I Have Corticobasal Degeneration

A Corticobasal Degeneration anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Corticobasal Degeneration. You're not alone. 16 People

    My first hint that something wasn't right was

    walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made it to the gangway and had to stop and rest frequently. It continued for the rest of the cruise. I was a very active 58 yr. old female in very...
    NixEgirl NixEgirl
    4 Responses Sep 7, 2014

    My Grandma Kaye

    I just wanted to say how relieved I was to find other people who are going through this horrible disease. About five years ago, My grandma Kaye was diagnosed with corticobasal degeneration. No one in our family was too worried because it seemed like her symptoms were very mild...
    kalee19 kalee19
    22-25, F
    8 Responses Aug 6, 2013

    I Just Want To Talk About It...

    I just want to talk with others who have this, as I was diagnosed with it early this year. It freaks me out and my neurosurgeon will tell me that its symptoms are geared to the individual. Is anyone out there? Who also has this and wants to speak about it?
    1234now 1234now
    6 Responses Sep 17, 2012


    I was diagnosed about a year ago. I am on several medications. I have difficulty swallowing, use of left hand gone, imbalanace and speech difficulty. I am interested in relating to others with this same disease.
    helenshull1551 helenshull1551
    4 Responses Feb 14, 2011

    A Little Sad

    I have just lost my dad in june to this disease,and have been diagnose in january with the same thing. The first symptoms for me was chin and fingers tremors. Now my balance is poor,i have a lot of ******* and have memory problems.
    cassidy55 cassidy55
    3 Responses Sep 1, 2012

    I was diagnosed with this disease 2 years ago

    at the age of 64. I am very angry about this. I don't know what could have caused this; it came out of nowhere. I recently moved into a nursing home, but have my daughter close by for support. She helps me do things. I raised her to be such a good person. I have another...
    PP711 PP711
    1 Response Mar 3, 2015

    I was wondering if I could have any help

    regarding this disease. My grandad has this and is in his late 70's. My grandmother is carrying for him but struggling to do so and there is not much family living near them to help. He has had a number of treatment, from botox to drug treatment, with no success. They seem to...
    kim59741 kim59741
    18-21, F
    1 Response Apr 13, 2015
More Stories