A Cornelia De Lange Syndrome 1 anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Cornelia De Lange Syndrome 1. You're not alone.
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Members Sharing the Experience "I Have Cornelia De Lange Syndrome 1"
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This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- "But he found ways to do things we never thought he would do, he could hold a cup with hjis feet, he learned to color with his feet and was able to feed himself with a special spoon that we attached to his right limb, although he reliezed quick it was easier for him to be fed and would become frustrated and would stop and insist that we feed him..."
- "He was born without arms from the elbow down so this affected his ability to function higher in fine motor skills..."
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Check out this group's What Is It Like To Have Cornelia De Lange Syndrome 1 guide, where people with this experience share their tips and hints.
Members said this page is also related to:
Do You Have Cornelia De Lange Syndrome 1? , What is it like to Have Cornelia De Lange Syndrome 1? ,Have Cornelia De Lange Syndrome 1 personal stories, Have Cornelia De Lange Syndrome 1 personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
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