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I Have Congenital Myopathy

A Congenital Myopathy anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenital Myopathy. You're not alone. 4 People

    Hypotonia - Congenital Myopathy

    Hi!....actually my daughter....she's was born with hypotonia....... since the doctor said that she is different.....i've been trying to be a positive mother . I've been going ups and down to the hospital...to every department.....for check ups.  They said that she is a...
    Dzana Dzana 36-40 2 Responses Aug 11, 2011

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    And I think I am the runner. It has been a while since we have spoken to each other. I wrote this a while ago. I was trying to convince myself I deserved my twin, but eventually I...
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    I'm worried that I might have too high standards or expectations for who I want to date. I haven't dated anyone yet and I always thought that when I got older I would find someone...
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    Ok so there is this guy, we'll call him adam. adam is super sweet and funny and we get along pretty well. we sit together at school sometimes and we have most of our classes...
    lalibrenner lalibrenner 16-17, F 1 hr ago

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    For the past year and a bit now I have recently discovered I have trichotillomania. I've always known what i've been doing and it's something I find incredibly hard to cope with...
    brooke108 brooke108 13-15, F 1 hr ago

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    I don't have cancer but i want to read your stories and realize how fragile life is and that each day is important because i have been unmotivated for a long time.
    Letsnotlabel Letsnotlabel 22-25, F 1 Response 3 hrs ago

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    I have gigantomastia and I love it so much. I'm a 34j and I have no back pain and I hope they grow way bigger.
    Addictedtocats Addictedtocats 18-21, F 2 Responses 2 hrs ago

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    Who wants to play some vidya? My PSN is: VodafoneSimCard. As of now, I only have GTA V and minecraft but i'm open to buying any game as long as I have someone to play it with
    Bankzy Bankzy 18-21, M 1 hr ago

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    When I went to bed last night. My wife turns to me and says - baby can you do me a favor? I said - what? She says- I have something in my ***, can you take it out. Got caught...
    MarriedMann MarriedMann 31-35, M 52 mins ago

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    I just realized I haven't crushed on someone in like a year. Wtf that doesn't feel normal
    akaShaun akaShaun 16-17, M 5 hrs ago

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    My whole extended family has shunned me. I was an awkward kid and never really interacted with my family and now they don't have the time of day for me. While attending my sister's...
    zarpanzur zarpanzur 26-30, M 5 hrs ago

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    The more days that go on it seems my mother is becoming her own version of my grandmother. Not the same but similarities. My grandmother was awful to my mother. Cold and unloving...
    1lonelydaisy 1lonelydaisy 41-45 5 hrs ago

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    whelp, I haven't had a night like this in about a week or so.. 3AM and i'm still awake because of the pain, the tremors, and not being able to lay down in bed because of how...
    PsychGirl94 PsychGirl94 18-21, F 1 Response 4 hrs ago

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    possible paranormal recording captured April 24 2015 at 'haunted' place of employment: The night of April 24 2015, I secretly did a cell phone recording where I work-a facility...
    shaandar shaandar 31-35, F 1 Response 3 hrs ago

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    I have a big secret no one except my boyfriend knows and it's tough to not tell people
    Zoellaphan Zoellaphan 16-17, F 2 hrs ago

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    If you don't read these and go against it then dont be surprised if you get blocked. 1. I have a wonderful boyfriend, someone I love and want to spend my life with, been together...
    DeathAngelS300 DeathAngelS300 18-21, F 1 Response 2 hrs ago

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    I have the same dream over and over nearly every time I go to sleep. Since September.... Someone I really care about that won't talk to me killing himself and its terrifying and I...
    AsCharleigh AsCharleigh 18-21, F 2 hrs ago

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    Hey thanks btw i have thing thing that i dont know what it is, its like im going to this place at night and geting raped Nd i get marks from me and thay message my mate but i...
    Lasbutterfly Lasbutterfly 16-17, F 1 hr ago

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    Thought for the day: Sometimes there is no next time...no timeout... no second chances... Sometimes it's now or never...Have a good day...
    AwesomeAlert AwesomeAlert 46-50, M 3 Responses 1 hr ago

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    So i will start this with the begging of my 11th grade. I had met this girl that i just absolutely adored and i was in love with her without telling her. I did drop a hint or two...
    mustafajudi1998 mustafajudi1998 16-17, M 1 hr ago

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    My heart has been teaching me lots of lessons lately. He's been in the spot light for awhile now by going through the roller coaster journey of his own. A while ago, exactly a...
    StrongWoman9 StrongWoman9 26-30, F 1 hr ago

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    I have crush on my friend but I think it's love...and many of my friends said that he likes me back because of the way he treated me..and we always stare at each other...but...
    aubrey016 aubrey016 16-17, F 1 Response 32 mins ago

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    I'm really sick right now but it's A day at my school, and all my classes are today (I have A day B day schedule). Please pray for me. ~.~
    fragilegirl6 fragilegirl6 13-15, F 28 mins ago

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    I'm so sick of people not working for what they have or getting every ******* thing handed to them..
    ForeverKittenn ForeverKittenn 13-15, F 1 Response 27 mins ago

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    Who else wants to have a chat??
    Annnastasia Annnastasia 18-21, F 1 Response 4 mins ago

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    I have never admitted this, ever. I have almost constant craving for sand. I've been keeping this a secret from everyone I've ever known since I was a child. I know it causes me...
    LilllyAnnne LilllyAnnne 22-25, F 2 Responses Mar 28

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    I was diagnosed in September 2015. over the years it's been firbromyalgia, restless legs, neck and back problems. This year was given a bisopy. I was positive for small fiber...
    jmjkpl jmjkpl 56-60, M Mar 28

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    I have an uncontrollable crush on a man 26 years older than myself. I am 21 he's 47.
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    Ok. So I have been having some pretty weird dreams. I don't remember the first dream because there have been a few but it's with this guy named Ben, I have no idea who he is in...
    Timbre4 Timbre4 16-17 1 Response Mar 28

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    What does it even mean to have a "broken heart"? Sounds silly. Firstly, your real heart pumps blood around the body for survival... It's not that mythical place in your chest that...
    missssyme missssyme 31-35, F 1 Response Mar 28

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    My dream is i'm wearing military clothing in a desert shooting at people as they run across the desert , in my dream i see camels and can feel the heat like i'm actually there and...
    Twinsdaddy Twinsdaddy 36-40 Mar 28

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    I have a morbid, inappropriate sense of humor... anyone else?
    sincerelysl sincerelysl 13-15, F 3 Responses Mar 28

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    Many of them are online....as in I have never even met them in person. I have a pretty strong connection with a couple of them, but nothing I would consider inappropriate. One is...
    TornSoul13 TornSoul13 36-40, M Mar 28

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    ... it leave the ordinary moments dull. Do you folks have this. Those sudden surge of supper happiness and when you are back to normal, it looks little dull for a while out of...
    xtaldart xtaldart 31-35, M 1 Response Mar 28

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    Apparently I do, at least that's what I hear whenever I talk to people through Skype calls. I think it's because it's deep and I have a unique accent having moved around a lot
    Procrastin8 Procrastin8 22-25, M 1 Response Mar 28

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    I have a deep need to be loved by remarkable people. I want intelligent, self possessed people to think that I am too.
    RebeccaJane00 RebeccaJane00 18-21, F 2 Responses Mar 28

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    My mom has a legitimate mental issue, my dad looks like he's slowly dying day by day, my older sister isn't around at all anymore, and my little sister is just doing her thing. My...
    anonamanda001 anonamanda001 18-21, F 3 Responses Mar 28

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    I'm 16 never had a girlfriend. I've hooked up with girls, but we just made out. I have trouble getting girls to like or notice me. The last girl I had a thing with broke my heart...
    skaterguy skaterguy 18-21, M Mar 28

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    Sometimes u wanna talk to someone specific and he or she shut u down every time u try to have a conversation with them 😔😁 sometimes we should listen cause we don't know if...
    dsardes dsardes 26-30, M Mar 28

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