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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.ย  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    Related Experiences

    Thought I would share my story: I'm the eldest of three boys (both my brothers are healthy). Being the first born my parents had no experience of what to expect of a child's...
    Magpie62 Magpie62 31-35, M Oct 13

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    Or just one. Poorly diagnosed. My grandmother was misdiagnosed. So fear fills me. And heart attacks made research painful. Cigs may have caused them. Or seroquel...
    Livyn4pals Livyn4pals 46-50, M 1 Response Sep 24

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    This story is about the church I used to attend when I was a child. The incident supposedly occurred before my family joined the church in the 70's. So I'm not sure of the year...
    paclark paclark 31-35 5 hrs ago

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    I'd describe myself as a straight, in the closet , cross dresser. For years I used fancy dress parties as an excuse to dress up, and , to be honest , i've always had a thing about...
    donnaka donnaka 36-40 1 hr ago

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    London. I have a British London accent, and some words sound quite posh at times. Since I live in London and most of my friends have the accent, some friends from Israel, USA and...
    iiCHARLIii iiCHARLIii 13-15, F 2 Responses 6 hrs ago

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    Yes I do have a crush... on a friend who's older then me... around 15 years. I think she's beautiful, and I love her personality, so bubbly and happy... tho I know I can't have...
    theghostofsabotage theghostofsabotage 22-25, M 6 hrs ago

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    Yup. I think if you can't support them you shouldn't have kids. And if you do drugs then no you shouldn't have kids. If you can't be a responsible parent then no. I know people who...
    AzureTiger AzureTiger 18-21, F 2 Responses 5 hrs ago

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    It's kinda funny really. I'm an American living in Australia. So I have an accent here but bc I've been here so long when I talk to my family or go back home they also think I have...
    aquagrl aquagrl 31-35, F 2 Responses 4 hrs ago

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    Reds - a strong aura within the physical color group - approach life with gusto and courage, and have tremendous physical, emotional and spiritual energy. Reds are at their best...
    mohoganyred mohoganyred 41-45, M 1 Response 3 hrs ago

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    Being raised in Norway and moving to Canada, people noticed and pointed out my accent. Now, after living here for 4 years some still do, and some say I have no accent at all...
    lilysworld lilysworld 18-21, F 3 hrs ago

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    It's just been recently that I can even be around pregnant women without being awkward. The idea of growing a human was too much for me. However, everyone seems to be ready for me...
    meganbreck meganbreck 26-30, F 1 Response 2 hrs ago

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    It breaks my heart to see some scum who have kids and couldn't care less about them when there are some amazing people who physically can't have kids but would be amazing parents.
    thefurthestthing thefurthestthing 18-21, F 2 Responses 2 hrs ago

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    My dad didn't go to work and when I went over there today after school he didn't say anything he sat in the living room with nothing on it just looked down at the ground for like...
    sommer02 sommer02 16-17, F 26 mins ago

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    120 tokenssssss yeheeeeeyyy! have so much coin to buy a gift for christmas :P if your my friend... what gift do you want? select from the gifts :)
    ElizabethSwannTurner ElizabethSwannTurner 18-21, F 2 Responses 6 hrs ago

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    I have a role model named Tupac Shakur. Tbh his lyrics taught me more about life than my parents did (they simply put me in situations where I had to reach myself). Through all...
    gow90 gow90 18-21, M 6 hrs ago

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    I have some dark dirty secrets wish I had someone I could share with
    Dad4young Dad4young 41-45, M 1 Response 5 hrs ago

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    I have 2 tarantulas ..........
    Shesleepsatnight Shesleepsatnight 16-17, F 5 hrs ago

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    The colours of fall are really very suggestive. Maple trees and bushes with colorful shades of red make the sceneries in this season like a huge painted canvas. We have to enjoy it...
    Gallot Gallot 36-40, M 1 Response 5 hrs ago

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    I have gone bridge jumping. 30 feet or so, it was pretty fun. I'm not afraid of heights but my friend is and it was fun getting her to do too lol. Water felt great :)
    AzureTiger AzureTiger 18-21, F 4 hrs ago

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    Nina Poizen :) I don't have anything super cool uploaded xD Just a silly vid my sister and I made and one of my puppy, but if you wanna check it out, go ahead, I love making...
    NinaBunny NinaBunny 70+, F 4 hrs ago

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    I've had a lot of pets. Birds never suited me it seems. I had love birds for a while but gave them to an older lady who loved them. I've had some pets literally forced away out of...
    AzureTiger AzureTiger 18-21, F 1 Response 4 hrs ago

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    I am an Australian, both of my parents are english so I have a mix in between an Australia and a British accent.
    chlo3ann3 chlo3ann3 13-15, F 1 Response 3 hrs ago

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    If you have something to say that is mean, cruel or simply bad for others to hear. Keep quite, you'll live a happier life that way, unless you'd become a comedian. You could earn...
    Concerto Concerto 22-25, F 3 hrs ago

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    Him: "say, you look really familiar, have we met before? her: yeah, i work at the VD clinic"...
    AntonioV AntonioV 46-50, M 1 Response 3 hrs ago

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    Him: "Havent i seen you somewhere before?" Her; yeah, thats why i dont go there anymore"...
    AntonioV AntonioV 46-50, M 1 Response 3 hrs ago

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    Just saw two lesbians making out in a car outside the bar... would have been pretty hot if they both didn't look like Andy Milonakis. Yuck, no bueno! On a lighter note who's still...
    AreYouDaft25 AreYouDaft25 31-35, M 5 Responses 2 hrs ago

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    I had my first real gay experience with a good friend of mine when I was 17 and im now 24 and havent done anything since cause im not out at all.
    realredmist92 realredmist92 22-25, M 1 Response 2 hrs ago

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    Him: "wanna go to my place?" Her: "why? Do you have a good looking roommate?"
    AntonioV AntonioV 46-50, M 1 Response 2 hrs ago

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    Doesn't everyone have an accent?
    thefurthestthing thefurthestthing 18-21, F 2 hrs ago

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    I'd love to have the babysitter it's just so horny & so naughty alway been a massive fantasy
    tom1851 tom1851 46-50, M 1 hr ago

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    Up late can't sleep... Hurts to stand up move my arms lay down. I hate this disease. Tired of trying to be strong... Feeling alone... Tired of explaining what people who don't...
    MsAnonymous1 MsAnonymous1 18-21, F 1 Response 1 hr ago

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    I'm soo hapy my mom letting me say home๐Ÿ‘๐Ÿ™Œ๐Ÿ˜ but then again Ima have to make up all this missing work๐Ÿ˜ฉ๐Ÿ˜  so its a bitter sweet moment for me lol.
    footballQUEEN footballQUEEN 16-17, F 1 hr ago

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    I have many accents that come out just Involuntarily. I call it multiple nationality disorder (TM) afflicted with stunningly bad skills at Russian, French, English, Geordie...
    AsteriasAura AsteriasAura 36-40, F 1 hr ago

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    People say I have a southern accent which I hate
    KWsuperstar KWsuperstar 16-17, M 27 mins ago

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    Well, so I've been told! I workout regularly at a gym, and go to yoga, Pilates and dance classes almost every day. And I swim. You have to watch what you eat too. I don't mind...
    Skjeggstad Skjeggstad 22-25, F 1 Response Sep 23

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    hello this is my seventh story at E.P and in this i want to tell all my friends the greatest truth of my life yes i do have bladder exstrophy. i was born with this and had...
    Ahaanaa Ahaanaa 13-15, F 1 Response Sep 23

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    I have had depression since before I was twelve and every day it's a struggle to want to stay alive... Over nine years later.
    ComeXwhatXmay ComeXwhatXmay 18-21, F 1 Response Sep 23

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    Well lets see first off there are two guys, each perfect in their own special way and yet completely different. the first one, lets call him Bo, is smart and funny and weird. He's...
    INTPisMe INTPisMe 18-21, F 2 Responses Sep 23

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    Dad was laying in his hospital bed, he had been given enough medication to make him comfortable, he was mostly sleeping and although we could talk to him he didn't have the...
    Shamrock40 Shamrock40 36-40, M 1 Response Sep 23

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    I was molested when I was 6 by my baby sitters son. I was date raped twice. I have been physically and emotionally abused by a past boy friend. I never said a word to anyone. I hid...
    kc07 kc07 36-40, F 4 Responses Sep 23

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    It's turned it's tables. The stress from so so so many things have made me just not be able to swallow anymore. I taste. Spit.. I don't even want to binge anymore. But what's...
    skinfeeder skinfeeder 26-30 1 Response Sep 23

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    Okay.. I'm willing to skype with those people who wants somebody to listen to them .. Or if you have any problem.. I'll be your friend:)
    Toffee23 Toffee23 22-25, F 6 Responses Sep 23

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    Me and my girlfriend have maintained a very good relationship for the past years despite the difficulties and problems that cropped up. One of these problems has been my girlfriend...
    fireblastm fireblastm 26-30, M Sep 23

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    I have a bucketlist, stuff on that list include going gator hunting, skydiving, swimming with sharks and playing a prank so HUGE it'll become viral on YouTube, lol.
    TheRealSlimShady2001 TheRealSlimShady2001 13-15, F 2 Responses Sep 23

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    I'm A person who believes in big dreams and ideas. I'm a high school student from India. And i always had a dream of studying at the Cambridge University. i wanna go there for my...
    CuteButterflyGirl CuteButterflyGirl 13-15, F 1 Response Sep 23

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    I often wake up, realize my life sucks and have no good reason to get out of bed, and try to get right back sleep. I like dreaming too much, but at last my dreams are enjoyable.
    williamM92 williamM92 22-25, M Sep 23