christmas never gone byA thought bothered my mindHow...
    Amago Amago 13-15, M 1 Response 16 hrs ago

    Your Response

    Cancel
    For many, Christmas is the most wonderful time of the year; well maybe for everyone except the children of the comedian that became infamous for saying that he bought his children...
    fungirlmmm fungirlmmm 41-45, F 11 Responses 16 hrs ago

    Your Response

    Cancel