I Have Congenitally Corrected Transposition of the Great Arteries

A Congenitally Corrected Transposition Of The Great Arteries anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Congenitally Corrected Transposition Of The Great Arteries. You're not alone. 65 People

    My Son Has Comgenitally Transposition Of Great Arteries

    My son was diagnosed as a baby because he wasnt putting weight on. He was sent to.alder hey childrens hospital where he had open heart surgery and a pulmenary band and pacemaker fitted he was five months old. Since then he been in and out for catheratisations and a replacement...
    barlowcres barlowcres
    36-40
    1 Response Oct 26, 2012

    Born Blue

      In 1977 I was born blue; later the doctors, after checking all the things that could be wrong, told my parents that I had TGA and I was going to die within a few hours. I was born in Canton, OH, but they "rushed" me by ambulance to Rainbow Babies...
    Nicholas28 Nicholas28
    31-35
    7 Responses Aug 25, 2009

    A Walking Miracle!

    It was discovered by accident, 18 months ago-Jan.'12 that our son, Chris, has CCTGA. He was a junior at Penn State Univ. and went into health services one day because he had a nasty cold and cough. They gave him an xray to determine if he had bronchitis or pneumonia. He had...
    Gale39 Gale39
    51-55, F
    Jun 27, 2013

    Unoperated Old Timer

         I am 49 years old and first learned that I have congenitally corrected transposition of the great arteries when I was 31.  It was quite a surprise to the doctors since I had always been very active and played both football and baseball in college...
    wally7 wally7
    46-50, M
    5 Responses Oct 13, 2009

    Finding My Way

    I have known of my TGA since I was a few weeks old. I never problems until i was 15 then I had to stop playing sports in school. After that I keep going to the Dr. and things was fine. When I was 20 I stopped going to the doctor until I 29 and it had got worse. Now with my...
    ames33 ames33
    31-35, M
    2 Responses Jun 14, 2010

    Hope

    My husband is about to turn 25 and has transposition of the great arteries, I'm not sure which kind. He had his first procedure done when he was 2 months old. He survived the experimental surgery and his parents moved to Mexico for bussiness reasons. When he was 11 yrs old he...
    ahicsamuniz ahicsamuniz
    26-30
    11 Responses Jul 28, 2011

    42 Fit And Health.

    I was diagnosed at birth, and aside from always being on the slim side (which believe it or not I rather dislike) I never encountered any problems. I had 3 children all normal deliveries and continued to have no problems until 2007 when I was rushed to hospital suffering from SVT...
    drumkit drumkit
    41-45
    1 Response Apr 29, 2012

    Asymptomatic, Unmedicated, And Unoperated

    I was diagnosed shortly after birth in 1967. I also have 1st degree heart block, a very small ASD 1:1.1 regurg, a VSD that self corrected sometime before my third birthday, malformed valves, esp the tricuspid, infindibular pulmonic stenosis, and 38mm across the gradient. I have...
    bellfisher bellfisher
    41-45
    1 Response Feb 14, 2012

    My Son

    My son was born with congenitally corrected transposition of the great vessels. He was diagnosed before he was born due to a heart condition found in my older son. I was lucky enough to get the time to get use to the idea of having a child with this condition.  Don't get...
    MOMOFABACKWARDSHEART MOMOFABACKWARDSHEART
    31-35, F
    1 Response Feb 16, 2010

    Dating Someone With Tga

    Hi all- I am looking for some advice from those of you who have TGA. My boyfriend (almost age 28) has TGA; we've been dating for about 15 months, and later on this week, I am accompanying him to his yearly cardio appointment at Mayo. This will be my first visit, with him, to...
    TGVgirlfriend TGVgirlfriend
    26-30, F
    8 Responses Apr 11, 2010

    Hello All...

    My name is Brandon, I have lived with ctga and coarctation my whole life. I have had 1 major open heart surgery a day after I was born. I was closely monitored for all my life till I was about 22. I have been able to live a completely normal life. I work in the construction field...
    brandonchaney brandonchaney
    31-35, M
    2 Responses Mar 2, 2013

    My 30 Year Old Husband Died Tga

    My husband actually came on this web site not to long ago and responded to some of your stories... Made me cry to see them. Jonathan Kanne, was born in 1981 with Transposition of the Great Vessels (Arteries). He had the Mustered procedure done (Fail) when he was a day or two...
    hollyhud hollyhud
    22-25, F
    1 Response May 14, 2012

    You Can Live To A "Ripe Old Age"

    My name is Kenneth Lawson, I was born in 1961, in Jamestown Ny. I am believed to be the first in the US to survive TGA and the Mustard Procedure. I had my surgery in May of '63 at childrens hospital, Buffalo NY. At 52 I am thought to be the oldest in US. I Have done remarkably...
    kennethlawson kennethlawson
    51-55, M
    4 Responses Oct 5, 2013

    7 years old Son with CCTGA doing fine

    Hi everyone! Our son, Hasan was born with CCTGA. He is now MashaAllah, 6-1/2 years old with no complications/ further defects diagnosed to-date (last follow up carried out during the ongoing month-Jan 2012) . Had it not been for a minor infection leading to chest X-ray while...
    HasanTahir HasanTahir
    36-40, M
    2 Responses Jan 26, 2012

    Loves Life

    I was born in 1979 with tga...I had my first heart cath at 24 hrs old and then another at 10 months old....I had my mustard surgrey at 11 months old..at the age of 15 yrs old I had my first pacemaker put in..I am on my 2nd pacemker....the doctors told me i would never be able to...
    happygolucky79 happygolucky79
    31-35
    2 Responses Oct 28, 2010

    Should I consider dating someone with TGA?

    Hi all, I have recently met this great guy and I am just starting to get to know him but he has already told me that he has TGA. He is 41 years old and told me he hasn't been able to work for 2 years due to the condition. He also has a pacemaker and told me he has 2 artificial...
    LittleRedStuff LittleRedStuff
    36-40
    2 Responses Nov 1, 2014

    Unoperated Old Timer

         I am 49 years old and first learned that I have congenitally corrected transposition of the great arteries when I was 31.  It was quite a surprise to the doctors since I had always been very active and played both football and baseball in college...
    wally7 wally7
    46-50, M
    12 Responses Oct 13, 2009

    Living Normally...

    I am a 24 year old female who was born with TGA. I had surgery 2 hours after birth and then again 2 weeks later to be corrected as I was having further breathing complications. Throughout my years in school I did limit my sports, lifting things, etc. I started having some...
    orangesky929 orangesky929
    22-25, F
    3 Responses Nov 27, 2011

    Still Tickin

    My name is Bob, I will be 50 in May.  I have CCTGA . This Spring,  I will receive my 5th pacemaker, one ejected itself from my body, that was a 'pain' .  I was diagnosed at 38, hell all I had was a gut ache I couldn't shake off, finally had my Dad take me to the dr...
    firekracker61 firekracker61
    46-50
    3 Responses Feb 19, 2011

    Optimistic

    I am 34 years old and the was diagnosed with Complete Heart Block in March.  I had a pacemaker implanted in May and it was found that I had CCTGA.  My medical team is wonderful and very optimistic, but I am having a difficult time with the change in my life and am looking to...
    Maglio777 Maglio777
    31-35
    Jun 22, 2011

    Our "special" Heart Son

    My son was diagnosed at age 14 with Congenitally corrected transposition of the arteries.  He has often complained before this about how hard it was to do sports and how tired he would get.  No one ever caught on to the fact that he may have a cardiac condition...
    jww4566 jww4566
    41-45, F
    1 Response Mar 5, 2010

    Doing Great At 36...

    I found out I have L-TGA and situs inverses at the age of 32 after I became pregnant with my daughter. I have had no complications. I had a healthy daughter and then became pregnant with my son at 36. I now have two healthy children and have had no complications. I go to the...
    jyothiv jyothiv
    36-40
    Jan 8, 2012

    Hello

    Hi Im new here i also had transposition of the great artery a few hours after i was born.  Unfortunatly things are starting to go a bit down hill all started last september i was just chillin watching tv.  Then all of a sudden my heart started beating really fast ...
    Gaz85 Gaz85
    22-25, M
    3 Responses Oct 16, 2009

    hello, i had a transposition of great vessels

    within the first 2 months of my birth, im 24 now and they are still switched, i have been doing good so far. I went to the docs to run tests about 4 months ago, they said everything is running fine and i will continue to do test each year. i dont take any medications or anything...
    kreshkm kreshkm
    26-30, M
    2 Responses Jan 23, 2014

    Congenitally Corrected Transposition Of The Great Arteries

    I am a 40 year old female and have recently been diagnosed with ccTGA, it was a big shock to me but I always felt someting wasn't quite right, i was never able to run as a child, I get breathless really easily. I have recently had an MRI scan and am awaiting the results. My...
    Macysmum Macysmum
    41-45
    Oct 6, 2010

    Shock And Disillusionment!

    Hi, I am a 33 year old women who was born with the congential heart condition 'transposition of the greater arteries' ...I had mustard procedure done when i was just 18 months....I was led to believe that i had corrective surgery and would live a relatively normal healthy life...
    qe1979 qe1979
    31-35
    4 Responses Oct 27, 2011

    Living With Switched Arteries

    I was born in 1990 with Transposition of the Great Arteries/Vessels. I'm gonna be 22 years old in December. The main Arteries in my heart are still switched. I've had two surgeries. The first surgery was at 9 months, I was immediately taken to San Francisco University. There was...
    DecemberJ DecemberJ
    18-21, F
    4 Responses Nov 1, 2012
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