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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    Related Experiences

    Thought I would share my story: I'm the eldest of three boys (both my brothers are healthy). Being the first born my parents had no experience of what to expect of a child's...
    Magpie62 Magpie62 31-35, M Oct 13

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    -usually a very active, happy, crazy, life living kinda gal! but lately been defeated by fibromyalgia... I know fibromyalgia is said to be triggered from depression and anxiety...
    tljsmtc tljsmtc 22-25, F 2 Responses 11 hrs ago

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    Last July I ended up in risky sex.... I believe this person now to have hiv.. I have nightmares on the night this person decided to put something in my drink having me do...
    umine umine 31-35, F 1 Response 9 hrs ago

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    I don't know if this is the right place to talk about this, I don't want pity, it may sound oh woe is me, but I am happy enough well ish last night I had a chat with my mum that...
    soapdodger soapdodger 31-35, F 2 Responses 9 hrs ago

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    i have been pulling my hear for 7 years now, my hair, eyelashes, i am so embarrassed and have low self esteem. my family make fun of me. i haven't told them about it because i am...
    koketjo koketjo 18-21 1 Response 7 hrs ago

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    My ex broke up with me 4 months ago and I think I will be alone for ever, I can't date, I don't know what to do. I tried online dating and I like it because I find I can chat...
    Asguard Asguard 31-35, M 2 Responses 6 hrs ago

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    I came to Canada from jamaica I'm my 30s and I have been told I lost my jamaican accent but still have a nice voice
    wilddesert77 wilddesert77 36-40, M 5 hrs ago

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    i have detected many symptoms of DPD in me over the past, and every single one of them leaves me in a situation where i'm stressed out. i feel i'm too clingy to my friends, i used...
    monophxbia monophxbia 13-15, F 5 hrs ago

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    My boyfriend and I of two years have not spoken in 3 days...The longest we have ever gone (aside from his time in the military). It was an amazing romance for a long time. I...
    Nicoleashleyxo Nicoleashleyxo 22-25, F 1 Response 5 hrs ago

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    I have worked in this café for 2 years. I laid an eye on him on first sight. He is quiet, friendly looking and mysterious. He came to the coffee shop everyday for a coffee, but no...
    seraphurn seraphurn 22-25 4 hrs ago

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    I'm experiencing quite a bit of pain. I want to be loved honestly. Not that fake love that people use as a tool to get what they want from me. A love that haas no ends. A love that...
    Jaielll Jaielll 18-21, F 4 hrs ago

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    I sometimes crave to have a baby of my own. I have no idea why. I think if I were to have one it would be really cute. But I don't want kids.
    NotMuchGoingOnHere NotMuchGoingOnHere 18-21, F 3 hrs ago

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    Sometimes, I will feel as if it is better to hide away from the world. I feel ashamed of myself, even when I'm in my room alone, its as if everyone can see me. I turn the lights...
    dogsareCute16 dogsareCute16 16-17, F 1 Response 2 hrs ago

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    I was officially diagnosed with depression, social anxiety, general anxiety, and obsessive compulsive disorder. Over the past years OCD has been in remission, depression has turned...
    kandieekainee kandieekainee 22-25, F 1 hr ago

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    They said that yo haven't experienced real fear unless you had sleep paralysis ,, n they r right !!!! it's the worst thing ever ,, imagine not being able to move , hallucinating n...
    TiTiFreaky TiTiFreaky 18-21, F 3 Responses 54 mins ago

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    Well, cute, to be exact. One time I was talking to a person and this other girl randomly had to yell and point out how adorable my voice sounded. XD lol Also, according to...
    ChanelLove12 ChanelLove12 70+, F 48 mins ago

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    It's 4:23 AM. And i'm not tired at all. In fact i'm playing loud music while i'm singing the lyrics!! This has been going on for a little over a month. I barely sleep especially at...
    chaoshead chaoshead 13-15, M 9 hrs ago

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    When you've allowed yourself to be healed by your will of the universe, you've acquired the tool of self mastery. You then have the power within you to help heal another. If we all...
    AquariusLife AquariusLife 26-30, F 8 hrs ago

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    Okay so I've never told anyone this story before, it's just too painful. I know it doesn't seem like a lot but what happened has really influenced me. This was a couple of years...
    iloveyousomuchdontforgetit iloveyousomuchdontforgetit 13-15, F 4 Responses 8 hrs ago

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    Im such a bad rat momma. I love my rats more than anything in the world. One day I said out loud, I will move out even if I have to give away my rats. And then that day one of my...
    sarahk85 sarahk85 26-30, F 6 hrs ago

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    OK Mini... Here's one... For my mean fantasy... For all the men/women that have beaten their loved ones.... Get all the family and friends lined up..two lines... hand them a...
    MorningBreeze MorningBreeze 56-60, F 2 Responses 6 hrs ago

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    I have been blessed enough to find a kindred soul. This person is someone who understands my challenges, cheers on my successes and shares my dreams and desires. I have an...
    WitchingHourAuthor WitchingHourAuthor 36-40, F 3 Responses 6 hrs ago

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    Sometimes you have good days, sometimes bad. Today is a bad day. People are entitled to their opinion, but is it really necessary for someone to ask me why I haven't killed myself...
    SlowlyDrifting SlowlyDrifting 13-15, F 2 Responses 6 hrs ago

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    Bullying has made me into a paranoid, sensitive person. I don't see how bullying can make you a better person. I still hate people. I don't even have to get to know you in order to...
    Danae102 Danae102 18-21, F 2 Responses 5 hrs ago

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    Have u ever eaten an apple after brushing your teeth....well I have and I would suggest not trying it!
    Wonderwoman25 Wonderwoman25 36-40, F 3 Responses 3 hrs ago

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    A thousand times! Especially when you think you're being sexy When I was 18-19 I used to be so sick of it but now I have gotten used to it. I still see myself as sexy sometimes.
    PetiteChica PetiteChica 18-21, F 1 Response 11 hrs ago

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    I have a few that do that. "Hero" by Enrique Iglesias. That's one of my future wedding songs. Kings of Leon "Use Somebody" Etta James " At Last" and anything by Staind
    cjohnson1983 cjohnson1983 31-35, F 11 hrs ago

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    So apparently I have had no hymen since seventh grade. I lost it when I did a high kick in Karate. I don't know what is weirder, kissing it to a high kick or not knowing till many...
    AirLight89 AirLight89 16-17, F 1 Response 10 hrs ago

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    Is there anyone one here that has an actual chat with someone without asking personal questions that are inappropriate. Just once I would like to have a conversation with someone...
    wishitwouldend wishitwouldend 16-17, F 4 Responses 10 hrs ago

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    I got my first tattoo at the end of September. I have so many more planned & cannot wait to get them <3
    Ezria96 Ezria96 18-21, F 10 hrs ago

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    its not like i expected to have a serious relationship with him but still .. it doesn't feel nice
    naomizz naomizz 16-17, F 2 Responses 10 hrs ago

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    Sometimes I can't wait until I sleep and dream because it is the only realm in which I have a lover... In my waking life I currently do not :/ This is not an invitation, merely a...
    OhGK OhGK 26-30, F 2 Responses 10 hrs ago

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    This small exercise really changed the way I think about life (its better explained over voice but still gets the message across in reading). Start by quickly looking around the...
    TheKingWizard TheKingWizard 18-21, M 1 Response 10 hrs ago

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    When i found a skull while camping in the woods, my 1st thought was to call the authorities, but then i picked it up and pondered; who was this person? How did they die? and why...
    AntonioV AntonioV 46-50, M 1 Response 10 hrs ago

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    '****' is my favourite word I use it quite regularly. Don't get me wrong I'm educated and have a decent vocabulary but I like the simplicity of the word. It can be used in...
    heather81 heather81 31-35, F 1 Response 9 hrs ago

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    I have a broken heart and it's the worst feeling in the world I feel so helplessly abandoned My heart break is caused by the sudden realization that no one in my life has ever...
    applesnbananas applesnbananas 51-55, F 1 Response 9 hrs ago

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    to all who find themselves here have faith? let go and let God ? drink kettle one vodka it's the best find healthy people ( good luck on that seems to me your either predator...
    applesnbananas applesnbananas 51-55, F 1 Response 9 hrs ago

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    Seven years ago around this time my mom died. My cousin who found out she was pregnant the same time as me and my co-worker who did too both posted pictures of their baby bumps on...
    ritzypoo ritzypoo 26-30, F 9 hrs ago

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    Most people in this are exaggerating a little. I'm serious. I have no friends whatsoever.
    AnnaKanna AnnaKanna 13-15, F 1 Response 9 hrs ago

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    I have 2 major scars....one was from falling off a skateboard when I was 14 and another from an operation on a badly broken wrist. And innumerable mental ones !
    Anch0rMan Anch0rMan 41-45, M 9 hrs ago

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    Money isnt EVERYTHING???? well, without it, you cant have ANYTHING!!!
    AntonioV AntonioV 46-50, M 4 Responses 8 hrs ago

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    Parents have done extremes. Professionals teach extremes. Extremes dont work. Punishing creates jerks and broken. Spoiling does too. So whats the answer. How do...
    Livyn4pals Livyn4pals 46-50, M 7 hrs ago

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    Life's Lessons When you feel chronically confused or stuck or enraged, or afraid, you realize that the crises we bring ourselves are angels trying to get our attention. An illness...
    samemay54 samemay54 41-45, F 7 hrs ago

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    My latest bout with Grover’s Disease came from being very sick. I thought it was a flu or cold. But it only lasted 1-2 days and simply vanished. What I was “bugged” by was...
    rpayton805 rpayton805 61-65, M 6 hrs ago

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    I have 3 boys. kohei (koko) tino and smokey (mocha or mochaccino). hands down they are my favorite pet ever.
    SadisticPsychoBitch SadisticPsychoBitch 31-35, F 1 Response 5 hrs ago

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