Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

    Your Response

    Cancel

    Related Experiences

    What would happen If women used yoga As bait For foreplay Or dating Would hilary still be bought by wealthy Or would society Or man Would women rule And do so...
    JustBipolarMe JustBipolarMe 46-50, M 39 mins ago

    Your Response

    Cancel
    Well, technically I do. Many people would think I have quite a lot, but in reality I can't think of ONE person that's genuinely there for me. My friends don't know any of my...
    EverlyLeex EverlyLeex 18-21, F 3 Responses 1 hr ago

    Your Response

    Cancel
    More and more often I think about what I have and what others don't. We have access to water at anytime, anywhere we go in most countries but there are people in other countries...
    azurebites azurebites 51-55, F 1 hr ago

    Your Response

    Cancel
    I think I have schizophrenia, but I cannot talk to my psychiatrist about it, nor any of my family. I have a fear of doctors. I don't know what to do.
    Dawhead Dawhead 16-17, M 3 Responses 1 hr ago

    Your Response

    Cancel
    I think I have schizophrenia, but I cannot talk to my psychiatrist about it, nor any of my family. I have a fear of doctors. I don't know what to do.
    Dawhead Dawhead 16-17, M 1 hr ago

    Your Response

    Cancel
    ...and I still am. I want to leave, but my parents have kicked me out of their house, and his home is the only place I can go. I am stuck here. Im about to buy a car and live out...
    neonslug neonslug 18-21, F 3 Responses 1 hr ago

    Your Response

    Cancel
    I was 17. He was 52. Numerous times. I enjoyed it but it shouldn't have happened. I will stick to a more reasonable age range from now on.
    VioletSea VioletSea 16-17, F 2 Responses 1 hr ago

    Your Response

    Cancel
    Is it wrong to hope he doesn't have a wife or a girlfriend? That he's just a lonely person, just like me, who doesn't really socialize too much but is a good person.. Is it wrong...
    AmberTheShyGirl AmberTheShyGirl 18-21, F 2 Responses 1 hr ago

    Your Response

    Cancel
    Today I have totally given up on hoping to ever trust anyone. I cannot even trust my own mother. That bond broke today just a little bit more and I don't know if I have much more...
    js246 js246 22-25, F 3 Responses 1 hr ago

    Your Response

    Cancel
    I'll see him again in class tomorrow.... What am I going to do....I am silly in thinking I have a chance with him anyway because there are so many other girls in my class who are...
    AmberTheShyGirl AmberTheShyGirl 18-21, F 1 Response 1 hr ago

    Your Response

    Cancel
    so i go for my surgery on Thursday i have to be up before 6 45 am because that's when i go to the hospital. I am getting tubal ligation, done but instead of just getting them cut...
    Alexia85 Alexia85 26-30, F 2 hrs ago

    Your Response

    Cancel
    LOST ... need help plz, I'm ashamed and I hate seeing him hurt. We have been married for 8 faithful years. I have been unhappy with him for awhile. He has had 7 knee surgerys in 3...
    shygirl1986 shygirl1986 26-30, F 2 Responses 2 hrs ago

    Your Response

    Cancel
    Honestly he's really really hot and super cute and tall and kind of muscly and good looking and he has the most amazing smile and tomorrow I'm supposed to meet with him in his...
    AmberTheShyGirl AmberTheShyGirl 18-21, F 2 hrs ago

    Your Response

    Cancel
    so some of you may have noticed I'vehave been gone for a while one of the reasons for this is because I have been very busy with school the other reasons is my computer broke and I...
    Rosiecakes202 Rosiecakes202 18-21, T 2 hrs ago

    Your Response

    Cancel
    I guess I cant say that I have never told anyone anymore. I told a love I met on here . But outside of her, no one knows, not even my wife. It is so odd that i would meet a lady...
    boldtimer boldtimer 66-70, M 2 hrs ago

    Your Response

    Cancel
    I have just been diagnosed a couple weeks ago with anxiety disorder and adjustment disorder although i have had anxiety since a kid. I also deal with dissociation due to my anxiety...
    AnxiousNoodle AnxiousNoodle 22-25, F 2 hrs ago

    Your Response

    Cancel
    I have a friend who's my age and dating a 29 year old. Please pray that she gets some sense into her bones.
    Ivrite Ivrite 16-17, F 2 hrs ago

    Your Response

    Cancel
    Hi, my name is Amber, I'm eighteen years old and I have a crush on my professor. It was a hopeless case from the start. Class only started two weeks ago and already I'm head over...
    AmberTheShyGirl AmberTheShyGirl 18-21, F 2 hrs ago

    Your Response

    Cancel
    I have one fantasy where time would stop or I was the only person in my town for miles and I would be alone and I could just raid the stores taking all the food I want and eating...
    bmax69 bmax69 18-21, M 2 hrs ago

    Your Response

    Cancel
    WASH BEFORE USE! Sound familiar? Maybe it was on your top's label? Maybe you ignored it countless of times? You happily thought "I'll wear this for a few days before washing...
    Sazzio Sazzio 26-30, M 2 hrs ago

    Your Response

    Cancel
    I'd love to have an interracial friendship! it would be so interesting to share life experiences
    mariangelav mariangelav 16-17, F 3 hrs ago

    Your Response

    Cancel
    Is a "bad" father better than no father? My children don't want to see their father. They say he is mean, shouts all the time, tells them they need a diet (they aren't over weight...
    paliglass paliglass 31-35, F 10 Responses 3 hrs ago

    Your Response

    Cancel
    Have 4. One on each of my inner heels (below ankles) and one each on inner wrists. Want another one to symbolize my family, just not sure what or where. Decisions, decisions.
    Rrynn Rrynn 46-50, M 3 hrs ago

    Your Response

    Cancel
    When did you last say : mmm ...think I am going to have me some of that? ;)
    FoolishLuna FoolishLuna 46-50, F 9 Responses 3 hrs ago

    Your Response

    Cancel
    Forgot to post this dream I had the other night. It really wasn't that exciting, what made it weird was the vividness of it and how real it felt. The first part of the dream I was...
    Hush92 Hush92 18-21, F 4 hrs ago

    Your Response

    Cancel
    My favourite recent quote is from Arnold Schwarzenegger. He was saying that having a million dollars doesn't make you happy. I don't have the exact words but it was along the lines...
    Richlieu Richlieu 61-65, M 4 hrs ago

    Your Response

    Cancel
    I know you are depressed so this story is for you. Hope you enjoy it. Well, I came across some nice material about how depression works. I won't be very detailed here to avoid...
    OurUltimateHope OurUltimateHope 26-30 1 Response 4 hrs ago

    Your Response

    Cancel
    I have a spouse with multiple personality disorder.
    linniemaloo linniemaloo 36-40 4 hrs ago

    Your Response

    Cancel
    I just came back from the repair shoppe to get my iPad. My stranger for a Mother or one of her boyfriend's family members most likely broke it while I was having seizures. It...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 5 hrs ago

    Your Response

    Cancel
    I have a friend who is an adult and a parent himself, and who had to move back in with his parents. His parents were so strict he began to wet his bed again, and also wet his...
    wetelfboy wetelfboy 41-45, M 5 hrs ago

    Your Response

    Cancel
    In my dream last night, one part of it was me reading more about anxiety online. There was a list of anxieties experienced by people who actually had anxiety disorder, and a list...
    Hush92 Hush92 18-21, F 5 hrs ago

    Your Response

    Cancel
    In my youth I was arrogant ,reckless, and ignorant. I acted solely to help only myself and I didn't see the truth because I did not wish to see. I did things I wasn't proud of...
    SladeTheLegend SladeTheLegend 18-21, M 1 Response 5 hrs ago

    Your Response

    Cancel
    Whatever you discipline yourself to do, it can eventually become a habit. You have the choice of disciplining yourself to form positive or negative habits.
    BeautifulSurprise BeautifulSurprise 36-40, F 5 hrs ago

    Your Response

    Cancel
    I lost my dad in 2009. I was in my early 20s and he was 75. I was his caretaker and was there through the whole process of his death. My mom on the other hand died in 2014 at just...
    BlissfulBoredom BlissfulBoredom 26-30, F 1 Response 6 hrs ago

    Your Response

    Cancel
    Lost my sister this past may. I'm still working through the grief. She had a rare autoimmune disease that was killing her slowly for years, so it wasn't totally unexpected but that...
    BlissfulBoredom BlissfulBoredom 26-30, F 6 hrs ago

    Your Response

    Cancel
    in real life all my relationships have been online...
    aby2015 aby2015 13-15, F 2 Responses 6 hrs ago

    Your Response

    Cancel
    The great thing about being a guy is I don't have to put on a "face" to go outside. All I have to do is make sure my nutsack isn't showing and I'm pretty much golden.
    slingshot007 slingshot007 46-50, M 3 Responses 6 hrs ago

    Your Response

    Cancel
    When I was younger, I use to hide that cos first my vision was much better then it is now and second cos I want people to treat me normal, (my famiy does treat me normal tho cos...
    Said84 Said84 31-35, M 1 Response 6 hrs ago

    Your Response

    Cancel
    A long time ago my girlfriend and ex were skinnydipping with another guy. he was a little pushy and the girls hung around me. after he got the hint and left some additional fun...
    imalright71 imalright71 41-45, M 1 Response 6 hrs ago

    Your Response

    Cancel