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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
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    I was born with Hereditary Spherocytosis, I had my spleen removed when I was just 4 years old. I had to get my spleen removed lapriscopically and by cesarean because my spleen was...
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    I was diagnosed with congenital absence of the inferior vena cava a couple years ago. I was born with it, and although my mom said I was born with one leg that was swollen and...
    norolemodelmom norolemodelmom 36-40, F 1 Response May 20

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    Hi there, my name is Nick and I'm 19. I was born with congenital nystagmus and since have had 6 eye surgeries that have left me with strabismus. I was born with a head turn and was...
    soccerfan31 soccerfan31 18-21, M 4 Responses May 12

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    A month ago I got back with my ex, that I have loved ever since I was 16. We had a bad relationship before, because when we were young, we drank a lot, and hurt one other. Now last...
    magpie1227 magpie1227 31-35, F 2 hrs ago

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    "I don't have a heart" well, I'm a vampire. Wait, they have heart too. Then what I am.
    uglyidiotduckling uglyidiotduckling 22-25, F 2 Responses 4 hrs ago

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    Yes indeed I do have tattoo's& plan on getting huge killa piece on my left side along rib cage of archangel Michael defeating satan holding a sword. His foot having his head pinned...
    Sugasug Sugasug 41-45, M 1 hr ago

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    I have had Tmj for 4 years now :-( in a lot of pain daily, will start splint therapy next week,hope it works ready to be pain free and enjoy life again
    dulcemunoz36 dulcemunoz36 31-35, F 4 hrs ago

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    And I don't get hungry, so it's really hard to reach the amount of calories and vitamins I need every day. I might have to start having those weird drinks with everything you'd...
    junedew junedew 18-21, F 1 Response 3 hrs ago

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    I lost my mom three months ago I feel like it was three minutes ago. The thought that I will no longer see her on this earth is shaking me to the core. I'm not one to post on...
    Bootoou Bootoou 51-55, F 1 Response 3 hrs ago

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    In my English class, we have an essay, due May 29th. The rough draft was worth 50 points & the final copy is worth 50 points as well. All I got is my name.
    xXDemonArtXx xXDemonArtXx 13-15 2 hrs ago

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    Yeah I have a bird alright. It's 4am and there's this stupid bird outside who's been chanting the same 3 notes non-stop from 2am. DohMiRei DohMiRei DohMiRei DohMiRei DohMiRei...
    JackOLanterns JackOLanterns 18-21, M 2 hrs ago

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    Peaceful protest haven't seemed to bring forth much change. Maybe violent ones will show that people mean business. They have had enough. People should just be glad angry rioters...
    theslyfox theslyfox 36-40, M Apr 29

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    i fell for my bestfriend and now i feel like im in the depths of hell/all the thoughts and demons accumulated in my brain, and since then they never got along to well and right now...
    deleted deleted 26-30 1 Response Apr 29

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    This post is coming something that I wish I didn't have more than one experience in. When I was a kid I lost my father to cancer after about 15 months from his diagnosis. After...
    Imnotreelyhere Imnotreelyhere 31-35, M Apr 29

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    This is basically my rant on how I'm feeling right now. .So long story short, we were all friends, than one day the one girl wanted to just change and be not so nice. .It first...
    littlejxoxo littlejxoxo 26-30, F 3 Responses Apr 29

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    I have had two miscarriages, and endo runs in my family. My grandmother, and mother had hysterectomies fairly early in life. I am about to find out if there is any hope for me, but...
    Cadiaaya Cadiaaya 26-30, F Apr 29

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    It's freaking 1:55 In the morning and Im on the toilet about to freaking cry. My stomach is killing my I have diarrhea and it burns!... I hope if i tell my parents whenever I they...
    HazeyHaley HazeyHaley 13-15, F 1 Response Apr 29

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    need new friends to share my live with someone who I can talk to and will except me for who and how I am once u get to know me I'm very sweet funny and outgoing tinkerbelllver2...
    deleted deleted 26-30 2 Responses Apr 29

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    My diary. Diary of Panget.. Haveyouseenthisgirl
    RedHwaiting RedHwaiting 18-21, F Apr 29

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    are there any overweight people who have had problems when travelling, ie physically doing things, going places, emotionally fitting in, feeling like an outcast? is there anything...
    freedomgiraffe freedomgiraffe 26-30, F 1 Response Apr 29

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    I have one today, the first day of exam leave, not fun:/
    CalZe CalZe 16-17, M Apr 29

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    OK I just realized it's 2 am. What the hell?!? When did it get to be 2 am? This afternoon I couldn't wait for bed and now I'm completely awake. This sucks. Now I'll be getting up...
    omgwut omgwut 41-45, M 3 Responses Apr 29

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    Man, bunch of things to do. And now I have a cold, just great.
    deleted deleted 26-30 Apr 29

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    So...i,woman get many messages in a day here. i'm not chatty person here. i personally would rather talk to very few people around my age who has similar experiences or...
    deleted deleted 26-30 Apr 29

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    I have had mostly 1on1 sex but a few times have had sex with 2 or more women in the same day...3 was the most. And a few 3somes, each time finishing off inside bare backed. The...
    Ilove2hav3s3x Ilove2hav3s3x 18-21, M 2 Responses Apr 29

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    If you are ready for a long, detailed, boring story then keep on reading my experience on collapsing the first time.. So yesterday, april 28th of 2015 I had a pretty normal...
    GRda GRda 18-21, F 5 Responses Apr 29

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    I have a instant crush on a boy in my class and we have been in the same class for three year . But , he seem like didn't notice me and I don't know if he likes me or not so I...
    Samnesiaa Samnesiaa 13-15, F 3 Responses Apr 29

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    I was seen naked by a group of men for the first time when I was 26,..... I have had many naked encounters before but this was really very embarrassing......I was just trying my...
    lisdey lisdey 31-35, F 21 Responses Apr 29

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    every great love have great pain .babe we already had the pain let's be together to live the great love let me be with you face to face to touch you to love you to feel your body...
    Lilyalexandergia Lilyalexandergia 18-21, F Apr 29

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    Our family was just on holidays with my sister in law and her family. My sis in law has always thought she's a cut above the rest. Anyway, my nephew told me that my sis in law was...
    suckerfish suckerfish 36-40, F 2 Responses Apr 29

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    I have issues growing up without dad figures.. i dont know much about how to know about man..i have difficulties needs and wants..i am very independent..i have issues build...
    myselfhere myselfhere 22-25, F Apr 29

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    Because I haven't posted in awhile and have nothing else better to do. Here's a few dumb facts about me... 1. I love playing Black Jack and Gin Rummy. Pretty good at it too. You...
    AthenaJones AthenaJones 36-40, F 5 Responses Apr 29

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    i am lonely without him my dad passed away since i was 12 years old..i don't have much time with him..but the last things i remembered about him..he is inteligent,kind,responsible...
    myselfhere myselfhere 22-25, F 1 Response Apr 29

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    He won't stop staring at me or trying to get me to hug him and stuff and I have like three classes with him. I've straight up told him I don't like him but he won't leave me alone
    mhinajb mhinajb 13-15, F Apr 29

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    Hero of Baltimore riots: A momIn the contest for Mother of the Year, we have a winner. There is a mom....then there is a MOM!!!!While not funny... it is funny...I am sure her son...
    nocool nocool 41-45, M 12 Responses Apr 29

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    Just by the night I was in this site and the morning I was on I have fallen in live with someone that cards about me.
    skyegraeler skyegraeler 13-15, F 2 Responses Apr 29

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    Unfortunately I do. She is the best and the worst. The best because she's the only mother I will ever have and the worst because she turns people against me and tries to separate...
    SteelButterfly SteelButterfly 41-45, F 7 Responses Apr 29

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    Being open-minded has run my life. It makes new knowledge and experiences all that more enjoyable. Reminiscing through what your brain may hold and contain from the world is a life...
    RydeTheMuzik RydeTheMuzik 18-21, T 1 Response Apr 29

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    Someone needs to explain this weird.. Uh.. "Gift" I have? I guess you could call it a gift.. Anyways.. I can decide when my body wakes up, if I want to lack or oversleep. I can...
    akaShaun akaShaun 16-17, M 4 Responses Apr 29

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