I Have Cornelia De Lange Syndrome 1

A Cornelia De Lange Syndrome 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cornelia De Lange Syndrome 1. You're not alone.

    My Son's Story

    My son Justin was born on 11/02/1981. At that time very little was known of this syndrome and he did not recieve a diagnosis until he was 2 years old. When he was born he was a "term baby", but he only weighed 3lbs 6 ounces and was 17 inches long. We were told that...
    motherof motherof
    2 Responses Aug 6, 2009
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