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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy - Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    Related Experiences

    Chapter 7 - The Mental/Fatal BlowLate in October of 1994 I was at our local American Legion to give blood as an annual civic duty. (sometimes biannual)I always felt super good...
    Batboy69 Batboy69 56-60, M Mar 19

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    No official diagnosis yet but it most likely CD. I have had migraines for 3 years. About 3 months ago I 'passed out.' I really don't remember myself. Here is what I do remember...
    Ajokd Ajokd 36-40, F Mar 22

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    No hate. I really want to get pregnant and be a mother. I feel like even though I am young, I am ready for the responsibility of being a parent. I have wanted a baby for a long...
    justanotherpixie justanotherpixie 16-17, F 4 Responses 11 hrs ago

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    I found this support group through google. I have been suffering with keloids on both of my ears since I was nine years old. I have had a total of 7 surgeries all to which the...
    Marquinta Marquinta 22-25, F 11 hrs ago

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    I haven't been diagnosed with Hemi but I'm pretty sure I have it. I'm a 17 year old girl and I do pay attention to my body a lot. About a year a go I really started to notice how...
    thaliatjan thaliatjan 16-17, F 10 hrs ago

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    I'm 21 years old, currently away at college. The only family I have is my mother, and we've been literally poor for about a year now. The thing is, we sold one house 7 years ago...
    janefloyd janefloyd 18-21, F 3 hrs ago

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    So I had scolisis surgery, rod placement and then removal due to osteomyelitis. The rods were taken out and I still have a slight curve of 19ยบ, a rib hump, leg discrepancy, etc...
    winterwind222 winterwind222 26-30, F 2 hrs ago

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    I had another judgemental moron in my inbox today. I won't talk about them personally, that would give them too much credit. However, there is a general principle behind it, and my...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F 1 Response 56 mins ago

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    in like all kinds. My aunt and uncle hate me and I have to stay with them lots of times. They hate when I bother them and make them work and they let it feel me. I just have to...
    SabrinaInTears SabrinaInTears 13-15, F 2 Responses 7 hrs ago

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    h e got in touch through facebook, he hadn't changed much and we arranged to meet for a drink. didn't plan anything but he told me he wanted to have me again so I went back to his...
    kirstyisback kirstyisback 36-40, F 2 Responses 7 hrs ago

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    I always had vivid dreams but after my son was born they have become extremely vivid and when I wake up I remember them. I had serious, serious nightmares last night I woke up and...
    funsnowgal funsnowgal 22-25, F 1 Response 6 hrs ago

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    Lately, I have been having memory losses. I don't remember a thing that I did this past Saturday other than doing a research project in the morning and leaving the library. The...
    bkf2 bkf2 22-25, M 1 Response 6 hrs ago

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    I don't have any friends. I used to. I actually had quite a lot when I was in high school. But that was 5 years ago, and I'm in college, have a boyfriend and a busy job. They all...
    RunningFree32 RunningFree32 18-21, F 1 Response 4 hrs ago

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    I was diagnosed with Polycythemia Vera nearly 5 years ago. I am 59. I have phlebotomies every 3 months and take Hydrea 500 mg 2 x day. I struggle mostly with the fatigue. I was...
    Newmandj Newmandj 56-60, F 1 Response 1 hr ago

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    Ever since I was 14 I've had night terrors and gripping anxiety attacks that leave me breathless and immobile. 6 years later, after countless therapy sessions and medications...
    ToWhomItMay ToWhomItMay 18-21, F 1 hr ago

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    I've been telling it for a while now, but this is me. There are over 70 parts including what I love, what I hate, what I've been through, and all the creative bits of writing...
    LaurenJFisher LaurenJFisher 22-25 11 hrs ago

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    I have a crush.. My friend likes the same person as me.. Should I tell her?
    itzlexx itzlexx 16-17, F 2 Responses 11 hrs ago

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    I have a crush on one of my really good friends Matthew. Hes kind of a manwhore though and he can be an *** sometimes. But i feel like the times when he's nice or does stupid...
    Kittenfire Kittenfire 16-17, F 3 Responses 10 hrs ago

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    I did not want to admit this to myself.. Unfortunately, it's true. It's just awkward since I can't imagine us together ever, I also see him every day, and we have different tastes...
    Professionalgriefer Professionalgriefer 18-21, F 1 Response 10 hrs ago

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    i have never though of myself as beautiful. as people make fun of me for being tall and having a healthy skinny figure. :/
    nicolepie nicolepie 22-25, F 9 Responses 10 hrs ago

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    I hardly have any friends that do drugs plus I'm a Mormon (not really)? I think the main reason I do drugs is to battle my anxiety
    molestay molestay 13-15, F 1 Response 10 hrs ago

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    I love kids so much. I honestly can't wait to have children of my own :)
    HeyItsMirandaa HeyItsMirandaa 18-21, F 4 Responses 10 hrs ago

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    I am going to have a really bad day.. forgot half of my cloths at home.. and i'm travelling with friends..School trip....
    adrinnasweet adrinnasweet 18-21, F 6 Responses 8 hrs ago

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    I am the kind of woman who gives her all in a relationship. It is pretty intense. I find myself to be very different from my friends who can't stay with a guy for long.I loved...
    Susana1985 Susana1985 26-30, F 3 Responses 7 hrs ago

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    lol who doesnt i guess !every healthy human being should have a naughty side as being straight face is soo boring !
    romell romell 36-40, M 1 Response 7 hrs ago

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    Hi guys :) Well I have this secret crush who is in the other class and he always look at me and he even smiled at me(tender smile), also there is one time I maintained eye contact...
    chocolateicecreamxoxo chocolateicecreamxoxo 13-15, F 6 hrs ago

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    I met this little person here on EP. She brightens my day, which begins with a joke , making me laugh so much, oh so much. She's so little, has a busy day, fights with her school...
    Qatalyst Qatalyst 22-25, F 6 hrs ago

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    Just because I'm sick of having to repeat myself over and over... The one thing I hate, is sounding like I'm a business deal to another person constantly, especially after the...
    Lunarflowerrr Lunarflowerrr 22-25, F 1 Response 4 hrs ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 2 hrs ago

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    I have three bears i could never give to anyone stripes, Tommy and Brownie stripes has been with me since i could remember and tommy i got when i was nine he has rollerblades and a...
    otakugamerwolf otakugamerwolf 13-15, F 2 hrs ago

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    I am full of hate and I can't remember why!! I'm unfazed by other people's suffering but I pretend to care because its "what people do" even though they make me ******* sick I try...
    a7xqueen a7xqueen 18-21, F 1 Response 1 hr ago

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    Hi I have bedwet since 2 summers ago. The doctor keeps saying it will stop someday. I hate it because my brother and sister think its funny. I hope it stops soon.
    BrendanFitz BrendanFitz 13-15, M 1 hr ago

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    I don't have a large circle and am not interested in "friending" everyone. I like the circle I got and am very slow to add more people.
    JustmeraeAgain JustmeraeAgain 46-50, F 1 Response 36 mins ago

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    This constant feeling of bad nausea. This anxiety - nausea is taking over my life. It's taking away my ability to function outside. I can't go out to eat. I can't take a shower...
    BGS9 BGS9 22-25, M Mar 16

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    I am a werewolf I have not transformed yet .. And need tips on how to possibly speed up my transformation...
    sassylilrebel sassylilrebel 13-15, F Mar 16

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    Ever since I had the very first signs of puberty I have been an emotional wreck. It's been ten years now and I'm 18 years old. I can't even keep a smile on my face. I was always...
    Twichl Twichl 18-21, F 1 Response Mar 16

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    When I was young I was in a long line of traffic when this car blew up right in front of my I was around 5-6 years old just barely starting life and something like this happens...
    Meeppeep Meeppeep 16-17, M 1 Response Mar 16

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    I know my life isn't as bad as some. This is my depression and self hate story. It started when I was young. My dad practically hated me. He never took my side. He was never nice...
    thoughtfulstars thoughtfulstars 13-15, F 2 Responses Mar 16

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    All my friends are bi or lesbian, but none of them are guys (there is one who I absolutely adore cuz he's so feminine and claims to be straight...I wish he was gay though! he's so...
    SarahBear907 SarahBear907 16-17, F Mar 16

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    blank post. blank picture. blank name. I really don't know where im going here but I just feel like typing. They're a lot of reasons why a person have a blank profile picture...
    fedp fedp 13-15, F 1 Response Mar 16

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    I don't. Simple as that. I have like 5 acquaintances. But no friends. It's lonely.
    ncon08 ncon08 18-21, F 1 Response Mar 16

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    I'm thinking about not giving up or giving in. It's kind of my motto....thank you Breaking Benjamin. So I've been putting together my strategy the last couple of days. I need a...
    sassyg1rl sassyg1rl 36-40, F 2 Responses Mar 16

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    I would like to meet and make friends with people who have lupus for friendship and support.
    trishy777 trishy777 51-55, F 3 Responses Mar 16

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    Was there last Wednesday for an upper gastroscopy and a colonoscopy. (coloscopy) I had to go through that because two months ago, they hospitalized me for many reasons, but among...
    EarlPhantomhive EarlPhantomhive 18-21, F 1 Response Mar 16

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    I have always had trust issues. I find it very hard to trust someone since it's impossible to know what they are thinking. I'm only able to trust family and my 2 best friends. No...
    BeefStromi BeefStromi 18-21, M 1 Response Mar 16

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    I have a boyfriend who acts like a baby sometimes. When he gets sleepy or even out in public he talks and acts like a baby and sometimes it gets so annoying that I tell him and he...
    0misfit0 0misfit0 13-15, F Mar 16

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    Not sure what this means for my mental state but sometimes I feel overly optimistic and content with the actualities of reality, and others I have to gather up all my courage as to...
    misternobrain misternobrain 22-25, M 2 Responses Mar 16

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    If I had a father figure in my life I do believe that half the decisions I've made in my life would have never been made .
    goingplaces1 goingplaces1 22-25, M Mar 16

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    I'm thinking about it again. I feel I've done as much as I can. Seen enough. I dislike the life I've led and don't wish to continue knowing that it was a part of me. I don't feel...
    burrowbunni burrowbunni 18-21, F 2 Responses Mar 16

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    My parents came to my dormitory today ( which was wonderful, because it's been 2-3 weeks I haven't meet them ), and I told them about my AFS progress and they helped me with...
    Daydreamerneverfalls Daydreamerneverfalls 16-17, F Mar 16

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    I have a few close friends and someone special. ....I love it that way...
    4BlackForest 4BlackForest 36-40, F 3 Responses Mar 16