I Have Conversion Disorder

A Conversion Disorder anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Conversion Disorder. You're not alone. 144 People

    Conversion Disorder is what my doctors keep

    routing back to and have for the last 3 years now. I'm 38 years old and on SSDI. I won't go deeply into details, but my childhood (which I have difficulty remembering) wasn't great. I was abused mentally, physically, and sexually which has resulted in Anxiety, Depression, and...
    Longtail4711 Longtail4711
    36-40, T
    Mar 18, 2016

    Interesting Experience..hillarious....one To Tell The Grandbabies One Day

    So I was at the grocery store yesterday with my boyfriend and we were doing our monthly shopping trip. Now I normally use one of those fun little motorized carts around the store when we go but I decided not to because I always feel a sense of guilt being so young and using one...
    cookietiff2009 cookietiff2009
    26-30, F
    1 Response Oct 17, 2012

    Conversion Disorder

    I just got diagnosed with conversion disorder. But I have been suffering from it for 3 years. I lose all body function and callapes. Have cause my self concussions from falls. I also have violent panic attaks after losing. Body function. My whole body jerks and I get really tense...
    jl1978 jl1978
    36-40, T
    1 Response Sep 20, 2013

    Trouble Communicating

    I do not have any friends. I only have associates and family members. I have trouble letting people get close to me. I have been betrayed by the people that I felt were the closest to me outside of family. I have noticed that I always feel anxiety after I talk to people...
    redcomet redcomet
    26-30, F
    2 Responses Mar 21, 2013

    I was just diagnosed three days ago

    after a hospital admission with conversion disorder. I have had loss of feeling in my limbs, recall trouble and vision changes for two years. Two years ago I had a major episode and couldn't walk after I got really stressed at work. I was diagnosed then with Transverse...
    KariAnneSawyer KariAnneSawyer
    36-40, F
    1 Response Dec 28, 2013

    Soldiering On (a Veteran's Story)

    I joined the military in 2002. I remember that because no woman in my family ever did this. I was going to be the first woman in my family to step out of oklahoma and do things on my own. I was going to serve my country. I decided to go into the signal corp. My first duty station...
    bellessl bellessl
    26-30, F
    Aug 21, 2012

    I got diagnosed in 2011

    after nearly six years of various tests.My CD is deteriorating and getting harder by the week.I'm in Scotland,great Britain.Don't know of any other British people so far.I'm 42.wish doctors were more helpfully and understanding.
    dozey12 dozey12
    Mar 19, 2014

    I'm sixteen and my neurologist thinks I have

    conversion disorder. I just spent the last hour completely sobbing and screaming because I just feel like I've gone crazy. A couple months ago, I started having tremors and went to the dr. She said I was also hyperreflexic. A few days later, my balance became "off" and it...
    dotk97 dotk97
    18-21, F
    5 Responses Mar 21, 2014

    The Episodes: My Story...So Far

    It wasn’t supposed to happen. I was a happy, independent 23-year-old who had a lot going for her. One who had overcome the previous hardships in my life. I think one of the hardest things for me to accept was that I was still troubled by my past. I had worked too hard, too long...
    Maggiesstory Maggiesstory
    26-30, F
    1 Response Oct 12, 2013

    Trying To Help People, One Person At A Time

    My name's Kellie, I'm 19 years old, and I'm also a nursing student from central ohio. Awhile ago, I was looking up information about conversion disorders on youtube. There isn't a whole lot out there. So I've created a youtube channel dedicated to PNES and Conversion Disorders...
    Darbyguard Darbyguard
    18-21, F
    Apr 17, 2012

    So who even knew this was a thing?

    I've dealt with anxiety and panic disorder for probably 15 years, off and on. Then one day, I'm in the BK drive through, trying to order some food for my daughter who is in the backseat, and all of a sudden the strangest and most uncomfortable sensation washed over my body and...
    loresmom loresmom
    46-50, F
    Oct 25, 2015

    Does It Go Away?

    For the past two years not a day goes by that I don't have these seizures type symptoms. My whole body shakes, my arms and legs flail around, and my neck jerks around. They use to last around 18 hours a day. Seemed like I was either sleeping or shaking. Then I was prescribed...
    Loweprophyle Loweprophyle
    41-45, F
    4 Responses Oct 26, 2012

    Today at the colorvibe run,

    I told my mom I might have seizure - she said you better not. We will just let you drop and keep walking. And it's true.... I walked slower, my chest started to hurt, I started feeling droopy... And they walked faster and got farther away. Until I was all alone and had a...
    CatherineMorris CatherineMorris
    22-25, F
    1 Response Jun 6, 2015

    Fnd Hope

    I am a mother of 3 and a wife. I had what we call the ‘Big Bang’ July of 2008 which is the start of my quest to find answers. I had difficulty walking, fatigue and balance problems for several weeks leading up to the Big Bang. As I look back though…I have had several...
    fndhope fndhope
    1 Response Jul 23, 2012

    Im A Soon To Be Army Wife Who:s Soldier Has Ptsd And Just Wondering If Anyone Has Advice On How To Deal With It Or Knows Where Im Comeing From?

    26-30, F
    1 Response Dec 17, 2010

    I was diagnosed 3 weeks ago.

    I don't know what to do. I feel like I'm alone and no one understands. My dad thinks I'm faking it and my friends are afraid of me when I have an "episode"
    Kmferg0415 Kmferg0415
    22-25, F
    2 Responses Oct 10, 2014

    I don't quite have it set in stone

    as my diagnosis but that's what they are going with as of now and migraines. This all started when I was 16, I'm now 26. It's been hell, especially last summer where it got so bad that I was hospitalized twice and going there all the time. It just keeps getting worse. I've seen...
    strengthlovecourage strengthlovecourage
    26-30, F
    1 Response May 24, 2014

    Sometimes its really hard to talk,

    or control my hands enough to even text.. How do you cope with communicating? It's hard when people are angry at me and I can't explain either
    ashleyrose7809 ashleyrose7809
    26-30, F
    Dec 22, 2014

    I was just released from the hospital,

    and after 2 years of "fainting", numerous injuries, and uncountable hospital stays, I have been diagnosed with Conversion Disorder. I am still in the shell shock stage and have been told its just a new term for a nervous breakdown. The emotions I am feeling are insane. Any info...
    Caalegria3 Caalegria3
    26-30, F
    Aug 14, 2014

    Finding A Psychologist

    Is anyone out there having trouble finding a psychologist and psychiatrist willing to treat conversion disorder? I have both types of doctors, but I am only able to see them around six times a year due to my class schedule and the distance I have to travel to see them. All of the...
    redcomet redcomet
    26-30, F
    2 Responses Mar 1, 2013

    Have been diagnosed with conversion disorder

    for almost 5years.Have a 12yr old son I cant take care of.My mom takes care of both of us.Have been to doctors and ppl in the mental health field.Have had physical therapists and nothing from any of them in the way of a cure.what do I do now? Accept it or keep trying?
    JulieMedley JulieMedley
    41-45, F
    2 Responses Mar 18, 2014

    I have been dealing with this disorder

    since 2002. I recently ended up in the hospital with stroke-like symptoms (twisting of my mouth and right-side weakness). I am at home recovering but wish that there was a way to turn these episodes off. I get depressed and I feel alone sometimes. How do you all handle your...
    stresseD57 stresseD57
    56-60, F
    May 10, 2015

    I have a conversion disorder.

    It was diagnosed April of 2015 by Dr. Maa at the Denver Health Hospital. I have full body non-epileptic seizures. My seizures began in August of 2014, though I suspect this disorder has had its hold on me for a lot longer then that. As a teenager I had an issue with syncope and...
    CatherineMorris CatherineMorris
    22-25, F
    Jun 5, 2015

    My Life With CD

    Sorry for my random bable but I wasn't expecting to be asked to tell my story. The thought of this sets me off in a panic attack immediately. I call this my inconvenient truth because I have found that nothing good has ever come from talking about my situation. At 17 I found...
    Yvette2 Yvette2
    41-45, F
    Mar 1, 2013

    Its Been Awhile..:)

    Hello everyone, I know its been awhile but life has taken a firm grasp of me and I am enjoying the ride. I havent had an episode since early June and I try every day to make the most of that. I know they will return and thats ok , I think I have the tools now that even if they do...
    cookietiff2009 cookietiff2009
    26-30, F
    1 Response Sep 5, 2013
    KristinRivas KristinRivas
    31-35, F
    Jan 23, 2014

    does anyone have kids

    and have been dealing with this the whole time? how do you handle taking care of your child with the possibility of an attack lurking around every corner? how do you live your lives with going out in public and hanging with friends?
    stallins stallins
    31-35, T
    Mar 29, 2016

    Tired Of Being A Burden

    I am a 42 year old woman and I have been diagnosed with Conversion Disorder, although I am skeptical. The past two weeks have been filled with MS-like symptoms, difficulty walking, talking, sometimes even feeding myself, and I was i the hospital for five days, very humiliating to...
    Susan042 Susan042
    46-50, F
    Sep 9, 2013

    No official diagnosis yet

    but it most likely CD. I have had migraines for 3 years. About 3 months ago I 'passed out.' I really don't remember myself. Here is what I do remember from that morning. I woke up with upper back and jaw pain (took ibuprofen), then began my day. I started to cook my breakfast...
    Ajokd Ajokd
    41-45, F
    Mar 22, 2014

    The Walk

               Last night I went out with some friends and my boyfriend and I learned my limits.. After a brief argument with my boyfriend I decided I was going to walk the 4 blocks back home . It was midnight. The night was cold and windy. The wind felt like needles...
    cookietiff2009 cookietiff2009
    26-30, F
    3 Responses Dec 17, 2011

    Time To Cleanse Myself!!

    My conversion disorder started in 2008. I guess I should start from the beginning. I have experienced physical, sexual, and emotional abuse when I was 4-10 my older brother had to help watch me because my mom was a single mother. I suppose my brother hated me for that because he...
    Belladonna1982 Belladonna1982
    36-40, F
    1 Response Mar 24, 2013

    I was diagnosed with Conversion Disorder last

    April. It started when I confessed to my friend and parents about my severe depression. The stress and anxiety from saying it caused me to catch a virus. I started getting pains in my body but the doctor thought it was a virus so I brushed it off. Next week I went back to school...
    maggieluvsme maggieluvsme
    18-21, F
    Jan 27, 2014

    i wake up every morning unaware of

    where i am what day it is and unable to remember getting piercings and hair color i don't know where i work or if i work if i have a family or not. I'm living with conversion disorder. I have no memory of anything i sometimes forget how to tie my shoes or i don't remember how to...
    jjac1 jjac1
    18-21, F
    2 Responses Feb 22, 2014

    I was diagnosed with Conversion Disorder in

    June 2015. Sometimes I still don't believe it is real. Been through so much in life and it is so hard to open up. But believe me I have a story,a story to tell just gotta figure out where to start and who to trust.
    deleted deleted
    Dec 3, 2015

    can someone please listen to my story.

    I need to know I'm not alone. My entire life has been plagued by mental illness. at 20 years old i was diagnosed with panic disorder. i am now 26 and three months ago i was getting ready for work and started feeling very dizzy. It scared me so i went home and figured id be ok...
    bearnbu89 bearnbu89
    26-30, F
    1 Response Jan 13, 2016

    Hello, I have conversion disorder I don't know

    much about it and i would like to know how to help prevent my seizures, if anybody has information about it or has tips on how to prevent these please let me know!
    Animemetalgamerhelper77 Animemetalgamerhelper77
    18-21, F
    Oct 12, 2015

    Tonight, I have decided to reach out

    and find others like me. Others with Conversion Disorder. To this day, I still battle with the tics and tremors that made it so I quit high school. Don't worry, I have a triumphant story. I graduated. On time. With honors. But the memory of my two year self-induced hell sticks...
    bluestocking18 bluestocking18
    22-25, F
    Aug 19, 2014

    I have been diagnosed with conversion disorder

    last september. I am in high school, play water polo at a high level, and the combination of those 3 is killing me. The cause of the c.d. is when my best friend tried to kill herself (she is now in a psychiatric institution), knowing that my other friend cuts herself repeatedly...
    maar14 maar14
    18-21, F
    1 Response May 24, 2014

    I have been having seizures

    for almost a year now. I am 23 years old and I was just reciently diagnosed with CD. My mother has no idea what to do and I am completely baffled by the diagnosis. I dont even know where to start. I take medication for my seizures and nothing for my CD. I am in school to become...
    blackpearl0618 blackpearl0618
    26-30, F
    Oct 29, 2014

    Dealing With The Day To Day

    Wow, it has now been over a year since my episodes first arrived. There have been many ups and downs along the way. Every day is still a struggle but the struggle gets easier. I know what to expect now rather then being constantly frustrated by the unknown. My episodes are...
    cookietiff2009 cookietiff2009
    26-30, F
    1 Response Oct 15, 2012

    About a year or so ago I was officially

    diagnosed with a conversion disorder that I have been dealing with since I was about twenty four. It started with my face drooping to the point I sometimes look like a stroke victim, then came the seizures, then not being about to always use my arms or legs or walk, to so weak...
    babysnuggs babysnuggs
    41-45, F
    Mar 1, 2014

    When people find out I have a conversion

    disorder, after explaining what that means, they ask why I have a conversion disorder. I usually tell people that life is not always pretty and usually rather messy and that from child hood my survival instinct has demanded I just NOT deal with things like emotions. My brain...
    babysnuggs babysnuggs
    41-45, F
    Mar 2, 2014

    Never Thought I Would Use A Wheelchair

    My life has drastically changed 1 1/2 years ago. From a professional basketball player to a person who makes funny noises and can barely walk. Life if full of surprises... Good and bad.
    Boxonacorner Boxonacorner
    1 Response Feb 14, 2012

    Got Diagnosed With Conversion Disorder

    I have been batling this illness since 6 weeks into my pregnancy with my daughters, it is now nearly 3 years. I have impaired mobility, chronic pain, pins and needles on my legs, lackof feeling aswell as too much feeling which then results in more pain. Ive lost muscle on my legs...
    TaniaPhoenix TaniaPhoenix
    31-35, F
    3 Responses Sep 1, 2010
    ashleyrose7809 ashleyrose7809
    26-30, F
    Dec 22, 2014

    Ive been falling a lot more lately

    and sleep has been difficult i know I'm stressed no more than that im depressed and my actions may lead to reckless decisions and undoable consuquences.my body is the only one that can sense it and i hate cause it leaves me stuck helpless and more that knowing im betraying my...
    deleted deleted
    Sep 30, 2015

    I spent most of my life having typical medical

    issues but being able to do any kind of activity I wanted to. until, I was woke up one morning with seizures that were so hard they lifted me off the bed. I have been dealing with random pseudo seizures every day ever since January 2 of 2015 and I have a lawyer working on my...
    stallins stallins
    31-35, T
    Mar 19, 2016

    I've had conversion disorder

    for a few years now, and just a few days ago I found myself unable to speak for hours at a time. My girlfriend is able to translate my wild hand gestures and mouth movements, but I kinda fear the worst. I'm not letting it get me down though. I got through 18 hours of head...
    stripedcarnee stripedcarnee
    22-25, T
    Jan 17, 2016

    My Conversion Disorder Manifests Itself In Fits Of Collapsing And Partial Paralysis.

    I have struggled with conversion disorder since I was 16 years old, and I'm 27 now. My first big bout with it happened my junior year of high school. I had starred in the school musical and then landed the lead in the school play right after the musical was over. Finals were...
    ravelrygal ravelrygal
    31-35, F
    3 Responses May 5, 2013
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