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I Have Congenital Hypothyroidism

A Congenital Hypothyroidism anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Hypothyroidism. You're not alone. 51 People

    My Daughter Also Has Congenital Hypothyroidism

    Nine years ago, I gave birth to a beautiful little girl. She was my first child after 6 years of marriage. Regardless to say, she had a perfect APGAR score - was healthy and of course such a good baby. At around 5 weeks she was diagnosed with CH - we picked this up only because...
    mychstar mychstar 36-40 5 Responses Aug 1, 2009

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    Congenital Hypothyroidism

    I have a son born 1959 who has congenital hypothyroidism. Unfortunately, not like now, there was not test and not hardly anyone including my doctor had ever heard of it - beggars belief. After noticing he was not looking normal at about 2 months old we took my son everywhere to...
    junekath36 junekath36 70+, F Sep 13, 2013

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    My Child Has Ch Has Been Treated But Still Has Symptoms

    My daughter was diagnosed at 5 days with ch and has had her thyriod levels in control but still has symptoms of sleepiness and tsometimes dry skin. Has anyone experienced this or is this normal? She's a month old now and I,m afraid somehow the levels are normal but somehow she...
    Sebastian2012 Sebastian2012 36-40 1 Response Apr 8, 2012

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    Our Little Man

    Our little man is sooo perfect but it was a hard pregnancy! He tried to come at 32 weeks (I enjoyed the mag, steroid shots,hospital bedrest, and the NICU on standby) but he held off like a fighter! At 39 weeks and Christmas Eve he decided he was ready to make an appearance...
    musiqueducoeur musiqueducoeur 31-35, F 2 Responses Aug 6, 2012

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    Yup. I have it. I've gone several times

    skipping my pills due to choice and at times I couldn't afford it. I'm 23 years young. It's rough, but possible. I always feel great when I get my medication. So happy, awake, and clear-headed. I love coffee when I feel "foggy", and so help me...I hate to feel stupid. I am smart...
    alschul6 alschul6 22-25, F 1 Response Apr 23

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    Ch And My Baby

    My mother was diagnosed with "the worst case of hashimotos" her doctor had ever seen about a year before I got pregnant. We had never really heard of this disease before, but as we dug into it we discovered that I exhibited a lot of the symptoms associated with hashimotos. So I...
    Jan 9, 2013

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    Levoxyl Vs. Armour

    What has your experience been?
    AutumnBreez AutumnBreez 41-45 Dec 22, 2008

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    My Daughter Has Congenital Hypothyroidism

    My 17 month old daughter was diagnosed with congenital hypothyroidism when she was ten days old. Her newborn heel-***** screening came back abnormal and we had to get a CT scan done on her before she was 2 weeks old and start her on Synthroid. I've been squirting...
    katie111 katie111 26-30 27 Responses Mar 15, 2009

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    My 2 Weeks Daughter Has No Throid Gland .... Congenital Hypothyroidism :(

    Hi to all the survivors , fighters , defeaters and sufferers of hypothyroidism ,this is my first time on any kind of internet forum ... my painĀ & my helplessness has dragged me here...here's my story :My daughter just recently born 2 weeks old... has been diagosed with...
    shockednewmum shockednewmum 22-25 7 Responses Apr 28, 2011

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    Dont Let This Happen To Your Kids.

    I was born with Congenital Hypothyroidism. When I was a kid, I rememeber taking my meds every day but I never knew why I had to take them. My parents never told me. All they said was that I was "sick". So day after day I continued my meds, and every 3 months I went to the doctors...
    MissChuck MissChuck 18-21, F 1 Response Aug 10, 2012

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    Congenital Hypothyroidism

    My 11 week old daughter has a large soft spot. when looking this up online I discovered ch. I've read a few stories about it but everybody else has posts about their children being diagnosed within birth to 3 weeks. She seems to have a lot of the signs associated with ch...
    jellybeanseam jellybeanseam 26-30, F Mar 30, 2012

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    I Am Nearly 33 And I Have Congenital Hypothyroidism

    i don't remember much about my childhood apart from the 6month checkups and blood tests to see if i had grown. the endless bone age xrays to see how my bones were growing. i have many spells of actually not taking my medication, for periods of days to weeks without it. i know i...
    saz32 saz32 31-35, F May 15, 2012

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    I Have Congenital Hypothyroidism

    Oddly enough, so do my three sisters. I am told this is very rare, and I have had medical staff not believe me in the past. One of my sisters has had her thyroid glands removed in the hopes that this would "fix" her problem and the complications she was experiencing- it did not...
    AnyoneLived78 AnyoneLived78 31-35 Apr 21, 2011

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    Mothers Who Has A Child With CH!!

    This is for the parents who have children with Congenital Hypothyroidism. Its ok. Yes it's scary to find out that your new baby has it but don't worry. If you give them a proper diet, take them to get their lab work done, give them their medicine properly, DONT FORGET TO GIVE IT...
    MissChuck MissChuck 18-21, F 1 Response Jun 17, 2013

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    I was born right around the time screening

    became procedure for newborns. When I was five days old, my underdeveloped thyroid was destroyed with radio-iodine treatment. It was never explained to me why I took pills every day growing up. The word hypothyroidism was thrown around when I asked about it and that was all I...
    riciamitchell85 riciamitchell85 26-30 Feb 17

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    I am 29 years old and I was diagnosed with

    Congenital Hypothyroidism at birth. I have gone through childhood with no symptoms, but in my early twenties I developed psoriasis on my elbows, knees, ears and scalp! I have also found that I suffer from chest infections and find it difficult to shake off illnesses, often...
    v1xenb v1xenb 26-30, F May 2

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    26 Yes Old Mommy Of 2

    My name is Crystal I was born with congenital hypothyroidism. I am a normal person, I do forget my meds alot which is bad, I have no medical insurance, I am completely normal, graduated from high school and now college also I have two daughters one 4 Brooklyn) and the other 1 1/2...
    mommyof2girls0305 mommyof2girls0305 26-30, F 1 Response Sep 25, 2013

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    My Daughter Was Born With Ch

    My little baby was born in Russia in 2006. She was diagnosed with congenital hypothyroidism on 11 th day. I thought My life ended, since I knew nothing about it. I was blaming myself constantly, trying to find the reason. Now she is 5 and I would like to say she is absolutely...
    Masha12071979 Masha12071979 31-35, F Aug 7, 2011

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    Related Experiences

    Okay, so how did one such as I come to be diagnosed with hypothyroidism? Well after being diagnosed with ADHD and an anxiety disorder and being put on an anti-depressant for...
    klw081192 klw081192 18-21, F 5 Responses Jun 23

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    It's called hypotension. My father had it, his mother before him. I'm not sure if it's congenital. I take medication, and watch my diet.
    Silfverberg Silfverberg 26-30, F Jun 28

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    I've been struggling with it un-diagnosed on and off for years. In mid 2011 it hit full force and now I struggle to control it. I am taking levothyroxin because that's the only...
    StuckWithin StuckWithin 46-50, F Jun 25

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    Started synthetic T3 and T4 but about 3 weeks later I felt very anxious and fingers were tingling and numb. Starting T4 meds again (gen. Synthroid) - worried it will happen again...
    squirrelbounce squirrelbounce 36-40, F 1 Response Jul 8

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    I am now 29 years old. I had half of my thyroid removed in year 2000 when I was 15 due to a benign tumor removal around that thyroid gland. Since I still had the remaining half of...
    zhiyunq zhiyunq 26-30, M Jul 8

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    I was just diagnosed with Hashimotos this last week. My dentist told me to go get my thyroid checked. It turns out I have hashimotos. They had me do a sonogram and they also found...
    Kylee94 Kylee94 18-21, F 1 Response Jul 14

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    Now I'm starting to worry. I just turned 15, and I still have no signs of puberty. No growth, no hair, no nothing. I've always been one of the smallest boys in my class, but it...
    zakkattakk zakkattakk 13-15, M 3 hrs ago

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    Now I'm starting to worry. I just turned 15, and I still have no signs of puberty. No growth, no hair, no nothing. I've always been one of the smallest boys in my class, but it...
    zakkattakk zakkattakk 13-15, M 1 Response 3 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 3 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response 3 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 3 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response 3 hrs ago

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    I get really angry so easily... I'd be laughing and someone would say something I didn't like and I'll get so angry! If I debate something with someone, I get so mad i have to...
    faithandfree faithandfree 16-17, F 2 Responses 3 hrs ago

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    I have been writing on this site a lot lately and tonight he asks who the hell do you keep texting?! I told him I'm just responding to posts which is partly true. But now I feel...
    tlee5001 tlee5001 22-25, F 6 Responses 3 hrs ago

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    Like today i do t know why i have so much on my mind that i cant sleep even though i am tired i cant
    desirejanice desirejanice 22-25, F 2 Responses 3 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 3 hrs ago

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    In your life you meet people who bring much joy to your life and also people who bring much misery to it. I am very unfortunate because I've had more people who bring me misery in...
    morgan18365 morgan18365 16-17, F 1 Response 2 hrs ago

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    Yes I have everything I should be thankful for -people who like me a lot and a comfortable home.I have a few good friends and my parents and sister.So I consider myself lucky.I don...
    restored87 restored87 46-50, F 1 Response 2 hrs ago

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    I have been doing this on the phone for years now and it doesn't get old when you do it for the first time with a stranger you don't know it just makes it that much more exciting...
    heartgun heartgun 26-30, M 2 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 2 hrs ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 2 hrs ago

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    I'm starting my Senior Year soon. I still don't know where I'm going to attend college. I have not even done my SAT. I'm so scared about the future. I'm not even sure what I want...
    Gabs96 Gabs96 18-21, F 3 Responses 2 hrs ago

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    hi everyone i have a crew on gta online (Xbox) and i would like to have more members , so if anybody wants to join plz leave a message
    jojo12380 jojo12380 18-21, M 2 hrs ago

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    This is a group to help people with sadness in their lives, if you wanna become part of this group guys, message heartless2, the creator of this group, for info. We don't judge at...
    TheGuy147 TheGuy147 16-17, M 2 hrs ago

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    I want to be a actress so I am looking up schools to get more experience but I have no luck so yeah but I act all the time I will so a couple lines off of my favorite shows and...
    LonleyWolf99 LonleyWolf99 13-15, F 2 hrs ago

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    I have always loved fat but i never fully realized it until I got older. As a kid I would stuff pillows and blankets under my shirt simulating me being fat, and it always felt so...
    ilovefatforsomereason ilovefatforsomereason 22-25, M 2 hrs ago

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    Every now and then, I have nightmares that come true. It has happened about 8 times. Before 9/11, I had a nightmare that planes flew into skyscrapers. Just recently, July 10th, I...
    vanessasky29 vanessasky29 26-30, F 1 Response 1 hr ago

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 hr ago

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    I have forgotten how much it sucks to put someone's happiness first before your own. This is my breaking point. I have had enough of the lies and lack of trust on my part. Time to...
    AcousticAnne AcousticAnne 26-30, F 1 Response 1 hr ago

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    Yeah and thats killing me inside. I have many friends online but not even a single one in personal. I just always feel jealous when i see a large group of guys going out on...
    mahdiraza mahdiraza 16-17, M 1 Response 1 hr ago

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    Let's see if I can write my random without getting in trouble tonight. I woke and ., you know .. ;-) .., but that that did not really solve my issue, My mind stayed where it had no...
    Sunshine0615 Sunshine0615 36-40, F 1 Response 1 hr ago

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