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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    Related Experiences

    Hi, I'am 20 years old (female) I have recently had a lot of health problems mainly stomach related, been through lots of tests. The most recent hospital appointment I had realised...
    glamnaomi glamnaomi 18-21 Feb 23

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    I have always cherished the idea of love; of having someone that you love so much that they bring out the best traits in you and they make you want to become a better person. I...
    sammymater sammymater 18-21, F 1 Response 44 mins ago

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    I don't know what to do about this. It just feel as if everyone is so much better than me in terms of intelligence, awareness, creativity, knowledge and so many other aspects. What...
    DarkLoser DarkLoser 13-15, F 1 Response 26 mins ago

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    There is a small restaurant that is expensive but look stale near my apartment. Since I have moved to this room, I have never tried food there. Food displayed at the entrance has...
    katsuobushi katsuobushi 36-40, M Feb 6

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    I have been watching on YouTube, about a woman who made a video diary about her Reglan induced movement disorder. I have decided to make a video book. When a movement disorder...
    Boshie Boshie 61-65, F Feb 6

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    I often tell myself I take garbage bags to the garbage can outside when I leave for work or shopping. How many times have I discovered that I forgot to bring them with me when I...
    katsuobushi katsuobushi 36-40, M Feb 6

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    My mum is a narcissist. She's so horrible to me, she tries to make me feel crazy all the time and that everything is my fault. She can NEVER say 'I'm sorry, I was wrong' never...
    Misscoconut Misscoconut 18-21, F Feb 6

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    I made one when I was like, 10. Cause I heard my older sister talking bout it and what it was. So I decided hey I wanna do that if she can so I started writing silly 10 year old...
    wedgieshurtalot wedgieshurtalot 16-17, F Feb 6

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    I have felt like this a couple times before. Like if this is my life, then why am I here? I felt as if it was all hell. I also shattered my self confidence and any hope of a normal...
    DanielPhillips DanielPhillips 18-21, M 2 Responses Feb 6

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    What's the point to having multiple profiles? I have just this one and it's already too much at some points, so I think it'd be tricky having more than one and I don't think I see...
    wedgieshurtalot wedgieshurtalot 16-17, F 1 Response Feb 6

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    I've had a lot of reasons to give up the hope of ever feeling like it's going to be ok but I'm still trying. It's so hard at times and sometimes I forget to hope but I'm still here...
    unfixablegirl unfixablegirl 36-40, F Feb 6

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    Creepy Warning My name is Chris. I have had sleep paralysis recently. It is not my first time dealing with sleep paralysis, i have it rather frequently like 1-3 times a month, it...
    Footedeal Footedeal 70+, M Feb 6

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    I have it so bad for my room mate. He is my ex's best friend and my ex actually still lives here. I feel so bad but I can't help it. His voice, his smile, and his kindness. I am...
    imashroo imashroo 18-21, F Feb 6

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    I have been skinny dipping for over 2 1/2 decades and love it very much. I started as a young teenager with my family. Within a few months others joined us in skinny dipping...
    burnettenudistwife burnettenudistwife 36-40, F 9 Responses Feb 6

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    After months of stomach aches and losing a ton of weight and looking pale, a doctor finally figured it out. So I was diagnosed with Celiac Disease when I was about 2 and a half...
    SparkleSwirl SparkleSwirl 18-21, F Feb 6

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    Four years of work for nothing. I worked my brain to the point of exhaustion every day for four years and this is how it ends. I have no more heart to break. Every torn ribbon and...
    DarknessWolf DarknessWolf 22-25, M 3 Responses Feb 6

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    I have always had a problem with sleeping through the night or staying asleep but this last week has been the worst. a hour here and there, I have tried melatonin, sleeping pills...
    rose2416 rose2416 31-35, F 3 Responses Feb 6

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    just really need some new people to talk to because the people I have I feel aren't true friends anymore
    steven5647 steven5647 22-25, M Feb 6

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    Hi I've only just been diagnosed this week. Still have a lot if questions and concerns. No obvious cause for mine but maybe GORD?
    agreenslade agreenslade 31-35, F Feb 6

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    Its late, I cant sleep.. So you know what that means. .My thoughts are all over. .I keep thinking of the loss of my dear cat. I miss him soo much. It's been two years. It still...
    littlejxoxo littlejxoxo 26-30, F 1 Response Feb 6

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    my story PART 1: (its a LONGGGGG book so be prepared) I don't remember a lot of when I was really little just bits and pieces. my mom and dad divorced when I was 3. we lived in...
    HisLove2010 HisLove2010 22-25, F Feb 6

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    the reason i went from spankmeladies to the one i have now is because I caved into the pressure from a lot of the diffrent ladies opinions here I was blocked just because of the...
    gentlemanjoe2 gentlemanjoe2 56-60, M 19 Responses Feb 6

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    My Story Part 3: Anyways, my husband had an accident 4 months after we married and 4 days before deployment and injured himself pretty bad, he's VERY lucky to be alive. About a...
    HisLove2010 HisLove2010 22-25, F Feb 6

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    Hello,my name is Jas I saw **** at a very young age n then I became desperate n my grades have started falling due to my ************ habit but I went to a Councellor she told me...
    engineerdesigner engineerdesigner 36-40, M Feb 6

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    Today I get to spend time with my girls. This is truly one of the happiest times for me. To see the delight on my little toddler's face, how she jumps up and down and runs to...
    sundancesoul sundancesoul 46-50, F Feb 6

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    I have a very high tolerance for pain. I don’t process pain like a normal person does. Because of this, I have found myself in some emergency situations. The first problem...
    akindheart akindheart 56-60, F 24 Responses Feb 6

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    I have been exspiriencing paranormal activity since I was a young child. I'm sick of it and want it to go away! I want a normal life where my boyfriend can go somewhere at night...
    krista2244 krista2244 41-45, F 6 Responses Feb 6

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    Back in 2007 i lost my son to cancer, Neuroblastoma.he was only 5 years old. everyday I feel like I'm getting weaker and weaker. I shut out most of the people in my life. my...
    ClickCloser ClickCloser 31-35, F 5 Responses Feb 6

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    Well I think I conquered it. My last 2 recurring dreams I had to realize that I was dreaming in order to stop them from coming back and this time in my dream I figured it out and...
    smokebombtom smokebombtom 18-21, M 1 Response Feb 6

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    I have no motivation to do anything. Therefore I have no commitment to anything. Over the last couple of years this has gotten increasingly bad and I even cannot bring myself to...
    HyperactiveLauren HyperactiveLauren 16-17, F Feb 6

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    So as I entered my math class today , I see this blonde haired girl with a pony and come and sit right next to me . She's so beautiful . I think I have a new crush and j wanna...
    ish1234567 ish1234567 22-25, M Feb 6

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    i have 2 either fallen angels by black veil brides or wanted dead or alive by bon jovi
    lunerfang lunerfang 13-15 Feb 6

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    Drowning is when you're six, you've forgotten your floaters, and the new caretaker who's too scared to get her miniskirt wet to help you. It when you wish you could float like the...
    JustAnotherStoryteller JustAnotherStoryteller 13-15, F Feb 6

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    I have broken up with my girlfriend of one year, and broke communication with my bestfriend of 3. Although it seems that it was a bad idea, i realized i needed a freah start with...
    imashame imashame 18-21, M 2 Responses Feb 6

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    A couple weeks ago, 6 days after my 20th birthday, I had had enough with stress and my depression. Granted, I wasn't taking my medication properly, which probably contributed in my...
    KorruptedKid KorruptedKid 18-21, F 1 Response Feb 6

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    It feels like I have wasted my life. I sometimes think that I am worthless.
    Shereen84 Shereen84 26-30, F 4 Responses Feb 6

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    Sometimes I wish I lived up North so I wouldn't have to specify that I want unsweet iced tea.
    Myzery Myzery 31-35, F 3 Responses Feb 6

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    1.)Make every day count. Don't take it for granted, live every day like it was your last. Stop thinking about what's gone and think about tomorrow. When you do this you are looking...
    TsGirl16 TsGirl16 16-17, F Feb 6

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    Dear Parents, Please raise your children to have enough morals and brains to survive high school without getting pregnant or getting someone pregnant. Please instill in them, at a...
    trAnSyLvanIanconcuBinE trAnSyLvanIanconcuBinE 26-30, F 1 Response Feb 6

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    "If you tell the truth, you don't have to remember anything." - Mark Twain I am too dumb to run 2 profiles : )
    leosdisciple leosdisciple 56-60, M Feb 6

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    Yeah i think loads of people have it on here
    tommy2207 tommy2207 13-15, M