I Have Conversion Disorder

A Conversion Disorder anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Conversion Disorder. You're not alone. 204 People

    Some doctors have said conversion disorder,

    it's hard for me to believe that this is possible; especially on days where my symptoms don't seem to match up with that possibility. Where just seems like there is more to it than that. Where I believe they just haven't found the answer. Then I consider making more appointments...
    desireemm desireemm
    41-45, F
    4 Responses Aug 13, 2015

    7 Falls 8 Recoveries

    Im so excited! I started school about a month ago and the support I get is mind blowing! I love it..... Get this!, I've become super close to a girl named Kendal. She understands me sooo well and can read my thoughts like a book. She has a lot of experience with special needs...
    infinity8887 infinity8887
    18-21, F
    1 Response May 4, 2012

    Cd? Help Please. Am I Going Crazy?

    About 5months ago, I woke up with tingling and numbness (like when your foot "falls asleep") from my waist down. I could not walk, and was in pain. My parents took me to the hospital, where I was seen and over the course of 3 days had an MRI with contrast, EMG, Evoke Potential...
    wannagetbetter wannagetbetter
    18-21, F
    1 Response Nov 6, 2011

    Conversion/somatization Disorder

    As a 14 year old girl, you would think I am just normal on the outside, but what is on the inside is the real mystery.  It all started back in February of 2009 when I had my accident.  I went skiing, and fell down the mountain, and came out of the ER with just a few...
    fullhousegrl222 fullhousegrl222
    13-15, F
    May 6, 2010

    My 11 Year Old Has Conversion Disorder And Is Blind

    My 11 year old daughter has been diagnosed with conversion disorder, she was diagnosed in July 2008. She had manyof the symptoms of conversion disorder, the not walking, not eating, notsocializing, etc. The biggest symptom that she had and this symptom is the onlyshe still has is...
    michelle1980 michelle1980
    3 Responses Feb 1, 2011

    Will Someone Please Relate?!

    In September of last year I woke up from a nap unable to swallow. I felt like my throat was very dry at first and I just kept drinking water although it was so tight. We took our kids to karate and during the class I began to sweat and break into a rash on my chest and face and...
    crystalmommy crystalmommy
    26-30, F
    4 Responses Feb 13, 2012

    Trying To Gain My Life Back From Conversion Disorder

    I am 24 and live in indiana. I was a healthy happy child and thought was all great. When I was 16, I was coming back from a softball game and I went unconcious and lathargic and went into seizures. When we got back to the school and ambulance rushed me to the hospital. I had a...
    softballplayer softballplayer
    1 Response Mar 22, 2012

    I was diagnosed with conversion disorder last

    November, and ever since then I still have no idea what to do about it. It's slowly been progressing since the sixth grade, and this Monday was supposed to be my first day of highschool, but my legs have become so weak I have no other choice than to do homeschooling. CD has...
    IvyBabbitt IvyBabbitt
    16-17, F
    2 Responses Aug 27, 2014

    I was in the Joplin Mo tornado four years ago.

    a few weeks after I was diagnosed with PTSD. one night around that time I started feeling weird. my speech became slurred, heart beat and blood pressure went up, and I had involuntary muscle movements. since then I've not been able to work and drive at times. An episode, as I...
    LynnD73 LynnD73
    1 Response Sep 2, 2015

    Affects my muscles making me move

    uncontrollably. Very difficult, painful at times, lots of exhaustion, major struggle living at this point. Can't drive, hardly can walk, take care of myself or anyone. It's hard to be married and my wife doesn't understand or tries avoiding me. It's a frustrating struggle.
    dja811213 dja811213
    36-40, M
    May 4, 2015

    I Have A Answer I Hate

    So in November i started lossin my sight and havin horrible vertigo . it progressivly got worse and finnaly my whole sight went out. Drs didnt know what was goin on then i saw a dr and he was worried and then he admitted me to a big hospitol. they thought it was a mass in my...
    rldcutie1 rldcutie1
    18-21, F
    1 Response Feb 24, 2012

    Disbelief Initially That Conversion Was The Answer

    In July 2008 I awoke with a pounding headache and the feeling as though I was walking in a dream. I began to get ready for work as normal. I suddenly felt very ill and vomitted. I made it outside to my car, but was very confused. I didn't remember where I was going or even how I...
    PNES2008 PNES2008
    36-40, F
    7 Responses Jan 26, 2010

    Cd For Years And Only Recently Diagnosed

    Hi all,I see that many people on here share the experience of CD and it feels extremely reassuring to know that we are not alone :)Mine started along the migraine spectrum with cluster migraines diagnosed in 2005 - 2006.  From then on I had hemi-plegics..and for the last two...
    Zaberstorm Zaberstorm
    2 Responses Mar 31, 2012

    How many of you are able to live alone?

    I'm a crossroad right now and new to this diagnosis and wondering if I should be making arrangements to live with family on a more permanent basis
    KariAnneSawyer KariAnneSawyer
    36-40, F
    1 Response Dec 29, 2013

    And Just Like That...

    When I was in my 20's (I'm 40 now) I began to have seizures.  Complete knock-out seizures apart from my hearing.  I could hear everything that went on around me, I just couldnt react to it.  These went on for a while with various anti-epileptic drugs which didnt...
    wokita wokita
    36-40, F
    3 Responses Sep 12, 2009

    can someone plz tell me what conversion order

    is? i keep seeing this group....
    deleted deleted
    2 Responses Sep 3, 2015

    Update On My 15 Yr Old

    We've exhausted every medical possibility except for very rare ones. Her psych doctor and therapist agree that it does indeed look like conversion disorder. After about 2-3 weeks of several episodes an hour she is some better. She now is down to probably three or four episodes...
    Worried4mydaughter Worried4mydaughter
    41-45, F
    2 Responses Apr 6, 2012


     It all started in government class, 4th hour. I had just run around the school track 5 times in fitness class, and my schools air conditioning was broken. I could tell my face was red with heat, so i went and sat next to the window with a fan in it. I looked out the window...
    codylover codylover
    3 Responses Nov 5, 2008

    I got diagnosed with CD about 6 months ago.

    . Previously to that I got a number of scans and tests and they all came up clear.. I have been receiving psychiatric help for the past 4 months and I am on mirttazapine and lyrica at the moment.. My symptoms have got generally worse over the last month or two ( eye sight blurry...
    aloe247 aloe247
    22-25, M
    1 Response Dec 6, 2014

    Is It Safe For Me And A Baby If I Choose To Have One!?

    I was diagnosed with CD 2yrs ago! It all started at work I passed out and then continued to do so about every day!! which then with in days of all this starting I became paralyzed on my right side (leg and arm) I was sent to many hospitals as the events kept progressing and the...
    SkCamp SkCamp
    26-30, F
    May 4, 2010

    Conversion Disorder Episodes

    I have had conversion disorder for 10 years...for about the first 8 years no doctor could diagnose it..it has been a very fustrating experience..I fall and tremors sometimes..when I fall I do pass out for about a split second...It affects my motor skills when I have an episode so...
    Arubagirl Arubagirl
    7 Responses May 19, 2009

    Non-epileptic Seizures

    I live in the uk. I am training to be a nurse. I have had symptoms of PTSD for many years and have suffered eating disorders and alcohol abuse etc. I finally thought i'd got my life together and am in my 2nd year of uni. I'm now 35 and female. The problem now is that i started...
    thininterupted thininterupted
    31-35, F
    2 Responses May 6, 2012

    My 9 year old son was diagnosed with CD last

    week - May 2014. It all started a week ago after he had a bad reaction to meds. He suffered from ADHD, OCD, Tics, Anxiety and Depression prior to this happening. He was neglected and abused by his birth mother. He is now suffering from CD with amnesia, weak legs (can't stand or...
    relliott relliott
    56-60, F
    1 Response May 12, 2014

    I was actually diagnosed 3 weeks ago,

    but the first time I had any problems was about 2 months ago. The first time I was sitting in the passenger seat of my stepmom's car running errands before I had to go to work, and we were going through the drive thru of a bank and I looked at her and told her I didn't feel good...
    Kmferg0415 Kmferg0415
    22-25, F
    2 Responses Oct 10, 2014

    My Story-including Recovery

    I had my first symptoms in the beginning of 2008.  It began when I was at work finishing up my lunch break.  I went to stand up to go back to work and I could not move my legs.  Luckily, I worked with my sister and our boss let her take me to the hospital instead...
    awakening87 awakening87
    22-25, F
    14 Responses Jun 28, 2009

    A Cruel Disorder....

    I have been diagnosed with conversion disorder 4 months ago...it is so good to know there are other people out there who are going through the same thing...it has affected my whole life and I have lost a lot of my independence through not been able to walk properly some days...
    kimmac40 kimmac40
    4 Responses Feb 10, 2012

    My Little Sister Has Cd

    just looking for help and support! My little sister (15 years old) has been diagnosed with conversion disorder. She's the only one so far in her school. It's affected her arms she shakes and has tourette like symptoms all day. It's lasted for about 2 months now. It's extremely...
    tai8404 tai8404
    6 Responses Apr 10, 2012

    Two long years of dealing with the following

    symptoms. Difficulty walking, stuttering, numbness on the entire left side, problems with balance, tremors and physical exhaustion. I've seen 4 neurologists, with MRIs and multiple tests they have found nothing wrong with me neurologically. With much investigation I came across...
    DaniSuzi DaniSuzi
    46-50, F
    2 Responses Jul 18, 2014

    3 yrs ago I woke up from a minor surgery

    paralyzed from the neck down, after 11 in Spine Rehab I was able to get most of my upper body mobility back with still some weakness and zero feeling in my hands. I was also diagnosed with a seizure disorder about 8 months ago after 3 yrs of being told I was faking it I was...
    deleted deleted
    Dec 13, 2015

    Who else has symptoms of pseudo seizures from

    this disorder? Or am I the only one?
    Katierose1995 Katierose1995
    22-25, F
    5 Responses Mar 4, 2014

    My Daughter Has Cd And Have Been Told Talk Therapy And Normalcy Is Key

    Our daughter was diagnosed with conversion disorder last week. For the past 3 weeks she has had spells of amnesia. She believes it is 2011 when she is in there and continues to revert back in childlike behavior the longer it goes. When she comes out she does not remember...
    eevans24 eevans24
    13-15, F
    2 Responses Apr 22, 2012

    I have been experiencing seizures

    for about 3-4 years now. They first started with a grand mal while I was at dinner on vacation with my best friend; and visiting family. I had several grand mal seizures that day from what I remember. They were pretty bad and took me a while to recover from feeling extremely...
    Minkous Minkous
    26-30, M
    Sep 10, 2015

    My Life With Conversion Disorder

    I was diagnosed with conversion disorder in January 2011  after I was admitted in hospital unable to walk for the second time in three months. originally I was suffering chronic pain from a lower disc problem I also had had suffered post natal depression after the birth of my...
    yolaz yolaz
    Jun 15, 2011

    My Recent Relapse of Conversion Disorder (cd)

    I suffered from a relapse in Conversion Disorder 3 weeks ago now. I am going 2 try and write a blog every day. It is classed as a mental illness although it presents itself as a physical illness. I am paralysed down my right side and have become mute again. I can manage to...
    8a7b6c 8a7b6c
    36-40, F
    8 Responses Sep 25, 2009

    Conversion Disorder Diagnosis For 16 Year Old Daughter

    My 16 year old daughter has just been diagnosed with Conversion Disorder. After 3 trips to the ER in 3 days and multiple tests including MRI and EEG this seems to be the direction we are going. Her symptoms came on within 15 minutes and it looked like she was having seizures...
    bkpreston bkpreston
    3 Responses Apr 1, 2012

    I Get So Scared

    KOLAP1973 KOLAP1973
    36-40, F
    2 Responses May 11, 2010

    I Hate This Diagonisis And Think My Husband And Doctors Are Crazy

    I don't know where to start.  I have been sick with stroke like symptoms for 2 & 1/2 years was diagnosed with hemiplegic migraine then about nine months ago the hemiplegia just kind of set in and started having blood pressure issues where the blood pressure would drop low...
    MoodyMom MoodyMom
    8 Responses May 14, 2010

    As I Lay Fighting

    I have been so stressed out this past week... One thing building on top of another. I can sense a seizure coming. It's right over my shoulder, and it's been that way for the past 11 hrs or so. I did learn that if I focus, andmeditate, I can postpone when my seizure will hit. I've...
    Darbyguard Darbyguard
    18-21, F
    3 Responses Apr 16, 2012

    Only Up From Here!

    My names is Amelia, I'm 16 years old. I was diagnosed with conversion disorder in 2010. My symptoms include siezures, dissociation, paralysis, 'stuck eyes', shut down zoning, and muscle stiffness. This illness turned my life upside down. The word 'normal' no longer exists in my...
    infinity8887 infinity8887
    18-21, F
    1 Response Apr 11, 2012

    My Daughter Has Conversion Disorder

    My daughter is 10 years old. She has recently been diagnosed with conversion disorder.  At first she could not speak.  A weak later, she could not walk.  Now, we have hearing loss, sight loss, fainting spells and seizures.  On our 2nd trip to a children's...
    twprivette twprivette
    36-40, F
    10 Responses Apr 14, 2010

    Can't Accept That My Son Has Cd...

    My 8 year old son was recently diagnosed with CD after 4 hospital stays and numerous medical tests. He has severe leg pain and numbness and has been using a walker and wheelchair for 6 weeks. I just can't seem to be able to accept this diagnosis! I am frustrated because my...
    akaD2 akaD2
    41-45, F
    8 Responses Apr 14, 2012

    I was told by my neurologist

    that I have CD about a year and a half ago because they couldn't find anything on my MRI. I think this is bullshit because this has been going on for nearly 8 years and has not gotten any better at all. I also have symptoms that you cannot "fake" such as vomiting and eyes...
    classAteam classAteam
    18-21, F
    2 Responses Sep 28, 2014

    My Life With Conversion Disorder

    My conversion disorder was just diagnosed 9 months ago, but it seems Ive had it for years. It started with little things like feeling I had twisted my ankle, wrist, finger, or somthing else. I called it phantom pain. Then 9 months ago my boyfriend and I broke up and it got to its...
    Kylagal Kylagal
    4 Responses May 5, 2012

    A Prisoner @ 28

    Hi, Im 28 years old and i was diagnosed with conversion disorder this august after being rushed to the hospital because my family thought i was having a stroke. After being poked and prodded for three days they found nothing they originally thought that it might be seizures...
    cookietiff2009 cookietiff2009
    26-30, F
    4 Responses Oct 21, 2011
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